Guest guest Posted April 19, 2001 Report Share Posted April 19, 2001 Hi everyone. I'm feeling guilty for not acknowledging all the sick and recovering pumpkins. I lurked for a week and now I'm bogged down watching 's temp, as the immuno always has me waiting for meningitis or sepsis (she keeps reminding me). It's stressful to have to go on Crisis Alert for every 102*. So, I want you to know I'm thinking of all of you and sending my prayers your way. There are so many things I want to comment on, but then this would be 2 pages long. I'll spare you that! (mom to , age 2, antibody def, IgA def, partial T-cell def (CD3 & CD19) - not on IGIV yet) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2001 Report Share Posted April 19, 2001 Hi everyone. I'm feeling guilty for not acknowledging all the sick and recovering pumpkins. I lurked for a week and now I'm bogged down watching 's temp, as the immuno always has me waiting for meningitis or sepsis (she keeps reminding me). It's stressful to have to go on Crisis Alert for every 102*. So, I want you to know I'm thinking of all of you and sending my prayers your way. There are so many things I want to comment on, but then this would be 2 pages long. I'll spare you that! (mom to , age 2, antibody def, IgA def, partial T-cell def (CD3 & CD19) - not on IGIV yet) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2001 Report Share Posted April 19, 2001 , I hope everything is okay with -- we have to call the doc if or ph's temp gets up to 101. They used to say 100.4, but have given us a little more room. If they have cold symptoms, then we can see how they are acting. UGH I feel for you. We end up going to the ER for blood cultures, CBC w/ diff, etc.. sometimes it just plain old sucks. I hope you don't have to go in for any tests with ... -- Peace Be With You! ~Pattie~ Mom to , 7; 4 3/4 (SDS, hypogammaglobulinemia/CVID) and ph 3 1/2 (SDS) " The friend who finds you when you might be lost is a very welcome friend. " ~~Lessons from the Hundred-Acre Wood Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2001 Report Share Posted April 19, 2001 , I hope everything is okay with -- we have to call the doc if or ph's temp gets up to 101. They used to say 100.4, but have given us a little more room. If they have cold symptoms, then we can see how they are acting. UGH I feel for you. We end up going to the ER for blood cultures, CBC w/ diff, etc.. sometimes it just plain old sucks. I hope you don't have to go in for any tests with ... -- Peace Be With You! ~Pattie~ Mom to , 7; 4 3/4 (SDS, hypogammaglobulinemia/CVID) and ph 3 1/2 (SDS) " The friend who finds you when you might be lost is a very welcome friend. " ~~Lessons from the Hundred-Acre Wood Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2001 Report Share Posted April 19, 2001 , I hope everything is okay with -- we have to call the doc if or ph's temp gets up to 101. They used to say 100.4, but have given us a little more room. If they have cold symptoms, then we can see how they are acting. UGH I feel for you. We end up going to the ER for blood cultures, CBC w/ diff, etc.. sometimes it just plain old sucks. I hope you don't have to go in for any tests with ... -- Peace Be With You! ~Pattie~ Mom to , 7; 4 3/4 (SDS, hypogammaglobulinemia/CVID) and ph 3 1/2 (SDS) " The friend who finds you when you might be lost is a very welcome friend. " ~~Lessons from the Hundred-Acre Wood Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2003 Report Share Posted January 23, 2003 hello to u, have a great day and warm welcome to u we all like sites we can learn from thanks terri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2008 Report Share Posted October 9, 2008 I found IOWL a couple of weeks ago and just started reading the email today. I see someone else is turning 48 next month (my b'day is on the 12th). Also, I was doing WW -lost about 20 pounds on Core - but fell off the wagon a few weeks ago. Additionally, I discovered 101cookbooks recently. Talk about food porn. Everything she makes looks soooooo yummy. I made one of her dishes and it was very good. I think I just want to eat healthfully and up the exercise although there's a little birdie on my shoulder telling me to do something drastic to get some weight off quickly first (Rice Diet?). All the best to everyone. BTW - Did anyone read the article by Marlena Spieler, the food writer who lost 150ish pounds? I started it. It seems interesting. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2009 Report Share Posted May 18, 2009 Hi Sharon! I know honey! I know. Your pain is so great and i am so sorry for that. I wish there was something I could do to help you. I am here to listen though, whenever you need me. We are all in this together and want to help. And sometimes, when someone says something it is out of love, but it seems to be hard to hear for the person on the receiving end, because of the pain. I know this too. it has happened to me before. But, I will say, that I know that everyone on this group, me included are looking out for you, loving you and want the best for you, your son and your family and are here for you. Take care of you too. That is so very important. I think that is awesome how Danny knew you were in pain. When I cry, will come up and he WILL NOT leave my side and he will keep saying over and over, its ok mommy, its ok mama. Awe mama, its ok. It is so cute and just amazing to me too. And you know, he will not leave my side at all till I am done with the tears and I think that is really remarkable for our kiddos. Stacie Sorry I have been so combative lately - had to do something today that I was dreading and it had to be done. I had to go to my God Child's confirmation.I have not been to church very many times since my mom died. Please don't jump on me over this, it is my choice and my demon that I need to work on.I went to her confirmation for my mom. The hardest part of the whole thing was that they played Here I am Lord twice and that was one of the songs we had at her funeral. It was a very difficult time for me, my son and my sister. We cried like there was no tomorrow, people around us did not understand but we didn't care. I tried to sing, but the words would not come out. But my special little boy held on to me so tight whispering in my ear, mom are you okay, it's going to be okay, I love you, as we cried and cried and cried. He knew I was hurting -- isn't that amazing. He knew, not because of the tears but because of my body language. Now that's improvement.I love the fact that he knew what was going on enough to try to comfort me, it made me cry harder. Again sorry I have been so negative, I just knew this was coming and I knew it had to be done and that I had to do it. It is over now and maybe I can find peace. I doubt it but maybe.Sorry to all of you who reached out and I rebuffed - don't take it to heart I didn't mean to be meanSharon A strong credit score is 700 or above. See Yours in Just 2 Easy Steps! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2009 Report Share Posted May 18, 2009 What a release of pain that must have been. I thank God for tears. That is so precious that Danny wanted to console you. You must have had a good mother; not perfect, none of us are, but good enough. I had a good mother, not perfect, but she took me to church and she gave me my faith which is the greatest gift she could possibly have given me. I remember standing by her side in church as a very little girl listening to her sing the hymns, and now sometimes when we sing one of those songs. my mind flashes back and I can hear her voice again in my mind. It is a wonderful memory. Sweetheart, in time the pain will diminish and in its place you will find meaningful memories and an increased capacity for joy. I'm proud of you for facing that demon; every time any of us face one of our demons we become stronger. Good for you. Thanks for sharing that experience with me. Love and blessings, Pat K Hi All Sorry I have been so combative lately - had to do something today that I was dreading and it had to be done. I had to go to my God Child's confirmation. I have not been to church very many times since my mom died. Please don't jump on me over this, it is my choice and my demon that I need to work on. I went to her confirmation for my mom. The hardest part of the whole thing was that they played Here I am Lord twice and that was one of the songs we had at her funeral. It was a very difficult time for me, my son and my sister. We cried like there was no tomorrow, people around us did not understand but we didn't care. I tried to sing, but the words would not come out. But my special little boy held on to me so tight whispering in my ear, mom are you okay, it's going to be okay, I love you, as we cried and cried and cried. He knew I was hurting -- isn't that amazing. He knew, not because of the tears but because of my body language. Now that's improvement. I love the fact that he knew what was going on enough to try to comfort me, it made me cry harder. Again sorry I have been so negative, I just knew this was coming and I knew it had to be done and that I had to do it. It is over now and maybe I can find peace. I doubt it but maybe. Sorry to all of you who reached out and I rebuffed - don't take it to heart I didn't mean to be mean Sharon A Good Credit Score is 700 or Above. See Yours in Just 2 Easy Steps! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2009 Report Share Posted May 18, 2009 What a wonderful moment for you and your son --- a blessing for sure... e To: AutismBehaviorProblems Sent: Sunday, May 17, 2009 8:22:45 PMSubject: Hi All .. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.