Re: So much I want to say...

[Guest guest]

Penny, I never got headaches, the one thing I heeded

very carefully was to drink enough filtered or bottled water

every single day, 1/2 ounce of water for every pound of body weight..

Best to you!

Sheena

I've been reading all the posts...there are so many! There's so much I want to say and don't know where to begin. I'm rather new here. I posted a couple of times. I had a liver transplant on January 6, 2008, and I still have to be treated for the Hep C. I should be starting it next week or the week after. My coordinator will let me know for sure sometime this week. I've read where some people have had bad headaches from treatment. I don't like that since I get migraines, but they aren't too bad anymore. I don't want any more headaches. I think I already responded about the developing of diabetes is completely normal after transplant. My glucose levels went back to normal before getting out of the hospital but had to have insulin shots in the hospital after transplant. Yes, the tremors are very normal too until they get your anti rejection drugs at just the right dosage. I shook so bad I

couldn't hardly sign my release papers before going home from the hospital. Where I had my transplant, we (patients) were required to attend classes every day while in the hospital after transplant to teach us all about all the side effects, what our lab results mean, what all the meds do, etc. I was very well informed. Before my transplant during evaluation, they didn't test me for alcohol or drugs. I get all my lab results and doctors reports...have for years, and still do every week. I have labs done every Monday, but occasionally go two weeks. I have been doing very well since the transplant, and I didn't have much pain from the transplant either. My back just hurt probably from them manhandling me on the operating table...lol. I was black and blue all over my arms, abdomen, back, and butt after surgery. I looked like I was in a war! LOL I have had two liver biopsies since

transplant. The first was to see if the Hep C was affecting my new liver, and the second was because my liver numbers shot way up. The liver numbers shot up after I popped cartlidge in my rib cage after turning wrong. They tested my thyroid a few weeks ago in preparation for starting treatment, and it was out of whack...high. Then they tested it again about 3 weeks later, and it was back to normal. Does anyone know why that may have happened? They told me my thyroid must be normal before starting treatment.Oh, about herbs. I was taking an herbal supplement called AHCC that boosted my immune system for 3 years before my transplant, and my viral load came way down (my viral load was never very high to begin with), but I didn't start it until after I already had cirrhosis. The doctors think, but don't know for sure, that it may have caused my liver to fail quicker. I have a friend who has

Hep C and cirrhosis and she takes the AHCC, and her liver is in pretty good shape besides the early cirrhosis, and she's had Hep C longer than me. She's the one who turned me onto the AHCC. My gastro put me on milk thistle before my transplant, but it didn't agree with me. Even herbal tea makes me feel weird, not right. Herbs don't get along with my body, I don't think.Sorry, this is so long. I just had a lot that I wanted to say after reading posts. I hope once I start treatment I'll be able to be on here to get more help. I've never done treatment before.Thanks for listening (reading).Penny

[Guest guest]

Sheena, I did that too and hardly ever had a headache,, it really DOES help with the sides,, most people have a hard time believing that until they get just a bit dehydrated,, and find out how truely awful they do feel, then they dont miss drinking enough water again!Jackie

I've been reading all the posts...there are so many! There's so much I want to say and don't know where to begin. I'm rather new here. I posted a couple of times. I had a liver transplant on January 6, 2008, and I still have to be treated for the Hep C. I should be starting it next week or the week after. My coordinator will let me know for sure sometime this week. I've read where some people have had bad headaches from treatment. I don't like that since I get migraines, but they aren't too bad anymore. I don't want any more headaches. I think I already responded about the developing of diabetes is completely normal after transplant. My glucose levels went back to normal before getting out of the hospital but had to have insulin shots in the hospital after transplant. Yes, the tremors are very normal too until they get your anti rejection drugs at just the right dosage. I shook so bad I

couldn't hardly sign my release papers before going home from the hospital. Where I had my transplant, we (patients) were required to attend classes every day while in the hospital after transplant to teach us all about all the side effects, what our lab results mean, what all the meds do, etc. I was very well informed. Before my transplant during evaluation, they didn't test me for alcohol or drugs. I get all my lab results and doctors reports...have for years, and still do every week. I have labs done every Monday, but occasionally go two weeks. I have been doing very well since the transplant, and I didn't have much pain from the transplant either. My back just hurt probably from them manhandling me on the operating table...lol. I was black and blue all over my arms, abdomen, back, and butt after surgery. I looked like I was in a war! LOL I have had two liver biopsies since

