Guest guest Posted October 10, 2008 Report Share Posted October 10, 2008 This is awful - I'm so sorry that Rick is having such a tough time - I can't imagine what he and are going through. He has been in my thoughts and prayers - he's been in ALL of our thoughts and prayers! There are some studies that mention donor related low sodium problems - didn't say how they treated it though - I pray that the docs will find a way to treat it soon! M Hi guys,I just got off the phone a little bit ago with and thing are continuing in the same manner and nothing is getting resolved.. On Monday his sodium was at 119, then dropped down a little, then went back up a bit, but now is down to 115. They dont know why and as said,, the docs are all "flummoxed". I guess they have been calling other transplant teams trying to figure this out. sounded so down today and IM quite worried about her. She hasnt eaten much today so I suggested that she eat something and then go to bed and sleep. She said she would after she talks with the night nurses. Rick is in pain and is delusional and that is scaring her. He keeps thinking that he is at the apartment and is trying to get out of bed when she is there so she finally went back to the apartment to rest. She will call me tomorrow and Ill let you all know then. I just hope they get it figured out.. Im quite worried now, after all of this time, you'd think they would have figured out what is causing this.. if anyone has any ideas,,, please bring them forward.. and keep rick and melissa in our thoughts and prayers.. sigh.... Im sad!jaxNew MapQuest Local shows what's happening at your destination. Dining, Movies, Events, News more. Try it out! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2008 Report Share Posted October 10, 2008 thanks , I know melissa said that they have no idea what is causing this,, I just hope they get it figured out soon..Jackie Subject: Re: update on RickTo: Hepatitis_C_Central Date: Friday, October 10, 2008, 6:10 PM This is awful - I'm so sorry that Rick is having such a tough time - I can't imagine what he and are going through. He has been in my thoughts and prayers - he's been in ALL of our thoughts and prayers! There are some studies that mention donor related low sodium problems - didn't say how they treated it though - I pray that the docs will find a way to treat it soon! M In a message dated 10/10/2008 7:59:54 P.M. Central Daylight Time, redjaxjmyahoo (DOT) com writes: Hi guys,I just got off the phone a little bit ago with and thing are continuing in the same manner and nothing is getting resolved.. On Monday his sodium was at 119, then dropped down a little, then went back up a bit, but now is down to 115. They dont know why and as said,, the docs are all "flummoxed". I guess they have been calling other transplant teams trying to figure this out. sounded so down today and IM quite worried about her. She hasnt eaten much today so I suggested that she eat something and then go to bed and sleep. She said she would after she talks with the night nurses. Rick is in pain and is delusional and that is scaring her. He keeps thinking that he is at the apartment and is trying to get out of bed when she is there so she finally went back to the apartment to rest. She will call me tomorrow and Ill let you all know then. I just hope they get it figured out.. Im quite worried now, after all of this time, you'd think they would have figured out what is causing this.. if anyone has any ideas,,, please bring them forward.. and keep rick and melissa in our thoughts and prayers.. sigh.... Im sad!jax New MapQuest Local shows what's happening at your destination. Dining, Movies, Events, News more. Try it out! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2008 Report Share Posted October 10, 2008 Sounds like maybe a kidney not working right ,,,,or potassium & sodium imbalance . Does he have any heart problems ? update on Rick Hi guys,I just got off the phone a little bit ago with and thing are continuing in the same manner and nothing is getting resolved.. On Monday his sodium was at 119, then dropped down a little, then went back up a bit, but now is down to 115. They dont know why and as said,, the docs are all "flummoxed". I guess they have been calling other transplant teams trying to figure this out. sounded so down today and IM quite worried about her. She hasnt eaten much today so I suggested that she eat something and then go to bed and sleep. She said she would after she talks with the night nurses. Rick is in pain and is delusional and that is scaring her. He keeps thinking that he is at the apartment and is trying to get out of bed when she is there so she finally went back to the apartment to rest. She will call me tomorrow and Ill let you all know then. I just hope they get it figured out.. Im quite worried