Guest guest Posted December 11, 2001 Report Share Posted December 11, 2001 Ilene, Practically a Greek tragedy...is there a line-up we can consult to keep the players straight? :-) Was there an enabler in your dealings with nada? Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2001 Report Share Posted December 11, 2001 Ilene, Practically a Greek tragedy...is there a line-up we can consult to keep the players straight? :-) Was there an enabler in your dealings with nada? Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2001 Report Share Posted December 11, 2001 Ilene, Practically a Greek tragedy...is there a line-up we can consult to keep the players straight? :-) Was there an enabler in your dealings with nada? Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2002 Report Share Posted September 20, 2002 I will keep your dad in my prayers and the rest of your family as well, Shirley >From: PLUMBERETTE@... >Reply-To: LBDcaregivers >To: LBDcaregivers >Subject: my dad >Date: Thu, 19 Sep 2002 22:10:23 EDT > >I just got the news. He has colon cancer. They think they can remove it and >will do surgery on Monday or Tuesday. They are running a CT scan tomorrow >to >check for any other complications. I guess now we just wait to see how it >goes. My sister says he is in good spirits and the nurses all love him. My >Mom is mad at me for sending her so many e-mails about nursing homes and >forwarding some from this group for her to read. She'll have to get over >it. >I think he is in good spirits because there are people around caring for >him. >They are very isolated in the small rural town where they live. I'll keep >you >posted. I've been reading all of the postings and trying to follow >everybody. > in Florida (where they still can't hold a proper election) _________________________________________________________________ MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2002 Report Share Posted September 20, 2002 , I am sorry to hear about the cancer. I hope the surgery is successful and I wish you and your family the best. You will be in my prayers. Take care and keep us posted. my dad I just got the news. He has colon cancer. They think they can remove it and will do surgery on Monday or Tuesday. They are running a CT scan tomorrow to check for any other complications. I guess now we just wait to see how it goes. My sister says he is in good spirits and the nurses all love him. My Mom is mad at me for sending her so many e-mails about nursing homes and forwarding some from this group for her to read. She'll have to get over it. I think he is in good spirits because there are people around caring for him. They are very isolated in the small rural town where they live. I'll keep you posted. I've been reading all of the postings and trying to follow everybody. in Florida (where they still can't hold a proper election) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2002 Report Share Posted September 20, 2002 , I am sorry to hear about the cancer. I hope the surgery is successful and I wish you and your family the best. You will be in my prayers. Take care and keep us posted. my dad I just got the news. He has colon cancer. They think they can remove it and will do surgery on Monday or Tuesday. They are running a CT scan tomorrow to check for any other complications. I guess now we just wait to see how it goes. My sister says he is in good spirits and the nurses all love him. My Mom is mad at me for sending her so many e-mails about nursing homes and forwarding some from this group for her to read. She'll have to get over it. I think he is in good spirits because there are people around caring for him. They are very isolated in the small rural town where they live. I'll keep you posted. I've been reading all of the postings and trying to follow everybody. in Florida (where they still can't hold a proper election) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2002 Report Share Posted September 20, 2002 in FL Thank you so much for passing along the test results. Sounds positive that surgery can help. Also sounds like your mom may be struggling with acceptance. That is another prayer to lift up for her. Also, I appreciated your comment of " where they still can't old an election " .....hehehehehe, thanks for the smile. Sandie Des Moines, IA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2002 Report Share Posted September 20, 2002 in FL Thank you so much for passing along the test results. Sounds positive that surgery can help. Also sounds like your mom may be struggling with acceptance. That is another prayer to lift up for her. Also, I appreciated your comment of " where they still can't old an election " .....hehehehehe, thanks for the smile. Sandie Des Moines, IA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2002 Report Share Posted September 20, 2002 >I think he is in good spirits because there are people around caring >for him. his attitude is half the battle I pray everything goes smoothly. Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2002 Report Share Posted September 23, 2002 , Please excuse my obtuseness and supposed insensitivity (I'm not), but will there really be any benefit from what your dad has to experience from the colon cancer surgery? I ask because a) the anesthesia will probably worsen the LBD and what does he really have to live for with the LBD? Sorry - I do NOT mean to sound so cruel, but these are issues that we face, even us spouses. Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2002 Report Share Posted September 23, 2002 Cheryl, I would tend to agree with your sentiments. In fact, it might be more merciful to go with cancer than LBD. IMHO. God bless you ALL! Pat LewyLady@... wrote: > , > Please excuse my obtuseness and supposed insensitivity (I'm not), but will > there really be any benefit from what your dad has to experience from the > colon cancer surgery? I ask because a) the anesthesia will probably worsen > the LBD and what does he really have to live for with the LBD? Sorry - I > do NOT mean to sound so cruel, but these are issues that we face, even us > spouses. > Cheryl > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2002 Report Share Posted September 23, 2002 <PRE>Those are real questions. He is " oozing and quite a mess " according to my mother. The doctors say it is his lower intestine and they think they can get all the cancer out and put him back together just fine. He was just starting to respond well to the meds and be more coherent. I have not seen him since July 2001. I kept saying I was going to go this summer and I never did. I am right now dealing with the fact that I haven't gone to see him, and he could just as easily die in surgery tomorrow. I don't think I ever really came to grips with his illness. Starting my own business, in this economy no less, served as a good excuse to keep me busy and not thinking about it. Basic Survival is one thing that can block out a lot of other stuff. If that sounds bad, the way the rest of my family is dealing with it is even worse. We're a pretty dysfunctional bunch. As for the surgery, what has he got to lose? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2002 Report Share Posted September 24, 2002 I will keep you close in my thoughts and prayers today as your dad has his surgery. Hang tough!! Sandie Des Moines, IA ~ where I am sharing the same Iowa air as your mom and dad.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2002 Report Share Posted September 24, 2002 , I will be praying for your dad today, Shirley _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2002 Report Share Posted September 24, 2002 This disease takes time to " adjust and understand " . My family was in denial for a while. Kept trying to think of other things it " had " to be. Don't beat yourself up too much for being human. I know it is hard to see our loved ones in a different shape then we are acclimated to. When my dad had his heart surgery, I was so scared to go see him. Mixed feelings I guess. Fear can really play a number on you. I will keep you in my thoughts and prayers. Take care and please let us know how he does after surgery. Re: my dad <PRE>Those are real questions. He is " oozing and quite a mess " according to my mother. The doctors say it is his lower intestine and they think they can get all the cancer out and put him back together just fine. He was just starting to respond well to the meds and be more coherent. I have not seen him since July 2001. I kept saying I was going to go this summer and I never did. I am right now dealing with the fact that I haven't gone to see him, and he could just as easily die in surgery tomorrow. I don't think I ever really came to grips with his illness. Starting my own business, in this economy no less, served as a good excuse to keep me busy and not thinking about it. Basic Survival is one thing that can block out a lot of other stuff. If that sounds bad, the way the rest of my family is dealing with it is even worse. We're a pretty dysfunctional bunch. As for the surgery, what has he got to lose? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2002 Report Share Posted September 24, 2002 I don't think it bad that you have to focus on basic survival at all!! Been known to use it myself - for real. Coming from a dysfunctional myself I can relate. What does he have to lose with the surgery? My thought was really about how many dementia patients don't come out of the anesthesia well - extended periods of confusion from which some never return. And LBD being what it is, that can be pretty awful. LBDers are also highly sensitive to many medications. I guess it's about which aspect of quality of life one looks at. I hope your dad came through well today and that your mom is managing alright. If she has a computer, there is a site for spouses of LBD patients. All the best to you and your folks, Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2002 Report Share Posted November 16, 2002 Group Just reading some of the posts and wanted to pass along that my dad never did have any tremors. He had all the rest of the Parkinsons symptoms...gait, stiffness and rigidity, problems swallowing, balance off, freezing in doorways...just never had the tremors. In fact our neurologist said with the classic LBD one way to diagnose is there is no tremor. Also, I know that some of the information on line states that as well. Just amazes me how many in this group have the tremor and how some even shake about uncontrolably. As Dennis mentioned, the meds. seemed to stop working for my dad in the end. Yet when we stopped them he had a peace about him. His movements became slowed and sure. For what its worth, I am convinced it was all in the power of prayer. Also, my dad was unable to talk, had not said my name for quite a long time yet he followed conversations with his eyes. Again, those who have been here a while know my dad had the " big blue eyes " and he seemed to be in the conversation with his eyes. I do know he knew who we were as he reacted to us (my brother and I). It just seems all so weird that he is gone....hmmmm. My heart goes out to the group for those who are still are still travelling down the LBD path. Many prayers are being lifted up in your names and for your loved ones. Love to all~ Sandie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2002 Report Share Posted November 17, 2002 Kim, Mariea, and Peg Apparently my dad had whooping cough often as a baby. So bad he would quit breathing, and at times have seizures. This whole thing just baffles me, and gets my brain spinning in all directions trying to find out a common beginning. Saying prayers for all of you...and special ones for you Peg, tomorrow, as you move Wilbur. Sandie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2002 Report Share Posted December 2, 2002 Hi Diane, that is my middle name and what I go by at home. I too wanted to know what the end was like because last week when Mom wouldn't quit jabbering I asked the doctor if that was the beginning of the end. He said no. That at the end, they sleep and sleep and sleep and have trouble breathing. When that happens you know the end could be near. I hope this helps. Sheila > I am thankful that there is a place for family members who are > struggling with a loved one with LBD. I live in Canada, and my > father was taken to Rochester to be diagnosed, as there seems to be a > lack of understanding in Canada about LBD. Since then, I have been > trying to find as much information as I can for my mother to perhaps > assist