Guest guest Posted October 19, 1999 Report Share Posted October 19, 1999 Hi Corina! Welcome to the list. Where in Canada do you live.? If I were you I would check with social services to see if they could help you out, I know they do subsidise sometimes in some circumstances. I know I belong to an exercise group, and know that for some of the people they helped with their addmission to the water exercises at the leisure center in the District of Maple Ridge B.C. " Good Luck! with your endeavour for help. Rosemarie Stene introduction Hello, Just wanted to introduce myself to the list. I'm 28, mother of 3 unschooled children (3, 4, 9 all boys) I've been diagnosed with Chronic Fatigue Syndrome, Fibromyalgia, and possibly MS (my doctor finally got around to ordering an MRI) Does that qualify for chronic pain? :-) I just enjoy having people to talk to who don't think it's " all in my head " or that I'm lazy. Also, being a stay at home mom in a small community I don't meet other's to converse with so you tend to think your getting even crazier as time goes by. The one difference I notice on these lists is that a lot of talk goes on about insurance and such. I live in Canada and I havent' worked for years (because of having kids, not disability) so I don't have any benefits. If anyone has any info regarding Canada and getting medical benefits from social services or private organizations or anything I'd love to have some info. I'm getting to the point where I might need homemakers occassionally or such and my husband certainly doesn't make enough to pay for it! He does have extended medical but I don't think that would help me at all. Look forward to meeting you all! Corina Know someone who could profit from our list? Send our direct sign-up URL: http://www.onelist.com/subscribe.cgi/chronic_pain or write us at: chronic_pain-listowneronelist Manage your subscription with several special email addresses: chronic_pain-owneronelist - Sends email to the list owners chronic_pain-subscribeonelist - Subscribe to the list through email chronic_pain-unsubscribeonelist - Unsubscribe from the list chronic_pain-normalonelist - Switch your subscription to normal chronic_pain-digestonelist - Switch your subscription to digest Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 1999 Report Share Posted October 19, 1999 Hi Corina! Welcome to the list. Where in Canada do you live.? If I were you I would check with social services to see if they could help you out, I know they do subsidise sometimes in some circumstances. I know I belong to an exercise group, and know that for some of the people they helped with their addmission to the water exercises at the leisure center in the District of Maple Ridge B.C. " Good Luck! with your endeavour for help. Rosemarie Stene introduction Hello, Just wanted to introduce myself to the list. I'm 28, mother of 3 unschooled children (3, 4, 9 all boys) I've been diagnosed with Chronic Fatigue Syndrome, Fibromyalgia, and possibly MS (my doctor finally got around to ordering an MRI) Does that qualify for chronic pain? :-) I just enjoy having people to talk to who don't think it's " all in my head " or that I'm lazy. Also, being a stay at home mom in a small community I don't meet other's to converse with so you tend to think your getting even crazier as time goes by. The one difference I notice on these lists is that a lot of talk goes on about insurance and such. I live in Canada and I havent' worked for years (because of having kids, not disability) so I don't have any benefits. If anyone has any info regarding Canada and getting medical benefits from social services or private organizations or anything I'd love to have some info. I'm getting to the point where I might need homemakers occassionally or such and my husband certainly doesn't make enough to pay for it! He does have extended medical but I don't think that would help me at all. Look forward to meeting you all! Corina Know someone who could profit from our list? Send our direct sign-up URL: http://www.onelist.com/subscribe.cgi/chronic_pain or write us at: chronic_pain-listowneronelist Manage your subscription with several special email addresses: chronic_pain-owneronelist - Sends email to the list owners chronic_pain-subscribeonelist - Subscribe to the list through email chronic_pain-unsubscribeonelist - Unsubscribe from the list chronic_pain-normalonelist - Switch your subscription to normal chronic_pain-digestonelist - Switch your subscription to digest Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2000 Report Share Posted January 31, 2000 sorry to foward this from my sent file hate to retype it. [This message contained attachments] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2000 Report Share Posted January 31, 2000 , Welcome. Looks like your posts made it. There are times when the server gives us problems. Ken At 04:14 PM 1/31/00 -0500, you wrote: >From: julee@... > >sorry to foward this from my sent file hate to retype it. > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2000 Report Share Posted January 31, 2000 , Welcome. Looks like your posts made it. There are times when the server gives us problems. Ken At 04:14 PM 1/31/00 -0500, you wrote: >From: julee@... > >sorry to foward this from my sent file hate to retype it. > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2000 Report Share Posted April 18, 2000 Nice to meet you Rev. Welcome to the list. You will be prayed for! God bless you! Joanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2000 Report Share Posted April 19, 2000 Hi Rev. Vance, Sorry to see you needing this group. I noticed that you are an animal lover, as am I. We always had a lot of pets, and I still have four cats that my husband takes care of, thankfully. I am no longer able to do the work involved in changing the litter box. We did discover birds, parrots...to be exact, and I find that with the proper cages there is really very little work involved and the rewards are great. I handle my birds constantly, they loved to be scratched, and they snuggle under my neck. I find that I naturally slow down when I am holding them, and that helps me cope with my pain. They are funny and all of them talk. My husband and I enjoy their antics and we laugh often. The birds of course laugh with us as well. You may visit my loft at http://www.geocities.com/sylvana52/ Sylvana is my "chat" name. I also have a couple of pictures of my beautiful grandchildren on page 2. Judy Introduction I just wanted to give a small introduction of myself to the list. I found out I had Mixed Connective Tissue Disease with overlapping Lupus, Scleroderma, Raynaud's Syndrome and Non-Primary Fibromyalgia and last but not least chronic pain over 3 years ago. I have a very long list of complications, problems, and side effects. I take like 28 prescriptions a day. See several doctors on to much of a regular basis. I can't do much any more but I use to love to ride horses, play sports, workout, I was very active most of the time. Now I spend a lot of time on the computer, listening to music, watching movies. I am an ordained minister and I have a small online internet based ministry Fellowship Christian Interdenominational Church & Outreach Ministry http://www.nationwide.net/~vance/ I am a certified Pastoral Counselor. God Bless, Rev. Vance vance@... Know someone who could profit from our list? Send our direct sign-up URL: http://www.onelist.com/subscribe.cgi/chronic_pain or write us at: chronic_pain-listowneronelistManage your subscription with several special email addresses:chronic_pain-owneronelist - Sends email to the list owners chronic_pain-subscribeonelist - Subscribe to the list through email chronic_pain-unsubscribeonelist - Unsubscribe from the list chronic_pain-normalonelist - Switch your subscription to normal chronic_pain-digestonelist - Switch your subscription to digest Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2000 Report Share Posted April 19, 2000 At 09:43 PM 4/18/00 -0500, Vance wisely said: >I just wanted to give a small introduction of myself to the list. I >found out I had Mixed Connective Tissue Disease with overlapping Hi Vance, Welcome to Diagnoses Are Us! Perhaps you will be able to get back, at least in part, to the things you love. Ken Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2000 Report Share Posted April 19, 2000 Hello Vance and Judy! Welcome! I have been to both web sites and enjoyed both. I love the Birds Judy. Talk to you later. Rosemarie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2000 Report Share Posted April 24, 2000 Welcome, Rev. Vance, We have a few "counselors" on the list. Tough when the "counselors" are the victims of chronic pain! I'm Ray, a retired pastor. We can use all the help we can find! Jump into the "chains" of posts whenever you desire. Ray Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2000 Report Share Posted August 3, 2000 > My name is Dean Choate. I was born and raised in the " Dairy State " Wisconsin > and currently where I reside. I am a husband and father of three. I have two > children that have disabilities as well. I have one daughter that is ADHD > and my other daughter has Reactive Airway Disease (a form of asthma). > > I became involved with disability rights movement first as a personal > interest. Two, of my three children suffer with disabilities and handicaps > are certainly no stranger to me either. > > Most of my life I have dealt with some form of physical difficulty and later > the mental became evident. Right at birth my troubles started with my legs > and feet then I battled against Lyme Disease in 1979-1980 which left me with > arthritis and additional joint problems. In 1984 I was diagnosed with > Fibromyalgia. In 1990 I started to develop serious back problems and in 1991 > I fell down a icy embankment at work and seriously injured my right knee. > After several surgeries I am still suffering. Additionally, I was diagnosed > with degenerative disc disease. > > Mental Disorders became more apparent by 1993 when I was diagnosed with > depression. Then in 1997 I was rediagnosed with Manic-Depresssion (Bipolar > Disorder), a Personality Disorder and Anxiety Disorder. Due to these > illnesses, those which still plague me, I am unable to work and provide for > my family as efficiently as I once was. I became a lobbyist, campaigning for > disability rights, two years ago. In 1998 I started as a Disability Rights > Advocate in Iowa. I got involved with Systems Change Network in Iowa and > Partners in Policymaking as well. > > I am