HELLO EVERYONE

[Guest guest]

Hi, Holly! We do have a few members who have had RA since childhood. I

hope they see your post and share their experiences with you.

I don't have any replacements, but perhaps those who do can help answer

your questions.

Happy Birthday!

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Hello everyone

> My name is Holly, I live in Houston, Texas, I have been living with

> RA since I was 9 years old I am now 35 (well I will be this

> Saturday). I was curious how many others got RA as a child? I am

> now facing bilateral hip replacements. Anyone else had or going to

> have this surgery? What difficulties did you have with recovery? I

> wonder how it differs in someone with arthritis from someone who

> doesn't have arthritis. (did that make sense?) lol Anyway, i am glad

> I found this site. I have lived with this so long, yet I have not

> found other people to talk to. Would love to hear from yall.

>

> Thank you,

> Holly

[Guest guest]

Dear Holly:

Welcome to the group. My name is .

Hope you meet many new friends here.

[Guest guest]

Hi Holly, Welcome to the group, you will feel right at home here.

You will find lots of information, and many friends, Tawny

> My name is Holly, I live in Houston, Texas, I have been living

with

> RA since I was 9 years old I am now 35 (well I will be this

> Saturday). I was curious how many others got RA as a child? I am

> now facing bilateral hip replacements. Anyone else had or going to

> have this surgery? What difficulties did you have with recovery?

I

> wonder how it differs in someone with arthritis from someone who

> doesn't have arthritis. (did that make sense?) lol Anyway, i am

glad

> I found this site. I have lived with this so long, yet I have not

> found other people to talk to. Would love to hear from yall.

>

> Thank you,

> Holly

[Guest guest]

hey judy, sorry to hear you haven't been well. i hope your flare ends soon

and you can get the hives under control. i hate hen all those wierd little

things come up. thats when the dr's (and everyone else thinks you're nuts!!) 24

more days to green bay. no i'm not anxious at all! kathy in il

[Guest guest]

Judi, sorry you are still having a rough time (although the ice cream

sounds very good!).

How long have you had the hives? Any chance it could be due to the

antibiotics I assume you were taking for the pneumonia? Even Voltaren

(diclofenac) can do it. Or maybe something changed at the pool if you've

been in it for therapy. Are they widespread and very itchy? Small or

large?

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Hello everyone

>

>

> Dear All,

>

> Have been off line for awhile, recovering from a bout of pneumonia

> and dealing with a mysterious case of recurring hives. The pneumonia

> is better, nearly gone, the hives keep popping up (sorry about the

> pun) and my doctor thinks it may just be my body's reaction to the

> bacteria in my system, as we can find no logical reason--no new

> laundry soap, meds, foods, etc. Of course, the whole event caused a

> flare-up of Dercum's symptoms, new tumors, more pain, etc. But I'm

> on the road back, even went to Oxford (Ohio) yesterday to the Miami

> U. art museum and stopped for some Cold Stone ice cream on the way

> home. Ah, ice cream--the great cure all! )

>

> I've read some of the information about Vioxx--my old doctor had me

> try that 2 years ago but it upset my stomach so terribly (it wouldn't

> even stay down no matter how I took it!) that he switched me to

> Celebrex with the same result. A lady in our church started taking

> Vioxx at the same time, and had a heart attack about 6 months later

> though she never had heart problems before. I tried Bextra but am

> allergic to the sulfa. Currently taking diclofenac (Voltaren) 50 mg

> once a day which does help with the pain.

>

> That's about it from me. Welcome to the new members, hello to the

> old, and I wish you all a happy autumn.

>

> Judi in cold, windy Indiana

[Guest guest]

((((((((Dearest Judi)))))))))) ... I'm sorry you've been so ill.

ColdStone is wonderful...it will probably cure what ails you better than

any rx! : )

Love & hugs...

Tess

[Guest guest]

Hi Judi,....Sorry to hear you have been sick. I hope that you start

feeling better soon. You are right, ice cream does help so much.

If I want some quiet time, I just go get ice cream, and my daughter

is quiet as a mouse for a short time anyway, I will keep you in my

prayers my friend, Tawny

>

> Dear All,

>

> Have been off line for awhile, recovering from a bout of pneumonia

> and dealing with a mysterious case of recurring hives. The

pneumonia

> is better, nearly gone, the hives keep popping up (sorry about the

> pun) and my doctor thinks it may just be my body's reaction to the

> bacteria in my system, as we can find no logical reason--no new

> laundry soap, meds, foods, etc. Of course, the whole event caused

a

> flare-up of Dercum's symptoms, new tumors, more pain, etc. But I'm

> on the road back, even went to Oxford (Ohio) yesterday to the Miami

> U. art museum and stopped for some Cold Stone ice cream on the way

> home. Ah, ice cream--the great cure all! )

>

> I've read some of the information about Vioxx--my old doctor had me

> try that 2 years ago but it upset my stomach so terribly (it

wouldn't

> even stay down no matter how I took it!) that he switched me to

> Celebrex with the same result. A lady in our church started taking

> Vioxx at the same time, and had a heart attack about 6 months later

> though she never had heart problems before. I tried Bextra but am

> allergic to the sulfa. Currently taking diclofenac (Voltaren) 50

mg

> once a day which does help with the pain.

>

> That's about it from me. Welcome to the new members, hello to the

> old, and I wish you all a happy autumn.

