Guest guest Posted May 26, 1999 Report Share Posted May 26, 1999 In a message dated 5/27/99 1:02:05 AM Eastern Daylight Time, fivem@... writes: << thanks again for inviting me to join your group, i hope i can be of help to you as im sure you will be to me. >> Welcome, Mic. You have had a tough time. You will really like it here. The people are caring, supportive, informative, and listen to venting and provide shoulders to cry on. BTW, for others who need the assistance of the pilots, is there an address or phone # we can call? {{{and pain-free wishes}}} Carol " In the little decisions of life, use your mind; in the big decisions of life, use your heart. " [author unknown] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 1999 Report Share Posted May 26, 1999 In a message dated 5/27/99 1:02:05 AM Eastern Daylight Time, fivem@... writes: << thanks again for inviting me to join your group, i hope i can be of help to you as im sure you will be to me. >> Welcome, Mic. You have had a tough time. You will really like it here. The people are caring, supportive, informative, and listen to venting and provide shoulders to cry on. BTW, for others who need the assistance of the pilots, is there an address or phone # we can call? {{{and pain-free wishes}}} Carol " In the little decisions of life, use your mind; in the big decisions of life, use your heart. " [author unknown] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 1999 Report Share Posted May 27, 1999 hi carol thanks for the welcome!!! airlifeline's phone number is 1- they also have a website too.... http://www.airlifeline.org/ they are based out in california but they fly all over the usa...usually they will fly up to 1000 miles for one trip. there are also some pilots that are willing to fly in canada....i had to fill out 2 forms and fax it back to airlifeline, then my doc had to fill out 2 sheets...1 of medical necessity and the 2nd one was for financial need...once these papers arrived in airlifeline's office i was approved within 5 minutes. mic At 01:13 AM 5/27/99 EDT, you wrote: >From: MsVVarrior@... > >In a message dated 5/27/99 1:02:05 AM Eastern Daylight Time, >fivem@... writes: > ><< thanks again for inviting me to join your group, i hope i can be of help to > you as im sure you will be to me. > >> >Welcome, Mic. > >You have had a tough time. You will really like it here. The people are >caring, supportive, informative, and listen to venting and provide shoulders >to cry on. > >BTW, for others who need the assistance of the pilots, is there an address or >phone # we can call? > >{{{and pain-free wishes}}} >Carol > " In the little decisions of life, use your mind; in the big decisions of >life, use your heart. " [author unknown] > >------------------------------------------------------------------------ >Give back to your community through " Grow to Give. " >http://www.ONElist.com >See homepage for details. >------------------------------------------------------------------------ >Know someone who could profit from our list? Send our direct sign-up URL: http://www.onelist.com/subscribe.cgi/chronic_pain, or write us at: chronic_pain @onelist.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 1999 Report Share Posted May 27, 1999 Hi Mic, You said you had minor compared to some of our problems...I would think yours is a good match. Hang in there. Nice to meet you. Mad. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 1999 Report Share Posted May 27, 1999 In a message dated 5/27/99 12:53:01 PM Eastern Daylight Time, fivem@... writes: << airlifeline's phone number is 1- they also have a website too.... http://www.airlifeline.org/ >> Mic: Thanks for the info. Would you mind if I sent this to another group I am in. Some of the folks in that group are in need of this service. {{{and pain-free wishes}}} Carol " In the little decisions of life, use your mind; in the big decisions of life, use your heart. " [author unknown] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 1999 Report Share Posted May 27, 1999 Welcome, Mic! Re: new member introduction > > > hi carol > > thanks for the welcome!!! airlifeline's phone number is 1- they also have a website too.... http://www.airlifeline.org/ they are > based out in california but they fly all over the usa...usually they will > fly up to 1000 miles for one trip. there are also some pilots that are > willing to fly in canada....i had to fill out 2 forms and fax it back to > airlifeline, then my doc had to fill out 2 sheets...1 of medical necessity > and the 2nd one was for financial need...once these papers arrived in > airlifeline's office i was approved within 5 minutes. > > mic > > > > > > > > ------------------------------------------------------------------------ > Give back to your community through " Grow to Give. " > http://www.ONElist.com See homepage for details. > ------------------------------------------------------------------------ > Know someone who could profit from our list? Send our direct sign-up URL: http://www.onelist.com/subscribe.cgi/chronic_pain, or write us at: chronic_pain @onelist.