currently the Midwest Executive Director of NAOTD Inc. I am also > lobbyist in Wisconsin. I am a member of NAMI of Wood and Portage County, > ABLE Coalition of Wisconsin and a few other organizations. > > Though my interest is personal after being turned down for SSDI/SSI benefits > myself, I also care for all who have disabilities who are forced into even > more unpleasantness because they can not obtain the benefits they deserve. I > would like to see the laws change so one can better live with his or her > disability without worries of a financial state. I continue to fight for > what I believe and feel is right. > > Dean A. Choate > NAOTD Midwest Executive Director > Advocate & Trainer > Home Email: dch4806@... > Office Email: dch4806@... > VoiceMail: 1- Ext. 76709 > ICQ# 61656602 > AOL/JUNO IM: dch4806 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2000 Report Share Posted August 3, 2000 > My name is Dean Choate. I was born and raised in the " Dairy State " Wisconsin > and currently where I reside. I am a husband and father of three. I have two > children that have disabilities as well. I have one daughter that is ADHD > and my other daughter has Reactive Airway Disease (a form of asthma). > > I became involved with disability rights movement first as a personal > interest. Two, of my three children suffer with disabilities and handicaps > are certainly no stranger to me either. > > Most of my life I have dealt with some form of physical difficulty and later > the mental became evident. Right at birth my troubles started with my legs > and feet then I battled against Lyme Disease in 1979-1980 which left me with > arthritis and additional joint problems. In 1984 I was diagnosed with > Fibromyalgia. In 1990 I started to develop serious back problems and in 1991 > I fell down a icy embankment at work and seriously injured my right knee. > After several surgeries I am still suffering. Additionally, I was diagnosed > with degenerative disc disease. > > Mental Disorders became more apparent by 1993 when I was diagnosed with > depression. Then in 1997 I was rediagnosed with Manic-Depresssion (Bipolar > Disorder), a Personality Disorder and Anxiety Disorder. Due to these > illnesses, those which still plague me, I am unable to work and provide for > my family as efficiently as I once was. I became a lobbyist, campaigning for > disability rights, two years ago. In 1998 I started as a Disability Rights > Advocate in Iowa. I got involved with Systems Change Network in Iowa and > Partners in Policymaking as well. > > I am currently the Midwest Executive Director of NAOTD Inc. I am also > lobbyist in Wisconsin. I am a member of NAMI of Wood and Portage County, > ABLE Coalition of Wisconsin and a few other organizations. > > Though my interest is personal after being turned down for SSDI/SSI benefits > myself, I also care for all who have disabilities who are forced into even > more unpleasantness because they can not obtain the benefits they deserve. I > would like to see the laws change so one can better live with his or her > disability without worries of a financial state. I continue to fight for > what I believe and feel is right. > > Dean A. Choate > NAOTD Midwest Executive Director > Advocate & Trainer > Home Email: dch4806@... > Office Email: dch4806@... > VoiceMail: 1- Ext. 76709 > ICQ# 61656602 > AOL/JUNO IM: dch4806 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2000 Report Share Posted August 12, 2000 At 06:42 PM 8/11/00 -0500, Ellen wisely said: >. We live in SE Missouri on 70 beautiful wooded acres, and we own >our own business making wooden f Hi Ellen, Sorry about the arthritis. I have several kinds, and for many years lived in a rustic home in eastern Long Island, NY. Your post brings back memories. Actually enjoyed the winters until I reached a point where it was too much to tolerate. Sounds like you manage well & have a nice brood of kids to keep you busy. If the knees get real bad, the surgical replacement is liberating, but the full recovery takes awhile. You seem to have things in balance. There are a bunch of newer drugs that can give virtually complete relief to inflammation, and many more expected out behind them. Some are for most people quite safe. Doctors are also becoming more aware of the legitimate need for appropriate pain killers to treat pain. So I would think the outlook is good for you to spend more years on your 70 acres. Ken Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2000 Report Share Posted November 23, 2000 Hi Sandy I'm Tammy and I've had 4 surgeries in the lumbar area. My last surgery on the L5-S1 in 1991 was a fusion. Its been pretty stable since then and its not doing so great as of now cause I put on alot of weight cause of some meds I was on for another problem not back related and now my fusion is slowly falling apart but I was skinny for many years til I put on weight which caused stress on my fusion but as I was told my fusion could of lasted for many many years. Having a fusion is great and has good stability so it is good to have especially reherniating. I hope someone is able to help you out more. Best of luck to you. Tammy Introduction > Hello all- > > My name is Sandy and I've joined this group because I'm basically in the > same boat as all of you