>

> Judi in cold, windy Indiana

[Guest guest]

Judi,

You poor girl! I hope you find out what is causing the hives. It's bad

enough that you suffer with the dercum's bumps and now the hives.

I don't know how you cope with such an attitude.

I've never had Cold Stone ice cream. There is a Cold Stone store close by

but I didn't know what it was. I have the feeling I am going to regret

finding out LOL!

a

>

>

> Dear All,

>

> Have been off line for awhile, recovering from a bout of pneumonia

> and dealing with a mysterious case of recurring hives. The pneumonia

> is better, nearly gone, the hives keep popping up (sorry about the

> pun) and my doctor thinks it may just be my body's reaction to the

> bacteria in my system, as we can find no logical reason--no new

> laundry soap, meds, foods, etc. Of course, the whole event caused a

> flare-up of Dercum's symptoms, new tumors, more pain, etc. But I'm

> on the road back, even went to Oxford (Ohio) yesterday to the Miami

> U. art museum and stopped for some Cold Stone ice cream on the way

> home. Ah, ice cream--the great cure all! )

>

> I've read some of the information about Vioxx--my old doctor had me

> try that 2 years ago but it upset my stomach so terribly (it wouldn't

> even stay down no matter how I took it!) that he switched me to

> Celebrex with the same result. A lady in our church started taking

> Vioxx at the same time, and had a heart attack about 6 months later

> though she never had heart problems before. I tried Bextra but am

> allergic to the sulfa. Currently taking diclofenac (Voltaren) 50 mg

> once a day which does help with the pain.

>

> That's about it from me. Welcome to the new members, hello to the

> old, and I wish you all a happy autumn.

>

> Judi in cold, windy Indiana

>

>

>

>

>

>

>

[Guest guest]

Hi Deanna, I'm glad that your here, your Mother is very lucky to have

a supporting daughter. I have been on the Humira for almost a year,

and it isn't doing as much as I would like it to do. I just started

the Methotrexate with the Humira, and hopefully both will do well.

They say doing both the MTX with the Humira works great. Were all

here for you, and your Mom, hugs Tawny

>

>

> I my name is Deanna and I am a 39 year old daughter of a RA

patient,

> my Mother Joanne. She came down with RA June 2003. She has steadily

> gotten worse to the point of being nearly bedfast. It is so hard to

> see her suffer but I can only imagine the pain and discomfort she

is

> living with every moment.

>

> Her doctor put her on methatrexate first - it did nothing for her.

> She was put on hdroxychloroquine two weeks ago so we are waiting to

> see if it helps. In the meantime, we are trying to get health

> coverage/assistance for humira which is not covered by her current

> health plan.

>

> What I was wondering if any of you has had experience with any of

> these three medicines and if so, how did they work for you? Is

there

> something else out there that has worked for you?

>

> Any information you can share would be most appreciated. Thank you

> and God bless.

> Deanna

[Guest guest]

Thank you and thanks for the information. It is just so frustrating to watch and

not be able to do anything about it. It seems to be a waiting game - waiting to

see which drug or combo of drugs brings relief. Best to you,

DEANNA

[ ] Re: Hello everyone

Hi Deanna, I'm glad that your here, your Mother is very lucky to have

a supporting daughter. I have been on the Humira for almost a year,

and it isn't doing as much as I would like it to do. I just started

the Methotrexate with the Humira, and hopefully both will do well.

They say doing both the MTX with the Humira works great. Were all

here for you, and your Mom, hugs Tawny

>

>

> I my name is Deanna and I am a 39 year old daughter of a RA

patient,

> my Mother Joanne. She came down with RA June 2003. She has steadily

> gotten worse to the point of being nearly bedfast. It is so hard to

> see her suffer but I can only imagine the pain and discomfort she

is

> living with every moment.

>

> Her doctor put her on methatrexate first - it did nothing for her.

> She was put on hdroxychloroquine two weeks ago so we are waiting to

> see if it helps. In the meantime, we are trying to get health

> coverage/assistance for humira which is not covered by her current

> health plan.

>

> What I was wondering if any of you has had experience with any of

> these three medicines and if so, how did they work for you? Is

there

> something else out there that has worked for you?

>

> Any information you can share would be most appreciated. Thank you

> and God bless.

> Deanna

[Guest guest]

Hi and welcome to the group. MTX worked very well for me until my RA

progressed and it wasn't enough any more. Then we added Humira and

I've had my RA under control for the most part for 11 months. I hope

she can get it approved through her insurance. Was she at the

maximum dose of mtx (25mgs)?

>

>

> I my name is Deanna and I am a 39 year old daughter of a RA

patient,

> my Mother Joanne. She came down with RA June 2003. She has steadily

> gotten worse to the point of being nearly bedfast. It is so hard to

> see her suffer but I can only imagine the pain and discomfort she

is

> living with every moment.

>

> Her doctor put her on methatrexate first - it did nothing for her.

> She was put on hdroxychloroquine two weeks ago so we are waiting to

> see if it helps. In the meantime, we are trying to get health

> coverage/assistance for humira which is not covered by her current

> health plan.

>

> What I was wondering if any of you has had experience with any of

> these three medicines and if so, how did they work for you? Is

there

> something else out there that has worked for you?

>

> Any information you can share would be most appreciated. Thank you

> and God bless.

> Deanna

[Guest guest]

Hi Marina,

Will keep you in my prayers, get some much needed rest, T

--- In , " marina_troi " <marina_troi@y...>

wrote:

> Hello to everyone!! I haven't posted a whole heck of a lot

lately.

