Guest guest Posted July 24, 2005 Report Share Posted July 24, 2005 Yes I to know of him via this list and a few other lists and high of respect to hims. He is much in ways of my own therapist by the way he to think. I to think I to be of the only Sondra here with auitsm so I to must be of the one he is of to be thinking of. There is another mom here with triplets by same name. Sondra In Autism_in_Girls , " Sheryl " <luvtennvols05@y...> wrote: > Oh my you have gave me so much information, Thank you Sondra and nice > to meet you. > My daughter, I think feels like you do...because after a melt down > she crys and hugs me like she is sorry for what damage she has done. > She has attachment issues, her attachment is me, I'm her obsession, > which ends up her not giving me any space. Hearing this from you has > helped me understand better, I never want her to feel unsafe. Do you > know Bill Nason? I wonder if your the Sondra he wanted me to talk to? > Sheryl > > -- In Autism_in_Girls , " sondra " <hfa2@c...> wrote: > > Sheryl I to not be kassianne and not have of bi polat but do have > of > > HFA High functioning autism, but in some settings now as adult can > > hold it together as you to say and come home to meltdown. Why out > > there is not safe to express and be to know of the intent behind > the > > people if I to have expressed emotions in a public setting. At home > > I to be of safe place and no one to see of me and judge of me for > > feeling. > > > > I to not e of able to always be of to hold it together though and > so > > if meltdown in public my anxiety increases to full max and the fear > > consumes me and I to feel lost in a fog and no way to find safe and > > so do hit of self, scream, have of tears, might throw things at > > people. I to never rage at people physically though unless they > > reach into my space when in meltdown states. I to not know what > > their intent is and to survive I to fight for safe to have all out > > of my space. > > > > I to not be happy with the meltdowns and it consumes me with much > > pains emotionally and guilt for to rage like a storm and then when > > calm to see the mess I to created so I to end up doing what is > known > > as the rumbling stage for a long time because of the guilt and > > consuming feelings of my reactions to life. I to need much alone > and > > quiet after a rage of self abuse and screams to recenter. I to not > > have of good skills to repair of emotional or social outcomes due > to > > my rages. > > > > Tony Attwood also speaks of the fact that some children with AS can > > hold it together in public settings and likfe sping uncoil when > they > > to get home. > > > > Is you daughter with asperger's syndrome. > > > > I to forget to introduce self. I to be Sondra adult with HFA in > Ohio > > and to be mom to 4 kids with Aspergers syndrome. I to be married > > going on 19 years october 18. I to be of published author , writer > > and speaker. > > > > Welcome to list. > > Sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2005 Report Share Posted July 24, 2005 Yes I to know of him via this list and a few other lists and high of respect to hims. He is much in ways of my own therapist by the way he to think. I to think I to be of the only Sondra here with auitsm so I to must be of the one he is of to be thinking of. There is another mom here with triplets by same name. Sondra In Autism_in_Girls , " Sheryl " <luvtennvols05@y...> wrote: > Oh my you have gave me so much information, Thank you Sondra and nice > to meet you. > My daughter, I think feels like you do...because after a melt down > she crys and hugs me like she is sorry for what damage she has done. > She has attachment issues, her attachment is me, I'm her obsession, > which ends up her not giving me any space. Hearing this from you has > helped me understand better, I never want her to feel unsafe. Do you > know Bill Nason? I wonder if your the Sondra he wanted me to talk to? > Sheryl > > -- In Autism_in_Girls , " sondra " <hfa2@c...> wrote: > > Sheryl I to not be kassianne and not have of bi polat but do have > of > > HFA High functioning autism, but in some settings now as adult can > > hold it together as you to say and come home to meltdown. Why out > > there is not safe to express and be to know of the intent behind > the > > people if I to have expressed emotions in a public setting. At home > > I to be of safe place and no one to see of me and judge of me for > > feeling. > > > > I to not e of able to always be of to hold it together though and > so > > if meltdown in public my anxiety increases to full max and the fear > > consumes me and I to feel lost in a fog and no way to find safe and > > so do hit of self, scream, have of tears, might throw things at > > people. I to never rage at people physically though unless they > > reach into my space when in meltdown states. I to not know what > > their intent is and to survive I to fight for safe to have all out > > of my space. > > > > I to not be