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> I remember those bags of hair. I admire your patience if you are

really making Mike a chain. Some of the ornaments made of hair are

simply amazing. How's the quilting? Betsy

Mike bought me a studio for my quilting machine, sewing machine and

paintings so I will have lots of room to create.. We have been busy

paitning walls, tearing out walls , carpet etc. And are almost ready

to move my stuff in. I cant wait.

And yes, I am making Mike a chain. I have the book the bobbins and

the hair....now comes the patience! lol

Cant wait to see you,

love

Sharon in Onyx

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> I remember those bags of hair. I admire your patience if you are

really making Mike a chain. Some of the ornaments made of hair are

simply amazing. How's the quilting? Betsy

Mike bought me a studio for my quilting machine, sewing machine and

paintings so I will have lots of room to create.. We have been busy

paitning walls, tearing out walls , carpet etc. And are almost ready

to move my stuff in. I cant wait.

And yes, I am making Mike a chain. I have the book the bobbins and

the hair....now comes the patience! lol

Cant wait to see you,

love

Sharon in Onyx

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> Kristy

> - Now moving to Dallas, Texas. Gulp.

===============================

For Reals??????? Wowie!!!!!!!!!!!

Hey wait a minute....where will my TimTam's come from???? lol...I

guess as long as you have family there we can get our fix!

Texas isn't going to know what hit them! For those of you who

haven't had the honor of meeting Kristy, she can sure turn on the

Aussie charm and accent when she needs to talk herself out of a

traffic ticket!!!

Doing the happy dance

Jo

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> I Can't wait to get my chain!!!!!!

>

> Mike

============================

It seems like we have a bit of a joker here....lol....I'm liking

Mike more and more!

Hugs

Jo

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> > I Can't wait to get my chain!!!!!!

> >

> > Mike

> ============================

>

> It seems like we have a bit of a joker here....lol....I'm liking

> Mike more and more!

>

> Hugs

> Jo

***********************************

Hey Jo,

Its sonething in the name that predestins them to being

a " joker',trouble maker, & all around fun person.

If you are in a store, and the mother looks frazzled beyond belief

and that adorable little boy by her side looks like an angel with a

devilish smile.....you can bet his name is Mike...

Its just the way it is....

but you gotta love them... :)

Sharon in Onyx

who when the first time she saw her Mike....thought to herself- there

is walking trouble if I ever saw it....and fell head over heal in

love....and the beat still goes on after 17 years...he is still

walking trouble, that I cant resist!

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> WHERE'S MY CHAIN!!!!!!! Its all I think about how much longer???????

>

> Mike

Patience, my dear man, patience....its taken me almost 3 years to

start it. Each strand uses 80 hairs and it takes 16 strands to make

the chain, I am not sure how many of these to make one long enough to

go around the neck....

well you get the picture.

Unfortunately I do have enough hair tho-....lol

sigh...

Sharon in Onyx

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---

Sharon,

I'm bummed, I cant have a chain, will we see you Tuesday ?

Steve,

In DS_Friends_Keshishian , " roseofsharon_ps121 "

<roseofsharon_ps121@y...> wrote:

>

>

> > WHERE'S MY CHAIN!!!!!!! Its all I think about how much

longer???????

> >

> > Mike

>

>

> Patience, my dear man, patience....its taken me almost 3 years to

> start it. Each strand uses 80 hairs and it takes 16 strands to

make

> the chain, I am not sure how many of these to make one long enough

to

> go around the neck....

> well you get the picture.

> Unfortunately I do have enough hair tho-....lol

>

> sigh...

> Sharon in Onyx

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---

Sharon,

I'm bummed, I cant have a chain, will we see you Tuesday ?

Steve,

In DS_Friends_Keshishian , " roseofsharon_ps121 "

<roseofsharon_ps121@y...> wrote:

>

>

> > WHERE'S MY CHAIN!!!!!!! Its all I think about how much

longer???????

