RE: Steve

[Guest guest]

Yeah I am definately depressed and I thought the steroids must have

something to do with it ... Has anybody taken St. 's Wort - is it ok

taking this with the steroids? My mate took it and said it helped with his

depression - although I can never understand how people get depressed when

they are healthy .. i just can't get my head around that one. Not unless

they have lost a member of their family - I've had both of these.

How about this for silly ... I see my Rheumy in Manchester and he dropped me

to 17.5 on the Pred, but for some reason my local GP didnt get told. So I

went to collect a prescription and it still says 20mg .. the pharmacist

claims she couldnt give me 200 x 2.5 mg of steroids instead of 100 x 5mg ...

now how utterly stupid is that ! Unfortunately I have a surgery here where

the staff of imcompetent .. it seems that is the case in most hospitals and

surgeries throughout this country !

Up until this flare, I have felt almost normal .. but I have a feeling that

excess alcohol can lead to a flare ... everytime I have had a flare its been

2 days after a very heavy drinking session, which followed a few weeks of

more drinking. A new years plan is to quit alcohol and attempt to chill out

more ....

Steve

Steve

Steve,

Happy Birthday, I know it does not seem to happy right now but for one

thing

realize that you are not alone. You for one thing are not the only one

with

a birthday today that is flaring and hurting. Me too. So, I am there

with

you and just remember, us pig headed capricorn goats, are stubborn and

don't

give up!!! We trudge right up on the mountain no matter how steep the

climb.

Believe me I do feel for you being so young with this, I think it really

sucks. Sometimes when I am really feeling bad, I try and focus on those

that have it worse and try and see what I might have to be grateful for.

It

works sometimes, and sometimes not.

I would say if you are not in therapy you should really consider it. I

see

a therapist and my main reason for doing so at this point in my life is to

help me with the challenges of my health. I was also recently diagnosed a

few weeks ago with ADD. I have stuggled all my life but because I was

smart

I slipped thru the cracks. This has majorly impacted my communication and

relationships and I have been very depressed about it. On top of that I

was

in 2 coma's in 2001 that caused more brain damage that made some of these

issues more severe for me. One thing I will share is that I have a very

low

tolerance for frustration and since my surgeries I have pretty much no

tolerance, which means when I am hurting or in a bad mood or whatever, I

snap and fly off the handle very easily, and that is not the me I want to

be

Anyway, I also tend to get off on tangents easily as well. Talk to your

doctor about antidepressants or getting therapy or both. It can be so

helpful. Especially if you have been or are on steriods. When I came off

prednisone I was very suicidal and my shrink told me that steriods can

cause

depression for months or years in some people. He had to increase my

anti-depressants, and in a week or so I was much better. It would be so

much better to take a little pill than erase your life.

If you need to talk email me anytime. Ldudette@.... You are

special, you were born today, I tell people that makes me close to godly, I

was born just hours before JC!!! LOL

Visit the Still's Disease Message Board

http://disc.server.com/Indices/148599.html

The materials and information contained in this message are not intended

to replace the services of a trained health professional or to be a

substitute for medical advice of physicians and/or other health care

professionals. The International Still's Disease Foundation is not engaged

in rendering medical or professional medical services. You should consult

your physician on specific medical questions, particularly in matters

requiring diagnosis or medical attention. The International Still's Disease

Foundation makes no representations or warranties with respect to any

treatment, action, application, medication or preparation by any person

following the information offered or provided within this support form.

ion by any person following the information offered or provided within

this support form.

[Guest guest]

Hi Steve,

Well you should listen to your body, take notes. If you think the flares happen

2 days or so after heavy drinking, then don't be out heavy drinking. As for St

s Wort, I have heard many good things about it. Also, you could try those

artificial lights that similate the sun (not sure what the name of it is). See

your doc and talk to him/her about your depression. I don't take prednisone, so

I can't comment on it's effects with depression, I am sure others on it here

could help you. Take care of yourself. Have a great day! Listen to some upbeat

music, laugh, try to have some fun without the heavy drinking!

---------------------------------

Post your free ad now! Yahoo! Canada Personals

[Guest guest]

I take Welbutrin XL.... Welbutrin is one the best antidepressants

I've ever taken because it has no impact on my sexual experiences,

which most other will, it doesn't make me sleepy and it doesn't

cause weight gain...It's not an SSRI like prozac or zoloft, it works

in a different way incorperating dopamine as well as seretonin. I

don't know. I just know it works with almost no ill effects. You

can't drink on antidepressants though. And it seems you like the

drink a bit from what you've written.