now, after all of this time, you'd think they would have figured out what is causing this.. if anyone has any ideas,,, please bring them forward.. and keep rick and melissa in our thoughts and prayers.. sigh.... Im sad!jax Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2008 Report Share Posted October 10, 2008 not as far as we know,,, they are calling in the kidney specialist to double check everything, its just his sodium thats out of whack I think,, I'll double check with her tomorrowJackie Subject: Re: update on RickTo: Hepatitis_C_Central Date: Friday, October 10, 2008, 9:38 PM Sounds like maybe a kidney not working right ,,,,or potassium & sodium imbalance . Does he have any heart problems ? [Hepatitis_C_ Central] update on Rick Hi guys,I just got off the phone a little bit ago with and thing are continuing in the same manner and nothing is getting resolved.. On Monday his sodium was at 119, then dropped down a little, then went back up a bit, but now is down to 115. They dont know why and as said,, the docs are all "flummoxed". I guess they have been calling other transplant teams trying to figure this out. sounded so down today and IM quite worried about her. She hasnt eaten much today so I suggested that she eat something and then go to bed and sleep. She said she would after she talks with the night nurses. Rick is in pain and is delusional and that is scaring her. He keeps thinking that he is at the apartment and is trying to get out of bed when she is there so she finally went back to the apartment to rest. She will call me tomorrow and Ill let you all know then. I just hope they get it figured out.. Im quite worried now, after all of this time, you'd think they would have figured out what is causing this.. if anyone has any ideas,,, please bring them forward.. and keep rick and melissa in our thoughts and prayers.. sigh.... Im sad!jax Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2008 Report Share Posted October 10, 2008 I have done so much research trying to find out more about post tp hypernatremia and there isn't much out there at all . I know why the doc's are stumped . I found out that donor hyponatremia can alter the outcome though . And that one woman ended up with cerebral edema(post tp) from persistant hypernatremia and that's all I found out there . I can usually dig stuff up but this time it's like I hit a brick wall with the research , but I will continue to try . I might even call UNOS to see if they have any info on it . Tell them to hang in there I am praying for him and hoping they can find out where its all coming from and fix it . xoxo [Hepatitis_C_ Central] update on Rick Hi guys,I just got off the phone a little bit ago with and thing are continuing in the same manner and nothing is getting resolved.. On Monday his sodium was at 119, then dropped down a little, then went back up a bit, but now is down to 115. They dont know why and as said,, the docs are all "flummoxed". I guess they have been calling other transplant teams trying to figure this out. sounded so down today and IM quite worried about her. She hasnt eaten much today so I suggested that she eat something and then go to bed and sleep. She said she would after she talks with the night nurses. Rick is in pain and is delusional and that is scaring her. He keeps thinking that he is at the apartment and is trying to get out of bed when she is there so she finally went back to the apartment to rest. She will call me tomorrow and Ill let you all know then. I just hope they get it figured out.. Im quite worried now, after all of this time, you'd think they would have figured out what is causing this.. if anyone has any ideas,,, please bring them forward.. and keep rick and melissa in our thoughts and prayers.. sigh.... Im sad!jax Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2008 Report Share Posted October 11, 2008 his sodium is low,, very low,, its not high hon,, you were talking about hyPERnatremia,, or maybe IM reading your post wrong,, see what you can find about low sodium,,k?Jackie From: elizabethnv1 <elizabethnv1@ earthlink. net>Subject: Re: [Hepatitis_C_ Central] update on RickTo: Hepatitis_C_ Central@yahoogro ups.comDate: Friday, October 10, 2008, 9:38 PM Sounds like maybe a kidney not working right ,,,,or potassium & sodium imbalance . Does he have any heart problems ? [Hepatitis_C_ Central] update on Rick Hi guys,I just got off the phone a little bit ago with and thing are continuing in the same manner and nothing is getting resolved.. On Monday his sodium was at 119, then dropped down a little, then went back up a bit, but now is down to 115. They dont know why and as said,, the docs are all "flummoxed". I guess they have been calling other transplant teams trying to figure this out. sounded so down today and IM quite worried about her. She