> >

> > Mike

>

>

> Patience, my dear man, patience....its taken me almost 3 years to

> start it. Each strand uses 80 hairs and it takes 16 strands to

make

> the chain, I am not sure how many of these to make one long enough

to

> go around the neck....

> well you get the picture.

> Unfortunately I do have enough hair tho-....lol

>

> sigh...

> Sharon in Onyx

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Oy vey, I'm going to the hardware store and buying chains for everyone on

the list. What is it with all these chains? Everyone going Hell's Angels on

me?????

Jim

Who does not have a chain, just Flying Monkeys

_____

From: hoss_tlp

Sent: Thursday, January 06, 2005 12:03 PM

To: DS_Friends_Keshishian

Subject: Re: Sharon

---

Sharon,

I'm bummed, I cant have a chain, will we see you Tuesday ?

Steve,

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Oy vey, I'm going to the hardware store and buying chains for everyone on

the list. What is it with all these chains? Everyone going Hell's Angels on

me?????

Jim

Who does not have a chain, just Flying Monkeys

_____

From: hoss_tlp

Sent: Thursday, January 06, 2005 12:03 PM

To: DS_Friends_Keshishian

Subject: Re: Sharon

---

Sharon,

I'm bummed, I cant have a chain, will we see you Tuesday ?

Steve,

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Sharon,

A little birdy told me (Bobbe) that you have grocery bags full of hair. I was

thinking gallon plastic baggies LOL!!!! Sooooo, How long is my chain going to be

& when do I get it?????????????????????????????????????????

Mike

hoss_tlp wrote:

---

Sharon,

I'm bummed, I cant have a chain, will we see you Tuesday ?

Steve,

In DS_Friends_Keshishian , " roseofsharon_ps121 "

<roseofsharon_ps121@y...> wrote:

>

>

> > WHERE'S MY CHAIN!!!!!!! Its all I think about how much

longer???????

> >

> > Mike

>

>

> Patience, my dear man, patience....its taken me almost 3 years to

> start it. Each strand uses 80 hairs and it takes 16 strands to

make

> the chain, I am not sure how many of these to make one long enough

to

> go around the neck....

> well you get the picture.

> Unfortunately I do have enough hair tho-....lol

>

> sigh...

> Sharon in Onyx

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>

> ---

> Sharon,

> I'm bummed, I cant have a chain, will we see you Tuesday ?

> Steve,

>

Hey Steve

You will have to talk to Tammy about that....lol

glad to see you here. Yep, I will be there Tues. We will be at

s about 4 then the meeting and then Perkos....

cant wait.

Sharon in Onyx

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> Oy vey, I'm going to the hardware store and buying chains for

everyone on

> the list. What is it with all these chains? Everyone going Hell's

Angels on

> me?????

>

> Jim

> Who does not have a chain, just Flying Monkeys

The only good the chains you can get at hardware store are the ones

to chain up those horrid monkeys of yours!!!

S in O

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Kristy, I'm so glad you're moving to the states! Maybe I can see you

in person now more often that once in three years. (Oh wait, that's

the ONLY time I've seen you in person!) LOL! I've heard it gets

pretty humid in Texas but I think you get that in OZ too right? In

any case, it'll be cool to have you a little closer!

Hugs!

Tracey

> Shazza

>

> I thought for sure we would be living in Australia too. But yup,

it is love and to Dallas I go. I should be there within a few weeks

(and Digger and Elly are coming too). has a nice big house..I

just need to give it a feminine touch!

>

> Hugs

> Kristy

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Kristy, I'm so glad you're moving to the states! Maybe I can see you

in person now more often that once in three years. (Oh wait, that's

the ONLY time I've seen you in person!) LOL! I've heard it gets

pretty humid in Texas but I think you get that in OZ too right? In

any case, it'll be cool to have you a little closer!

Hugs!

