HELLO EVERYONE

[Guest guest]

Matt tell your friend to come here and to read up before she gets the implants...i wish I had, I've spent thousands of dollars in the last 3 years putting in and taking out my safe saline implants...LOL

[Guest guest]

Hi Matt -- good for you for attempting to avert a catastrophe with

your friend. It sounds like you have a big heart, and we need

more " real " men in this world with your attitude. God bless your

endeavours to assist your friend and possibly change her mind with

the info you learn here. There is alot to read...archived messages,

etc.

I personally was explanted on July 26 of this year, after 20 yrs. of

silicone gel implants. I almost died and left 4 grandchildren

without their granny. I'm recovering slowly, and feel so much better

already.

Continue on with your mission....it's awesome!

Love,

Sunny

>

> Hei everyone. Im not a female but am here because Shari Halverson

sent

> me here. I have a friend of mine who is going to get impants and

until

> now I didnt relize how bad they were for you. I have always been a

> strong beliver in women not getting implants as I think they look

bad

> in my opion. I have decided I am starting a new non profit

> organazation called PABI People Agianst Breast Implants. I want it

to

> focus on how bad implants are for people. I have a friend of mine

who

> had a problem with hers. The Dr was supposed to use saline as he

said

> it was saffer and instead used Silicone because it was cheaper. I

will

> be working on getting a site up and everything but want to raise

funds

> not only to help the victims of implant misshaps ut to raise money

for

> breast cancer research as I have been touched by many who have had

> breast cancer. If anony has any more info on the implants and how

bad

> they realy are for you let me know. The good news with my friend is

I

> still have time to show her not to get the implants as she doesnt

pay

> for them until oct 8th. Thanks for any Help.

>

>

> Matt

>

[Guest guest]

Well since I posted this my friend has blocked me from messanger and

there is no way to get a hold of her. If any of you want to try and

help her out I dont like giving out messanger names but hers is

cassie_leanne feel free to try and tell her what harm she is going

to do as I dont want her to hurt herself but if she were a true

friend she would at least look into the risks for me. Thanks

everyone for your help. Im hoping to start the site that im planning

soon and raising money for breast cancer research and money to help

the women who need explants for there problems.

> >

> > Hei everyone. Im not a female but am here because Shari

Halverson

> sent

> > me here. I have a friend of mine who is going to get impants and

> until

> > now I didnt relize how bad they were for you. I have always been

a

> > strong beliver in women not getting implants as I think they

look

> bad

> > in my opion. I have decided I am starting a new non profit

> > organazation called PABI People Agianst Breast Implants. I want

it

> to

> > focus on how bad implants are for people. I have a friend of

mine

> who

> > had a problem with hers. The Dr was supposed to use saline as he

> said

> > it was saffer and instead used Silicone because it was cheaper.

I

> will

> > be working on getting a site up and everything but want to raise

> funds

> > not only to help the victims of implant misshaps ut to raise

money

> for

> > breast cancer research as I have been touched by many who have

had

> > breast cancer. If anony has any more info on the implants and

how

> bad

> > they realy are for you let me know. The good news with my friend

> is I

> > still have time to show her not to get the implants as she

doesnt

> pay

> > for them until oct 8th. Thanks for any Help.

> >

> >

> > Matt

> >

>

[Guest guest]

Matt,

Sounds like your friend has closed her mind to this topic, because

she has fallen into that trap of focusing on how big her breasts

will be rather than how good her health is. It's possible that

she's also been asking questions on pro-implant sites, who might be

telling her that implants are safe, and anyone who says otherwise is

crazy. Unfortunately, she doesn't want to listen, and there's

probably nothing you can do to make her listen. You're on the right

track, and you're going to try to do some good for people who are in

need, and if your friend ends up needing your help one day, then

maybe you'll be able to help her. Right now she doesn't realize

that you've got good intentions - when I was getting married for the

first time, I had a friend who tried to talk me out of it, and I

didn't want to listen (and in the end she was right, but

unfortunately I didn't see it until it was too late). My advice is

give her some space, and perhaps the reason why she's shutting you

out is that deep down she has doubts and you've struck a chord. If

she's a true friend, she'll be in your life again.

