RE: Hello All

[Guest guest]

I’m

a little late with this, but here are my 2 cents as another “old folks”.

I’ve had so many things wrong with my body for so many years. I

wasn’t diagnosed with the hep till 2003 although I’d probably had

it 25 years by then. They are just connecting so many extra-hepatic

manifestations to the hep now as they are studying it more. Sure, everything

that’s been wrong with me can happen to people without hep c, too, but I

can’t help but wonder if I’d have had an easier time medically if I’d

been diagnosed and treated sooner. I don’t dwell on it, that would

be a waste of time, but it’s food for thought.

I

am not afraid of ESLD for myself, I treated and cleared (Praise God),

but I do fear it for others. I know enough about it from others here and

outside the group to know that it is something that every person wants to avoid

if at all possible. Tx can be rough, but it is short term and a walk in

the park if you compare it to ESLD which is

forever if you can’t get a tp, which then has its own kind of problems

with anti-rejection meds and reinfection.

Tx

does tend to make us withdrawn, but we need contact with people who know what

we’re going through. If you’re thinking about tx, or just

diagnosed, ask questions, get educated, don’t stick your head in the sand

and pretend it will go away, because it won’t.

Suppose you were an

idiot. And suppose you were a member of Congress.... But then I

repeat myself.

-Mark Twain

Hello All

Deb honey, you've

said it for all of us " old folks " So did you, Mama Gail!

I haven't been posting much lately, haven't been feeling up to it but I'm here

reading every day & I had to put my 2 cents in.

Mama Gail is right, if I could have treated earlier, I would have but

when I was dx'd Interferon was it & I didn't respond. You know that

later I tried the same as Mama Gail & it didn't work for me either & I

was going to try the combo but wasn't allowed to cause I was already in ESLD.

Well, that was a few years back, I think I've had a pretty good run so far with

original equipment so it's time for the next step!

I'll be heading down to Toronto again on the 1st, this time for a few

days. A consult with the t p cardiologist & a special two part MRI plus,

the next day, a " definity " ultrasound. The G I wants to either

confirm or disprove the cancer dx. He says ( & I agree) that if the t

p is just because of the cancer dx, it'd be silly to do it if I don't

have cancer! I'm not sure if that's the only reason tho', I think the

condition of my liver has deteriorated over the past year or two.

I've been sooooo tired lately! Plus the edema is worse, my doc

doubled my diuretic dosage which has caused some massive leg cramps!

OWWWWWW. I'm such a wimp sometimes! Had an echo-cardiogram & a

lung function test last week & passed them both with flying colours for an

old broad ( & I do mean broad) Still kicking that dragon's ass after

all these years.

SpYke says Thanks to everyone for the b'day wishes (he does seem to

think it's only right that everyone worship at the shrine of Sir SpYke though)

Love you all,

SuZie & Sir SpYke the Entitiled, Lord of all he Surveys

[Guest guest]

I have read this over and over. I think my biggest worry for your hubby, CAN HE ADMIT WHEN HE NEEDS HELP. He has said he wont do anti-depressants. But once the chemicals of tx start working on his body, HE WILL BE A DIFFERENT PERSON. Physically, Mentally, as well as Emotionally. I Know. I went through treatment 2 times. AND watched my hubby go through it once. Also, I have wondered, does he realize that even if he does tx, the health problems don't just vanish.Someone once said to me that hep was like cancer, and if tx cured it, I would be ok. NOT!!!!!! It does not work the same way.He needs to know avoiding the hep, will NOT make things any different.d Re: Hello All

Hello to everybody,

I can't begin to imagine how any of you with HCV feels, including my hubby, so I don't know how to respond to many of your posts. I did stop reading for a while because I thought the bad news depressed me. And not having to think about it everyday, it seemed it might just go away. It didn't go away. I realized, not knowing is worse. And I know I'll need your support to help us get through this. Because he's not going to come on here and post. He doesn't want to know any more than what is necessary (that's what he told the dr yesterday), and I, on the other hand, want to learn as much as I can about this disease.

I think I'm more worried about the tx and it's sides than my husband is. I know it's not going to be a walk in the park, but maybe NOT KNOWING all the possible sides will make it a little easier for him.