hasnt eaten much today so I suggested that she eat something and then go to bed and sleep. She said she would after she talks with the night nurses. Rick is in pain and is delusional and that is scaring her. He keeps thinking that he is at the apartment and is trying to get out of bed when she is there so she finally went back to the apartment to rest. She will call me tomorrow and Ill let you all know then. I just hope they get it figured out.. Im quite worried now, after all of this time, you'd think they would have figured out what is causing this.. if anyone has any ideas,,, please bring them forward.. and keep rick and melissa in our thoughts and prayers.. sigh.... Im sad!jax Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2008 Report Share Posted October 15, 2008 Just got off the phone with and they still do not know what is causing Rick's sodium to be so low.. Today it is holding at 120 which is what it was yesterday. They don't have the results of the MRI they did yesterday or the day before,, we both think its kind of weird that they dont have that back yet. The doc said they are waiting upon two tests and are hoping that they 'might' reveal what is going on.. I tell you guys, I feel so very sad about this.. said that she has thought to herself that maybe they should have waited for another liver altho this liver is working fine,, His kidneys are working fine,, they just do not understand what is going on, say they've never seen anything like this.. Sure they've had sodium issues before but never for this long and they've always been able to figure out what is causing it and how to fix it,, but this time, they are totally stumped.. But,, Rick is back in the ICU after going to surgery today to get the fluid drained from one lung as well as behind the lung. They say that it has nothing to do with his sodium issues or his confusion. said that today he had a couple of moments where he told her that he didnt like the way his brain was not working and how he was having trouble putting words together to make a sentence that made sense... and today he was so confused, was having one of the nurse moving balloons around the room that were not there...sigh.. Please continue to pray for Rick or do whatever it is that you do.. I will be back tomorrow with another update if I hear from melissa ,, she sounds so defeated.. Im still working on my mom's stuff so I'll be around tonite for a little while, after the last debate,, gotta watch that and then Ill be back to answer some of the posts if I can,, I have a huge number of emails since last nite,, lol,, love you all,,but hate this virus! jax Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2008 Report Share Posted October 17, 2008 Out of the ICU awesome , it's slow but he's doing gonna get through this update on Rick Hi Everyone,Just got off the phone with and Ricks sodium is up another couple of points to 124 but is still very low. He is still suffering from confusion and somewhat delusional. said that tomorrow, she thinks he will be back on the post transplant unit and out of the IUC.. thats good! sounds so very tired and said she was going to collapse into a puddle,, I sure wish I were there with her to support her. She is one strong woman indeed and I will continue to keep on praying for them.She will call me tomorrow and Ill update you all then.. Lets just keep them both in our thoughts and prayers, I know this is the best place on the internet for us heppers and those who care for us.. there is a reason for that and thats because of all of you!love to everyone!jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2008 Report Share Posted October 17, 2008 yep thats what I believe too liz,, he'll be alright, its slow going thoJackie Subject: Re: update on RickTo: Hepatitis_C_Central Date: Friday, October 17, 2008, 9:11 PM Out of the ICU awesome , it's slow but he's doing gonna get through this [Hepatitis_C_ Central] update on Rick Hi Everyone,Just got off the phone with and Ricks sodium is up another couple of points to 124 but is still very low. He is still suffering from confusion and somewhat delusional. said that tomorrow, she thinks he will be back on the post transplant unit and out of the IUC.. thats good! sounds so very tired and said she was going to collapse into a puddle,, I sure wish I were there with her to support her. She is one strong woman indeed and I will continue to keep on praying for them.She will call me tomorrow and Ill update you all then.. Lets just keep them both in our thoughts and prayers, I know this is the best place on the internet for us heppers and those who care for us.. there is a reason for that and thats because of all of you!love to everyone!jackie Quote Link to comment Share on other sites More sharing options...
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