and I need some advice. > I herniated two discs in July of 1999 and they became so large that I had > to have a micro-discepotomy on the L4-S1 levels. They removed the bulges, > but due to other problems, such as a mis-aligned pelvis and an unstable > spine, I reherniated again shortly after surgery. Unfortunately, my doctors > belived the returning pain to be scar tissue from the surgery and I was > treted with Physical Therapy and Cortisone injections (which would have been > my course of treatment anyway if they would have discovered the herniation). > A few weeks ago, the pain in my left leg became worse and the pain in my > right leg began which led to an MRI and a discovery of a quickly growing > L5-S1 herniation that affects both legs. > I am scheduled for fusion surgery L4-S1 next week - I really have no > other option - the pain has been chronic for 1 1/2 years now. I am 27, and > used to live an active life - I was a dancer, a hiker, and I played tennis. > I really haven't been living this past year, and the pain has been horrible. > > I would just like to ask if anyone has any advice (especially > anyone who has been through a fusion surgery) on what I should be expecting, > how the healing process turns out, or the results of their surgery. > Thanks alot, I'd appreciate any words of wisdom. > > Sandy > > > Know someone who could profit from our list? Send our direct sign-up URL: /subscribe.cgi/chronic_pain or write us at: chronic_pain-listowneregroups > Manage your subscription with several special email addresses: > chronic_pain-owneregroups - Sends email to the list owners > chronic_pain-subscribeegroups - Subscribe to the list through email > chronic_pain-unsubscribeegroups - Unsubscribe from the list > chronic_pain-normalegroups - Switch your subscription to normal > chronic_pain-digestegroups - Switch your subscription to digest > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2000 Report Share Posted November 23, 2000 Hi Sandy I'm Tammy and I've had 4 surgeries in the lumbar area. My last surgery on the L5-S1 in 1991 was a fusion. Its been pretty stable since then and its not doing so great as of now cause I put on alot of weight cause of some meds I was on for another problem not back related and now my fusion is slowly falling apart but I was skinny for many years til I put on weight which caused stress on my fusion but as I was told my fusion could of lasted for many many years. Having a fusion is great and has good stability so it is good to have especially reherniating. I hope someone is able to help you out more. Best of luck to you. Tammy Introduction > Hello all- > > My name is Sandy and I've joined this group because I'm basically in the > same boat as all of you and I need some advice. > I herniated two discs in July of 1999 and they became so large that I had > to have a micro-discepotomy on the L4-S1 levels. They removed the bulges, > but due to other problems, such as a mis-aligned pelvis and an unstable > spine, I reherniated again shortly after surgery. Unfortunately, my doctors > belived the returning pain to be scar tissue from the surgery and I was > treted with Physical Therapy and Cortisone injections (which would have been > my course of treatment anyway if they would have discovered the herniation). > A few weeks ago, the pain in my left leg became worse and the pain in my > right leg began which led to an MRI and a discovery of a quickly growing > L5-S1 herniation that affects both legs. > I am scheduled for fusion surgery L4-S1 next week - I really have no > other option - the pain has been chronic for 1 1/2 years now. I am 27, and > used to live an active life - I was a dancer, a hiker, and I played tennis. > I really haven't been living this past year, and the pain has been horrible. > > I would just like to ask if anyone has any advice (especially > anyone who has been through a fusion surgery) on what I should be expecting, > how the healing process turns out, or the results of their surgery. > Thanks alot, I'd appreciate any words of wisdom. > > Sandy > > > Know someone who could profit from our list? Send our direct sign-up URL: /subscribe.cgi/chronic_pain or write us at: chronic_pain-listowneregroups > Manage your subscription with several special email addresses: > chronic_pain-owneregroups - Sends email to the list owners > chronic_pain-subscribeegroups - Subscribe to the list through email > chronic_pain-unsubscribeegroups - Unsubscribe from the list > chronic_pain-normalegroups - Switch your subscription to normal > chronic_pain-digestegroups - Switch your subscription to digest > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2000 Report Share Posted November 23, 2000 Tammy- Thanks for the advice - every little bit helps. How soon after the fusion did you feel able to return to work in a way that would not damage your recovery? Sandy In a message dated 11/23/00 5:01:44 PM Eastern Standard Time, shrimperooski@... writes: > Hi Sandy I'm Tammy and I've had 4 surgeries in the lumbar area. My last > surgery on the L5-S1 in 1991 was a fusion. Its been pretty stable since then > and its not doing so great as of now cause I put on alot of weight cause of > some meds I was on for another problem not back related and now my fusion is > slowly falling apart