Guest guest Posted June 15, 2008 Report Share Posted June 15, 2008 Rich, you are speaking as if in the same room! Have to check my bugs again! As soon as these 2 apparent opptions arose, my wife, , and I both wanted the transplant only. This other possibility just came up a few days ago, so we're still learning and getting over the shock of it. I like hearing that your transplant went so well, and if I could come close to your quick recovery, I would be ecstatic! I'd be trippin, man! The hell with the pain, we've all had that too many decades, but to feel clear headed is unimaginable. Congrats to you Rich, and let's hope I'll be less that a year after your surgery. Did you have to do another full round of tx for the HCV after your body settled down from the surgery? Thanks again, Rich. from Rick > > Rick congrats for getting on the program. By all means fight to get on > the list ASAP. Then cross your fingers and tows and pray all you can. A > transplant is the way to go. You will never believe how good you fell > just days after. You will be in pain but have a clear mind and just > feel better than you have in years. > rich > Go in for my 6 month check next week > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2008 Report Share Posted June 15, 2008 Rick, WE ALL hope that you get your liver quick and that you recover even quicker..JackieSubject: Re: RickTo: Hepatitis_C_Central Date: Saturday, June 14, 2008, 11:53 PM Rich, you are speaking as if in the same room! Have to check my bugs again! As soon as these 2 apparent opptions arose, my wife, , and I both wanted the transplant only. This other possibility just came up a few days ago, so we're still learning and getting over the shock of it. I like hearing that your transplant went so well, and if I could come close to your quick recovery, I would be ecstatic! I'd be trippin, man! The hell with the pain, we've all had that too many decades, but to feel clear headed is unimaginable. Congrats to you Rich, and let's hope I'll be less that a year after your surgery. Did you have to do another full round of tx for the HCV after your body settled down from the surgery? Thanks again, Rich. from Rick > > Rick congrats for getting on the program. By all means fight to get on > the list ASAP. Then cross your fingers and tows and pray all you can. A > transplant is the way to go. You will never believe how good you fell > just days after. You will be in pain but have a clear mind and just > feel better than you have in years. > rich > Go in for my 6 month check next week > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2008 Report Share Posted June 15, 2008 Hi Rick Here's pullin for You. With the signs of cancer you should be right at the top of the list. I was not even officaly still on the listas my Mel numbers went down, but with a AB- blood type was the only one on the list in the northwest region and from the sounds on it on the west coast, as my liver came from the LA area so I've been told. Did meet a gail that has been on the list for 6 years but her mel numbers are right on the boarderline, so she waits. As for treatment after the transplant. I have asked and the Doc said it's not normal to need it as your life style has changed IE NO ALOCHOL but they will let me know after my Bio and MRI next week for the 6 month check. I hope I don't need to do it again as I went through the full 48 weeks about 6 years ago was not fun but did work full time. They did find the start of cancer in my old liver so have me under a cancer watch now.Good luck and hope you get yours soon also. My only problem so far is I'm still weak and the drugs but me to sleep. Sleep 12 to 14 hours a day and still tired. rich > > Rich, you are speaking as if in the same room! Have to check my bugs > again! As soon as these 2 apparent opptions arose, my wife, , and > I both wanted the transplant only. This other possibility just came up a > few days ago, so we're still learning and getting over the shock of it. > I like hearing that your transplant went so well, and if I could come > close to your quick recovery, I would be ecstatic! I'd be trippin, man! > The hell with the pain, we've all had that too many decades, but to feel > clear headed is unimaginable. Congrats to you Rich, and let's hope I'll > be less that a year after your surgery. Did you have to do another full > round of tx for the HCV after your body settled down from the surgery? > > Thanks again, Rich. from Rick Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2008 Report Share Posted June 15, 2008 Rick, I know that feeling. I have thought that it would be better. Had to talk to my sponsor, so she could talk me down. MARYP Re: Rick Hi RickHere's pullin for You. With the signs of cancer you should be right at the top of the list. I was not even officaly still on the listas my Mel numbers went down, but with a AB- blood type was the only one on the list in the northwest region and from the sounds on it on the west coast, as my liver came from the LA area so I've been told. Did meet a gail that has been on the list for 6 years but her mel numbers are right on the boarderline, so she waits.As for treatment after the transplant. I have asked and the