Sis

> > >

> > > Hei everyone. Im not a female but am here because Shari

> Halverson

> > sent

> > > me here. I have a friend of mine who is going to get impants

and

> > until

> > > now I didnt relize how bad they were for you. I have always

been

> a

> > > strong beliver in women not getting implants as I think they

> look

> > bad

> > > in my opion. I have decided I am starting a new non profit

> > > organazation called PABI People Agianst Breast Implants. I

want

> it

> > to

> > > focus on how bad implants are for people. I have a friend of

> mine

> > who

> > > had a problem with hers. The Dr was supposed to use saline as

he

> > said

> > > it was saffer and instead used Silicone because it was

cheaper.

> I

> > will

> > > be working on getting a site up and everything but want to

raise

> > funds

> > > not only to help the victims of implant misshaps ut to raise

> money

> > for

> > > breast cancer research as I have been touched by many who have

> had

> > > breast cancer. If anony has any more info on the implants and

> how

> > bad

> > > they realy are for you let me know. The good news with my

friend

> > is I

> > > still have time to show her not to get the implants as she

> doesnt

> > pay

> > > for them until oct 8th. Thanks for any Help.

> > >

> > >

> > > Matt

> > >

> >

>

[Guest guest]

Matt, This is really an awesome thing that you are undertaking. I applaud you completely on your goals and efforts! Take some time to look around our website, and I am sure you can find stuff to help you build yours. Stay in touch, and thank you so much for sharing and caring about your friend. I hope she takes what you show her to heart and changes her mind. Pattymhowe85 <mhowe85@...> wrote: Hei everyone. Im not a

female but am here because Shari Halverson sent me here. I have a friend of mine who is going to get impants and until now I didnt relize how bad they were for you. I have always been a strong beliver in women not getting implants as I think they look bad in my opion. I have decided I am starting a new non profit organazation called PABI People Agianst Breast Implants. I want it to focus on how bad implants are for people. I have a friend of mine who had a problem with hers. The Dr was supposed to use saline as he said it was saffer and instead used Silicone because it was cheaper. I will be working on getting a site up and everything but want to raise funds not only to help the victims of implant misshaps ut to raise money for breast cancer research as I have been touched by many who have had breast cancer. If anony has any more info on the implants and how bad they realy are for you let me know. The good news with my

friend is I still have time to show her not to get the implants as she doesnt pay for them until oct 8th. Thanks for any Help.Matt

Get your email and more, right on the new .com

[Guest guest]

Helo Mandi nice to meet you. i'm , 28 yr old widowed mom of 2 young

kids... Yes that is a mouthfull... Diagnosed 6 yrs ago with RA but positive i've

had it a lot longer.

, mom of 2 bratz

************************************** See what's free at http://www.aol.com.

[Guest guest]

Thanks for the welcome. I was diagnosed with RA at 21 so if I had known there

was such a thing as fibromyalgia I would have put two & two together by the time

I hit 35. Ugh! I don't know how young mothers do it, pain & small kids are like

oil & water. I babysit my 2 year old grandson & go home, shower & go to bed.

Life has to go on tho huh?

Sunshine........Di

N2kids@... wrote:

Helo Mandi nice to meet you. i'm , 28 yr old widowed mom of 2

young

kids... Yes that is a mouthfull... Diagnosed 6 yrs ago with RA but positive i've

had it a lot longer.

, mom of 2 bratz

************************************** See what's free at http://www.aol.com.

[Guest guest]

Hi Mandi Lei,

Good to have you hear you will like this group everyone is so supportive and

caring. I am sorry you are having so much trouble, most people do not

understand what we go through with the auto immune disease.

Marsha

[ ] Hello everyone

How r u all today? I am stiff & sore as it goes on a rainy, windy,

cold day here in PA.

I just joined today, I am 47, divorced, single female. I was

diagnosed with Fibromyalia, Chronic Fatigue 10 years ago. I kept

working but the pain finally got too much & on June 8, 2006 I gave

up. I just imagined myself dying on that job because I pushed my

body too far & would have a stroke or heart attack there. I had

seizures there once & that woke me up to what it would be like to

have those people watch me pass so for my quality of life I decided

to give up the ghost & admit defeat that the Gov't would have to

take care of me from there. However, what did they hold against me?