but I was skinny for many years til I put on weight > which caused stress on my fusion but as I was told my fusion could of lasted > for many many years. Having a fusion is great and has good stability so it > is good to have especially reherniating. I hope someone is able to help you > out more. Best of luck to you. > Tammy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2000 Report Share Posted November 23, 2000 Your very welcome Sandy. I didn't return to work soon after cause I was and still am disabled but I think it was about almost a year before I decided to try parttime work but that was my own decision to wait that long but I could have returned to work within a few months. Thats how a big relief it was to me. I hope the best for you. Tammy Re: Introduction > Tammy- > > Thanks for the advice - every little bit helps. How soon after the > fusion did you feel able to return to work in a way that would not damage > your recovery? > > Sandy > > > In a message dated 11/23/00 5:01:44 PM Eastern Standard Time, > shrimperooski@... writes: > > > Hi Sandy I'm Tammy and I've had 4 surgeries in the lumbar area. My last > > surgery on the L5-S1 in 1991 was a fusion. Its been pretty stable since > then > > and its not doing so great as of now cause I put on alot of weight cause of > > some meds I was on for another problem not back related and now my fusion > is > > slowly falling apart but I was skinny for many years til I put on weight > > which caused stress on my fusion but as I was told my fusion could of > lasted > > for many many years. Having a fusion is great and has good stability so it > > is good to have especially reherniating. I hope someone is able to help you > > out more. Best of luck to you. > > Tammy > > > Know someone who could profit from our list? Send our direct sign-up URL: /subscribe.cgi/chronic_pain or write us at: chronic_pain-listowneregroups > Manage your subscription with several special email addresses: > chronic_pain-owneregroups - Sends email to the list owners > chronic_pain-subscribeegroups - Subscribe to the list through email > chronic_pain-unsubscribeegroups - Unsubscribe from the list > chronic_pain-normalegroups - Switch your subscription to normal > chronic_pain-digestegroups - Switch your subscription to digest > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2000 Report Share Posted November 23, 2000 Your very welcome Sandy. I didn't return to work soon after cause I was and still am disabled but I think it was about almost a year before I decided to try parttime work but that was my own decision to wait that long but I could have returned to work within a few months. Thats how a big relief it was to me. I hope the best for you. Tammy Re: Introduction > Tammy- > > Thanks for the advice - every little bit helps. How soon after the > fusion did you feel able to return to work in a way that would not damage > your recovery? > > Sandy > > > In a message dated 11/23/00 5:01:44 PM Eastern Standard Time, > shrimperooski@... writes: > > > Hi Sandy I'm Tammy and I've had 4 surgeries in the lumbar area. My last > > surgery on the L5-S1 in 1991 was a fusion. Its been pretty stable since > then > > and its not doing so great as of now cause I put on alot of weight cause of > > some meds I was on for another problem not back related and now my fusion > is > > slowly falling apart but I was skinny for many years til I put on weight > > which caused stress on my fusion but as I was told my fusion could of > lasted > > for many many years. Having a fusion is great and has good stability so it > > is good to have especially reherniating. I hope someone is able to help you > > out more. Best of luck to you. > > Tammy > > > Know someone who could profit from our list? Send our direct sign-up URL: /subscribe.cgi/chronic_pain or write us at: chronic_pain-listowneregroups > Manage your subscription with several special email addresses: > chronic_pain-owneregroups - Sends email to the list owners > chronic_pain-subscribeegroups - Subscribe to the list through email > chronic_pain-unsubscribeegroups - Unsubscribe from the list > chronic_pain-normalegroups - Switch your subscription to normal > chronic_pain-digestegroups - Switch your subscription to digest > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2000 Report Share Posted November 24, 2000 Hi Sandy, Have not ;had any fusions (wish they could have done that), but am familiar with the procedure. It should stabilize the area of your spin where the fusions are done. The results are like night & day. From what you describe about your back, it seems that it may be out of the natural position that is normal. That can put excess pressure in some areas. This is something you might want to discuss with your doctors & perhaps address in physical therapy *after* your surgery is fully healed. At 10:10 PM 11/22/00 -0500, NightQueene@... wisely said: >I would just like to ask if anyone has any advice (especially >anyone who has been through a fusion surgery) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2000 Report Share Posted December 1, 2000 Hi Everyone, My name is I am 35 years old. Married for 15 years to a great man. I am also having a great deal of chronic pain, as much of you do. In 1997 I had an accident at work. I was admitted