transplant. The first was to see if the Hep C was affecting my new liver, and the second was because my liver numbers shot way up. The liver numbers shot up after I popped cartlidge in my rib cage after turning wrong. They tested my thyroid a few weeks ago in preparation for starting treatment, and it was out of whack...high. Then they tested it again about 3 weeks later, and it was back to normal. Does anyone know why that may have happened? They told me my thyroid must be normal before starting treatment.Oh, about herbs. I was taking an herbal supplement called AHCC that boosted my immune system for 3 years before my transplant, and my viral load came way down (my viral load was never very high to begin with), but I didn't start it until after I already had cirrhosis. The doctors think, but don't know for sure, that it may have caused my liver to fail quicker. I have a friend who has

Hep C and cirrhosis and she takes the AHCC, and her liver is in pretty good shape besides the early cirrhosis, and she's had Hep C longer than me. She's the one who turned me onto the AHCC. My gastro put me on milk thistle before my transplant, but it didn't agree with me. Even herbal tea makes me feel weird, not right. Herbs don't get along with my body, I don't think.Sorry, this is so long. I just had a lot that I wanted to say after reading posts. I hope once I start treatment I'll be able to be on here to get more help. I've never done treatment before.Thanks for listening (reading).Penny

[Guest guest]

Hi Penny

Thanks for filling us in a little more about you and what you've been through, its very helpful to know more about each member, but I'll tell you this now but remind you that I'll probably tell you the same thing over and over at different intervals because the Interferon damaged my brain in ways I can hardly understand.. my memory stinks when it comes to short term stuff now which didnt happen before tx..

They want your thyroid working properly because treatment itself can and does blow our out thyroids.. so they want it to be normal before starting,, or if its too low, they can supplement you with medication.. I dont think that having sub-normal thyroid can keep you from treatment when you need it..

Lots of people are sensitive to herbs and supplements just like any other substance.. Its too bad that you have trouble with milk thistle as its really a good anti-inflammatory for the liver..

Well , just stay in touch hon,, and let us know how we can help you!

hugs,

jaxJackie

Subject: So much I want to say...To: Hepatitis_C_Central Date: Monday, October 13, 2008, 1:59 PM

I've been reading all the posts...there are so many! There's so much I want to say and don't know where to begin. I'm rather new here. I posted a couple of times. I had a liver transplant on January 6, 2008, and I still have to be treated for the Hep C. I should be starting it next week or the week after. My coordinator will let me know for sure sometime this week. I've read where some people have had bad headaches from treatment. I don't like that since I get migraines, but they aren't too bad anymore. I don't want any more headaches. I think I already responded about the developing of diabetes is completely normal after transplant. My glucose levels went back to normal before getting out of the hospital but had to have insulin shots in the hospital after transplant. Yes, the tremors are very normal too until they get your anti rejection drugs at just the right dosage. I shook so bad I

couldn't hardly sign my release papers before going home from the hospital. Where I had my transplant, we (patients) were required to attend classes every day while in the hospital after transplant to teach us all about all the side effects, what our lab results mean, what all the meds do, etc. I was very well informed. Before my transplant during evaluation, they didn't test me for alcohol or drugs. I get all my lab results and doctors reports...have for years, and still do every week. I have labs done every Monday, but occasionally go two weeks. I have been doing very well since the transplant, and I didn't have much pain from the transplant either. My back just hurt probably from them manhandling me on the operating table...lol. I was black and blue all over my arms, abdomen, back, and butt after surgery. I looked like I was in a war! LOL I have had two liver biopsies since

transplant. The first was to see if the Hep C was affecting my new liver, and the second was because my liver numbers shot way up. The liver numbers shot up after I popped cartlidge in my rib cage after turning wrong. They tested my thyroid a few weeks ago in preparation for starting treatment, and it was out of whack...high. Then they tested it again about 3 weeks later, and it was back to normal. Does anyone know why that may have happened? They told me my thyroid must be normal before starting treatment.Oh, about herbs. I was taking an herbal supplement called AHCC that boosted my immune system for 3 years before my transplant, and my viral load came way down (my viral load was never very high to begin with), but I didn't start it until after I already had cirrhosis. The doctors think, but don't know for sure, that it may have caused my liver to fail quicker. I have a friend who has

