Guest guest Posted April 6, 2005 Report Share Posted April 6, 2005 > Hay Joe, > About this " hair loss thing, " men look " So SEXY " with > shaved heads... everyone will call you SEXY JOE. > > Because of the meds. I'm taking my hair is falling-out > all over everything. I bought three different wigs > (they look very natural), each wig is a different > color and style ... might as will have some fun with > this damn disease! > > So SEXY JOE, let the hair fall where it may and > polish-up that bald head. > > Norma in Sonoma, CA Thanks Norma!!! If it does fall out, then I'll shine up the ole cue ball! Joe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2005 Report Share Posted April 7, 2005 I have long, curly brown hair down to almost my butt. When I was on MTX for about 6 months I was in the shower and a HUGE chunk of my hair fell out. I remember just standing there stunned and then running down the hall in my towel to my dorm room to my phone to call my mom! We cried together and then I called my Dr. first thing in the morning. He put me on more Folic Acid and changed me from pill MTX to injection and I really haven't had a problem since. It can be so scary though! The things that we have to endure really stink! I agree with Norma! Just think Joe....you could look like Bruce Willis or Vin Diesel! (Wink!) Love, Josie Lori Brown wrote: Has any one told you about Nioxin? Its super expensive shampo and conditioner, but I use it in combo with folic acid and it has seemed to slow the falling out to just the normal rate. Also, when I was majorly flaring, lost tons of hair, when the meds where controlling " the dragon " , it seemed to ease up. As you get stronger your hair will " hang in there " too. Lori in cali Norma Burnam wrote: Hay Joe, About this " hair loss thing, " men look " So SEXY " with shaved heads... everyone will call you SEXY JOE. Because of the meds. I'm taking my hair is falling-out all over everything. I bought three different wigs (they look very natural), each wig is a different color and style ... might as will have some fun with this damn disease! So SEXY JOE, let the hair fall where it may and polish-up that bald head. Norma in Sonoma, CA Visit the Still's Disease Message Board http://disc.server.com/Indices/148599.html The materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the information offered or provided within this support form. ion by any person following the information offered or provided within this support form. --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2008 Report Share Posted August 18, 2008 Hey everyone, sorry I haven't posted in so long, but I finally made it through treatment, this past Friday. I had a lot of problems along the way, mainly with my platelets falling to 25,000 and my wbc's seemed to hang around 1.5 and I stayed so tired, my resting heart rate is 98 and that can wear you out, that's with 3 Neupogen shots a week, but Thank God I hope it is finally over. I reached undetectable at week 4 of treatment and have remained to stay there. I had more blood work done today to check my viral load, and I hope I am still undetectable. My question, I have had some thinning of the hair through treatment, not alot though, but since this past Friday it has started to come out in clumps. I noticed that my head started to really get sore, has anyone else experienced hair loss at the end of treatment? Thanks Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2008 Report Share Posted August 18, 2008 Hi Sharon Congrats on finishing tx and doing so well.. I dont know what you say about the hair loss so late in the game,, mine thinned so badly that I finally just shaved it all off and bought a wig,, lol,, but mine started coming out by week 14 or 15.. Jackie Subject: Hair LossTo: Hepatitis_C_Central Date: Monday, August 18, 2008, 3:57 PM Hey everyone, sorry I haven't posted in so long, but I finally made it through treatment, this past Friday. I had a lot of problems along the way, mainly with my platelets falling to 25,000 and my wbc's seemed to hang around 1.5 and I stayed so tired, my resting heart rate is 98 and that can wear you out, that's with 3 Neupogen shots a week, but Thank God I hope it is finally over. I reached undetectable at week 4 of treatment and have remained to stay there. I had more blood work done today to check my viral load, and I hope I am still undetectable. My question, I have had some thinning of the hair through treatment, not alot though, but since this past Friday it has started to come out in clumps. I noticed that my head started to really get sore, has anyone else experienced hair loss at the end of treatment?ThanksSharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2008 