The fact that I worked day after in day in total pain, why can't I

keep working? I have a lawyer but it has been a long time & he

doesn't expect a hearing until winter 2007. My income is $200 a mt &

I am of course depressed. I would like a IM friend that could give

me some advice of what to do, take or say at hearing. I am a upbeat

person & will chat about health for a quick minute but do not want

that to be the topic of conversation.

How about the killings at Virgina Tech? 32 students. Ugh.

Oh well, IM me if you care to

Mandi Lei

[Guest guest]

ERIN I'M ON AS JULZKIDZ AND YOU CAN ADD ME ON AIM AS JULIEN2KIDS

, mom of 2 bratz

************************************** See what's free at http://www.aol.com.

[Guest guest]

Hi! Are you on AOL messenger or or something different? I am on AIM (AOL)

and as mom2rjan. Anyone who wants to add me to vent feel free! I really

need someone to have someone to talk to that is going thru the same thing and

hopefully we can help each other! Or set me straight and holler when I am over

doing it! Which btw, I did AGAIN with the darn cleaning crap! I didn't think I

was doing all that much..i did the kitchen floor, dusted and vacuumed downstairs

and dishes, oh a a few loads of laundry... OK well, maybe that was a bit much! I

hope I can get enough energy and am not hurting too bad tomorrow so I can start

with the upstairs! It would REALLY help if these kids would do something around

here! Between my hubby and I we have 6 kids.... 4 that live with us all week,

then weekends they all go to their other parent except our daughter together who

just turned 6... I think she is worse than the rest of them! The 3 others are

boys ages 13, 10, and almost

8... I need a MAID! lol

OK, done rambling here as usual! Like I said, anyone wants to add me to chat

or email me privately feel free! I love making new friends!!

3 of every 10 Americans Know Someone With Lupus

Help find the cure. www.lupus.org & www.cure4lupus.org.

---------------------------------

Ahhh...imagining that irresistible " new car " smell?

Check outnew cars at Autos.

[Guest guest]

This would be cheaper than a maid. I have two teenage daughters and a 8yr old

daughter who thinks she's 13. I printed out a list of things that needed to be

done on a weekly basis and added a $$$$ amount to it. All they have to do to

earn some extra money is work and initial it. They do get a $5.00 wk allowence.

but you know teen girls need more than 5 a wk.last week one earned 15 and the

other 17. I also have a punishment list. they owe me for talking back or

laziness and arguing and so on. Its been a month in the works and so far so

good. They asked what their option was and I told them they could do it this way

or do it for free. Oh, they dont get paid for cleaning their own room. but it

still has to be done. I sat them all down and just laid it on the line, what my

abilities are and so forth. I still do chores when I can and I put my inituals

up there. they know they are losing money when i get to it first. Its a nice way

to reward myself as well.

n Brett <erinnbrett00@...> wrote: Hi! Are you on AOL

messenger or or something different? I am on AIM (AOL) and as

mom2rjan. Anyone who wants to add me to vent feel free! I really need someone to

have someone to talk to that is going thru the same thing and hopefully we can

help each other! Or set me straight and holler when I am over doing it! Which

btw, I did AGAIN with the darn cleaning crap! I didn't think I was doing all

that much..i did the kitchen floor, dusted and vacuumed downstairs and dishes,

oh a a few loads of laundry... OK well, maybe that was a bit much! I hope I can

get enough energy and am not hurting too bad tomorrow so I can start with the

upstairs! It would REALLY help if these kids would do something around here!

Between my hubby and I we have 6 kids.... 4 that live with us all week, then

weekends they all go to their other parent except our daughter together who just

turned 6... I think she is worse than the rest of

them! The 3 others are boys ages 13, 10, and almost

8... I need a MAID! lol

OK, done rambling here as usual! Like I said, anyone wants to add me to chat or

email me privately feel free! I love making new friends!!

3 of every 10 Americans Know Someone With Lupus

Help find the cure. www.lupus.org & www.cure4lupus.org.

---------------------------------

Ahhh...imagining that irresistible " new car " smell?

Check outnew cars at Autos.

[Guest guest]

Hi and Welcome Mandi. I'm new here too, my name is Carol. I've been fully

disabled since 2002. It was a very hard adjustment... I hope you're not hurting

too badly today.