> We have been soooo busy at work that the only thing I can do when I

> get home is lay down in bed and try to rest. I have a 3 day

weekend

> this weekend, so I am most definately looking forward to that!! I

> have been flaring since last week and I started myself back up on

> the prednisone. I hate doing that cause all I want to do is eat!!

> But, it does help settle things down.

>

> Saw my orthopedist yesterday. He wants to have my right ankle and

> knee scoped. He also wants to do trigger finger release in both my

> thumbs. He said there really isn't any point in doing the

> injections first because with RA in almost ALWAYS ends up in

> surgery. Oh joy!! He will inject them for me when I want, we work

> together!! One of the perks of working in surgery with your own

> doc. I'm just not ready for the surgery of any kind at this

point.

> If it gets any worse, I may try an injection, but after what our

Ken

> went through, I think I may just wait it out!! :-) As for the knee

> and ankle, that will have to wait. I know being on my feet all day

> doesn't help it, but it is still tolerable at this point. I think

> I'm getting used to having pain all day, everyday!!

>

> I also wanted to say hey to everyone and welcome to all the

> newbie's!! I have come to think of this group as the " pot of gold

> at the end of the rainbow " .

>

> I hope everyone has a wonderful weekend and as painfree as possible

>

> Gentle hugs to all......Marina

[Guest guest]

I hate takining the predisone too but cause it makes me sweat so badm its gross,

i take like 3 showers a day. Thanks god its only for the flares and not

everyday!!!! I cant do that, no way. But your right it does help with the

flares, good luck, hope you feel well soon.

Cortnee

marina_troi <marina_troi@...> wrote: Hello to everyone!! I haven't posted

a whole heck of a lot lately.

We have been soooo busy at work that the only thing I can do when I

get home is lay down in bed and try to rest. I have a 3 day weekend

this weekend, so I am most definately looking forward to that!! I

have been flaring since last week and I started myself back up on

the prednisone. I hate doing that cause all I want to do is eat!!

But, it does help settle things down.

Saw my orthopedist yesterday. He wants to have my right ankle and

knee scoped. He also wants to do trigger finger release in both my

thumbs. He said there really isn't any point in doing the

injections first because with RA in almost ALWAYS ends up in

surgery. Oh joy!! He will inject them for me when I want, we work

together!! One of the perks of working in surgery with your own

doc. I'm just not ready for the surgery of any kind at this point.

If it gets any worse, I may try an injection, but after what our Ken

went through, I think I may just wait it out!! :-) As for the knee

and ankle, that will have to wait. I know being on my feet all day

doesn't help it, but it is still tolerable at this point. I think

I'm getting used to having pain all day, everyday!!

I also wanted to say hey to everyone and welcome to all the

newbie's!! I have come to think of this group as the " pot of gold

at the end of the rainbow " .

I hope everyone has a wonderful weekend and as painfree as possible

Gentle hugs to all......Marina

[Guest guest]

Hey there Marina:

I have not posted much myself lately either......but I

do try to read them all..............hope you take

advantage of the long weekend and stay off your feet

abit............

I actually went out for my bday and danced

abit.........paid for it the next day with my knees

but I figure they hurt anyway so why not have some

fun. My wrists have been flaring for a few

days.......so much for getting caught up on housework

and yard work.

Hope you do get some rest..........

Hugs

Pat

--- tdianaok <tdianaok@...> wrote:

> Hi Marina,

> Will keep you in my prayers, get some much needed

> rest, T

>

>

>

>

>

>

>

> > Hello to everyone!! I haven't posted a whole heck

> of a lot

> lately.

> > We have been soooo busy at work that the only

> thing I can do when I

> > get home is lay down in bed and try to rest. I

> have a 3 day

> weekend

> > this weekend, so I am most definately looking

> forward to that!! I

> > have been flaring since last week and I started

> myself back up on

> > the prednisone. I hate doing that cause all I

> want to do is eat!!

> > But, it does help settle things down.

> >

> > Saw my orthopedist yesterday. He wants to have my

> right ankle and

> > knee scoped. He also wants to do trigger finger

> release in both my

> > thumbs. He said there really isn't any point in

> doing the

> > injections first because with RA in almost ALWAYS

> ends up in

> > surgery. Oh joy!! He will inject them for me

> when I want, we work

> > together!! One of the perks of working in surgery

> with your own

> > doc. I'm just not ready for the surgery of any

> kind at this

> point.

> > If it gets any worse, I may try an injection, but

> after what our

> Ken

> > went through, I think I may just wait it out!! :-)

> As for the knee

> > and ankle, that will have to wait. I know being

> on my feet all day

> > doesn't help it, but it is still tolerable at this

> point. I think

> > I'm getting used to having pain all day,

> everyday!!

> >

> > I also wanted to say hey to everyone and welcome

> to all the

> > newbie's!! I have come to think of this group as

> the " pot of gold

> > at the end of the rainbow " .