As far as being depressed without being sick...Deppression is an

illness in and of itself. It's an actual chemical imbalance. To be

depressed because of a trauma or a loss of a loved one is a normal

human responce to a tragic event. It's when you feel that despair

without beyond a period of mourning and without social or emotional

justification that it manifests as an illness. Some people are born

with less pigment in their right eye than their left....some people

are born with a better brain structure than others for

mathmatics....some people are born with less functioning

nurotransmitters like seretonin or dopamine which makes them

predisposed to conditions of depression. It is a physical illness in

and of itself and it doens't need to be triggered by any other

disease or occurance to exist.... hope that helps you wrap your head

around it....this is all from my personal experience.

love, lissah

> Yeah I am definately depressed and I thought the steroids must have

> something to do with it ... Has anybody taken St. 's Wort - is

it ok

> taking this with the steroids? My mate took it and said it helped

with his

> depression - although I can never understand how people get

depressed when

> they are healthy .. i just can't get my head around that one. Not

unless

> they have lost a member of their family - I've had both of these.

>

> How about this for silly ... I see my Rheumy in Manchester and he

dropped me

> to 17.5 on the Pred, but for some reason my local GP didnt get

told. So I

> went to collect a prescription and it still says 20mg .. the

pharmacist

> claims she couldnt give me 200 x 2.5 mg of steroids instead of 100

x 5mg ...

> now how utterly stupid is that ! Unfortunately I have a surgery

here where

> the staff of imcompetent .. it seems that is the case in most

hospitals and

> surgeries throughout this country !

>

> Up until this flare, I have felt almost normal .. but I have a

feeling that

> excess alcohol can lead to a flare ... everytime I have had a

flare its been

> 2 days after a very heavy drinking session, which followed a few

weeks of

> more drinking. A new years plan is to quit alcohol and attempt to

chill out

> more ....

>

> Steve

>

>

>

>

>

>

> Steve

>

>

> Steve,

> Happy Birthday, I know it does not seem to happy right now but

for one

> thing

> realize that you are not alone. You for one thing are not the

only one

> with

> a birthday today that is flaring and hurting. Me too. So, I am

there

> with

> you and just remember, us pig headed capricorn goats, are

stubborn and

> don't

> give up!!! We trudge right up on the mountain no matter how

steep the

> climb.

> Believe me I do feel for you being so young with this, I think

it really

> sucks. Sometimes when I am really feeling bad, I try and focus

on those

> that have it worse and try and see what I might have to be

grateful for.

> It

> works sometimes, and sometimes not.

>

> I would say if you are not in therapy you should really consider

it. I

> see

> a therapist and my main reason for doing so at this point in my

life is to

> help me with the challenges of my health. I was also recently

diagnosed a

> few weeks ago with ADD. I have stuggled all my life but because

I was

> smart

> I slipped thru the cracks. This has majorly impacted my

communication and

> relationships and I have been very depressed about it. On top

of that I

> was

> in 2 coma's in 2001 that caused more brain damage that made some

of these

> issues more severe for me. One thing I will share is that I

have a very

> low

> tolerance for frustration and since my surgeries I have pretty

much no

> tolerance, which means when I am hurting or in a bad mood or

whatever, I

> snap and fly off the handle very easily, and that is not the me

I want to

> be

>

>

> Anyway, I also tend to get off on tangents easily as well. Talk

to your

> doctor about antidepressants or getting therapy or both. It can

be so

> helpful. Especially if you have been or are on steriods. When

I came off

> prednisone I was very suicidal and my shrink told me that

steriods can

> cause

> depression for months or years in some people. He had to

increase my

> anti-depressants, and in a week or so I was much better. It

would be so

> much better to take a little pill than erase your life.

>

> If you need to talk email me anytime. Ldudette@c... You are

> special, you were born today, I tell people that makes me close to

godly, I

> was born just hours before JC!!! LOL

>

>

> Visit the Still's Disease Message Board

> http://disc.server.com/Indices/148599.html

>

> The materials and information contained in this message are not

intended

> to replace the services of a trained health professional or to be a

> substitute for medical advice of physicians and/or other health

care

> professionals. The International Still's Disease Foundation is not

engaged

> in rendering medical or professional medical services. You should

consult

> your physician on specific medical questions, particularly in

matters

> requiring diagnosis or medical attention. The International

Still's Disease

> Foundation makes no representations or warranties with respect to

any

> treatment, action, application, medication or preparation by any

person

> following the information offered or provided within this support

form.