Doc said it's not normal to need it as your life style has changed IE NO ALOCHOL but they will let me know after my Bio and MRI next week for the 6 month check. I hope I don't need to do it again as I went through the full 48 weeks about 6 years ago was not fun but did work full time. They did find the start of cancer in my old liver so have me under a cancer watch now.Good luck and hope you get yours soon also. My only problem so far is I'm still weak and the drugs but me to sleep. Sleep 12 to 14 hours a day and still tired.rich>> Rich, you are speaking as if in the same room! Have to check my bugs > again! As soon as these 2 apparent opptions arose, my wife, , and > I both wanted the transplant only. This other possibility just came up a > few days ago, so we're still learning and getting over the shock of it. > I like hearing that your transplant went so well, and if I could come > close to your quick recovery, I would be ecstatic! I'd be trippin, man! > The hell with the pain, we've all had that too many decades, but to feel > clear headed is unimaginable. Congrats to you Rich, and let's hope I'll > be less that a year after your surgery. Did you have to do another full > round of tx for the HCV after your body settled down from the surgery?> > Thanks again, Rich. from Rick Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2008 Report Share Posted June 15, 2008 Thanks, Rich! Your high spirits really help remove some anxieties. It's the waiting that sucks. Been walking a mile a day lately, trying to get into better shape. My weight, 175 (down from 265 when on roids) and mind are in pretty good shape, and I'm a ready! Hey, how'd they find a clean liver in the LA region!! lol > > Hi Rick > Here's pullin for You. With the signs of cancer you should be right > at the top of the list. I was not even officaly still on the listas > my Mel numbers went down, but with a AB- blood type was the only one > on the list in the northwest region and from the sounds on it on the > west coast, as my liver came from the LA area so I've been told. Did > meet a gail that has been on the list for 6 years but her mel numbers > are right on the boarderline, so she waits. > As for treatment after the transplant. I have asked and the Doc > said it's not normal to need it as your life style has changed IE NO > ALOCHOL but they will let me know after my Bio and MRI next week for > the 6 month check. I hope I don't need to do it again as I went > through the full 48 weeks about 6 years ago was not fun but did work > full time. They did find the start of cancer in my old liver so have > me under a cancer watch now.Good luck and hope you get yours soon > also. My only problem so far is I'm still weak and the drugs but me > to sleep. Sleep 12 to 14 hours a day and still tired. > rich Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2008 Report Share Posted June 22, 2008 Dorothy,I've had my transplanted liver for 10 years and I went through tx for 72 weeks. I only take one rejection drug and that is prograf and I only take 1mg per day. I've had no problems with rejection whatsoever. My only problem is I just can't seem to get rid of this HCV. The dragon will not stop pestering me. I was SVR for almost a year and this stuff came back. I am preparing to retreat in a few weeks and possibly try one of the new experimental blockers if my Dr believes it can help. My last biopsy actually looked better than the one I had done 2 years ago. I believe the tx has helped me a great deal and I will do it again. I have a few friends who have had kidney transplants that have HCV and they have treated successfully. The only difference is that HCV patients pre-transplant only treat for 48 weeks while post-transplant treats for 72. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2008 Report Share Posted June 23, 2008 I hope all goes well for you this time – I have the greatest admiration for the strength of those here who treat, re-treat and treat again. It must be extremely frustrating. Dorothy From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of Steve Bridgers Sent: Sunday, June 22, 2008 9:28 PM To: Hepatitis_C_Central Subject: Re: Rick Dorothy, I've had my transplanted liver for 10 years and I went through tx for 72 weeks. I only take one rejection drug and that is prograf and I only take 1mg per day. I've had no problems with rejection whatsoever. My only problem is I just can't seem to get rid of this HCV. The dragon will not stop pestering me. I was SVR for almost a year and this stuff came back. I am preparing to retreat in a few weeks and possibly try one of the new experimental blockers if my Dr believes it can help. My last biopsy actually looked better than the one I had done 2 years ago. I believe the tx has helped me a great deal and I will do it again. I have a few friends who have had kidney transplants that have HCV and they have treated successfully. The only difference is that HCV patients pre-transplant only treat for 48 weeks while post-transplant treats for 72. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2008 Report Share Posted July 21, 2008 Has anyone heard from Rick recently? