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Rich, you are speaking as if in the same room! Have to check my bugs

again! As soon as these 2 apparent opptions arose, my wife, , and

I both wanted the transplant only. This other possibility just came up a

few days ago, so we're still learning and getting over the shock of it.

I like hearing that your transplant went so well, and if I could come

close to your quick recovery, I would be ecstatic! I'd be trippin, man!

The hell with the pain, we've all had that too many decades, but to feel

clear headed is unimaginable. Congrats to you Rich, and let's hope I'll

be less that a year after your surgery. Did you have to do another full

round of tx for the HCV after your body settled down from the surgery?

Thanks again, Rich. from Rick

>

> Rick congrats for getting on the program. By all means fight to get

on

> the list ASAP. Then cross your fingers and tows and pray all you can.

A

> transplant is the way to go. You will never believe how good you fell

> just days after. You will be in pain but have a clear mind and just

> feel better than you have in years.

> rich

> Go in for my 6 month check next week

>

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Rick, WE ALL hope that you get your liver quick and that you recover even quicker..JackieSubject: Re: RickTo: Hepatitis_C_Central Date: Saturday, June 14, 2008, 11:53 PM

Rich, you are speaking as if in the same room! Have to check my bugs

again! As soon as these 2 apparent opptions arose, my wife, , and

I both wanted the transplant only. This other possibility just came up a

few days ago, so we're still learning and getting over the shock of it.

I like hearing that your transplant went so well, and if I could come

close to your quick recovery, I would be ecstatic! I'd be trippin, man!

The hell with the pain, we've all had that too many decades, but to feel

clear headed is unimaginable. Congrats to you Rich, and let's hope I'll

be less that a year after your surgery. Did you have to do another full

round of tx for the HCV after your body settled down from the surgery?

Thanks again, Rich. from Rick

>

> Rick congrats for getting on the program. By all means fight to get

on

> the list ASAP. Then cross your fingers and tows and pray all you can.

A

> transplant is the way to go. You will never believe how good you fell

> just days after. You will be in pain but have a clear mind and just

> feel better than you have in years.

> rich

> Go in for my 6 month check next week

>

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Hi Rick

Here's pullin for You. With the signs of cancer you should be right

at the top of the list. I was not even officaly still on the listas

my Mel numbers went down, but with a AB- blood type was the only one

on the list in the northwest region and from the sounds on it on the

west coast, as my liver came from the LA area so I've been told. Did

meet a gail that has been on the list for 6 years but her mel numbers

are right on the boarderline, so she waits.

As for treatment after the transplant. I have asked and the Doc

said it's not normal to need it as your life style has changed IE NO

ALOCHOL but they will let me know after my Bio and MRI next week for

the 6 month check. I hope I don't need to do it again as I went

through the full 48 weeks about 6 years ago was not fun but did work

full time. They did find the start of cancer in my old liver so have

me under a cancer watch now.Good luck and hope you get yours soon

also. My only problem so far is I'm still weak and the drugs but me

to sleep. Sleep 12 to 14 hours a day and still tired.

rich

>

> Rich, you are speaking as if in the same room! Have to check my

bugs

> again! As soon as these 2 apparent opptions arose, my wife,

, and

> I both wanted the transplant only. This other possibility just came

up a

> few days ago, so we're still learning and getting over the shock of

it.

> I like hearing that your transplant went so well, and if I could

come

> close to your quick recovery, I would be ecstatic! I'd be trippin,

man!

> The hell with the pain, we've all had that too many decades, but to

feel

> clear headed is unimaginable. Congrats to you Rich, and let's hope

I'll

> be less that a year after your surgery. Did you have to do another

full

> round of tx for the HCV after your body settled down from the

surgery?

>

> Thanks again, Rich. from Rick

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Rick,

I know that feeling. I have thought that it would be better. Had to talk to my sponsor, so she could talk me down. MARYP