> >

> > I hope everyone has a wonderful weekend and as

> painfree as possible

> >

> > Gentle hugs to all......Marina

>

>

>

__________________________________________________

[Guest guest]

Dancing, Pat? It was soooo worth it, though, wasn't it!! I know I

endulge myself like that every so often, knowing that I will pay for

it later. It's my little way of being defiance of the RA and taking a

little part of my life back. My short moments of denial!! I enjoy

those moments!! LOL......Marina

[Guest guest]

June, what a huge part of your life to give up. I think we have to

choose our battles some days, don't we? You just have to look the

disease in the eye sometimes and tell it where to go. I know that you

treasure that dance with your son and I hope you shook your little

bootie off! That would be worth a WEEK in bed, wouldn't it! what

wonderful memories you must have of that day. You go, girl.

Hugs

Jane

> Jane, I can really relate to the dancing. All my life I have skated

and danced. For many years we hung out with 8 other couples and we

went dancing every Sat. night and I was usually on the floor from

beginning to end. When I had my first knee replacement 8 years ago,

the operation was done Nov. 24 and my eldest son was getting married

again on Feb. 14. There was no way I was not going to have a dance

with my son so I took lots of pain medication and boy did I dance. Of

course I spent two days in bed after but it was sure worth it.

>

> Hugs

> June

> ----------

>

> No virus found in this outgoing message.

> Checked by AVG Anti-Virus.

> Version: 7.0.338 / Virus Database: 267.10.14/79 - Release Date:

8/22/2005

>

>

>

[Guest guest]

You cannot give up. You have love for your family, and more strength

then you know. It is hard when this happens, but we do the best that

we can, and go on. I don't know what to say about your finacial

matter, I know its hard with one income. Have you thought of a part

time job, and your fiance'taking some extra work on? Not sure what to

say. We lived on one income for a over a year until the disability

came in, and it was hard, but we managed.

I am sorry that your still having so much pain, I know how you feel.

I have been in a constant pain for over two years. I am just now

finding some relief, because I found a med combo that works. I wish

that I had a magical answer for you, but I don't. I will keep you in

my prayers, and hope you will feel better soon. You need to talk to

your rheumy, let him know how your feeling, and all the pain that

your in. Your worry about employment.

Hugs, Tawny

--- In , " casterramom " <casterramom@y...>

wrote:

> Just a note to thank you all so much for the kind words and for

> letting me know that I am not alone.

>

> I ended up at the hospital on Wednesday morning, unable to move.

The

> pain in my back and legs was excruciating. As soon as I mentioned

RA

> and fibro to the doctor, he just said... " it's JUST a flare-up " I'm

> going to give you a combination steriod shot and a pain shot. Go

rest

> 2 days at home and see your rheumatologist. So 2 more unpaid days

at

> home and I'm back at work.

>

> Financially we are sinking and it's all my fault. I missed a week

and

> a half just 2 weeks ago because my 5 year old had surgery and

needed

> her Momma. I just don't know what to do anymore. My fiance

doesn't

> act upset at me, but he is constantly worrying about money and how

we

> are going to make it. The stress of me knowing that it's my fault

I

> am missing work (and of course it's unpaid because I've used all my

> vacation and sick time already).

>

> I've been reading up on disability. But everything I read just

> discourages me more. According to what I've read being that I'm

just

> 34 will count against me. And I must be NOT WORKING to apply,

right?

> And it will take 3-5 months MINIMUM before approval or denial. So

how

> can we financially survive??? And that's IF I get approval. A 34

> year old with a failed back surgery, rheumatoid arthritis and

> fibromyalgia. I'd probably be denied anyway.

>

> I just don't think I can take much more guys. I love my children

and

> fiance more than words can say and know that my kids needs their

> Momma. But right now, I just want to give up. I just don't have

> anything left to give.

>

> I just can't.

[Guest guest]

Please stop blaming yourself and beating yourself up

for something that you have no control over. It is

not your fault that you have missed work, anymore that

it is any of our fault that our pain and disability

keeps us from working or other activities. Your

children need you much more than you can ever know -

you need to stay strong for them. I know that it must

be terribly hard when you are in so much pain, but

hang in there.

" Just a flare up " , eh? I wish they could have just a

flare up themselves ........ that was just so wrong of

him to say. Yea, a couple of shots and we're going to

be as good as new ....... NOT.

I personally think that you should apply for

disability - with all that you mentioned, I think you

are a good candidate no matter what your age. What's

the harm in trying?

Again, it is not your fault. We, too, have money

problems and I go into the feeling quilty mode too

because I can't find a job that I would be able to do

and not put myself into a flare (RA/Fibro/OA). I am

hoping with my current meds that I can maybe find

something, but, honestly, when you need a job where

you can stand, sit, and move around when you need, or

just sit still when you need, it's kind of hard to

find. It is frustrating, I know. Please keep posting

and let us know how things are going - we are always

here for you -

Kathe in CA

--- casterramom <casterramom@...> wrote:

> Just a note to thank you all so much for the kind

> words and for

> letting me know that I am not alone.

>

> I ended up at the hospital on Wednesday morning,

> unable to move. The

> pain in my back and legs was excruciating. As soon

> as I mentioned RA

> and fibro to the doctor, he just said... " it's JUST a

> flare-up " I'm

> going to give you a combination steriod shot and a

> pain shot. Go rest

> 2 days at home and see your rheumatologist. So 2

> more unpaid days at

> home and I'm back at work.

>

> Financially we are sinking and it's all my fault. I

> missed a week and

> a half just 2 weeks ago because my 5 year old had

> surgery and needed

> her Momma. I just don't know what to do anymore.

> My fiance doesn't

> act upset at me, but he is constantly worrying about

> money and how we

> are going to make it. The stress of me knowing that

> it's my fault I

> am missing work (and of course it's unpaid because

> I've used all my

> vacation and sick time already).