Report Share Posted August 19, 2008 Sharon, the exact same thing happened to me. Coincidently, I was also undetectable at week 4…a very good thing!! I had read so much about hair loss, but mine didn’t start until right at the end. I didn’t have any soreness, but the hair loss did stop – it took about 6 weeks maybe after treatment ended. I was thinking about it just the other day. I am now at 6 months post treatment and I don’t see any hair at all in the shower any more. I guess that we were fortunate and it just took longer for us to have the hair loss…….you should be fine in a month or two. If the soreness continues though, I’d have it checked by a dermatologist. Congratulations on finishing!! It’s such a super feeling!! Dorothy From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of sharon.mccarty Sent: Monday, August 18, 2008 6:58 PM To: Hepatitis_C_Central Subject: Hair Loss Hey everyone, sorry I haven't posted in so long, but I finally made it through treatment, this past Friday. I had a lot of problems along the way, mainly with my platelets falling to 25,000 and my wbc's seemed to hang around 1.5 and I stayed so tired, my resting heart rate is 98 and that can wear you out, that's with 3 Neupogen shots a week, but Thank God I hope it is finally over. I reached undetectable at week 4 of treatment and have remained to stay there. I had more blood work done today to check my viral load, and I hope I am still undetectable. My question, I have had some thinning of the hair through treatment, not alot though, but since this past Friday it has started to come out in clumps. I noticed that my head started to really get sore, has anyone else experienced hair loss at the end of treatment? Thanks Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2008 Report Share Posted August 19, 2008 Actually I lost it through out treatment and got quite thin. But never completely lost everything. Just enough to be pain in the butt. The good thing is it grows back. Took me a while but slowly but surely it came back. Love Janet "There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go" Frederick Faber Subject: Hair LossTo: Hepatitis_C_Central Date: Monday, August 18, 2008, 5:57 PM Hey everyone, sorry I haven't posted in so long, but I finally made it through treatment, this past Friday. I had a lot of problems along the way, mainly with my platelets falling to 25,000 and my wbc's seemed to hang around 1.5 and I stayed so tired, my resting heart rate is 98 and that can wear you out, that's with 3 Neupogen shots a week, but Thank God I hope it is finally over. I reached undetectable at week 4 of treatment and have remained to stay there. I had more blood work done today to check my viral load, and I hope I am still undetectable. My question, I have had some thinning of the hair through treatment, not alot though, but since this past Friday it has started to come out in clumps. I noticed that my head started to really get sore, has anyone else experienced hair loss at the end of treatment?ThanksSharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2008 Report Share Posted August 19, 2008 Treatment does some strange things. I notice the hair on my head is getting thinner, but the hair on my chest is getting thicker. My nose hairs aren’t growing, but my ear hair and fingernails are growing faster. Weird. m From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of Janet Sent: Tuesday, August 19, 2008 9:12 AM To: Hepatitis_C_Central Subject: Re: Hair Loss Actually I lost it through out treatment and got quite thin. But never completely lost everything. Just enough to be pain in the butt. The good thing is it grows back. Took me a while but slowly but surely it came back. Love Janet " There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go " Frederick Faber From: sharon.mccarty Subject: Hair Loss To: Hepatitis_C_Central Date: Monday, August 18, 2008, 5:57 PM Hey everyone, sorry I haven't posted in so long, but I finally made it through treatment, this past Friday. I had a lot of problems along the way, mainly with my platelets falling to 25,000 and my wbc's seemed to hang around 1.5 and I stayed so tired, my resting heart rate is 98 and that can wear you out, that's with 3 Neupogen shots a week, but Thank God I hope it is finally over. I reached undetectable at week 4 of treatment and have remained to stay there. I had more blood work done today to check my viral load, and I hope I am still undetectable. My question, I have had some thinning of the hair through treatment, not alot though, but since this past Friday it has started to come out in clumps. I noticed that my head started to