her with some understanding. They live on a small acerage, > and have always kept to themselves. Now, it is hard for her, as I am > sure you all know, when he has bad days, and they seem to be getting > more and more. > > I do have a few questions, some of them very difficult, but would > like to know if anyone can answer them for me. My father has had the > symptoms for 6 - 7 years now. I have read that this seems to be the > time span before passing, however, wonder if there is an update on > this. I am not sure of the name of the drugs he is on currently, > however, would like to know if someone can tell me, what happens in > the end? What actually takes the life? My mom would really like to > know as well. > > Thanks, and if no one minds, I will have more questions. Good Luck > to all of you, and yours > > Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2002 Report Share Posted December 2, 2002 Hi Diane, that is my middle name and what I go by at home. I too wanted to know what the end was like because last week when Mom wouldn't quit jabbering I asked the doctor if that was the beginning of the end. He said no. That at the end, they sleep and sleep and sleep and have trouble breathing. When that happens you know the end could be near. I hope this helps. Sheila > I am thankful that there is a place for family members who are > struggling with a loved one with LBD. I live in Canada, and my > father was taken to Rochester to be diagnosed, as there seems to be a > lack of understanding in Canada about LBD. Since then, I have been > trying to find as much information as I can for my mother to perhaps > assist her with some understanding. They live on a small acerage, > and have always kept to themselves. Now, it is hard for her, as I am > sure you all know, when he has bad days, and they seem to be getting > more and more. > > I do have a few questions, some of them very difficult, but would > like to know if anyone can answer them for me. My father has had the > symptoms for 6 - 7 years now. I have read that this seems to be the > time span before passing, however, wonder if there is an update on > this. I am not sure of the name of the drugs he is on currently, > however, would like to know if someone can tell me, what happens in > the end? What actually takes the life? My mom would really like to > know as well. > > Thanks, and if no one minds, I will have more questions. Good Luck > to all of you, and yours > > Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2002 Report Share Posted December 2, 2002 The end wasn't like I had pictured at all for my dad. He didn't fit any explanation that I had heard or read. He was up the day before he passed away. He had used the restroom, of which he had not done for over a month. The Friday he passed, he was awake, and alert. I was not there, but was fortunate to have someone we know there with him, as his nurse. She said she asked, at times, if he wanted to get up and he would say no. Finally, while she was in his room, he turned to her, looked at her, shut his eyes, and went to sleep to forever rest in peace. Hmmm, it is so true that this disease has no specific path it takes. Sandie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2002 Report Share Posted December 2, 2002 The end wasn't like I had pictured at all for my dad. He didn't fit any explanation that I had heard or read. He was up the day before he passed away. He had used the restroom, of which he had not done for over a month. The Friday he passed, he was awake, and alert. I was not there, but was fortunate to have someone we know there with him, as his nurse. She said she asked, at times, if he wanted to get up and he would say no. Finally, while she was in his room, he turned to her, looked at her, shut his eyes, and went to sleep to forever rest in peace. Hmmm, it is so true that this disease has no specific path it takes. Sandie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2002 Report Share Posted December 3, 2002 In a message dated 12/03/02 6:41:45 AM Central Standard Time, sanclown@... writes: > . He was definately different than he had been all > along. Dad has been different for months now. Seems like more than that. As of yesterday his weight is now 92 lb. Had clear eyes yesterday and ate a small portion of food and a large amount of ice cream for me. Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2002 Report Share Posted December 3, 2002 Diane, Before Mom died, she had almost 2 months of " worse than usual " time. It seemed very clear to me we were in the last stretch, although there are really less specifics. She had thrush, wasn't eating and drinking as well as usual, could hardly hold her body up while sitting in a wheel chair. She hadn't been one to stay in bed much and wanted to stay in bed/go to bed for much more of the day. With the thrush, her breathing did get worse. And she slept in an incline position most of the time. I remember thinking so often during the 4 years she was with me and in the nh, " is this it? " Looking back, I think that was mostly hopeful thinking and lack of knowledge of death. Death is pretty clear when you get real close to it. I didn't wonder, but pretty much KNEW we were on the very last leg of the journey. I couldn't have said how long it would take, but I had no problem calling in hospice. So if your Mom is wondering, I guess I am saying, she might be doing the same hopeful thinking I was doing. She will KNOW when death is at the doorstep. Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2002 Report Share Posted December 3, 2002 Donna You have explained exactly what I would've concerning the end days of my dad. During the last 2 1/2 yrs it seemed we had many close calls, times when I would have thought dad was going to die. Then, as you said, during those last 2 weeks, I just knew. I was preparing my dad and I for what was ahead. He was definately different than he had been all along. His breathing became gurgled, his arms and hands seemed to curl up, yet he was still awake and alert. He just seemed to have a certain peace about him. He was so thin, yet his eyes were bigger than life. sigh.... Sandie Quote Link to comment Share on other sites More sharing options...
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