All this past week, up until his appointment yesterday, I was feeling really weird and scared; had a couple of panic attacks worrying about everything. When the dr told us stage/grade, I kind of relaxed. I had imagined the worst; but God answered my prayers. I have a positive feeling about the outcome of his tx, I don't think I ever had any negative feelings about that.

I'm just rambling right now; I guess I should put the coffee cup down! I just want you all to know, I'm thankful you're here!

FEM

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

[Guest guest]

True to the letter.I want more saved or given more time for a cure and early treatment can do that.

Gail

-----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ]On Behalf Of MotleySent: April 20, 2008 6:16 AMTo: HepatitisCSupportGroupForDummies Subject: RE: Hello All

I’m a little late with this, but here are my 2 cents as another “old folks”. I’ve had so many things wrong with my body for so many years. I wasn’t diagnosed with the hep till 2003 although I’d probably had it 25 years by then. They are just connecting so many extra-hepatic manifestations to the hep now as they are studying it more. Sure, everything that’s been wrong with me can happen to people without hep c, too, but I can’t help but wonder if I’d have had an easier time medically if I’d been diagnosed and treated sooner. I don’t dwell on it, that would be a waste of time, but it’s food for thought.

I am not afraid of ESLD for myself, I treated and cleared (Praise God), but I do fear it for others. I know enough about it from others here and outside the group to know that it is something that every person wants to avoid if at all possible. Tx can be rough, but it is short term and a walk in the park if you compare it to ESLD which is forever if you can’t get a tp, which then has its own kind of problems with anti-rejection meds and reinfection.

Tx does tend to make us withdrawn, but we need contact with people who know what we’re going through. If you’re thinking about tx, or just diagnosed, ask questions, get educated, don’t stick your head in the sand and pretend it will go away, because it won’t.

Suppose you were an idiot. And suppose you were a member of Congress.... But then I repeat myself. -Mark Twain

-----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ] On Behalf Of suzieSent: Friday, April 18, 2008 10:52 PMTo: hepatitiscsupportgroupfordummies Subject: Hello All

Deb honey, you've said it for all of us "old folks" So did you, Mama Gail! I haven't been posting much lately, haven't been feeling up to it but I'm here reading every day & I had to put my 2 cents in. Mama Gail is right, if I could have treated earlier, I would have but when I was dx'd Interferon was it & I didn't respond. You know that later I tried the same as Mama Gail & it didn't work for me either & I was going to try the combo but wasn't allowed to cause I was already in ESLD. Well, that was a few years back, I think I've had a pretty good run so far with original equipment so it's time for the next step! I'll be heading down to Toronto again on the 1st, this time for a few days. A consult with the t p cardiologist & a special two part MRI plus, the next day, a "definity" ultrasound. The G I wants to either confirm or disprove the cancer dx. He says ( & I agree) that if the t p is just because of the cancer dx, it'd be silly to do it if I don't have cancer! I'm not sure if that's the only reason tho', I think the condition of my liver has deteriorated over the past year or two. I've been sooooo tired lately! Plus the edema is worse, my doc doubled my diuretic dosage which has caused some massive leg cramps! OWWWWWW. I'm such a wimp sometimes! Had an echo-cardiogram & a lung function test last week & passed them both with flying colours for an old broad ( & I do mean broad) Still kicking that dragon's ass after all these years. SpYke says Thanks to everyone for the b'day wishes (he does seem to think it's only right that everyone worship at the shrine of Sir SpYke though)Love you all,SuZie & Sir SpYke the Entitiled, Lord of all he Surveys

[Guest guest]

Hi there my fellow New Yorker! =) My liver biopsy sucked big

time...but the other 2 that had the procedure the same morning had no

problems at all. Make sure that they give you the happy juice

first! It's just one of those steps down the long path to wellness.

Carleen

>

> Hey guys:

>

> in NYC here.

>

> Tomorrow is my first appointment with the specialist. Wish me luck!

>

> He's probably going to tell my I have to get a liver biopsy. The

> thought of that gives me a case of the willies. so badly.

>

> I'm sure you've all been through it before, any messages that it is

not

> bad would be greatly appreciated.

>

> Hope is everyone is well.

>

> T

>