Guest guest Posted June 24, 2008 Report Share Posted June 24, 2008 Has anyone had any experience in taking a child off of Risperidone/risperdal due to risk of diabetes and had any success with any other medication that was also successful in decreasing aggression and balancing mood. Any info would be appreciated, thanks Kowalski, M.A., BCBA Certified RDI Consultant lak214@... 610-659-5344 42 Union Street Norristown, PA 19403 www.connectingpieces.comGet more from the Web. FREE MSN Explorer download : http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2008 Report Share Posted June 24, 2008 We actually just did this with some surprises. Our Paed was great and said he agreed that we needed to know if the medication was really doing it's job. When DS was 3 1/2 he was placed on Risperdal up and down but leveled at 0.7 x2 per day. After a year on the medication we took him off wheat (all gluten) and Milk (Caseine) with good results but our test was less than conclusive when he had wheat accidents. This spring we told the Dr we wanted to take him off and he had us reduce the medication by 0.1 ml/day every 3-4 days. It took us a month to get him off completely. We did not inform the school so that we could get unbiased feedback. Feedback from school is that the last 2 months have been great with a few minor burps. He is happier and his tantrums are shorter and easier to resolve than when he was on the Risperdal. He stays on task and is more focused. His therapist says he has more energy but in more present during activities. We had a wheat exposure when he was almost off the medication and the result was a dramtic spike in " Autistic behaviours " and OCD that resolved when the wheat cleared his system. His mood is better now than when he was taking the medication as long as we stay away from wheat. I don't know if this helps. I am not arguing for GFCF just sharing our recent experience. > > Has anyone had any experience in taking a child off of Risperidone/risperdal due to risk of diabetes and had any success with any other medication that was also successful in decreasing aggression and balancing mood. Any info would be appreciated, thanks > > Kowalski, M.A., BCBA > Certified RDI Consultant > lak214@... > 610-659-5344 > 42 Union Street > Norristown, PA 19403 > www.connectingpieces.comGet more from the Web. FREE MSN Explorer download : http://explorer.msn.com > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2008 Report Share Posted June 24, 2008 Hi , I'm not sure about Risperidone. I've heard taking it has complications, (as with most medications?)(Check the Autism Research Institute/ARI about that?) that haven't even been entirely fully explored, (far from it) not to mention how it affects individuals, particularly, so we have been reluctant to experiment with things like that/anything like that that wouldn't be a critical health demand. Teaching communication (and practicing it) should help us resolve the matter, (as you do;) with our children and students, of the programming, (ABA) thereof? Trying to make the child as healthy as s/he can be (providing what is needed, unconditionally) goes a long way with that but where we are dealing with their individual differences (Individuality?) we need to communicate with them for that is my sense of it. Many doctors I have found to be quite useless in dealing with a child who can't effectively communicate with them It almost seems to me that our children want what they need to a very large extent? (somewhat unlike typical children?) where " we " practice that? A lot of interaction/communication should provide us direction, thereof, especially the " intuitive " kind in that respect. Specifically, we have found that by providing our son cod-liver-oil, enzymes for digestion, (where needed, only) 5-HTP for anxiety, calcium-magnesium supplementation (to offset his GFCF issues), and seeing experts and Individuals fairly regularly (different/ alternative ones, as well) on their take on what's going on, with what our son's symptoms and feelings (of communication) means to them, we seem to have things pretty much under control. Of course, that involves taking care of ourselves, first, thereof, so we can be the best we can be for him. Oh, and we use over-the-counter pain-killers where needed as well, (Ibuprofen, mostly) but only infrequently, where needed.. . Inflammation is not generally a good thing to leave unattended we have gathered for ourselves.. . We wouldn't give our son anything we wouldn't try ourselves and we try things ourselves to get a sense of what is going on with him, thereof. (He's not especially good at verbally communicating to others.) We also realize that our son is probably more