Hep C and cirrhosis and she takes the AHCC, and her liver is in pretty good shape besides the early cirrhosis, and she's had Hep C longer than me. She's the one who turned me onto the AHCC. My gastro put me on milk thistle before my transplant, but it didn't agree with me. Even herbal tea makes me feel weird, not right. Herbs don't get along with my body, I don't think.Sorry, this is so long. I just had a lot that I wanted to say after reading posts. I hope once I start treatment I'll be able to be on here to get more help. I've never done treatment before.Thanks for listening (reading).Penny

[Guest guest]

I ended up in the emergency room plugged into a IV drip from dehydration. I thought I was having a heart attack! That's when I was getting all those tests at Mayo in Feb. They were either starving me or restricting water and sometimes both. Gawd it was awful. I cannot imagine how a MELD 20-40 could do it and survive the testing process. Took me weeks to recover.

I've been reading all the posts...there are so many! There's so much I want to say and don't know where to begin. I'm rather new here. I posted a couple of times. I had a liver transplant on January 6, 2008, and I still have to be treated for the Hep C. I should be starting it next week or the week after. My coordinator will let me know for sure sometime this week. I've read where some people have had bad headaches from treatment. I don't like that since I get migraines, but they aren't too bad anymore. I don't want any more headaches. I think I already responded about the developing of diabetes is completely normal after transplant. My glucose levels went back to normal before getting out of the hospital but had to have insulin shots in the hospital after transplant. Yes, the tremors are very normal too until they get your anti rejection drugs at just the right dosage. I shook so bad I

couldn't hardly sign my release papers before going home from the hospital. Where I had my transplant, we (patients) were required to attend classes every day while in the hospital after transplant to teach us all about all the side effects, what our lab results mean, what all the meds do, etc. I was very well informed. Before my transplant during evaluation, they didn't test me for alcohol or drugs. I get all my lab results and doctors reports...have for years, and still do every week. I have labs done every Monday, but occasionally go two weeks. I have been doing very well since the transplant, and I didn't have much pain from the transplant either. My back just hurt probably from them manhandling me on the operating table...lol. I was black and blue all over my arms, abdomen, back, and butt after surgery. I looked like I was in a war! LOL I have had two liver biopsies since

transplant. The first was to see if the Hep C was affecting my new liver, and the second was because my liver numbers shot way up. The liver numbers shot up after I popped cartlidge in my rib cage after turning wrong. They tested my thyroid a few weeks ago in preparation for starting treatment, and it was out of whack...high. Then they tested it again about 3 weeks later, and it was back to normal. Does anyone know why that may have happened? They told me my thyroid must be normal before starting treatment.Oh, about herbs. I was taking an herbal supplement called AHCC that boosted my immune system for 3 years before my transplant, and my viral load came way down (my viral load was never very high to begin with), but I didn't start it until after I already had cirrhosis. The doctors think, but don't know for sure, that it may have caused my liver to fail quicker. I have a friend who has

Hep C and cirrhosis and she takes the AHCC, and her liver is in pretty good shape besides the early cirrhosis, and she's had Hep C longer than me. She's the one who turned me onto the AHCC. My gastro put me on milk thistle before my transplant, but it didn't agree with me. Even herbal tea makes me feel weird, not right. Herbs don't get along with my body, I don't think.Sorry, this is so long. I just had a lot that I wanted to say after reading posts. I hope once I start treatment I'll be able to be on here to get more help. I've never done treatment before.Thanks for listening (reading).Penny

[Guest guest]

I'm a meld 21 and it is hard to fast , dizzy spells are real common now .

Re: So much I want to say...

I ended up in the emergency room plugged into a IV drip from dehydration. I thought I was having a heart attack! That's when I was getting all those tests at Mayo in Feb. They were either starving me or restricting water and sometimes both. Gawd it was awful. I cannot imagine how a MELD 20-40 could do it and survive the testing process. Took me weeks to recover.