to the hospital on New years day of 1998. Happy new Year to me!! haha. I can laugh now, but at the time it was the most horrifying experience...They put me on a Morphine pump, and got me to the MRI machine...To make a lng story short, I had a Massive herniation at L4-L5. It was so bad bad that they did emergency surgery on a Saturday, told my family if they waited I would be paralyzed and have a Colostomy bag...YIKES! I was out of it, so of course my family werent going to say no....etc Anyway, it hernaited again in March and I had another surgery done...It has left me with RSD and severe nerve damage to my lower extremeties. I have been diagnosed with Fibromyalgia, Raynauds, Degenerative Disc disease. I am just a walking Syndrome...I just wanted you all to know my background before I just jump and start posting...I have been to physical therapy, cortisone shots, epidurals, tons of medications, was going for the SCS but got denied from comp. So, now I am on darocet...and it is like taking a sleeping pill...I have alot of pain in my legs, back, hips, feet...nothing touches this nerve pain. I am working with an excellent Dr. to try all things we can..Do any of you have simliar situations or symptoms????? Thanks for time and sorry this is sooo long! Hugs ~~*Forever A Rottie Lover*~~ marianoscar@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2000 Report Share Posted December 2, 2000 , I had my first surgery March, '99 for what I thought was a disc problem. The doctor found a cyst, removed it, and closed me up . Turns out I REALLY had spondilothesis (unstable vertebra at L4-L5) and that first surgery just made the vertebrae more unstable. I had two more surgeries March, '00 -- anterior and posterior fusions. I was improving until two months ago when I injured myself in physical therapy. I seem to have recovered from that, but now am in pain similar to that which I experiences before the last surgeries. I had another mylogram Thursday to see if other vertebrae are now unstable. I'm scheduled for a cortezone injection this coming Thursday. I just try to get through one day at a time and try to stay ahead of the pain. Sunny maria wrote: Hi Everyone, My name is I am 35 years old. Married for 15 years to a great man. I am also having a great deal of chronic pain, as much of you do. In 1997 I had an accident at work. I was admitted to the hospital on New years day of 1998. Happy new Year to me!! haha. I can laugh now, but at the time it was the most horrifying experience...They put me on a Morphine pump, and got me to the MRI machine...To make a lng story short, I had a Massive herniation at L4-L5. It was so bad bad that they did emergency surgery on a Saturday, told my family if they waited I would be paralyzed and have a Colostomy bag...YIKES! I was out of it, so of course my family werent going to say no....etc Anyway, it hernaited again in March and I had another surgery done...It has left me with RSD and severe nerve damage to my lower extremeties. I have been diagnosed with Fibromyalgia, Raynauds, Degenerative Disc disease. I am just a walking Syndrome...I just wanted you all to know my background before I just jump and start posting...I have been to physical therapy, cortisone shots, epidurals, tons of medications, was going for the SCS but got denied from comp. So, now I am on darocet...and it is like taking a sleeping pill...I have alot of pain in my legs, back, hips, feet...nothing touches this nerve pain. I am working with an excellent Dr. to try all things we can..Do any of you have simliar situations or symptoms????? Thanks for time and sorry this is sooo long! Hugs ~~*Forever A Rottie Lover*~~ marianoscar@... Know someone who could profit from our list? Send our direct sign-up URL: /subscribe.cgi/chronic_pain or write us at: chronic_pain-listowneregroups Manage your subscription with several special email addresses: chronic_pain-owneregroups - Sends email to the list owners chronic_pain-subscribeegroups - Subscribe to the list through email chronic_pain-unsubscribeegroups - Unsubscribe from the list chronic_pain-normalegroups - Switch your subscription to normal chronic_pain-digestegroups - Switch your subscription to digest Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2000 Report Share Posted December 2, 2000 , I had my first surgery March, '99 for what I thought was a disc problem. The doctor found a cyst, removed it, and closed me up . Turns out I REALLY had spondilothesis (unstable vertebra at L4-L5) and that first surgery just made the vertebrae more unstable. I had two more surgeries March, '00 -- anterior and posterior fusions. I was improving until two months ago when I injured myself in physical therapy. I seem to have recovered from that, but now am in pain similar to that which I experiences before the last surgeries. I had another mylogram Thursday to see if other vertebrae are now unstable. I'm scheduled for a cortezone injection this coming Thursday. I just try to get through one day at a time and try to stay ahead of the pain. Sunny maria wrote: Hi Everyone, My name is I am 35 years old. Married for 15 years to a great man. I am also having a great deal of chronic pain, as much of you do. In 1997 I had an accident at work. I was admitted to the hospital on New years day of 