Tracey

> Shazza

>

> I thought for sure we would be living in Australia too. But yup,

it is love and to Dallas I go. I should be there within a few weeks

(and Digger and Elly are coming too). has a nice big house..I

just need to give it a feminine touch!

>

> Hugs

> Kristy

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Ahhh, Sharon! A studio devoted to your crafts! I'm soooo jealous!

I spent a little Christmas money today on some scrapbooking supplies

and there were some storage type items in there I would have loved to

have gotten but I just simply don't have a place to put them! Your

hubby deserves a big smooch! I'd love to see the chain when you get

it finished!

Love you!

Tracey

>

> Mike bought me a studio for my quilting machine, sewing machine and

> paintings so I will have lots of room to create.. We have been

busy

> paitning walls, tearing out walls , carpet etc. And are almost

ready

> to move my stuff in. I cant wait.

>

> And yes, I am making Mike a chain. I have the book the bobbins and

> the hair....now comes the patience! lol

> Cant wait to see you,

> love

> Sharon in Onyx

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Ahhh, Sharon! A studio devoted to your crafts! I'm soooo jealous!

I spent a little Christmas money today on some scrapbooking supplies

and there were some storage type items in there I would have loved to

have gotten but I just simply don't have a place to put them! Your

hubby deserves a big smooch! I'd love to see the chain when you get

it finished!

Love you!

Tracey

>

> Mike bought me a studio for my quilting machine, sewing machine and

> paintings so I will have lots of room to create.. We have been

busy

> paitning walls, tearing out walls , carpet etc. And are almost

ready

> to move my stuff in. I cant wait.

>

> And yes, I am making Mike a chain. I have the book the bobbins and

> the hair....now comes the patience! lol

> Cant wait to see you,

> love

> Sharon in Onyx

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You are very lucky! They must be adorable..... I want children, I hope

I can have one or two. But my rhumy says my ovaries might be weak from

still's.... Have you ever heard of that?

love sharon xxoo

> Hi Sharon.. Kaitlyn is 4 I adopted her from China and she and I have

> way too

> much fun together..she is soo funny...my son is 9..he is not

> adopted and

> a bit more shy but also very sweet.. Why they like to tease me about

> hiding my

> pillow is beyond me...they do know they must give it back !! Hugs Liz

>

>

>

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Ahhhh,,,,but at least you aren't older than they are..lol

Older than dirt and loving it...lol

Pat

>

> *******************

> There you go again,....flashing your beautiful grandbabies in

front

> of this aunty-grandmas nose...

> sigh, well maybe next year.....

> Sharon in Onyx

> who turns fifty this year...

> yep, me, Mcdonalds, Disneyland and the Thunderbird...all fifty

this

> year!

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Hello, Sorry I know i probably should be starting a new post here but I was

just wondering how I could get a copy of the brochure mentioned in an earlier

e-mail. I've experienced the same problems as many others in that people seem

to be astounded at how well i look at times. My usual response is that I'd

be on top of the moon if I felt how I looked! Anyway.....I'd really like to

have a look at the brochure. Is it downloadable or do I have to send off

somewhere? Thanks for your help! Kate

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Oh, Sharon, how I agree with you! Over the years, the phrase " But you don't

look sick " has been stricken from my vocabulary. I am not a vain person, but I

do try to put on my makeup and look presentable when I go out, I guess people

think you should look like you just rolled out of bed when you tell them you

have Still's. I think a large part of that is they don't understand the

disease. For instance, if I were to tell someone I had diabetes, they would

never say that. Even though it is a life threatening illness. I think it's

just that they are more familiar with things like that than Still's. Sometimes,

when I try to explain to someone what it is, they get this look on their face

and say things like, Oh I thought Arthritis was for old people. It's a very

personal thing for me, and sometimes, I don't even try to explain.

Please don't feel bad if you need therapy, either. We all have at one time or

another. Your frustration and anger is understandable. Some of what you're

feeling could be the meds (not sure what you're on). I blow up at my hubby

sometimes, too, and it bothers him some, but I always try to talk to him about

it afterward, apologize and move on. You are blessed with an understanding mate

and that will help you tremendously.