Carol

In a message dated 4/17/2007 12:34:18 P.M. Pacific Daylight Time,

lei_mandi@... writes:

How r u all today? I am stiff & sore as it goes on a rainy, windy,

cold day here in PA.

I just joined today, I am 47, divorced, single female. I was

diagnosed with Fibromyalia, Chronic Fatigue 10 years ago. I kept

working but the pain finally got too much & on June 8, 2006 I gave

up. I just imagined myself dying on that job because I pushed my

body too far & would have a stroke or heart attack there. I had

seizures there once & that woke me up to what it would be like to

have those people watch me pass so for my quality of life I decided

to give up the ghost & admit defeat that the Gov't would have to

take care of me from there. However, what did they hold against me?

The fact that I worked day after in day in total pain, why can't I

keep working? I have a lawyer but it has been a long time & he

doesn't expect a hearing until winter 2007. My income is $200 a mt &

I am of course depressed. I would like a IM friend that could give

me some advice of what to do, take or say at hearing. I am a upbeat

person & will chat about health for a quick minute but do not want

that to be the topic of conversation.

How about the killings at Virgina Tech? 32 students. Ugh.

Oh well, IM me if you care to

Mandi Lei

************************************** See what's free at http://www.aol.com.

[Guest guest]

Hi! Welcome to the Group! I have been Off work sence 2000 but did not

get my full Check started for 3 years they keep turning me down. I

have RA, AS, Fibro, Chronic fatigue, Glocoma, a pace maker, I would

be willing to talk to you some time about what all they ask me at my

hearing. It is nuts how they do some people they think because if

they can not see any thing wrong you are ok. You can not see how

someone if feeling are what hurts! if th people that did the hearing

was sick it would not be so hard to get SS. but most if them have not

had a pain in there life! I have been having it hard one day it is

hot here the next it is cold are it is raining! You take care

SueAnn from East texas

>

> How r u all today? I am stiff & sore as it goes on a rainy, windy,

> cold day here in PA.

> I just joined today, I am 47, divorced, single female. I was

> diagnosed with Fibromyalia, Chronic Fatigue 10 years ago. I kept

> working but the pain finally got too much & on June 8, 2006 I gave

> up. I just imagined myself dying on that job because I pushed my

> body too far & would have a stroke or heart attack there. I had

> seizures there once & that woke me up to what it would be like to

> have those people watch me pass so for my quality of life I decided

> to give up the ghost & admit defeat that the Gov't would have to

> take care of me from there. However, what did they hold against me?

> The fact that I worked day after in day in total pain, why can't I

> keep working? I have a lawyer but it has been a long time & he

> doesn't expect a hearing until winter 2007. My income is $200 a mt

&

> I am of course depressed. I would like a IM friend that could give

> me some advice of what to do, take or say at hearing. I am a upbeat

> person & will chat about health for a quick minute but do not want

> that to be the topic of conversation.

> How about the killings at Virgina Tech? 32 students. Ugh.

> Oh well, IM me if you care to

> Mandi Lei

>

[Guest guest]

Cassy, is that you? I have been wondering where you went. So, you

have been in the hospital since 04? What happened, if I may ask? I'm

glad your back on the group. Hope you start feeling better, just take

it one day at a time, hugs Tawny

[Guest guest]

Yes, since April 24. I had a reaction to my meds and had to detox and

get on different meds. My pulse was racing and I felt very ill.

I feel very good now, meds stable. It is a bit scary though that I

could be in that condition due to meds I have to take to stay well. I

have not taken the MTX and Enbrel this week because I have been

coughing for several days and do not want to make it worse. I would

love to get off of all my meds, take less, less work on my system?

Love ya lots

Cassy

>

> Cassy, is that you? I have been wondering where you went. So, you

> have been in the hospital since 04? What happened, if I may ask?

I'm

> glad your back on the group. Hope you start feeling better, just

take

> it one day at a time, hugs Tawny

>

[Guest guest]

You ended up in the hospital because of what they did (didn't do)? You're

the one that couldn't get your prescription filled, right? That is just

TERRIBLE! You should be able to sue them for the cost of your hospital stay!