>

> I've been reading up on disability. But everything

> I read just

> discourages me more. According to what I've read

> being that I'm just

> 34 will count against me. And I must be NOT WORKING

> to apply, right?

> And it will take 3-5 months MINIMUM before approval

> or denial. So how

> can we financially survive??? And that's IF I get

> approval. A 34

> year old with a failed back surgery, rheumatoid

> arthritis and

> fibromyalgia. I'd probably be denied anyway.

>

> I just don't think I can take much more guys. I

> love my children and

> fiance more than words can say and know that my kids

> needs their

> Momma. But right now, I just want to give up. I

> just don't have

> anything left to give.

>

> I just can't.

>

>

>

>

Kathe in CA

____________________________________________________

Start your day with - make it your home page

http://www./r/hs

[Guest guest]

I second that statement!! Just a flare up, just once I wished they could get one

too, or my family members so they understand one fraction of my daily pain!!!!

Cortnee

Kathe Sabetzadeh <lv2ryd@...> wrote:

Please stop blaming yourself and beating yourself up

for something that you have no control over. It is

not your fault that you have missed work, anymore that

it is any of our fault that our pain and disability

keeps us from working or other activities. Your

children need you much more than you can ever know -

you need to stay strong for them. I know that it must

be terribly hard when you are in so much pain, but

hang in there.

" Just a flare up " , eh? I wish they could have just a

flare up themselves ........ that was just so wrong of

him to say. Yea, a couple of shots and we're going to

be as good as new ....... NOT.

I personally think that you should apply for

disability - with all that you mentioned, I think you

are a good candidate no matter what your age. What's

the harm in trying?

Again, it is not your fault. We, too, have money

problems and I go into the feeling quilty mode too

because I can't find a job that I would be able to do

and not put myself into a flare (RA/Fibro/OA). I am

hoping with my current meds that I can maybe find

something, but, honestly, when you need a job where

you can stand, sit, and move around when you need, or

just sit still when you need, it's kind of hard to

find. It is frustrating, I know. Please keep posting

and let us know how things are going - we are always

here for you -

Kathe in CA

--- casterramom <casterramom@...> wrote:

> Just a note to thank you all so much for the kind

> words and for

> letting me know that I am not alone.

>

> I ended up at the hospital on Wednesday morning,

> unable to move. The

> pain in my back and legs was excruciating. As soon

> as I mentioned RA

> and fibro to the doctor, he just said... " it's JUST a

> flare-up " I'm

> going to give you a combination steriod shot and a

> pain shot. Go rest

> 2 days at home and see your rheumatologist. So 2

> more unpaid days at

> home and I'm back at work.

>

> Financially we are sinking and it's all my fault. I

> missed a week and

> a half just 2 weeks ago because my 5 year old had

> surgery and needed

> her Momma. I just don't know what to do anymore.

> My fiance doesn't

> act upset at me, but he is constantly worrying about

> money and how we

> are going to make it. The stress of me knowing that

> it's my fault I

> am missing work (and of course it's unpaid because

> I've used all my

> vacation and sick time already).

>

> I've been reading up on disability. But everything

> I read just

> discourages me more. According to what I've read

> being that I'm just

> 34 will count against me. And I must be NOT WORKING

> to apply, right?

> And it will take 3-5 months MINIMUM before approval

> or denial. So how

> can we financially survive??? And that's IF I get

> approval. A 34

> year old with a failed back surgery, rheumatoid

> arthritis and

> fibromyalgia. I'd probably be denied anyway.

>

> I just don't think I can take much more guys. I

> love my children and

> fiance more than words can say and know that my kids

> needs their

> Momma. But right now, I just want to give up. I

> just don't have

> anything left to give.

>

> I just can't.

>

>

>

>

Kathe in CA

____________________________________________________

Start your day with - make it your home page

http://www./r/hs

[Guest guest]

Sheila,

I have a 5 year old son who is being followed by Dr. Goldberg.

Dr. Goldberg told us that for our child, Strattera might be a good choice

for him but he was a little too young. He said that he would prefer to wait

until our son is at least 6 before trying it. In the meantime, he has

prescribed Tenex and it seems to be helping some with attention/focus

issues. Tenex is actually a blood pressure medicine but it is being used

increasingly to help ADD type symptoms in the mainstream medical community.

Of course, every child is an individual and what helps one may not be the

answer for another, but at this point sometimes the only way to know is to

do a trial of the med.

If your doctor hasn't heard about this maybe he could ask around... I'll bet

he could find someone who knows about this application of the med.

Caroline

> From: sheila <shegrl2429@...>

> Reply-< >

> Date: Thu, 19 Jan 2006 18:07:33 +0000

> < >

> Subject: hello everyone

>

> My name is Sheila and I have recently been bombarded (or so it seems)

> by pediatricians, O.T.'s, S.T.'s, psychologists, counselors, and

> teachers in the past year. My oldest son(5) was diagnosed with ADD and

> my youngest (3) was diagnosed with ASD. I have a middle child who

> hasn't been diagnosed with anything yet and I'm not looking to anytime

> in the near future. All the information that has been given to me is

> staggering. My youngest is in therapy sessions four times a week and

> the oldest, well so far everyone wants to medicate him. I however feel

> there must be some other way to cope with this, for me and him. I am

> looking for any and all advice concerining these two disorders and

> anyones personal opinion on what has worked for them. The drug they

> want to put my son on is strattera and its terrifying to read all the

> horrible things this could do to such a young child. So anyone who has

> walked this path before me please share your thoughts and experiences,

> at this point all they can do is help. Thank you all so much.