Re: Rick

Hi RickHere's pullin for You. With the signs of cancer you should be right at the top of the list. I was not even officaly still on the listas my Mel numbers went down, but with a AB- blood type was the only one on the list in the northwest region and from the sounds on it on the west coast, as my liver came from the LA area so I've been told. Did meet a gail that has been on the list for 6 years but her mel numbers are right on the boarderline, so she waits.As for treatment after the transplant. I have asked and the Doc said it's not normal to need it as your life style has changed IE NO ALOCHOL but they will let me know after my Bio and MRI next week for the 6 month check. I hope I don't need to do it again as I went through the full 48 weeks about 6 years ago was not fun but did work full time. They did find the start of cancer in my old liver so have me under a cancer watch now.Good luck and

hope you get yours soon also. My only problem so far is I'm still weak and the drugs but me to sleep. Sleep 12 to 14 hours a day and still tired.rich>> Rich, you are speaking as if in the same room! Have to check my bugs > again! As soon as these 2 apparent opptions arose, my wife, , and > I both wanted the transplant only. This other possibility just came up a > few days ago, so we're still learning and getting over the shock of it. > I like hearing that your transplant went so well, and if I could come > close to your quick recovery, I would be ecstatic! I'd be trippin, man! > The hell with the pain, we've all had that

too many decades, but to feel > clear headed is unimaginable. Congrats to you Rich, and let's hope I'll > be less that a year after your surgery. Did you have to do another full > round of tx for the HCV after your body settled down from the surgery?> > Thanks again, Rich. from Rick

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Thanks, Rich! Your high spirits really help remove some anxieties.

It's the waiting that sucks. Been walking a mile a day lately, trying

to get into better shape. My weight, 175 (down from 265 when on

roids) and mind are in pretty good shape, and I'm a ready! Hey, how'd

they find a clean liver in the LA region!! lol

>

> Hi Rick

> Here's pullin for You. With the signs of cancer you should be

right

> at the top of the list. I was not even officaly still on the listas

> my Mel numbers went down, but with a AB- blood type was the only

one

> on the list in the northwest region and from the sounds on it on

the

> west coast, as my liver came from the LA area so I've been told.

Did

> meet a gail that has been on the list for 6 years but her mel

numbers

> are right on the boarderline, so she waits.

> As for treatment after the transplant. I have asked and the Doc

> said it's not normal to need it as your life style has changed IE

NO

> ALOCHOL but they will let me know after my Bio and MRI next week

for

> the 6 month check. I hope I don't need to do it again as I went

> through the full 48 weeks about 6 years ago was not fun but did

work

> full time. They did find the start of cancer in my old liver so

have

> me under a cancer watch now.Good luck and hope you get yours soon

> also. My only problem so far is I'm still weak and the drugs but me

> to sleep. Sleep 12 to 14 hours a day and still tired.

> rich

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Dorothy,I've had my transplanted liver for 10 years and I went through tx for 72 weeks. I only take one rejection drug and that is prograf and I only take 1mg per day. I've had no problems with rejection whatsoever. My only problem is I just can't seem to get rid of this HCV. The dragon will not stop pestering me. I was SVR for almost a year and this stuff came back. I am preparing to retreat in a few weeks and possibly try one of the new experimental blockers if my Dr believes it can help. My last biopsy actually looked better than the one I had done 2 years ago. I believe the tx has helped me a great deal and I will do it again. I have a few friends who have had kidney transplants that have HCV and they have treated successfully. The only difference is that HCV patients pre-transplant only treat for 48 weeks while post-transplant treats for

72.

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I hope all goes well for you this time –

I have the greatest admiration for the strength of those here who treat,

re-treat and treat again. It must be extremely frustrating.

Dorothy

From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of Steve Bridgers

Sent: Sunday, June 22, 2008 9:28

PM

To: Hepatitis_C_Central

Subject: Re:

Rick

Dorothy,

I've had my transplanted liver for 10 years and I went through tx for 72

weeks. I only take one rejection drug and that is prograf and I only take 1mg

per day. I've had no problems with rejection whatsoever. My only problem is I

just can't seem to get rid of this HCV. The dragon will not stop pestering

me. I was SVR for almost a year and this stuff came back. I am preparing to

retreat in a few weeks and possibly try one of the new experimental blockers

if my Dr believes it can help. My last biopsy actually looked better than the

one I had done 2 years ago. I believe the tx has helped me a great deal and I

will do it again. I have a few friends who have had kidney transplants that

have HCV and they have treated successfully. The only difference is that HCV patients

pre-transplant only treat for 48 weeks while post-transplant treats for 72.

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  • 4 weeks later...
Guest guest

Rich, thanks for the email! Good information. I'm really ready, so

now it's just waiting to finish all tests next Tuesday, and find out

how high I am on the B+ list. I'm 2.5 hours away, so that's pushing

it, but then, it could be the hurry up and wait military phenomona!