Carol

In a message dated 4/29/2007 4:27:29 P.M. Pacific Daylight Time,

bertelson@... writes:

I have been in the hosp since 04/24 getting my meds straightened out.

After the Walgreens nightmare, I was in a terrible mess, pain and

withdrawal symptoms. OMG. I am doing ok now,just kind of in a fog.

What a nightmare. I am switching my pharmacy ASAP. I found one that

seems to care about their patients. Family owned/operated. It could

not get much worse than Walgreens. I will not shop or get my

prescriptions there again.

************************************** See what's free at http://www.aol.com.

[Guest guest]

Yes, that is me. It has been pretty awful. I am on the mend now,

but it was intense for awhile. Ich. Cassy

>

>

> You ended up in the hospital because of what they did (didn't

do)? You're

> the one that couldn't get your prescription filled, right? That

is just

> TERRIBLE! You should be able to sue them for the cost of your

hospital stay!

> Carol

>

> In a message dated 4/29/2007 4:27:29 P.M. Pacific Daylight Time,

> bertelson@... writes:

>

> I have been in the hosp since 04/24 getting my meds straightened

out.

> After the Walgreens nightmare, I was in a terrible mess, pain and

> withdrawal symptoms. OMG. I am doing ok now,just kind of in a

fog.

> What a nightmare. I am switching my pharmacy ASAP. I found one

that

> seems to care about their patients. Family owned/operated. It

could

> not get much worse than Walgreens. I will not shop or get my

> prescriptions there again.

>

>

>

>

>

>

> ************************************** See what's free at

http://www.aol.com.

>

>

>

[Guest guest]

Dear Sue ~

Honey, hello ! ! ! We have missed you so much ! !

I am sorry that house didnt turn out to be the one......

When the right one comes along, it will happen.

I am sorry you have been feeling so bad lately.

I know how hard thinking can be sometimes.

Especially when you have had so much on your

mind that you have mind clutter and worry. Ya

dont really sleep well, cuz your mind doesnt

shut down for the night, so you never get recovered

from the previous day.

How are you feeling otherwise? How are the kids?

Love you Sue ~ DedeCheck out AOL Money Finance's list of the hottest products and top money wasters of 2007.

[Guest guest]

Sue,

I'm concerned about you with your lack of energy still. Are you

still doing the treatments that were so beneficial to you? Are you

still working with your wonderful doctor?

It was probably all for the better that you didn't move right now. I

know how stressful moving can be! I did it when I was at my sickest

and it's a wonder I survived. Just relax as much as you can and

enjoy the holidays. Are you doing any adrenal support?

Patty

>

> Hi all,

>

>

>

> I have not been around for a while so I apologise to everyone if I

have

> missed any important posts.

>

> I should have moved today but I decided to turn the house down, I

had a few

> reasons for doing so.

>

> I have NO energy and really could not cope with the stress of

moving it's

> made me ill worrying about it all.

>

> Although I wanted a smaller house as this one is too big for me to

cope with

> really, the new house was just too small especially the kitchen it

didn't

> have room for my dish washer or tumble drier.

>

> This probably sounds like complete drivel but I really cannot cope

with

> anything at the moment

>

>

>

> I really am depleted of all energy, even thinking is hard work.

>

>

>

> Love Sue

>

[Guest guest]

Oh Sue,

I thought you were busy getting ready to move. . . I hate the thought that you are still exposed to the London air!

Hopefully you'll find the right house soon . . . then let your kids take care of moving you!

Are you still doing the oxygen treatments? You sounded so much better the last time we heard from you.

Hugs and prayers,

Rogene

[Guest guest]

Sue,

I do hope you find the home you are looking for, and when you do,

please get some help to move.

Lynda

At 06:19 AM 12/8/2007, you wrote:

>Hi all,

>

>

>

>I have not been around for a while so I apologise to everyone if I

>have missed any important posts.

>

>I should have moved today but I decided to turn the house down, I

>had a few reasons for doing so.

>

>I have NO energy and really could not cope with the stress of moving

>it's made me ill worrying about it all.

>

>Although I wanted a smaller house as this one is too big for me to

>cope with really, the new house was just too small especially the

>kitchen it didn't have room for my dish washer or tumble drier.

>

>This probably sounds like complete drivel but I really cannot cope

>with anything at the moment

>

>

>

>I really am depleted of all energy, even thinking is hard work.