[Guest guest]

Jackie,

Many women have tested positive for Lupus (high ANA, I think), only

to have those levels drop over time after having their implants

removed. Alot of rheumatologists might prescribe drugs that could

further weaken your immune system, so you might want to try some

natural methods of getting well before you start taking any

prescriptions. I don't know if you've done any detoxing since you

had your implants out, but perhaps you might want to try doing

that. There are many women here who can advise you on how to detox,

and eating properly, which means alot of organic veggies and no

sugar, and drink alot of water, take Epsom salts baths, etc. Cherie

has worked with a naturopath, Dr. Leu, and she worked very hard at

getting well and lately has been responding to the regimen she is

on. I'm just starting down that road although I decided to work

with someone locally.

Sis

>

> I had my implants taken out on January of this year. I'm 30 years

> old and had my saline implant since I was 18 years old. I been

> feeling good most of the time since I had my implants taken out. .

I

> had went to the doctor about two weeks ago because I been just

> really over eatting. I would eat then 20 minute go by and I would

go

> and eat some more. So anyways I had somw blood work done and today

> the nurse called me me telling me that I tested postive for Lupus.

> So I went to have more blood work done and I will go see my doctor

> in 2 weeks. The doctor ask me if my bone hurted. I said sometime

in

> the morning when I would wake up the whole body would be hurting.

Or

> I would feel like there was a cold metal touching my bone. When I

> would feel like that I thought maybe it's my bed. Or maybe it's

> because I cut the grass or moved my furniture around. Most of the

> time I'm active (there time where I couldn't get out of bed like I

> had no energy and I would tell my self what wrong with me but I

had

> to for my boys). I would get up at 4:45 am to go to the gym.

Because

> that the only time I have when I can go.I have three boys that

keep

> me busy. A while back I read some email where some of the the

women

> had lupus and were going th a rheumatologist.If anyone has this

can

> you email me and let me know what to expect or some advise. I'm

> going to look up in internet. Thank You

>

[Guest guest]

HI Jackie

My husband's family has had alot of lupus and I have an aunt with

lupus and I was diagnosed with mixed connective tissue disease with

lupus symptoms.

First, I do believe that with proper detoxifying, good nutrition and

support you can eventually get a negative ana and " recover " . We

have women on this site do that. The main thing is that they test

your kidneys to make sure they are ok.

Lupus can run the gamut from mild to very serious. Therefore, I

would take seriously efforts to get your body very healthy. We have

alot of suggestions on this group about how to detox and to support

your immune system. I happen to belong to another support group

called the roadback foundation. Their website is www.roadback.org.

This website is dedicated to using antibiotics ---certain kinds--to

put autoimmune illness in remission. Lupus is one of the autoimmune

diseases that people use this for. I went on the antibiotic therapy

when I was found to have mycoplasma which has been connected with

autoimmune diseases. One of the mycoplasma I have is connected

especially to lupus. Anyway, there really is alot of evidence that

pathogens set autoimmune illness into motion. So I would also think

about ways to kill pathogens and I like two products especially and

they are supposed to kill mycoplasma as well as other pathogens,

candida and virus/bacteria. One is East Park Research's D'lenolate

(a potent form of olive leaf extract) and the other is oil of

oregano in liquid form. There are many many things that you can do

to help your body get better that are without a doctor's

prescription. These are certainly what I would try first. Nest

I would try the antibiotic protocol. Certainly a last choice would

be the immunesuppressing drugs that the doctors like to prescribe

such as prednisone, cortisone, methotrexate, etc. If your doctor

hasn't done it, he definitely needs to do a urine test for protein

in the urine. Like I said earlier, my research with lupus shows

that the predictor of severity tends to be how much kidney

involvement there is. Let us know how your doctor's visit goes.

Hugs, Kathy

>

> I had my implants taken out on January of this year. I'm 30 years

> old and had my saline implant since I was 18 years old. I been

> feeling good most of the time since I had my implants taken out. .

I

> had went to the doctor about two weeks ago because I been just

> really over eatting. I would eat then 20 minute go by and I would

go

> and eat some more. So anyways I had somw blood work done and today

> the nurse called me me telling me that I tested postive for Lupus.

> So I went to have more blood work done and I will go see my doctor

> in 2 weeks. The doctor ask me if my bone hurted. I said sometime

in

> the morning when I would wake up the whole body would be hurting.

Or

> I would feel like there was a cold metal touching my bone. When I

> would feel like that I thought maybe it's my bed. Or maybe it's

> because I cut the grass or moved my furniture around. Most of the

> time I'm active (there time where I couldn't get out of bed like I

> had no energy and I would tell my self what wrong with me but I

had

> to for my boys). I would get up at 4:45 am to go to the gym.

Because

> that the only time I have when I can go.I have three boys that

keep

> me busy. A while back I read some email where some of the the

women

> had lupus and were going th a rheumatologist.If anyone has this

can

> you email me and let me know what to expect or some advise. I'm

> going to look up in internet. Thank You

>

[Guest guest]

,

Welcome to . . .First I want you to know

that you needn't take the diagnoses doctors give you

seriously right now . . . It usually takes at least a

year for " autoimmune " diseases to start fading away.