happy with the meltdowns and it consumes me with much > > pains emotionally and guilt for to rage like a storm and then when > > calm to see the mess I to created so I to end up doing what is > known > > as the rumbling stage for a long time because of the guilt and > > consuming feelings of my reactions to life. I to need much alone > and > > quiet after a rage of self abuse and screams to recenter. I to not > > have of good skills to repair of emotional or social outcomes due > to > > my rages. > > > > Tony Attwood also speaks of the fact that some children with AS can > > hold it together in public settings and likfe sping uncoil when > they > > to get home. > > > > Is you daughter with asperger's syndrome. > > > > I to forget to introduce self. I to be Sondra adult with HFA in > Ohio > > and to be mom to 4 kids with Aspergers syndrome. I to be married > > going on 19 years october 18. I to be of published author , writer > > and speaker. > > > > Welcome to list. > > Sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2005 Report Share Posted July 24, 2005 Great! He really thought that I should talk to you, he is my daughters behavior specialist, he said is like how you use to be when you were young, and that you could probably talk to me and share things that you went through as a teenager. He spoke very highly of you. I wish we could talk privately sometime, when you have some spare time. Do you come to Michigan much? I live on the Ohio and Michigan state line, a small town called Temperance. I have three girls, is 13, is 12 and a is 10. will be home tomorrow, I'm really excited about her getting to come home and I hope we can get her back on track. She is such a funny, sweet and effectionate little kid, or teenager, but when she gets like this we lose that person. I hope to hear from you soon. Sheryl > > > Sheryl I to not be kassianne and not have of bi polat but do > have > > of > > > HFA High functioning autism, but in some settings now as adult > can > > > hold it together as you to say and come home to meltdown. Why > out > > > there is not safe to express and be to know of the intent behind > > the > > > people if I to have expressed emotions in a public setting. At > home > > > I to be of safe place and no one to see of me and judge of me > for > > > feeling. > > > > > > I to not e of able to always be of to hold it together though > and > > so > > > if meltdown in public my anxiety increases to full max and the > fear > > > consumes me and I to feel lost in a fog and no way to find safe > and > > > so do hit of self, scream, have of tears, might throw things at > > > people. I to never rage at people physically though unless they > > > reach into my space when in meltdown states. I to not know what > > > their intent is and to survive I to fight for safe to have all > out > > > of my space. > > > > > > I to not be happy with the meltdowns and it consumes me with > much > > > pains emotionally and guilt for to rage like a storm and then > when > > > calm to see the mess I to created so I to end up doing what is > > known > > > as the rumbling stage for a long time because of the guilt and > > > consuming feelings of my reactions to life. I to need much alone > > and > > > quiet after a rage of self abuse and screams to recenter. I to > not > > > have of good skills to repair of emotional or social outcomes > due > > to > > > my rages. > > > > > > Tony Attwood also speaks of the fact that some children with AS > can > > > hold it together in public settings and likfe sping uncoil when > > they > > > to get home. > > > > > > Is you daughter with asperger's syndrome. > > > > > > I to forget to introduce self. I to be Sondra adult with HFA in > > Ohio > > > and to be mom to 4 kids with Aspergers syndrome. I to be married > > > going on 19 years october 18. I to be of published author , > writer > > > and speaker. > > > > > > Welcome to list. > > > Sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2005 Report Share Posted July 24, 2005 Great! He really thought that I should talk to you, he is my daughters behavior specialist, he said is like how you use to be when you were young, and that you could probably talk to me and share things that you went through as a teenager. He spoke very highly of you. I wish we could talk privately sometime, when you have some spare time. Do you come to Michigan much? I live on the Ohio and Michigan state line, a small town called Temperance. I have three girls, is 13, is 12 and a is 10. will be home tomorrow, I'm really excited about her getting to come home and I hope we can get her back on track. She is such a funny, sweet and effectionate little kid, or teenager, but when she gets like this we lose that person. I hope to hear from you soon. Sheryl > > > Sheryl I to not be kassianne and not have of bi polat but do > have > > of > > > HFA High functioning autism, but in some settings now as adult > can > > > hold it together as you to say and come home to meltdown. Why > out > > > there