>

>

>

>Love Sue

>

[Guest guest]

,

You described all of the side effects of prednisone. It does wonders

for inflammation and pain but it also has those draw backs.

Honey, it sounds like you are really going through so much.

I pray you get some good answers soon.

Shirley

>

> I am ,and I have rhuematoid arthritis and fibromyalgia,and I

> have had to file for disability.I am struggling with many

things,some

> emotional,some financial,some having to do with medications and

> problems with them,and some problems with doctors and other kinds

> people I encounter in the world who do not understand my

> problems.Some problems I am having with friends and family and

some

> are just with medical people like pharmacy people,staff and nurses

in

> doctors offices and such.I feel like everywhere I go I am judged

> harshly and misunderstood and disrespected since I cannot work now

> and have no health insurance and not much money to take care of my

> medical care while I am fighting with social security about my

> disability benefits.I am having a hard time going out of the house

at

> all now for anything or getting dressed every day or simple things

> that most people take for granted like brushing my hair or my

teeth

> or taking a shower or loading the dishwasher or the washing

> machine,cleaning the bathroom,things like this.I used to be a

> computer technician and now I am only a sick person who cannot

work

> and so no one treats me the same as they did before.I have been

very

> depressed partly because I am in constant pain but partly because

I

> feel so hopeless sometimes like my whole life had stopped at a

stand

> still and I am stuck in a place where I have no control over my

life

> and no hope of ever having any influence on what happens to me

> again.I have been going to a therapy group at our local mental

health

> center for people with chronic illnesses,like depression and grief

> issues and other problems.Most who attend the group are women like

me

> who are in a bad situation and are trying to cope with it the best

> they can.The group is helping me some and I also belong to other

> online groups for people with fibro but I am seeking information

and

> support from others who have RA about meds and coping

strategies.My

> doctor gave me a course of prednisone to take two weeks ago so I

am

> almost finished with that now and I am able to walk better now

> without using a cane and am able to stand up straighter and get up

> and down easier and sleep a bit better but the medicine made me

very

> irritable and agitated,almost like I had drank to much coffee or

some

> kind of stimulant and I have been easily angered and frustrated

while

> taking it.I found that it kept me awake and that I could not take

> more than three of the tablets during the day or I was awake all

> night long.I wanted to ask if anyone else has taken this

medication

> for RA and if you had any of these symptoms or side effects that I

> describe with that.

>

[Guest guest]

susan,

 

hang in there.things will get better.i been through what you are going through.

dr will get you on meds that finally work,it takes time,i had to give up my job

and go on ssdi. i'm on prednisone 10 mg a day,on 1 shot enbrel a week.not

working

like it should.i too lost my ins.i had to go to the clinic will i live,they go

by how much

money you get a month.they can help with meds.check it out in your area.like i

said

things will get better,feeling down,rant and rav here,everyone listens.we know

how

you feel.

ann

From: nana2livi <s.p5315@...>

Subject: [ ] Re: Hello everyone

Date: Wednesday, September 24, 2008, 6:38 PM

,

You described all of the side effects of prednisone. It does wonders

for inflammation and pain but it also has those draw backs.

Honey, it sounds like you are really going through so much.

I pray you get some good answers soon.