Let me know how you felt a month after tp and how you feel now. After

15 years of absolute poop, I look forward to a shot or a blood test!

Feels good to know you're still kicking! Thanks again, Rich

> Hey Rick

> Hang in there Bud it does get better , was in your shoes this time

> last year. Just getting over all them test they do wear you down.

They

> found I had a ulcer and got that taken care of with drugs.

> Don't know how far your from the hospital , but if it's under a

hour

> or little more of a drive hold off moving till you get the call,but

be

> ready and packed. I got my call at 4:30 PM and made the hospital

by 5

> then sat till they took me in at 5 the next morning. but then the

Liver

> came from la la land or there abouts. If I can be of any help for

info

> give me a shout.

> I send 8 days in ICU do to a lung that did not want to work right

off

> then 3 days in the hospital, then walked out.

> First get on the list and then the hard part really starts the

> waiting for the call.

> Good luck Bud and keep the faith.

> rich

>

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  • 3 weeks later...

Oh, wow, I'm excited, I actually got an e-mail from you

directly through the list, now this is a first. :)

What great news that all is going so well, now the wait and

you know we are all praying that it will be a short one..

Things have a way of working out how and when they should,

just keep that awesome attitude!

Love to you both,

Sheena

For Liz, Sheena, Jackie and all!First off, thanks for all the loving thoughts. Secondly, we really don't need anything at all. made an extra trip home to pick up whatever we couldn't fit the first time (she picked me up at the hospital, and we came directly to Tampa). We have a public library with over 400,000 volumes less than a mile away, and has lots of books (of course! She has a damned Masters in English). Plus Netflix and Blockbuster. We have a flat screen in the living room and another in our bedroom, both with DVD players, so we're well entertained. Plus, we're in an old section of Tampa with beautiful houses, trees and critters. And yes, if I get sick again, it will delay any TP, but that is why we're here. Tampa General has to take care of me, and I'm listed as a tp patient, so they'll take good care to save me for a greater illness! lol. I was very tired of going to

our local hospital in Fort Myers for emergencies, where the care is not up to par with this hospital. So, all is very well here. It comes down to controlling the anxiety of waiting. I'm using nature and humor now, which my wife also needs and loves. Aftr all, life has its amusing sides, no matter what.> > From: elizabethnv1 <elizabethnv1@ >> > Subject: Re: [Hepatitis_C_ Central] Re:LIZ??? for you> > To: Hepatitis_C_ Central@yahoogro ups.com> > Date: Tuesday, August 12, 2008, 12:31 PM>

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Know you said you were covered, Rick, but it would sure

be nice to be able to at least send you a card now and then..

I wish we could have done that for our other transplant folks,

as well, didn't know where they were!

Either way, prayers and best wishes are ever with you both..

Love,

Sheena

From: Rick Kipp <rickkippearthlink (DOT) net>Subject: [Hepatitis_C_ Central] Re:LIZ??? for youTo: Hepatitis_C_ Central@yahoogro ups.comDate: Tuesday, August 12, 2008, 9:18 PM

For Liz, Sheena, Jackie and all!First off, thanks for all the loving thoughts. Secondly, we really don't need anything at all. made an extra trip home to pick up whatever we couldn't fit the first time (she picked me up at the hospital, and we came directly to Tampa). We have a public library with over 400,000 volumes less than a mile away, and has lots of books (of course! She has a damned Masters in English). Plus Netflix and Blockbuster. We have a flat screen in the living room and another in our bedroom, both with DVD players, so we're well entertained. Plus, we're in an old section of Tampa with beautiful houses, trees and critters. And yes, if I get sick again, it will delay any TP, but that is why we're here. Tampa General has to take care of me, and I'm listed as a tp patient, so they'll take good care to save me for a greater illness! lol. I was very tired of going to

our local hospital in Fort Myers for emergencies, where the care is not up to par with this hospital. So, all is very well here. It comes down to controlling the anxiety of waiting. I'm using nature and humor now, which my wife also needs and loves. Aftr all, life has its amusing sides, no matter what.> > From: elizabethnv1 <elizabethnv1@ >> > Subject: Re: [Hepatitis_C_ Central] Re:LIZ??? for you> > To: Hepatitis_C_ Central@yahoogro ups.com> > Date: Tuesday, August 12, 2008, 12:31 PM>

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