like us (and his sister...) than anyone else, autistic folks not excluded I can't advise on how you should withdraw from Risperidone. Consult the experts on that I would advise for that. Take him off gradually? ABA is about gradually, especially. Perhaps someone on this board will step forward in that respect of what's best to do, thereof, of what is needed, of even more input? Keep in communication with your son, though, for what is best for him is the most basic advice I can give you on what would be best for him. At least we can give you things you can " try, " of what we have tried for our individual situations, thereof.. . Best wishes, Mike, I ABA ABA for Understanding " Any " info? This fits the bill is my sense of It.. . > > Has anyone had any experience in taking a child off of Risperidone/risperdal due to risk of diabetes and had any success with any other medication that was also successful in decreasing aggression and balancing mood. Any info would be appreciated, thanks > > Kowalski, M.A., BCBA > Certified RDI Consultant > lak214@... > 610-659-5344 > 42 Union Street > Norristown, PA 19403 > www.connectingpieces.comGet more from the Web. FREE MSN Explorer download : http://explorer.msn.com > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2008 Report Share Posted June 24, 2008 No experience here with a replacement med, but I want to underline the importance of weaning your child off the risperidone very gradually. Our daughter went off cold turkey for reasons beyond our control (8 days of vomiting from a stomach virus, so she couldn't keep the med down). She had withdrawal dyskinesia so badly that to me she looked like a mid-stage Parkinson's patient. Scary stuff, though it resolved immediately when we were able to gradually restore her dose. Sorry this only responds to a fraction of your question, but I want to get the tip to all parents considering or using risperidone. We've found the medication very helpful in reducing SIB & tantrums (and no weight gain either, we're told that's rare), but increase and decrease dosage in the smallest increments you can. Wil From: ibi_mom <ibi_mom@...> Subject: [ ] Re: medication question Date: Tuesday, June 24, 2008, 6:32 PM We actually just did this with some surprises. Our Paed was great and said he agreed that we needed to know if the medication was really doing it's job. When DS was 3 1/2 he was placed on Risperdal up and down but leveled at 0.7 x2 per day. After a year on the medication we took him off wheat (all gluten) and Milk (Caseine) with good results but our test was less than conclusive when he had wheat accidents. This spring we told the Dr we wanted to take him off and he had us reduce the medication by 0.1 ml/day every 3-4 days. It took us a month to get him off completely. We did not inform the school so that we could get unbiased feedback. Feedback from school is that the last 2 months have been great with a few minor burps. He is happier and his tantrums are shorter and easier to resolve than when he was on the Risperdal. He stays on task and is more focused. His therapist says he has more energy but in more present during activities. We had a wheat exposure when he was almost off the medication and the result was a dramtic spike in " Autistic behaviours " and OCD that resolved when the wheat cleared his system. His mood is better now than when he was taking the medication as long as we stay away from wheat. I don't know if this helps. I am not arguing for GFCF just sharing our recent experience. --- In , " Kowalski " <lak214@...> wrote: > > Has anyone had any experience in taking a child off of Risperidone/risperdal due to risk of diabetes and had any success with any other medication that was also successful in decreasing aggression and balancing mood. Any info would be appreciated, thanks > > Kowalski, M.A., BCBA > Certified RDI Consultant > lak214@... > 610-659-5344 > 42 Union Street > Norristown, PA 19403 > www.connectingpieces.comGet more from the Web. FREE MSN Explorer download : http://explorer.msn.com > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2010 Report Share Posted November 9, 2010 , Just because something is NOT on the CMT Medical Alert, doesn't mean it can't cause problems. I hope you have done/or will do plenty of research on it. My only concern is that taking Concerta may cause tremor in her hands - or rather bring out the dormant tremor that might not otherwise appear till later in life. My second concern for your daughter with CMT is to be advised of any breathing/respiratory problems she develops, if any, because sometimes people with CMT do develop serious breathing problems. Gretchen Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.