is not safe to express and be to know of the intent behind > > the > > > people if I to have expressed emotions in a public setting. At > home > > > I to be of safe place and no one to see of me and judge of me > for > > > feeling. > > > > > > I to not e of able to always be of to hold it together though > and > > so > > > if meltdown in public my anxiety increases to full max and the > fear > > > consumes me and I to feel lost in a fog and no way to find safe > and > > > so do hit of self, scream, have of tears, might throw things at > > > people. I to never rage at people physically though unless they > > > reach into my space when in meltdown states. I to not know what > > > their intent is and to survive I to fight for safe to have all > out > > > of my space. > > > > > > I to not be happy with the meltdowns and it consumes me with > much > > > pains emotionally and guilt for to rage like a storm and then > when > > > calm to see the mess I to created so I to end up doing what is > > known > > > as the rumbling stage for a long time because of the guilt and > > > consuming feelings of my reactions to life. I to need much alone > > and > > > quiet after a rage of self abuse and screams to recenter. I to > not > > > have of good skills to repair of emotional or social outcomes > due > > to > > > my rages. > > > > > > Tony Attwood also speaks of the fact that some children with AS > can > > > hold it together in public settings and likfe sping uncoil when > > they > > > to get home. > > > > > > Is you daughter with asperger's syndrome. > > > > > > I to forget to introduce self. I to be Sondra adult with HFA in > > Ohio > > > and to be mom to 4 kids with Aspergers syndrome. I to be married > > > going on 19 years october 18. I to be of published author , > writer > > > and speaker. > > > > > > Welcome to list. > > > Sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2005 Report Share Posted July 24, 2005 Sheryl I to be open to private postings and wll be to come to michigan soon for a meeting at the Gray center they are my managers of my book and speakings. so I to be to go to them for a meeting of things I to want to work on. I to be to come north areas at times to speak I to be to come to Akron in October the 18th. I to be coming to wooster Ohio in September. I to think will be in Toledo in January of 2006. I to be have wanted to meet of this Bill Nason person much so and be to think he will be much like my Dr. Amigo person. I to be happy to help of you if can in words because want so much to be to help the childrens not be so mis-understood especially the girls. Sondra In Autism_in_Girls , " Sheryl " <luvtennvols05@y...> wrote: > Great! He really thought that I should talk to you, he is my > daughters behavior specialist, he said is like how you use to > be when you were young, and that you could probably talk to me and > share things that you went through as a teenager. He spoke very > highly of you. I wish we could talk privately sometime, when you have > some spare time. Do you come to Michigan much? I live on the Ohio and > Michigan state line, a small town called Temperance. I have three > girls, is 13, is 12 and a is 10. will be home > tomorrow, I'm really excited about her getting to come home and I > hope we can get her back on track. She is such a funny, sweet and > effectionate little kid, or teenager, but when she gets like this we > lose that person. I hope to hear from you soon. > Sheryl > > > > > > Sheryl I to not be kassianne and not have of bi polat but do > > have > > > of > > > > HFA High functioning autism, but in some settings now as adult > > can > > > > hold it together as you to say and come home to meltdown. Why > > out > > > > there is not safe to express and be to know of the intent > behind > > > the > > > > people if I to have expressed emotions in a public setting. At > > home > > > > I to be of safe place and no one to see of me and judge of me > > for > > > > feeling. > > > > > > > > I to not e of able to always be of to hold it together though > > and > > > so > > > > if meltdown in public my anxiety increases to full max and the > > fear > > > > consumes me and I to feel lost in a fog and no way to find safe > > and > > > > so do hit of self, scream, have of tears, might throw things at > > > > people. I to never rage at people physically though unless they > > > > reach into my space when in meltdown states. I to not know what > > > > their intent is and to survive I to fight for safe to have all > > out > > > > of my space. > > > > > > > > I to not be happy with the meltdowns and it consumes me with > > much > > > > pains emotionally and guilt for to rage like a storm and then > > when > > > > calm to see the mess I to created so I to end up doing what is > > > known > > > > as the rumbling stage for a long time because of the guilt and > > > > consuming feelings of my reactions to life. I to need much > alone > > > and > > > > quiet after a rage of self abuse and screams to recenter. I to > > not > > > > have of good skills to repair of emotional or social outcomes > > due > > > to > > > > my rages. > > > > > > > > Tony Attwood also speaks of the fact that some children with AS > > can > > > > hold it together in public settings and likfe sping uncoil when > > > they > > > > to get home. > > > > > > > > Is you daughter with asperger's syndrome. > > > > > > > > I to forget to introduce self. I to be Sondra adult with HFA in > > > Ohio > > > > and to be mom to 4 kids with Aspergers syndrome. I to be > married > > > > going on 19 years october 18. I to be of published author , > > writer > > > > and speaker. > > > > > > > > Welcome to list. > > > > Sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2005 Report Share Posted July 24, 2005 Sheryl I to be open to private postings and wll be to come to michigan soon for a meeting at the Gray center they are my managers of my book and speakings. so I to be to go to them for a meeting of things I to want to work on. I to be to come north areas at times to speak I to be to come to Akron in October the 18th. I to be coming to wooster Ohio in September. I to think will be in Toledo in January of 2006. I to be have wanted to meet of this Bill Nason person much so and be to think he will be much like my Dr. Amigo person. I to be happy to help of you if can in words because want so much to be to help the childrens not be so mis-understood especially the girls. Sondra In Autism_in_Girls , " Sheryl " <luvtennvols05@y...> wrote: > Great! He really thought that I should talk to you, he is my > daughters behavior specialist, he said is like how you use to > be when you were young, and that you could probably talk to me and > share things that you went through as a teenager. He spoke very > highly of you. I wish we could talk privately sometime, when you have > some spare time. Do you come to Michigan much? I live on the Ohio and > Michigan state line, a small town called Temperance. I have three > girls, is 13, is 12 and a is 10. will be home > tomorrow, I'm really excited about her getting to come home and I > hope we can get her back on track. She is such a funny, sweet and > effectionate little kid, or teenager, but when she gets like this we > lose that person. I hope to hear from you soon. > Sheryl > > > > > > Sheryl I to not be kassianne and not have of bi polat but do > > have > > > of > > > > HFA High functioning autism, but in some settings now as adult > > can > > > > hold it together as you to say and come home to meltdown. Why > > out > > > > there is not safe to express and be to know of the intent > behind > > > the > > > > people if I to have expressed emotions in a public setting. At > > home > > > > I to be of safe place and no one to see of me and judge of me > > for > > > > feeling. > > > > > > > > I to not e of able to always be of to hold it together though > > and > > > so > > > > if meltdown in public my anxiety increases to full max and the > > fear > > > > consumes me and I to feel lost in a fog and no way to find safe > > and > > > > so do hit of self, scream, have of tears, might throw things at > > > > people. I to never rage at people physically though unless they > > > > reach into my space when in meltdown states. I to not know what > > > > their intent is and to survive I to fight for safe to have all > > out > > > > of my space. > > > > > > > > I to not be happy with the meltdowns and it consumes me with > > much > > > > pains emotionally and guilt for to rage like a storm and then > > when > > > > calm to see the mess I to created so I to end up doing what is > > > known > > > > as the rumbling stage for a long time because of the guilt and > > > > consuming feelings of my reactions to life. I to need much > alone > > > and > > > > quiet after a rage of self abuse and screams to recenter. I to > > not > > > > have of good skills to repair of emotional or social outcomes > > due > > > to > > > > my rages. > > > > > > > > Tony Attwood also speaks of the fact that some children with AS > > can > > > > hold it together in public settings and likfe sping uncoil when > > > they > > > > to get home. > > > > > > > > Is you daughter with asperger's syndrome. > > > > > > > > I to forget to introduce self. I to be Sondra adult with HFA in > > > Ohio > > > > and to be mom to 4 kids with Aspergers syndrome. I to be > married > > > > going on 19 years october 18. I to be of published author , > > writer > > > > and speaker. > > > > > > > > Welcome to list. > > > > Sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2005 Report Share Posted July 24, 2005 Sheryl I to be open to private postings and wll be to come to michigan soon for a meeting at the Gray center they are my managers of my book and speakings. so I to be to go to them for a meeting of things I to want to work on. I to be to come north areas at times to speak I to be to come to Akron in October the 18th. I to be coming to wooster Ohio in September. I to think will be in Toledo in January of 2006. I to be have wanted to meet of this Bill Nason person much so and be to think he will be much like my Dr. Amigo person. I to be happy to help of you if can in words because want so much to be to help the childrens not be so mis-understood especially the girls. Sondra In Autism_in_Girls , " Sheryl " <luvtennvols05@y...