Shirley

>

> I am ,and I have rhuematoid arthritis and fibromyalgia, and I

> have had to file for disability.I am struggling with many

things,some

> emotional,some financial,some having to do with medications and

> problems with them,and some problems with doctors and other kinds

> people I encounter in the world who do not understand my

> problems.Some problems I am having with friends and family and

some

> are just with medical people like pharmacy people,staff and nurses

in

> doctors offices and such.I feel like everywhere I go I am judged

> harshly and misunderstood and disrespected since I cannot work now

> and have no health insurance and not much money to take care of my

> medical care while I am fighting with social security about my

> disability benefits.I am having a hard time going out of the house

at

> all now for anything or getting dressed every day or simple things

> that most people take for granted like brushing my hair or my

teeth

> or taking a shower or loading the dishwasher or the washing

> machine,cleaning the bathroom,things like this.I used to be a

> computer technician and now I am only a sick person who cannot

work

> and so no one treats me the same as they did before.I have been

very

> depressed partly because I am in constant pain but partly because

I

> feel so hopeless sometimes like my whole life had stopped at a

stand

> still and I am stuck in a place where I have no control over my

life

> and no hope of ever having any influence on what happens to me

> again.I have been going to a therapy group at our local mental

health

> center for people with chronic illnesses,like depression and grief

> issues and other problems.Most who attend the group are women like

me

> who are in a bad situation and are trying to cope with it the best

> they can.The group is helping me some and I also belong to other

> online groups for people with fibro but I am seeking information

and

> support from others who have RA about meds and coping

strategies.My

> doctor gave me a course of prednisone to take two weeks ago so I

am

> almost finished with that now and I am able to walk better now

> without using a cane and am able to stand up straighter and get up

> and down easier and sleep a bit better but the medicine made me

very

> irritable and agitated,almost like I had drank to much coffee or

some

> kind of stimulant and I have been easily angered and frustrated

while

> taking it.I found that it kept me awake and that I could not take

> more than three of the tablets during the day or I was awake all

> night long.I wanted to ask if anyone else has taken this

medication

> for RA and if you had any of these symptoms or side effects that I

> describe with that.

>

[Guest guest]

((()))

I welcome you with open arms. I'm so very sorry for all the pain

your in. I too have RA and fibro, and other health problems. It is

very scary when put in this situation. I'm glad to hear your getting

support from your therapy group. Are you on any meds for your

depression? You might look into that, when you find the right med,

it helps so much. It might take a few different, but so worth it.

When somone has a chronic disease,usually there is depression. I've

fought with depression my entire life, and on meds. Not at this

time, I'm in a zone, where I don't need them. But, if I think I need

them,I wouldn't hesitate.

Are you seeing a rheumatologist? The Prednisone is a great med to

help you get out of a flare, and get you moving. As a long term med,

I would not take it. It cause a lot of bad side effects. Now, some

people do take it long term, and they manage. You need to be on

DMARD, or a biologic med. If you are not seeing a rheumy, you

probably don't know about all the RA meds. Check out

www.arthritis.org, lots of info, and you will learn all about the

meds. They have patient assistance on some of the biologics, if you

qualify, so you might be able to get the med free, it depends on your

situation.

Its hard having this disease, and not feeling well, and then dealing

with people who don't understand. I do know what your going through.

I am too going through the difficulty of just the daily living. Its

very hard for me to do things.

I am on SSA, it took one year. I would have liked to continue

working, but my body wouldn't let me. I hope things get easier for

you. You've picked a great place for information and support. I've

been here for a long time, and I would be totally lost without it.

If you would like to email me or chat, I'm always around. I would

like to help you get through this bad point in your life.