I've been reading all the posts...there are so many! There's so much I want to say and don't know where to begin. I'm rather new here. I posted a couple of times. I had a liver transplant on January 6, 2008, and I still have to be treated for the Hep C. I should be starting it next week or the week after. My coordinator will let me know for sure sometime this week. I've read where some people have had bad headaches from treatment. I don't like that since I get migraines, but they aren't too bad anymore. I don't want any more headaches. I think I already responded about the developing of diabetes is completely normal after transplant. My glucose levels went back to normal before getting out of the hospital but had to have insulin shots in the hospital after transplant. Yes, the tremors are very normal too until they get your anti rejection drugs at just the right dosage. I shook so bad I couldn't hardly sign my release papers before going home from the hospital. Where I had my transplant, we (patients) were required to attend classes every day while in the hospital after transplant to teach us all about all the side effects, what our lab results mean, what all the meds do, etc. I was very well informed. Before my transplant during evaluation, they didn't test me for alcohol or drugs. I get all my lab results and doctors reports...have for years, and still do every week. I have labs done every Monday, but occasionally go two weeks. I have been doing very well since the transplant, and I didn't have much pain from the transplant either. My back just hurt probably from them manhandling me on the operating table...lol. I was black and blue all over my arms, abdomen, back, and butt after surgery. I looked like I was in a war! LOL I have had two liver biopsies since transplant. The first was to see if the Hep C was affecting my new liver, and the second was because my liver numbers shot way up. The liver numbers shot up after I popped cartlidge in my rib cage after turning wrong. They tested my thyroid a few weeks ago in preparation for starting treatment, and it was out of whack...high. Then they tested it again about 3 weeks later, and it was back to normal. Does anyone know why that may have happened? They told me my thyroid must be normal before starting treatment.Oh, about herbs. I was taking an herbal supplement called AHCC that boosted my immune system for 3 years before my transplant, and my viral load came way down (my viral load was never very high to begin with), but I didn't start it until after I already had cirrhosis. The doctors think, but don't know for sure, that it may have caused my liver to fail quicker. I have a friend who has Hep C and cirrhosis and she takes the AHCC, and her liver is in pretty good shape besides the early cirrhosis, and she's had Hep C longer than me. She's the one who turned me onto the AHCC. My gastro put me on milk thistle before my transplant, but it didn't agree with me. Even herbal tea makes me feel weird, not right. Herbs don't get along with my body, I don't think.Sorry, this is so long. I just had a lot that I wanted to say after reading posts. I hope once I start treatment I'll be able to be on here to get more help. I've never done treatment before.Thanks for listening (reading).Penny

[Guest guest]

Take care of you, Liz...

I've been reading all the posts...there are so many! There's so much I want to say and don't know where to begin. I'm rather new here. I posted a couple of times. I had a liver transplant on January 6, 2008, and I still have to be treated for the Hep C. I should be starting it next week or the week after. My coordinator will let me know for sure sometime this week. I've read where some people have had bad headaches from treatment. I don't like that since I get migraines, but they aren't too bad anymore. I don't want any more headaches. I think I already responded about the developing of diabetes is completely normal after transplant. My glucose levels went back to normal before getting out of the hospital but had to have insulin shots in the hospital after transplant. Yes, the tremors are very normal too until they get your anti rejection drugs at just the right dosage. I shook so bad I

couldn't hardly sign my release papers before going home from the hospital. Where I had my transplant, we (patients) were required to attend classes every day while in the hospital after transplant to teach us all about all the side effects, what our lab results mean, what all the meds do, etc. I was very well informed. Before my transplant during evaluation, they didn't test me for alcohol or drugs. I get all my lab results and doctors reports...have for years, and still do every week. I have labs done every Monday, but occasionally go two weeks. I have been doing very well since the transplant, and I didn't have much pain from the transplant either. My back just hurt probably from them manhandling me on the operating table...lol. I was black and blue all over my arms, abdomen, back, and butt after surgery. I looked like I was in a war! LOL I have had two liver biopsies since

transplant. The first was to see if the Hep C was affecting my new liver, and the second was because my liver numbers shot way up. The liver numbers shot up after I popped cartlidge in my rib cage after turning wrong. They tested my thyroid a few weeks ago in preparation for starting treatment, and it was out of whack...high. Then they tested it again about 3 weeks later, and it was back to normal. Does anyone know why that may have happened? They told me my thyroid must be normal before starting treatment.Oh, about herbs. I was taking an herbal supplement called AHCC that boosted my immune system for 3 years before my transplant, and my viral load came way down (my viral load was never very high to begin with), but I didn't start it until after I already had cirrhosis. The doctors think, but don't know for sure, that it may have caused my liver to fail quicker. I have a friend who has