> wrote: > Great! He really thought that I should talk to you, he is my > daughters behavior specialist, he said is like how you use to > be when you were young, and that you could probably talk to me and > share things that you went through as a teenager. He spoke very > highly of you. I wish we could talk privately sometime, when you have > some spare time. Do you come to Michigan much? I live on the Ohio and > Michigan state line, a small town called Temperance. I have three > girls, is 13, is 12 and a is 10. will be home > tomorrow, I'm really excited about her getting to come home and I > hope we can get her back on track. She is such a funny, sweet and > effectionate little kid, or teenager, but when she gets like this we > lose that person. I hope to hear from you soon. > Sheryl > > > > > > Sheryl I to not be kassianne and not have of bi polat but do > > have > > > of > > > > HFA High functioning autism, but in some settings now as adult > > can > > > > hold it together as you to say and come home to meltdown. Why > > out > > > > there is not safe to express and be to know of the intent > behind > > > the > > > > people if I to have expressed emotions in a public setting. At > > home > > > > I to be of safe place and no one to see of me and judge of me > > for > > > > feeling. > > > > > > > > I to not e of able to always be of to hold it together though > > and > > > so > > > > if meltdown in public my anxiety increases to full max and the > > fear > > > > consumes me and I to feel lost in a fog and no way to find safe > > and > > > > so do hit of self, scream, have of tears, might throw things at > > > > people. I to never rage at people physically though unless they > > > > reach into my space when in meltdown states. I to not know what > > > > their intent is and to survive I to fight for safe to have all > > out > > > > of my space. > > > > > > > > I to not be happy with the meltdowns and it consumes me with > > much > > > > pains emotionally and guilt for to rage like a storm and then > > when > > > > calm to see the mess I to created so I to end up doing what is > > > known > > > > as the rumbling stage for a long time because of the guilt and > > > > consuming feelings of my reactions to life. I to need much > alone > > > and > > > > quiet after a rage of self abuse and screams to recenter. I to > > not > > > > have of good skills to repair of emotional or social outcomes > > due > > > to > > > > my rages. > > > > > > > > Tony Attwood also speaks of the fact that some children with AS > > can > > > > hold it together in public settings and likfe sping uncoil when > > > they > > > > to get home. > > > > > > > > Is you daughter with asperger's syndrome. > > > > > > > > I to forget to introduce self. I to be Sondra adult with HFA in > > > Ohio > > > > and to be mom to 4 kids with Aspergers syndrome. I to be > married > > > > going on 19 years october 18. I to be of published author , > > writer > > > > and speaker. > > > > > > > > Welcome to list. > > > > Sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2008 Report Share Posted May 16, 2008 I am three years post tx. Didn't work. I've gotten sicker and sicker during and since tx. Every six months or so new wrinkles are discovered. Cryoglobulinemia, neuropathy, hypothyroid occasionally, abnormal proteins in blood and urine, chronic debilitating pain, lesions on liver, enlarged liver, enlarged spleen, arthritis like symptoms and fibromyalgia. This week docs say I have autoimmune disease. Got a couple questions for those been there done that. Isn't a lot of what I already had considered autoimmune disease? Do you think they are referring to something new? I have an appt next week with a rheumatologist, today they pulled lots of new and repeat labs for that appt. I need good questions to ask. Anyone going down this road? Sometimes I get real down, ok real depression-since the tx, but it seems a lot about just not knowing what's next and worrying I guess. My Hep C progression has been very steady-what's next. I worry about cancer-they've said I'm at risk for myelomas. How sick do I have to get before the " transplant " issue comes up. The UofMN has already talked about a meld score?, and a unos system but said (last year) I was a really low score. Thanks in advance for all the good info! oh yeah, I'm a married 42yr old mom. I have four older kids 18 - 23. I live on a small farm. I've got three llama's, one alpaca, five horses, six dogs, and four cats. I've been on disability since January. I " was " a high school teacher for the last 14 years. Quote Link to comment Share on other sites More sharing options...
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