Are you taking any medication that can cause

uncontrolled hunger? . . . It's possible you have a

rip roaring case of Candida too . . . That will make

you crave the very things that hurt you because the

little yeast organisms are screaming " Feed me, Feed

me " .

I'm traveling right now and don't have much computer

time . . . I'd suggest reviewing our archives and

messages. You may get some ideas there that will help

you. HOwever, this is the first time I've heard of

anyone whose appetite is out of bounds!

You'll probably need to do some detoxing . . . That's

when women start seeing real progress. . . More

reading to do! . . .

If you have some questions, ask away . . . our ladies

are very supportive and knowledgable. We want to help!

Hugs and prayers,

Rogene

[Guest guest]

Kathy, My doctor did the anitbiotic therapy on me for a while thinking I had a mycroplasma. Then after a while he took me off it when he put me on a "drug holiday." The same doctor that put me on as many as 6 medications at one time, took me off all of them suddenly because my symptoms still remained and no diagnosis was found. Then he thought maybe my drug cocktail was causing it. This is the same doctor that almost cried when I brought him all the implant information. Do you think I should now seek the mycroplasma ideal back to him? mikat828 <mikat828@...> wrote: HI JackieMy husband's family has had alot of lupus and I have an aunt with lupus and I was diagnosed with mixed connective tissue disease with

lupus symptoms. First, I do believe that with proper detoxifying, good nutrition and support you can eventually get a negative ana and "recover". We have women on this site do that. The main thing is that they test your kidneys to make sure they are ok. Lupus can run the gamut from mild to very serious. Therefore, I would take seriously efforts to get your body very healthy. We have alot of suggestions on this group about how to detox and to support your immune system. I happen to belong to another support group called the roadback foundation. Their website is www.roadback.org. This website is dedicated to using antibiotics ---certain kinds--to put autoimmune illness in remission. Lupus is one of the autoimmune diseases that people use this for. I went on the antibiotic therapy when I was found to have mycoplasma which has been connected with

autoimmune diseases. One of the mycoplasma I have is connected especially to lupus. Anyway, there really is alot of evidence that pathogens set autoimmune illness into motion. So I would also think about ways to kill pathogens and I like two products especially and they are supposed to kill mycoplasma as well as other pathogens, candida and virus/bacteria. One is East Park Research's D'lenolate (a potent form of olive leaf extract) and the other is oil of oregano in liquid form. There are many many things that you can do to help your body get better that are without a doctor's prescription. These are certainly what I would try first. Nest I would try the antibiotic protocol. Certainly a last choice would be the immunesuppressing drugs that the doctors like to prescribe such as prednisone, cortisone, methotrexate, etc. If your doctor hasn't done it, he definitely

needs to do a urine test for protein in the urine. Like I said earlier, my research with lupus shows that the predictor of severity tends to be how much kidney involvement there is. Let us know how your doctor's visit goes. Hugs, Kathy>> I had my implants taken out on January of this year. I'm 30 years > old and had my saline implant since I was 18 years old. I been > feeling good most of the time since I had my implants taken out. . I > had went to the doctor about two weeks ago because I been just > really over eatting. I would eat then 20 minute go by and I would go > and eat some more. So anyways I had somw blood work done and today > the nurse called me me telling me that I tested postive for Lupus. > So I went to have more blood work done and I

will go see my doctor > in 2 weeks. The doctor ask me if my bone hurted. I said sometime in > the morning when I would wake up the whole body would be hurting. Or > I would feel like there was a cold metal touching my bone. When I > would feel like that I thought maybe it's my bed. Or maybe it's > because I cut the grass or moved my furniture around. Most of the > time I'm active (there time where I couldn't get out of bed like I > had no energy and I would tell my self what wrong with me but I had > to for my boys). I would get up at 4:45 am to go to the gym. Because > that the only time I have when I can go.I have three boys that keep > me busy. A while back I read some email where some of the the women > had lupus and were going th a rheumatologist.If anyone has this can > you email me and let me know what to expect or some advise. I'm > going to look

up in internet. Thank You>

How low will we go? Check out Messenger’s low PC-to-Phone call rates.

[Guest guest]

-

I applaud your doctor for being open enough to use the antibiotic

therapy. Who do you go to? If the antibiotic therapy is not done

right, it won't be alot of help. What other meds did he have you

on? Most people who do the ap use minocin or doxycycline. That is

why I wonder what the other meds were. Also, antibiotic therapy can

makeyou herx and feel really bad until the herxes go away.

Definitely people often feel that they are getting worse before they

feel like they are getting better.

I have been on the www.roadback.org site for four years and I can

tell you that AP can work miracles. Approximately 66-85% of the

people who use it can expect to improve--some into a permanent

remission. I was tested for mycoplasma and had them. But many of

the people on ap don't get tested and it still helps them. I

certainly would keep it as an option. How long were you on the

therapy? It usually takes several months to a couple of years to

experience good improvement. I also believe that D'lenolate olive

leaf extract kills myco's and other pathogens that may be

responsible for our illness. So does Oil of Oregano and I have used

both. Ican tell you that I herxed really strongly to the olive leaf

and the herx brought the exact same symptoms that the antibiotics

did. It worsened all my symptoms and I would get scared and back

off of them due to the increased pains (especially headaches) and to

make sure I wasn't just getting worse. Both of these supplements

also kill candida. This iswhy I like to recommend them.