Hep C and cirrhosis and she takes the AHCC, and her liver is in pretty good shape besides the early cirrhosis, and she's had Hep C longer than me. She's the one who turned me onto the AHCC. My gastro put me on milk thistle before my transplant, but it didn't agree with me. Even herbal tea makes me feel weird, not right. Herbs don't get along with my body, I don't think.Sorry, this is so long. I just had a lot that I wanted to say after reading posts. I hope once I start treatment I'll be able to be on here to get more help. I've never done treatment before.Thanks for listening (reading).Penny

[Guest guest]

It may not

have been the Interferon. They are finding the Hep C virus within the

brain, and are thinking that it can attack brain cells directly.

My short

term memory is gone too. It used to be fantastic. One more thing to

grieve.

From:

Hepatitis_C_Central

[mailto:Hepatitis_C_Central ] On

Behalf Of Jackie on

Sent: Monday, October 13, 2008

6:24 PM

To:

Hepatitis_C_Central

Subject: Re:

So much I want to say...

…because the

Interferon damaged my brain in ways I can hardly understand.. my memory

stinks when it comes to short term stuff now which didnt happen before tx..

[Guest guest]

I am , and I am on a diet now cause my butt is getting to big lol

Re: So much I want to say...

Take care of you, Liz...

I've been reading all the posts...there are so many! There's so much I want to say and don't know where to begin. I'm rather new here. I posted a couple of times. I had a liver transplant on January 6, 2008, and I still have to be treated for the Hep C. I should be starting it next week or the week after. My coordinator will let me know for sure sometime this week. I've read where some people have had bad headaches from treatment. I don't like that since I get migraines, but they aren't too bad anymore. I don't want any more headaches. I think I already responded about the developing of diabetes is completely normal after transplant. My glucose levels went back to normal before getting out of the hospital but had to have insulin shots in the hospital after transplant. Yes, the tremors are very normal too until they get your anti rejection drugs at just the right dosage. I shook so bad I couldn't hardly sign my release papers before going home from the hospital. Where I had my transplant, we (patients) were required to attend classes every day while in the hospital after transplant to teach us all about all the side effects, what our lab results mean, what all the meds do, etc. I was very well informed. Before my transplant during evaluation, they didn't test me for alcohol or drugs. I get all my lab results and doctors reports...have for years, and still do every week. I have labs done every Monday, but occasionally go two weeks. I have been doing very well since the transplant, and I didn't have much pain from the transplant either. My back just hurt probably from them manhandling me on the operating table...lol. I was black and blue all over my arms, abdomen, back, and butt after surgery. I looked like I was in a war! LOL I have had two liver biopsies since transplant. The first was to see if the Hep C was affecting my new liver, and the second was because my liver numbers shot way up. The liver numbers shot up after I popped cartlidge in my rib cage after turning wrong. They tested my thyroid a few weeks ago in preparation for starting treatment, and it was out of whack...high. Then they tested it again about 3 weeks later, and it was back to normal. Does anyone know why that may have happened? They told me my thyroid must be normal before starting treatment.Oh, about herbs. I was taking an herbal supplement called AHCC that boosted my immune system for 3 years before my transplant, and my viral load came way down (my viral load was never very high to begin with), but I didn't start it until after I already had cirrhosis. The doctors think, but don't know for sure, that it may have caused my liver to fail quicker. I have a friend who has Hep C and cirrhosis and she takes the AHCC, and her liver is in pretty good shape besides the early cirrhosis, and she's had Hep C longer than me. She's the one who turned me onto the AHCC. My gastro put me on milk thistle before my transplant, but it didn't agree with me. Even herbal tea makes me feel weird, not right. Herbs don't get along with my body, I don't think.Sorry, this is so long. I just had a lot that I wanted to say after reading posts. I hope once I start treatment I'll be able to be on here to get more help. I've never done treatment before.Thanks for listening (reading).Penny

[Guest guest]

Treatment also can cause cerebral atrophy , but they are finding hep c cells in the brain

RE: So much I want to say...

It may not have been the Interferon. They are finding the Hep C virus within the brain, and are thinking that it can attack brain cells directly.

