Guest guest Posted August 30, 2000 Report Share Posted August 30, 2000 Hi to all. I have an interesting dilemma and I was hoping for some advice. My oldest daughter Tabitha, age 5 is extremely jealous of the time that Autumn spends with Mom & Dad. Autumn, of course, has been sick almost since birth and most of the time we spend with her has been at the doctor, hospital, etc. I have tried explaining to Tabitha that we love her very much and Autumn is not the " favorite " but she complains that since we spend so much time with Autumn, we don't love her very much. Her behavior gets worse during hospitalizations (when one of us has to be at the hospital 24/7) and extreme sickness (asthma, etc.). She acts out quite a bit and tends to scream and yell. Now, you have to understand that Tabitha is, for the most part, a very well-mannered child. She is extremely bright and is starting to read--two weeks into kindergarten. She's taught herself some basic gymnastics and will start gymnastics classes this week. My husband and I are at our wits end with this behavior and are looking for ways to help. I sent for the IDF book in an attempt to explain to Tabitha what Autumn is going through, but it didn't seem to help. Any thoughts? Also, got new profile tests on Autumn back Monday. The IgG subclass continues to decrease. The April profile showed the subclass 4 decreasing; now this test shows subclasses 1,2, & 4 decreasing. Right now she's well so I'm not terribly worried, but I'm just a little upset that the trend is downward instead of upward. The pneumococcal pre-test is still out and may come in this week. Ray, mother to Tabitha (age 5) and Autumn, age 2 (IgG def., asthma, chronic sinusitis, and allergies--unknown) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2000 Report Share Posted August 30, 2000 Hi, Ray-- I had a similar situation, only it was my pedpid son Wesley who felt a lack of love since we had to spend so much time with , who was nearly one when all his testing and therapies began. (he was born hypotonic, w/an abdonminal hernia, and also had sensory integration problems) What completely eliminated his perception of lack of love was homeschooling. I homeschooled him K last year, and he got so much great one on one attention, he didn't mind all the time i had to spend with samuel's therapies one little bit. For some kids, love is spelled t i m e, and that is the best way they feel loved. I know it's a sacrifice, but it was so good to see him appreciated my time, and to be so at peace within knowing i loved him just as much as . This year, my middle son is in K, and wes is in 1st, and is thrilled to get to have school with us!! I'm sure you were hoping for an easier answer,and perhaps others can provide it. Not having all the beginning of the school year difficulties that others have posted recently is such a relief!! And dealing with far fewer infections due to less exposure is so great not only for wes, but for me, as i'm iga def. , too. As others have said, he gets more extracurricular activities in --soccer, park groups, field trips--because he is sick less and has more energy by being homeschooled. One of the best benefits is the way it strengthens all of our family relationships. It's not for everyone, but it's something to consider. Hope that was a little bit helpful! Warmly, maurita, mom to Wesley, andrew, and samuel (and hopefully another on the way soon) - Sibling Rivalry Hi to all. I have an interesting dilemma and I was hoping for some advice. My oldest daughter Tabitha, age 5 is extremely jealous of the time that Autumn spends with Mom & Dad. Autumn, of course, has been sick almost since birth and most of the time we spend with her has been at the doctor, hospital, etc. I have tried explaining to Tabitha that we love her very much and Autumn is not the " favorite " but she complains that since we spend so much time with Autumn, we don't love her very much. Her behavior gets worse during hospitalizations (when one of us has to be at the hospital 24/7) and extreme sickness (asthma, etc.). She acts out quite a bit and tends to scream and yell. Now, you have to understand that Tabitha is, for the most part, a very well-mannered child. She is extremely bright and is starting to read--two weeks into kindergarten. She's taught herself some basic gymnastics and will start gymnastics classes this week. My husband and I are at our wits end with this behavior and are looking for ways to help. I sent for the IDF book in an attempt to explain to Tabitha what Autumn is going through, but it didn't seem to help. Any thoughts? Also, got new profile tests on Autumn back Monday. The IgG subclass continues to decrease. The April profile showed the subclass 4 decreasing; now this test shows subclasses 1,2, & 4 decreasing. Right now she's well so I'm not terribly worried, but I'm just a little upset that the trend is downward instead of upward. The pneumococcal pre-test is still out and may come in this week. Ray, mother to Tabitha (age 5) and Autumn, age 2 (IgG def., asthma, chronic sinusitis, and allergies--unknown) This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. Quote Link to comment Share on other sites More sharing options...
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