Antibiotics can worsen candida. However, most people on the ap take

probiotics and don't seem to do badly with yeast. Some of the

people were on a drug cocktail of diflucan, flagyl and minocin. It

packed a punch. It is hard to know what to do. I might start with

one or both of the olive leaf or oil of oregano first. Also keep

detoxing. Go slowly making sure not to do too many things at once.

We always seem to want to hit it with everything weve got but that

is often a mistake. We get in too much pain and get very depressed

and discouraged and mistakenly think we are getting worse.

Alot of what many of us here have done has been trial and error,

because it is almost impossible to know what our exact problems are,

or how to fix them. So we keep trying things that we have

researched and asking God to lead us down the right paths. I really

feel that believing that we are getting well is important to getting

well. There is alot to be said for an unstoppable positive attitude

(I fail miserably here at times--especially now with such changing

hormones). Laughter and joy are not only good for the soul, they

are also excellent for the immune system!

Hugs, Kathy

-- In , Lamse

<wannabe_proverbs31@...> wrote:

>

> Kathy,

>

> My doctor did the anitbiotic therapy on me for a while thinking

I had a mycroplasma. Then after a while he took me off it when he

put me on a " drug holiday. " The same doctor that put me on as many

as 6 medications at one time, took me off all of them suddenly

because my symptoms still remained and no diagnosis was found. Then

he thought maybe my drug cocktail was causing it. This is the same

doctor that almost cried when I brought him all the implant

information. Do you think I should now seek the mycroplasma ideal

back to him?

>

>

>

> mikat828 <mikat828@...> wrote:

> HI Jackie

> My husband's family has had alot of lupus and I have an aunt with

> lupus and I was diagnosed with mixed connective tissue disease

with

> lupus symptoms.

> First, I do believe that with proper detoxifying, good nutrition

and

> support you can eventually get a negative ana and " recover " . We

> have women on this site do that. The main thing is that they test

> your kidneys to make sure they are ok.

> Lupus can run the gamut from mild to very serious. Therefore, I

> would take seriously efforts to get your body very healthy. We

have

> alot of suggestions on this group about how to detox and to

support

> your immune system. I happen to belong to another support group

> called the roadback foundation. Their website is

www.roadback.org.

> This website is dedicated to using antibiotics ---certain kinds--

to

> put autoimmune illness in remission. Lupus is one of the

autoimmune

> diseases that people use this for. I went on the antibiotic

therapy

> when I was found to have mycoplasma which has been connected with

> autoimmune diseases. One of the mycoplasma I have is connected

> especially to lupus. Anyway, there really is alot of evidence

that

> pathogens set autoimmune illness into motion. So I would also

think

> about ways to kill pathogens and I like two products especially

and

> they are supposed to kill mycoplasma as well as other pathogens,

> candida and virus/bacteria. One is East Park Research's

D'lenolate

> (a potent form of olive leaf extract) and the other is oil of

> oregano in liquid form. There are many many things that you can

do

> to help your body get better that are without a doctor's

> prescription. These are certainly what I would try first. Nest

> I would try the antibiotic protocol. Certainly a last choice

would

> be the immunesuppressing drugs that the doctors like to prescribe

> such as prednisone, cortisone, methotrexate, etc. If your doctor

> hasn't done it, he definitely needs to do a urine test for protein

> in the urine. Like I said earlier, my research with lupus shows

> that the predictor of severity tends to be how much kidney

> involvement there is. Let us know how your doctor's visit goes.

> Hugs, Kathy

>

>

>

>

>

>

>

>

> >

> > I had my implants taken out on January of this year. I'm 30

years

> > old and had my saline implant since I was 18 years old. I been

> > feeling good most of the time since I had my implants taken

out. .

> I

> > had went to the doctor about two weeks ago because I been just

> > really over eatting. I would eat then 20 minute go by and I

would

> go

> > and eat some more. So anyways I had somw blood work done and

today

> > the nurse called me me telling me that I tested postive for

Lupus.

> > So I went to have more blood work done and I will go see my

doctor

> > in 2 weeks. The doctor ask me if my bone hurted. I said sometime

> in

> > the morning when I would wake up the whole body would be

hurting.

> Or

> > I would feel like there was a cold metal touching my bone. When

I

> > would feel like that I thought maybe it's my bed. Or maybe it's

> > because I cut the grass or moved my furniture around. Most of

the

> > time I'm active (there time where I couldn't get out of bed like

I

> > had no energy and I would tell my self what wrong with me but I

> had

> > to for my boys). I would get up at 4:45 am to go to the gym.

> Because

> > that the only time I have when I can go.I have three boys that

> keep

> > me busy. A while back I read some email where some of the the

> women

> > had lupus and were going th a rheumatologist.If anyone has this

> can

> > you email me and let me know what to expect or some advise. I'm

> > going to look up in internet. Thank You

> >

>

>

>

>

>

>

> Opinions expressed are NOT meant to take the place of advice given

by licensed health care professionals. Consult your physician or

licensed health care professional before commencing any medical

treatment.

>

> " Do not let either the medical authorities or the politicians

mislead you. Find out what the facts are, and make your own

decisions about how to live a happy life and how to work for a

better world. " - Linus ing, two-time Nobel Prize Winner (1954,

Chemistry; 1963, Peace)

>

> See our photos website! Enter " implants " for access at this link:

> http://.shutterfly.com/action/

>

>