You take care, and my thoughts and prayers are with you, Tawny

>

> I am ,and I have rhuematoid arthritis and fibromyalgia,and I

> have had to file for disability.I am struggling with many

things,some

> emotional,some financial,some having to do with medications and

> problems with them,and some problems with doctors and other kinds

> people I encounter in the world who do not understand my

> problems.Some problems I am having with friends and family and some

> are just with medical people like pharmacy people,staff and nurses

in

> doctors offices and such.I feel like everywhere I go I am judged

> harshly and misunderstood and disrespected since I cannot work now

> and have no health insurance and not much money to take care of my

> medical care while I am fighting with social security about my

> disability benefits.I am having a hard time going out of the house

at

> all now for anything or getting dressed every day or simple things

> that most people take for granted like brushing my hair or my teeth

> or taking a shower or loading the dishwasher or the washing

> machine,cleaning the bathroom,things like this.I used to be a

> computer technician and now I am only a sick person who cannot work

> and so no one treats me the same as they did before.I have been

very

> depressed partly because I am in constant pain but partly because I

> feel so hopeless sometimes like my whole life had stopped at a

stand

> still and I am stuck in a place where I have no control over my

life

> and no hope of ever having any influence on what happens to me

> again.I have been going to a therapy group at our local mental

health

> center for people with chronic illnesses,like depression and grief

> issues and other problems.Most who attend the group are women like

me

> who are in a bad situation and are trying to cope with it the best

> they can.The group is helping me some and I also belong to other

> online groups for people with fibro but I am seeking information

and

> support from others who have RA about meds and coping strategies.My

> doctor gave me a course of prednisone to take two weeks ago so I am

> almost finished with that now and I am able to walk better now

> without using a cane and am able to stand up straighter and get up

> and down easier and sleep a bit better but the medicine made me

very

> irritable and agitated,almost like I had drank to much coffee or

some

> kind of stimulant and I have been easily angered and frustrated

while

> taking it.I found that it kept me awake and that I could not take

> more than three of the tablets during the day or I was awake all

> night long.I wanted to ask if anyone else has taken this medication

> for RA and if you had any of these symptoms or side effects that I

> describe with that.

>

[Guest guest]

I am taking wellbutrin for depression.I dont want to have to take the

predinsone long term,I know that can cause problems like weightgain

and such and it has helped me with the RA and migraines I have in the

past.I have been in a bad flare with the fibro and ra for about a

year now and cant seem to get myself out of this rut im in.I have had

to hire an attorney to help me with my ssdi claim and I think it will

be another year and half or two years before I can get in front of an

ALJ who can approve my benefits.I have struggled with depression all

my life but when I was rearended by a drunk driver in 2001 and had a

concussion,this caused me to have the fibro,it was brought on by the

trauma.Since then I cant sleep,have headaches and pain all over my

body and so I am taking Lyrica,and Ambien and zanaflex for muscle

spasms.I am so frustrated and I dont know how I am going to pay for

my meds and such while I am fighting with soc sec about this.I am in

a patient assistance program for people who have no health insurance

and have low incomes.I may have to go to a health clinic run by a

church close to my house and I may have to find other resources to

help me pay for my meds and doctors.I have been to a rheumatologist

in the past but the meds they gave me made me feel irritable,or

either were so harsh that they made me feel worse than the RA and

fibro was.the rheumatologist also had told me I had muscle

inflammation too.He gave me meds for people with lupus mostly that

didnt seem to help and then I was laid off from my job so I had to

stop going to him,and could only afford my pain doctor which is

basically what I am doing now,I am seeing a pain

doc/neurologist/psychiatrist and a primary care doc who prescribes

medication for hypothyroid and estrogen replacement cas I had a

hysterectomy.I am struggling with a lot of health problems and they

are causing the financial problems too.I get angry a lot and

frustrated and when I have conflict with people I dont like to fight

or complain and so I push it down for so long until its like one more

thing happens and I just snap and blow up at the person who I am

having a problem with.I am basically a very polite and shy person but

if people mistreat me I will stand up for myself if they do it over

and over again and again over a period of time,but often by the time

I lose my temper the person I am angry with cant understand why I am

so mad and have lost it all of a sudden,and they think I am over

reacting which maybe for that one particular incident it may seem

that way but when taken as a single incident but for me it is another

in a long lasting pattern of incidents.I am trying to deal with

speaking up about problems I have with people when I encounter them

the first time,but that is hard for me.I tend to be a people pleaser

and want everyone to like me,but often this causes people to think

they can just run over me and I will let them when they bully me.The

other thing is that I have had to move in with my father cause I

didnt have enough money saved to live on my own while I am fighting

with soc sec admin and he has cancer and had to get a pacemaker last

month and sometimes we have conflict about things and he can also be

a bully and push me around.This is hard for me to deal with and I

really dont like living with him but i have no choice now,its either

here or be homeless so I decided I was better off with him in spite

of problems we have.I am getting free counseling therapy from the

county mental health clinic so that is a big help but the other

doctors I am having to pay for them now and my meds out of my

pocket.Im afraid and anxious and have been suicidal almost every

day,and cry all the time.I try to keep busy reading and with my

online support groups and with some limited gardening,growing flowers

and a few tomatoes and I do some sketching with colored pencils also

to pass the time and so I can keep using my hands.I try to go to the

park and walk for exercise when I am feeling well enough too.I get

more depressed when I am trapped inside the house.I have trouble

concentrating now to read a book though and I lose my place and read

the same sentence or paragraph over and over.It was a computer tech

and did tech support on the phone until I had to stope working last

year so I get bored and I dont like being idle or not having anything

to do,and I have no friends here cause I had to move here to live

with my father so I dont know anybody.I miss my friends from before.