1998. Happy new Year to me!! haha. I can laugh now, but at the time it was the most horrifying experience...They put me on a Morphine pump, and got me to the MRI machine...To make a lng story short, I had a Massive herniation at L4-L5. It was so bad bad that they did emergency surgery on a Saturday, told my family if they waited I would be paralyzed and have a Colostomy bag...YIKES! I was out of it, so of course my family werent going to say no....etc Anyway, it hernaited again in March and I had another surgery done...It has left me with RSD and severe nerve damage to my lower extremeties. I have been diagnosed with Fibromyalgia, Raynauds, Degenerative Disc disease. I am just a walking Syndrome...I just wanted you all to know my background before I just jump and start posting...I have been to physical therapy, cortisone shots, epidurals, tons of medications, was going for the SCS but got denied from comp. So, now I am on darocet...and it is like taking a sleeping pill...I have alot of pain in my legs, back, hips, feet...nothing touches this nerve pain. I am working with an excellent Dr. to try all things we can..Do any of you have simliar situations or symptoms????? Thanks for time and sorry this is sooo long! Hugs ~~*Forever A Rottie Lover*~~ marianoscar@... Know someone who could profit from our list? Send our direct sign-up URL: /subscribe.cgi/chronic_pain or write us at: chronic_pain-listowneregroups Manage your subscription with several special email addresses: chronic_pain-owneregroups - Sends email to the list owners chronic_pain-subscribeegroups - Subscribe to the list through email chronic_pain-unsubscribeegroups - Unsubscribe from the list chronic_pain-normalegroups - Switch your subscription to normal chronic_pain-digestegroups - Switch your subscription to digest Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2000 Report Share Posted December 2, 2000 , I had my first surgery March, '99 for what I thought was a disc problem. The doctor found a cyst, removed it, and closed me up . Turns out I REALLY had spondilothesis (unstable vertebra at L4-L5) and that first surgery just made the vertebrae more unstable. I had two more surgeries March, '00 -- anterior and posterior fusions. I was improving until two months ago when I injured myself in physical therapy. I seem to have recovered from that, but now am in pain similar to that which I experiences before the last surgeries. I had another mylogram Thursday to see if other vertebrae are now unstable. I'm scheduled for a cortezone injection this coming Thursday. I just try to get through one day at a time and try to stay ahead of the pain. Sunny maria wrote: Hi Everyone, My name is I am 35 years old. Married for 15 years to a great man. I am also having a great deal of chronic pain, as much of you do. In 1997 I had an accident at work. I was admitted to the hospital on New years day of 1998. Happy new Year to me!! haha. I can laugh now, but at the time it was the most horrifying experience...They put me on a Morphine pump, and got me to the MRI machine...To make a lng story short, I had a Massive herniation at L4-L5. It was so bad bad that they did emergency surgery on a Saturday, told my family if they waited I would be paralyzed and have a Colostomy bag...YIKES! I was out of it, so of course my family werent going to say no....etc Anyway, it hernaited again in March and I had another surgery done...It has left me with RSD and severe nerve damage to my lower extremeties. I have been diagnosed with Fibromyalgia, Raynauds, Degenerative Disc disease. I am just a walking Syndrome...I just wanted you all to know my background before I just jump and start posting...I have been to physical therapy, cortisone shots, epidurals, tons of medications, was going for the SCS but got denied from comp. So, now I am on darocet...and it is like taking a sleeping pill...I have alot of pain in my legs, back, hips, feet...nothing touches this nerve pain. I am working with an excellent Dr. to try all things we can..Do any of you have simliar situations or symptoms????? Thanks for time and sorry this is sooo long! Hugs ~~*Forever A Rottie Lover*~~ marianoscar@... Know someone who could profit from our list? Send our direct sign-up URL: /subscribe.cgi/chronic_pain or write us at: chronic_pain-listowneregroups Manage your subscription with several special email addresses: chronic_pain-owneregroups - Sends email to the list owners chronic_pain-subscribeegroups - Subscribe to the list through email chronic_pain-unsubscribeegroups - Unsubscribe from the list chronic_pain-normalegroups - Switch your subscription to normal chronic_pain-digestegroups - Switch your subscription to digest Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2000 Report Share Posted December 2, 2000 , I had my first surgery March, '99 for what I thought was a disc problem. The doctor found a cyst, removed it, and closed me up . Turns out I REALLY had spondilothesis (unstable vertebra at L4-L5) and that first surgery just made the vertebrae more unstable. I had two more surgeries March, '00 -- anterior and posterior fusions. I was improving until two months ago when I injured myself in physical therapy. I seem to have recovered from that, but now am in pain similar to that which I experiences before the