Guest guest Posted October 11, 2008 Report Share Posted October 11, 2008 Hi, There were studies that suggest that low sodium should be a factor in determining success rates in liver transplant. I did see a few articles that mentioned donor related hyponatremia following transplant. Unfortunately, I couldn't find anything on how to treat it - there were a lot of articles that I couldn't access and way too technical for me to even understand. But here is what I did find - I'm sure that Rick's docs are trying to cover all of the bases - low sodium is apparently pretty common following transplants and you'd think that with all of the transplant teams consulting one another that they will soon figure out how to help Rick. If that is what the problem is.... I pray that they come up with something soon and that Rick responds to it quickly! M Predicting Outcomes Before And After Liver Transplants Two studies examine whether sodium levels can be used to predict mortality while waiting for and following transplant. http://www.sciencedaily.com/releases/2007/08/070802181946.htm http://www.medpagetoday.com/Gastroenterology/LiverTransplantation/tb/10759 Hyponatremia Revisited http://content.karger.com/ProdukteDB/produkte.asp?Aktion=ShowFulltext & ArtikelNr=119709 & ProduktNr=228541#SC10 http://www.thedrugmonitor.com/LTLM.html http://findarticles.com/p/articles/mi_qa4117/is_200409/ai_n9458262/pg_6 http://www.ncbi.nlm.nih.gov/pubmed/10477844 I wonder if you could send the links to those studies to the group. I'm thinking that if felt so inclined she could share it with Ricks doctors. That way will feel like she's contributing too. The hardest thing for a spouse is to sit back and feel completely helpless and useless. It's important that we spouses feel empowered. Perhaps this could help a little. Luv anneNew MapQuest Local shows what's happening at your destination. Dining, Movies, Events, News more. Try it out! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2008 Report Share Posted October 11, 2008 I wonder if you could send the links to those studies to the group. I'm thinking that if felt so inclined she could share it with Ricks doctors. That way will feel like she's contributing too. The hardest thing for a spouse is to sit back and feel completely helpless and useless. It's important that we spouses feel empowered. Perhaps this could help a little. Luv anne You don't have to be handicapped to be different.Everybody's different!Kim Peek Re: update on Rick This is awful - I'm so sorry that Rick is having such a tough time - I can't imagine what he and are going through. He has been in my thoughts and prayers - he's been in ALL of our thoughts and prayers! There are some studies that mention donor related low sodium problems - didn't say how they treated it though - I pray that the docs will find a way to treat it soon! M Hi guys,I just got off the phone a little bit ago with and thing are continuing in the same manner and nothing is getting resolved.. On Monday his sodium was at 119, then dropped down a little, then went back up a bit, but now is down to 115. They dont know why and as said,, the docs are all "flummoxed". I guess they have been calling other transplant teams trying to figure this out. sounded so down today and IM quite worried about her. She hasnt eaten much today so I suggested that she eat something and then go to bed and sleep. She said she would after she talks with the night nurses. Rick is in pain and is delusional and that is scaring her. He keeps thinking that he is at the apartment and is trying to get out of bed when she is there so she finally went back to the apartment to rest. She will call me tomorrow and Ill let you all know then. I just hope they get it figured out.. Im quite worried now, after all of this time, you'd think they would have figured out what is causing this.. if anyone has any ideas,,, please bring them forward.. and keep rick and melissa in our thoughts and prayers.. sigh.... Im sad!jax New MapQuest Local shows what's happening at your destination. Dining, Movies, Events, News & more. Try it out! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2008 Report Share Posted October 11, 2008 That's the same article that most of the sites are qoting and most had to do with donor rather than recipient . It was aggravating cause there just isn't much out there . Re: update on Rick/Chris Hi, There were studies that suggest that low sodium should be a factor in determining success rates in liver transplant. I did see a few articles that mentioned donor related hyponatremia following transplant. Unfortunately, I couldn't find anything on how to treat it - there were a lot of articles that I couldn't access and way too technical for me to even understand. But here is what I did find - I'm sure that Rick's docs are trying to cover all of the bases - low sodium is apparently pretty common following transplants and you'd think that with all of the transplant teams consulting one another that they will soon figure out how to help Rick. If that is what the problem is.... I pray that they come up with something soon and that Rick responds to it quickly! M Predicting Outcomes Before And After Liver Transplants Two studies examine whether sodium levels can be used to predict mortality while waiting for and following transplant. http://www.sciencedaily.com/releases/2007/08/070802181946.htm http://www.medpagetoday.com/Gastroenterology/LiverTransplantation/tb/10759 Hyponatremia Revisited http://content.karger.com/ProdukteDB/produkte.asp?Aktion=ShowFulltext & ArtikelNr=119709 & ProduktNr=228541#SC10 http://www.thedrugmonitor.com/LTLM.html http://findarticles.com/p/articles/mi_qa4117/is_200409/ai_n9458262/pg_6 http://www.ncbi.nlm.nih.gov/pubmed/10477844 In a message dated 10/11/2008 2:42:46 P.M. Central Daylight Time, kanga2austarnet.au writes: I wonder if you could send the links to those studies to the group. I'm thinking that if felt so inclined she could share it with Ricks doctors. That way will feel like she's contributing too. The hardest thing for a spouse is to sit back and feel completely helpless and useless. It's important that we spouses feel empowered. Perhaps this could help a little. Luv anne New MapQuest Local shows what's happening at your destination. Dining, Movies, Events, News more. Try it out! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2008 Report Share Posted October 11, 2008 Great articles! I recently developed low sodium levels 129 where 135-145 is normal. No one at Mayo made a big deal of it but my every 2 week blood draws have gone to once a week. They are also doing HCV RNA Quantitative levels weekly. hot I thought I was doing so good, It appears Dr. Keaveny at Mayo is concerned after only 4 weeks of Tx. Sure would be nice if low sodium could bump me up on the list! I will definitely print this out for my next visit. Subject: Re: update on Rick/ChrisTo: Hepatitis_C_Central Date: Saturday, October 11, 2008, 6:50 PM That's the same article that most of the sites are qoting and most had to do with donor rather than recipient . It was aggravating cause there just isn't much out there . Re: [Hepatitis_C_ Central] update on Rick/Chris Hi, There were studies that suggest that low sodium should be a factor in determining success rates in liver transplant. I did see a few articles that mentioned donor related hyponatremia following transplant. Unfortunately, I couldn't find anything on how to treat it - there were a lot of articles that I couldn't access and way too technical for me to even understand. But here is what I did find - I'm sure that Rick's docs are trying to cover all of the bases - low sodium is apparently pretty common following transplants and you'd think that with all of the transplant teams consulting one another that they will soon figure out how to help Rick. If that is what the problem is.... I pray that they come up with something soon and that Rick responds to it quickly! M Predicting Outcomes Before And After Liver Transplants Two studies examine whether sodium levels can be used to predict mortality while waiting for and following transplant. http://www.scienced aily.com/ releases/ 2007/08/07080218 1946.htm http://www.medpaget oday.com/ Gastroenterology /LiverTransplant ation/tb/ 10759 Hyponatremia Revisited http://content. karger.com/ ProdukteDB/ produkte. asp?Aktion= ShowFulltext & ArtikelNr=119709 & ProduktNr=228541# SC10 http://www.thedrugm onitor.com/ LTLM.html http://findarticles .com/p/articles/ mi_qa4117/ is_200409/ ai_n9458262/ pg_6 http://www.ncbi. nlm.nih.gov/ pubmed/10477844 In a message dated 10/11/2008 2:42:46 P.M. Central Daylight Time, kanga2austarnet (DOT) com.au writes: I wonder if you could send the links to those studies to the group. I'm thinking that if felt so inclined she could share it with Ricks doctors. That way will feel like she's contributing too. The hardest thing for a spouse is to sit back and feel completely helpless and useless. It's important that we spouses feel empowered. Perhaps this could help a little. Luv anne New MapQuest Local shows what's happening at your destination. Dining, Movies, Events, News more. Try it out! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2008 Report Share Posted October 12, 2008 thank you so much. It helps so much to feel a little more empowered. Luv anne You don't have to be handicapped to be different.Everybody's different!Kim Peek Re: update on Rick/Chris Hi, There were studies that suggest that low sodium should be a factor in determining success rates in liver transplant. I did see a few articles that mentioned donor related hyponatremia following transplant. Unfortunately, I couldn't find anything on how to treat it - there were a lot of articles that I couldn't access and way too technical for me to even understand. But here is what I did find - I'm sure that Rick's docs are trying to cover all of the bases - low sodium is apparently pretty common following transplants and you'd think that with all of the transplant teams consulting one another that they will soon figure out how to help Rick. If that is what the problem is.... I pray that they come up with something soon and that Rick responds to it quickly! M Predicting Outcomes Before And After Liver Transplants Two studies examine whether sodium levels can be used to predict mortality while waiting for and following transplant. http://www.sciencedaily.com/releases/2007/08/070802181946.htm http://www.medpagetoday.com/Gastroenterology/LiverTransplantation/tb/10759 Hyponatremia Revisited http://content.karger.com/ProdukteDB/produkte.asp?Aktion=ShowFulltext & ArtikelNr=119709 & ProduktNr=228541#SC10 http://www.thedrugmonitor.com/LTLM.html http://findarticles.com/p/articles/mi_qa4117/is_200409/ai_n9458262/pg_6 http://www.ncbi.nlm.nih.gov/pubmed/10477844 I wonder if you could send the links to those studies to the group. I'm thinking that if felt so inclined she could share it with Ricks doctors. That way will feel like she's contributing too. The hardest thing for a spouse is to sit back and feel completely helpless and useless. It's important that we spouses feel empowered. Perhaps this could help a little. Luv anne New MapQuest Local shows what's happening at your destination. Dining, Movies, Events, News & more. Try it out! Quote Link to comment Share on other sites More sharing options...
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