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2008 Report Share Posted July 23, 2008 Rich, thanks for the email! Good information. I'm really ready, so now it's just waiting to finish all tests next Tuesday, and find out how high I am on the B+ list. I'm 2.5 hours away, so that's pushing it, but then, it could be the hurry up and wait military phenomona! Let me know how you felt a month after tp and how you feel now. After 15 years of absolute poop, I look forward to a shot or a blood test! Feels good to know you're still kicking! Thanks again, Rich > Hey Rick > Hang in there Bud it does get better , was in your shoes this time > last year. Just getting over all them test they do wear you down. They > found I had a ulcer and got that taken care of with drugs. > Don't know how far your from the hospital , but if it's under a hour > or little more of a drive hold off moving till you get the call,but be > ready and packed. I got my call at 4:30 PM and made the hospital by 5 > then sat till they took me in at 5 the next morning. but then the Liver > came from la la land or there abouts. If I can be of any help for info > give me a shout. > I send 8 days in ICU do to a lung that did not want to work right off > then 3 days in the hospital, then walked out. > First get on the list and then the hard part really starts the > waiting for the call. > Good luck Bud and keep the faith. > rich > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2008 Report Share Posted August 12, 2008 Oh, wow, I'm excited, I actually got an e-mail from you directly through the list, now this is a first. What great news that all is going so well, now the wait and you know we are all praying that it will be a short one.. Things have a way of working out how and when they should, just keep that awesome attitude! Love to you both, Sheena For Liz, Sheena, Jackie and all!First off, thanks for all the loving thoughts. Secondly, we really don't need anything at all. made an extra trip home to pick up whatever we couldn't fit the first time (she picked me up at the hospital, and we came directly to Tampa). We have a public library with over 400,000 volumes less than a mile away, and has lots of books (of course! She has a damned Masters in English). Plus Netflix and Blockbuster. We have a flat screen in the living room and another in our bedroom, both with DVD players, so we're well entertained. Plus, we're in an old section of Tampa with beautiful houses, trees and critters. And yes, if I get sick again, it will delay any TP, but that is why we're here. Tampa General has to take care of me, and I'm listed as a tp patient, so they'll take good care to save me for a greater illness! lol. I was very tired of going to our local hospital in Fort Myers for emergencies, where the care is not up to par with this hospital. So, all is very well here. It comes down to controlling the anxiety of waiting. I'm using nature and humor now, which my wife also needs and loves. Aftr all, life has its amusing sides, no matter what.> > From: elizabethnv1 <elizabethnv1@ >> > Subject: Re: [Hepatitis_C_ Central] Re:LIZ??? for you> > To: Hepatitis_C_ Central@yahoogro ups.com> > Date: Tuesday, August 12, 2008, 12:31 PM> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2008 Report Share Posted August 13, 2008 Know you said you were covered, Rick, but it would sure be nice to be able to at least send you a card now and then.. I wish we could have done that for our other transplant folks, as well, didn't know where they were! Either way, prayers and best wishes are ever with you both.. Love, Sheena From: Rick Kipp <rickkippearthlink (DOT) net>Subject: [Hepatitis_C_ Central] Re:LIZ??? for youTo: Hepatitis_C_ Central@yahoogro ups.comDate: Tuesday, August 12, 2008, 9:18 PM For Liz, Sheena, Jackie and all!First off, thanks for all the loving thoughts. Secondly, we really don't need anything at all. made an extra trip home to pick up whatever we couldn't fit the first time (she picked me up at the hospital, and we came directly to Tampa). We have a public library with over 400,000 volumes less than a mile away, and has lots of books (of course! She has a damned Masters in English). Plus Netflix and Blockbuster. We have a flat screen in the living room and another in our bedroom, both with DVD players, so we're well entertained. Plus, we're in an old section of Tampa with beautiful houses, trees and critters. And yes, if I get sick again, it will delay any TP, but that is why we're here. Tampa General has to take care of me, and I'm listed as a tp patient, so they'll take good care to save me for a greater illness! lol. I was very tired of going to our local hospital in Fort Myers for emergencies, where the care is not up to par with this hospital. So, all is very well here. It comes down to controlling the anxiety of waiting. I'm using nature and humor now, which my wife also needs and loves. Aftr all, life has its amusing sides, no matter what.> > From: elizabethnv1 <elizabethnv1@ >> > Subject: Re: [Hepatitis_C_ Central] Re:LIZ??? for you> > To: Hepatitis_C_ Central@yahoogro ups.com> > Date: Tuesday, August 12, 2008, 12:31 PM> Quote Link to comment Share on other sites More sharing options...
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