One of my girlfriends used to say, " Grow your toenails long and hang in there,

girl! "

Better days for you,

Gail

Sharon wrote:

I am trying to get a therapist - but if one

more person tells me that I don't look sick or that 99 is not a fever I

am gonna scream!!!! My normal temp is 96. I do not look good! I look

like crapp. I wish people would stop comparing me to others and just

listen and keep an open mind. My boyfriend always understands , and I

always seem to take it out on him. Oh I guess I will look harder for a

therapist- but they will have to tell the therapist ahead of time not

to say how good I look or they better just restrain me lol!!!!!!!

love and xxxooo

Sharon

__________________________________________________

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Hi Guys:

I have to repeat something that I have been saying all along!

When these people tell you that you don't look sick please hand them a copy

of our Brochure and explain to them that you don't know how to " LOOK SICK " .

Take care now and be PAIN FREE! Love Y'all!

WE WILL WIN

Love Y'all

" NEVER FIGHT FAIR "

Dad

Panama City, FL

Please visit the International Stills Disease Foundation Inc. Web Site at

www.stillsdisease.org

Please Make Tax Deductible DONATIONS to the All Volunteer, International

Stills Disease Foundation Inc.,

1123 S. Kimbrel Ave.

Panama City, FL 32404

There is now a Third Political Party: The " VPA " , Veterans Party of America.

Veterans= " Third Class Citizens "

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Hi Kate:

If you will send me your regular mailing address including zip

code I will send you some of the brochures to distribute among your friends,

relatives and Doctors who need them the most. There is no charge for them

but donations are gratefully accepted. I can get them out tomorrow if I have

your address as I have a bunch to send out.

WE WILL WIN

Love Y'all

" NEVER FIGHT FAIR "

Dad

Panama City, FL

Please visit the International Stills Disease Foundation Inc. Web Site at

www.stillsdisease.org

Please Make Tax Deductible DONATIONS to the All Volunteer, International

Stills Disease Foundation Inc.,

1123 S. Kimbrel Ave.

Panama City, FL 32404

There is now a Third Political Party: The " VPA " , Veterans Party of America.

Veterans= " Third Class Citizens "

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> **************************

> Pat,

> It was a very good day! Yes, I am with you, it is great when the

> people recognize you. To me it means they knew the real you. The

> ones that dont recognize you until you talk, well they are just

> confused a little and may not have known you so well. Then there

are

> those that only saw the outside of you and dont recognize you at

> all. I have even had people argue with me that I am not who I say

I

> am. And then there is my favorite..... " Boy, you have changed...it

> must be that you didnt wear glasses the last time I saw you. The

> glasses really threw me off " ....

> Yep, thats it I look different now because I wear glasses! lol

> I am glad you had such a great day. Did you find anything you

> couldnt live without while shopping?

> love

> Sharon in Onyx

~~~~~~~~~~~~~~~~~~~~~

Went to town with $3.50 came home with 2.50 found this little

blue perfume bottle and a coffee cup that had the moon and

stars on them, so bought them for her mom...lol, that

was the extent of my shopping..

Oops forgot had to go buy garbage bags at the 99cent store..lol

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  • 3 years later...

Great to see you back Sharon, we missed you!!!

Luv

anne

You don't have to be handicapped to be different.Everybody's different!Kim Peek

Penny and Medicare

Penny, I treated a year ago with medicare as my insurance. Yes, there is a high co-pay. I think mine was 87 for the ribaviron and more than that for the shots. It's a disgrace, I think, but we have no choice and it's far better than having to pay the full amount. I cleared, so it was worth it to me. A year ago last August and still clear.

Good luck what ever you choose. I used a credit card for the copay and took time to pay it off.

Sharon in NW Washington

Knitting is...time and love made tangible. Alison Hyde

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