My short term memory is gone too. It used to be fantastic. One more thing to grieve.

From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of Jackie onSent: Monday, October 13, 2008 6:24 PMTo: Hepatitis_C_Central Subject: Re: So much I want to say...

…because the Interferon damaged my brain in ways I can hardly understand.. my memory stinks when it comes to short term stuff now which didnt happen before tx..

[Guest guest]

maybe thats whats wrong with me,,, my brain sure isnt like it used to be...Jackie

Subject: Re: So much I want to say...To: Hepatitis_C_Central Date: Tuesday, October 14, 2008, 11:38 AM

Treatment also can cause cerebral atrophy , but they are finding hep c cells in the brain

Re: [Hepatitis_C_ Central] So much I want to say...

…because the Interferon damaged my brain in ways I can hardly understand.. my memory stinks when it comes to short term stuff now which didnt happen before tx..

[Guest guest]

Lmao , you just have a ton of stuff on your plate girl and no time for just you . Take care hun

Re: [Hepatitis_C_ Central] So much I want to say...

…because the Interferon damaged my brain in ways I can hardly understand.. my memory stinks when it comes to short term stuff now which didnt happen before tx..

[Guest guest]

Thanks Jackie and Sheena. I believe water would help because since

my transplant they've been saying over and over again not to get

dehydrated, and drink at least 6 to 8 glasses of water a day.

Because of taking the anti rejection drugs, I have to stay hydrated

and when I don't drink enough water, I feel rotton, so it makes

sense.

I will be starting treatment on Oct. 21st, so I hope all goes well.

Penny

>

>

>

>

>

>

> I've been reading all the posts...there are so many! There's so

much

> I want to say and don't know where to begin. I'm rather new here. I

> posted a couple of times. I had a liver transplant on January 6,

> 2008, and I still have to be treated for the Hep C. I should be

> starting it next week or the week after. My coordinator will let me

> know for sure sometime this week.

>

> I've read where some people have had bad headaches from treatment.

I

> don't like that since I get migraines, but they aren't too bad

> anymore. I don't want any more headaches.

>

> I think I already responded about the developing of diabetes is

> completely normal after transplant. My glucose levels went back to

> normal before getting out of the hospital but had to have insulin

> shots in the hospital after transplant. Yes, the tremors are very

> normal too until they get your anti rejection drugs at just the

right

> dosage. I shook so bad I couldn't hardly sign my release papers

> before going home from the hospital. Where I had my transplant, we

> (patients) were required to attend classes every day while in the

> hospital after transplant to teach us all about all the side

effects,

> what our lab results mean, what all the meds do, etc. I was very

> well informed.

>

> Before my transplant during evaluation, they didn't test me for

> alcohol or drugs. I get all my lab results and doctors

> reports...have for years, and still do every week. I have labs done

> every Monday, but occasionally go two weeks.

>

> I have been doing very well since the transplant, and I didn't have

> much pain from the transplant either. My back just hurt probably

> from them manhandling me on the operating table...lol. I was black

> and blue all over my arms, abdomen, back, and butt after surgery. I

> looked like I was in a war! LOL I have had two liver biopsies since

> transplant. The first was to see if the Hep C was affecting my new

> liver, and the second was because my liver numbers shot way up. The

> liver numbers shot up after I popped cartlidge in my rib cage after

> turning wrong.

>

> They tested my thyroid a few weeks ago in preparation for starting

> treatment, and it was out of whack...high. Then they tested it

again

> about 3 weeks later, and it was back to normal. Does anyone know

why

> that may have happened? They told me my thyroid must be normal

> before starting treatment.

>

> Oh, about herbs. I was taking an herbal supplement called AHCC that

> boosted my immune system for 3 years before my transplant, and my

> viral load came way down (my viral load was never very high to

begin

> with), but I didn't start it until after I already had cirrhosis.

> The doctors think, but don't know for sure, that it may have caused

> my liver to fail quicker. I have a friend who has Hep C and

> cirrhosis and she takes the AHCC, and her liver is in pretty good

> shape besides the early cirrhosis, and she's had Hep C longer than

> me. She's the one who turned me onto the AHCC. My gastro put me on

> milk thistle before my transplant, but it didn't agree with me.