really get sore, has anyone else experienced hair loss at the end of treatment? Thanks Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2008 Report Share Posted August 19, 2008 Hi Sharon, I had a lot of hair loss during treatment ( I only went 17 weeks) My hair continued to fall out for about 2 months after discontinuing tx and then started to slow down and then stopped. I lost about 70% of my hair according to my hair dresser. BUT.. when it came back, it came in much thicker and with loose curls! I love it now... I would check with your Doc about the soreness. Congratulations on your completing tx and may you stay clear for ever! Subject: Hair LossTo: Hepatitis_C_Central Date: Monday, August 18, 2008, 3:57 PM Hey everyone, sorry I haven't posted in so long, but I finally made it through treatment, this past Friday. I had a lot of problems along the way, mainly with my platelets falling to 25,000 and my wbc's seemed to hang around 1.5 and I stayed so tired, my resting heart rate is 98 and that can wear you out, that's with 3 Neupogen shots a week, but Thank God I hope it is finally over. I reached undetectable at week 4 of treatment and have remained to stay there. I had more blood work done today to check my viral load, and I hope I am still undetectable. My question, I have had some thinning of the hair through treatment, not alot though, but since this past Friday it has started to come out in clumps. I noticed that my head started to really get sore, has anyone else experienced hair loss at the end of treatment?ThanksSharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2008 Report Share Posted August 19, 2008 > > > Subject: Hair Loss > To: Hepatitis_C_Central > Date: Monday, August 18, 2008, 3:57 PM > > > > > > > Hey everyone, sorry I haven't posted in so long, but I finally made it > through treatment, this past Friday. I had a lot of problems along > the way, mainly with my platelets falling to 25,000 and my wbc's > seemed to hang around 1.5 and I stayed so tired, my resting heart rate > is 98 and that can wear you out, that's with 3 Neupogen shots a week, > but Thank God I hope it is finally over. I reached undetectable at > week 4 of treatment and have remained to stay there. I had more blood > work done today to check my viral load, and I hope I am still > undetectable. > My question, I have had some thinning of the hair through treatment, > not alot though, but since this past Friday it has started to come out > in clumps. I noticed that my head started to really get sore, has > anyone else experienced hair loss at the end of treatment? > Thanks > Sharon > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2008 Report Share Posted August 20, 2008 Indeed weird . But kind of humorous too. Cause the same thing is happening to my husband and he doesn't have HCV. I think it is being middle aged. Hmmmm Just kidding. Love Janet "There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go" Frederick Faber From: sharon.mccarty <sharon.mccarty@ yahoo.com>Subject: [Hepatitis_C_ Central] Hair LossTo: Hepatitis_C_ Central@yahoogro ups.comDate: Monday, August 18, 2008, 5:57 PM Hey everyone, sorry I haven't posted in so long, but I finally made it through treatment, this past Friday. I had a lot of problems along the way, mainly with my platelets falling to 25,000 and my wbc's seemed to hang around 1.5 and I stayed so tired, my resting heart rate is 98 and that can wear you out, that's with 3 Neupogen shots a week, but Thank God I hope it is finally over. I reached undetectable at week 4 of treatment and have remained to stay there. I had more blood work done today to check my viral load, and I hope I am still undetectable. My question, I have had some thinning of the hair through treatment, not alot though, but since this past Friday it has started to come out in clumps. I noticed that my head started to really get sore, has anyone else experienced hair loss at the end of treatment?ThanksSharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2008 Report Share Posted August 20, 2008 I wondered… Part of the problem with HCV and treatment at my age is not know what is normal and what isn’t. m From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of Janet Sent: Wednesday, August 20, 2008 10:43 AM To: Hepatitis_C_Central Subject: RE: Hair Loss Indeed weird . But kind of humorous too. Cause the same thing is happening to my husband and he doesn't have HCV. I think it is being middle aged. Hmmmm Just kidding. Love Janet " There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go " Frederick Faber Quote Link to comment Share on other sites More sharing options...
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