>

> ion by any person following the information offered or provided

within

> this support form.

>

>

>

>

>

[Guest guest]

Hi Steve,

Welcome to the group. The regulars on here are terrific, will answer any

question, and are very knowledgable about everything that pertains to the DS and

any other subject.

My surgery is scheduled for 1/25/05 and I'm getting nervous, as time is

quickly slipping by.

You will love this group. Good luck with your surgery.

[Guest guest]

Welcome Steve,

Just watch out for Jo, Marta and Mel. They are trouble makers.

Jim

[Guest guest]

Welcome Steve, Just watch out for Jim. He is a trouble maker.

Ed in Vegas

Re: Steve

Welcome Steve,

Just watch out for Jo, Marta and Mel. They are trouble makers.

Jim

[Guest guest]

---Thanks Ed in Vegas, by the way we really like your town, anyway

ive been told to watch for alot of people so far, thats great, I'm

going to enjoy this group, looks like everyones having a good time,

and being silly sometimes,

count on me to do my part,

Steve In Bakersfield

In DS_Friends_Keshishian , " Ed in Vegas "

<luckee4@c...> wrote:

> Welcome Steve, Just watch out for Jim. He is a trouble maker.

> Ed in Vegas

>

> Re: Steve

>

> Welcome Steve,

>

> Just watch out for Jo, Marta and Mel. They are trouble makers.

>

> Jim

>

>

>

[Guest guest]

---Thanks Ed in Vegas, by the way we really like your town, anyway

ive been told to watch for alot of people so far, thats great, I'm

going to enjoy this group, looks like everyones having a good time,

and being silly sometimes,

count on me to do my part,

Steve In Bakersfield

In DS_Friends_Keshishian , " Ed in Vegas "

<luckee4@c...> wrote:

> Welcome Steve, Just watch out for Jim. He is a trouble maker.

> Ed in Vegas

>

> Re: Steve

>

> Welcome Steve,

>

> Just watch out for Jo, Marta and Mel. They are trouble makers.

>

> Jim

>

>

>

[Guest guest]

And

> please don't push Marta to open up, she is such a fragil, shy

little

> thing, we must be careful.

>

> Hugs

> Jo

Well, too bad I won't be working in Taft any longer. No more

lunches with Pat! lol Alas...

Marta

[Guest guest]

>

> Well, too bad I won't be working in Taft any longer. No more

> lunches with Pat! lol Alas...

>

> Marta

~~~~~~~~~~~~~~~`````

She is such a shy thing,,,LOL got in her bosses face

and said NO MORE TAFT,,,that is how shy she is..lol

Pat

Steve it was great meeting you and your family too.

WoW your day is almost here...what a great life you

and your family are going to have...Thank God you don't

have to worry about the hair loss..lol

Brock is the last name

Have a great day all

God bless,

Pat

[Guest guest]

I

worked overtime throughout tx (office job). When I expressed fears to my

doc that the sides would make me lose my job & not be able to care for my

children & therefore lose my house & all the worst case scenario, he

very calmly (without laughing at me, which surprises me looking back on it)

that, no the worst case would be that I’d stop treatment before it got to

that point. I felt pretty silly when he said that. I was letting

the fear of the unknown take over. Think positive – while many have

trouble working, just as many keep working with no problems. There are

people with no sides and people with all the sides, but those are the few &

far between. Most people are somewhere in the middle.

Re: New

to group

Hi Kim T., Im pleased to

meet you but sorry under these circumstances.

Well ive heard many folks have had to quit there jobs while on tx. Im

blessed there were I own a Environmental Company and Im semi retired

and was just about ready for retirement. It looks like I will probably

be starting the tx soon after my bio on Monday. I spoke with the

hospital yesterday and see Im worrying about nothing here but the fear

of the unknown I guess. Im not sure what type I have but believe he

said geno 1 and id need one year of tx. I will make sure to start

getting copies of everything now. Thanks for your note Kim, I will be

Praying for you. Have a good day,

God Bless,

Steve in Ca.