Even

> herbal tea makes me feel weird, not right. Herbs don't get along

> with my body, I don't think.

>

> Sorry, this is so long. I just had a lot that I wanted to say after

> reading posts. I hope once I start treatment I'll be able to be on

> here to get more help. I've never done treatment before.

>

> Thanks for listening (reading).

>

> Penny

>

[Guest guest]

Good luck Penny,, just know that we will be here for you and will help in any way we possibly can!Jackie

Subject: Re: So much I want to say...To: Hepatitis_C_Central Date: Wednesday, October 15, 2008, 11:55 AM

Thanks Jackie and Sheena. I believe water would help because since my transplant they've been saying over and over again not to get dehydrated, and drink at least 6 to 8 glasses of water a day. Because of taking the anti rejection drugs, I have to stay hydrated and when I don't drink enough water, I feel rotton, so it makes sense. I will be starting treatment on Oct. 21st, so I hope all goes well.Penny > > > > > > > I've been

reading all the posts...there are so many! There's so much > I want to say and don't know where to begin. I'm rather new here. I > posted a couple of times. I had a liver transplant on January 6, > 2008, and I still have to be treated for the Hep C. I should be > starting it next week or the week after. My coordinator will let me > know for sure sometime this week. > > I've read where some people have had bad headaches from treatment. I > don't like that since I get migraines, but they aren't too bad > anymore. I don't want any more headaches. > > I think I already responded about the developing of diabetes is > completely normal after transplant. My glucose levels went back to > normal before getting out of the hospital but had to have insulin > shots in the hospital after transplant. Yes, the tremors are very > normal too until they get

your anti rejection drugs at just the right > dosage. I shook so bad I couldn't hardly sign my release papers > before going home from the hospital. Where I had my transplant, we > (patients) were required to attend classes every day while in the > hospital after transplant to teach us all about all the side effects, > what our lab results mean, what all the meds do, etc. I was very > well informed. > > Before my transplant during evaluation, they didn't test me for > alcohol or drugs. I get all my lab results and doctors > reports...have for years, and still do every week. I have labs done > every Monday, but occasionally go two weeks. > > I have been doing very well since the transplant, and I didn't have > much pain from the transplant either. My back just hurt probably > from them manhandling me on the operating table...lol. I was black

> and blue all over my arms, abdomen, back, and butt after surgery. I > looked like I was in a war! LOL I have had two liver biopsies since > transplant. The first was to see if the Hep C was affecting my new > liver, and the second was because my liver numbers shot way up. The > liver numbers shot up after I popped cartlidge in my rib cage after > turning wrong. > > They tested my thyroid a few weeks ago in preparation for starting > treatment, and it was out of whack...high. Then they tested it again > about 3 weeks later, and it was back to normal. Does anyone know why > that may have happened? They told me my thyroid must be normal > before starting treatment.> > Oh, about herbs. I was taking an herbal supplement called AHCC that > boosted my immune system for 3 years before my transplant, and my > viral load came way down (my

viral load was never very high to begin > with), but I didn't start it until after I already had cirrhosis. > The doctors think, but don't know for sure, that it may have caused > my liver to fail quicker. I have a friend who has Hep C and > cirrhosis and she takes the AHCC, and her liver is in pretty good > shape besides the early cirrhosis, and she's had Hep C longer than > me. She's the one who turned me onto the AHCC. My gastro put me on > milk thistle before my transplant, but it didn't agree with me. Even > herbal tea makes me feel weird, not right. Herbs don't get along > with my body, I don't think.> > Sorry, this is so long. I just had a lot that I wanted to say after > reading posts. I hope once I start treatment I'll be able to be on > here to get more help. I've never done treatment before.> > Thanks for listening

(reading).> > Penny>

[Guest guest]

thats for sure!!! lolJackie

From: elizabethnv1 <elizabethnv1@ earthlink. net>Subject: Re: [Hepatitis_C_ Central] So much I want to say...To: Hepatitis_C_ Central@yahoogro ups.comDate: Tuesday, October 14, 2008, 11:38 AM

Treatment also can cause cerebral atrophy , but they are finding hep c cells in the brain

Re: [Hepatitis_C_ Central] So much I want to say...

…because the Interferon damaged my brain in ways I can hardly understand.. my memory stinks when it comes to short term stuff now which didnt happen before tx..