last surgeries. I had another mylogram Thursday to see if other vertebrae are now unstable. I'm scheduled for a cortezone injection this coming Thursday. I just try to get through one day at a time and try to stay ahead of the pain. Sunny maria wrote: Hi Everyone, My name is I am 35 years old. Married for 15 years to a great man. I am also having a great deal of chronic pain, as much of you do. In 1997 I had an accident at work. I was admitted to the hospital on New years day of 1998. Happy new Year to me!! haha. I can laugh now, but at the time it was the most horrifying experience...They put me on a Morphine pump, and got me to the MRI machine...To make a lng story short, I had a Massive herniation at L4-L5. It was so bad bad that they did emergency surgery on a Saturday, told my family if they waited I would be paralyzed and have a Colostomy bag...YIKES! I was out of it, so of course my family werent going to say no....etc Anyway, it hernaited again in March and I had another surgery done...It has left me with RSD and severe nerve damage to my lower extremeties. I have been diagnosed with Fibromyalgia, Raynauds, Degenerative Disc disease. I am just a walking Syndrome...I just wanted you all to know my background before I just jump and start posting...I have been to physical therapy, cortisone shots, epidurals, tons of medications, was going for the SCS but got denied from comp. So, now I am on darocet...and it is like taking a sleeping pill...I have alot of pain in my legs, back, hips, feet...nothing touches this nerve pain. I am working with an excellent Dr. to try all things we can..Do any of you have simliar situations or symptoms????? Thanks for time and sorry this is sooo long! Hugs ~~*Forever A Rottie Lover*~~ marianoscar@... Know someone who could profit from our list? Send our direct sign-up URL: /subscribe.cgi/chronic_pain or write us at: chronic_pain-listowneregroups Manage your subscription with several special email addresses: chronic_pain-owneregroups - Sends email to the list owners chronic_pain-subscribeegroups - Subscribe to the list through email chronic_pain-unsubscribeegroups - Unsubscribe from the list chronic_pain-normalegroups - Switch your subscription to normal chronic_pain-digestegroups - Switch your subscription to digest Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2000 Report Share Posted December 2, 2000 , I had my first surgery March, '99 for what I thought was a disc problem. The doctor found a cyst, removed it, and closed me up . Turns out I REALLY had spondilothesis (unstable vertebra at L4-L5) and that first surgery just made the vertebrae more unstable. I had two more surgeries March, '00 -- anterior and posterior fusions. I was improving until two months ago when I injured myself in physical therapy. I seem to have recovered from that, but now am in pain similar to that which I experiences before the last surgeries. I had another mylogram Thursday to see if other vertebrae are now unstable. I'm scheduled for a cortezone injection this coming Thursday. I just try to get through one day at a time and try to stay ahead of the pain. Sunny maria wrote: Hi Everyone, My name is I am 35 years old. Married for 15 years to a great man. I am also having a great deal of chronic pain, as much of you do. In 1997 I had an accident at work. I was admitted to the hospital on New years day of 1998. Happy new Year to me!! haha. I can laugh now, but at the time it was the most horrifying experience...They put me on a Morphine pump, and got me to the MRI machine...To make a lng story short, I had a Massive herniation at L4-L5. It was so bad bad that they did emergency surgery on a Saturday, told my family if they waited I would be paralyzed and have a Colostomy bag...YIKES! I was out of it, so of course my family werent going to say no....etc Anyway, it hernaited again in March and I had another surgery done...It has left me with RSD and severe nerve damage to my lower extremeties. I have been diagnosed with Fibromyalgia, Raynauds, Degenerative Disc disease. I am just a walking Syndrome...I just wanted you all to know my background before I just jump and start posting...I have been to physical therapy, cortisone shots, epidurals, tons of medications, was going for the SCS but got denied from comp. So, now I am on darocet...and it is like taking a sleeping pill...I have alot of pain in my legs, back, hips, feet...nothing touches this nerve pain. I am working with an excellent Dr. to try all things we can..Do any of you have simliar situations or symptoms????? Thanks for time and sorry this is sooo long! Hugs ~~*Forever A Rottie Lover*~~ marianoscar@... Know someone who could profit from our list? Send our direct sign-up URL: /subscribe.cgi/chronic_pain or write us at: chronic_pain-listowneregroups Manage your subscription with several special email addresses: chronic_pain-owneregroups - Sends email to the list owners chronic_pain-subscribeegroups - Subscribe to the list through email chronic_pain-unsubscribeegroups - Unsubscribe from the list chronic_pain-normalegroups - Switch your subscription to normal chronic_pain-digestegroups - Switch your subscription to digest Quote Link to comment Share on other sites More sharing options...
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