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 1999 Report Share Posted May 27, 1999 You have been thru about 5 lifetimes' worth of stuff!! My sympathies, and also congrats that you have a good doc now. You will find much much help and support on this list--the folks are great, and have helped me so much--btw, thanks guys! My thoughts and prayers are with you as you prepare for those surgeries. Dpo keep in touch with us! Kay new member introduction > > > hi > > i received an invitation to join this group today, i had been following the > abc news reports on the chronic pain segments for world news tonight with > peter jennings. i had posted a few responses on their message board. and > today i received this invitation to join your group. thank you! we all > need all the support that we can get lol....this is somewhat long and > involved...its been a really bad past 2 years for me and my family...and i > havent even begun the worst part of my situation lol...you'll understand > more as you read > > > im mic (margaret), i live in michigan....im married (18 years) to a > wonderful guy > named marty....im 37 and i have 3 girls ..marcy 18 who is about to graduate > even if it kills ME...megan who is 13, and mandy is 11..... > > i have lots of little (they really arent little but compared to what im > currently going thru...they are) med problems like fms/cfids, mps, > colitis, hypothyroidism, goiter, high blood pressure, high cholestral, > menopause, raynauds, rsd, gerd, arthritis, costachrondritis, rls, migranes, > morton's neuroma right foot, chrondamalcia sp? both knees, neurogenic > bladder, pitting edema, dislocated rib(s) from the spine. > > > spinal headaches, ddd, sciatia nerve bilaterally, spondylolthesis of L4-L5 > and L5-S1, there is one thing or another wrong with my whole cervical area > from C2-C7, like.... C2-C3 instablity C2 root syndrome, C2 neuro framinal > stenosis, C2-C4 facet syndrome, C4-C7 facet syndrome, neuro framinal > stenosis C3-C4, C5-C6 and C6-C7 radiculopathy, carpal tunnel bilaterally, > ulnar nerve entrapment bilaterally, thoracic outlet syndrome bilaterally, > small vessel disease left arm, possible rotator cuff tear?? left shoulder, > T10 hemangioma (basically a blood tumor on my spine), > > ..and then some MAJOR med problems..that have taken me to maryland this > year to be treated by doc h...who is the BEST doc i have ever gone > to.....he has found soooo much damage.....what happened was ...2 years ago > i was working at a burger king as an assistant manager...and my boss had > tripled ordered all of our products cuz we were going to open a brand new > kiddies playground...so he thought we were going to be beyond busy that > weekend....well that nite i was doing inventory and i had 144 lbs of frozen > french fries fall onto my back/neck/shoulders/head etc.....initially i was > treated for a whiplash injury and spent the next 2 months in pt.....my then > doc wouldnt listen to me when i kept telling him that i was falling down > all the time....it took me a year and my hubby going to the docs with > me..to convince this idiot to start doing some tests on me.....the initial > xrays at the er and the pt is the only treatment that i recieved for this > accident....a year later my doc finally ordered xrays, ct and mri's for > me.....he wrote in his/my records that it was all in my > head..the great somazation disorder.....well 9 days after he wrote that in > my records...the reports from the xrays etc started coming back.....my back > was broken in 2 places and it was instable...scheduled a spinal fusion at > L5-S1 in july 98....had it done..worked great until my puter chair turned > on me lolol....i went to go sit in it....and i unbalanced it i > guess....well i flew out of it and landed 3 feet away from the > chair.....then more problems started again....i started falling again.. > > and in this 2 year time period......no doc has ever performed any tests on > my cervical area....until doc h!!!! and now....tentatively i'll need 7 > surgeries to correct the damage done by the french fries!!! my lumbar spine > is instable again . i will need L2-S1 totally replaced/fixed etc...i need > a whole new spine lolol > > so that is where im at right now....i will be going to mensana on june 2nd > and 3rd to schedule my first set of surgeries, then i will be going back > on july 5th and 6th to meet with the surgeon for my lumbar spine.. > > so i cant walk that well... roflmao....so marty on most days > tells me to " sit in THAT chair and DONT MOVE " ...most days i do just > that....and other days i dont listen to him...and i fall....i know its for > my own protection...but somtimes i just have to get up and do something ya > know? basically now tho im using my wheelchair inside my house to prevent > the falls...for the most part it is working....so that is me in a nut > shell..ive probably forgotten a few things..but i think you get the picture > lolol > > currently im fighting workmens comp cuz they closed my case illegally on me > 6 months after the accident with the french fries. i have a trial date of > june 14th to try to get my case reopened. this, i dont have to tell you > guys, has been really hard on my family...my husband was diagnosed with MS > last year...he is only 37 too...so he is working his butt off to try to > keep us afloat, and its taken its toll on him physically... > > i should tell ya that i fly out to maryland to see doc h thru the > airlifeline program...its where the pilots donate their time, money and > airplanes to fly needy patients to their doctor appts...without this > service i would still be suffering, and without the proper dx's of what is > all wrong with me... > > thanks again for inviting me to join your group, i hope i can be of help to > you as im sure you will be to me. > > mic > > > p.s. i still eat french fries...somedays tho i totally hate them lol > > > ------------------------------------------------------------------------ > ONElist: bringing the world together. > http://www.onelist.com > Join a new list today! > ------------------------------------------------------------------------ > Know someone who could profit from our list? Send our direct sign-up URL: http://www.onelist.com/subscribe.cgi/chronic_pain, or write us at: chronic_pain @onelist.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 1999 Report Share Posted May 27, 1999 mad first thank you to all the members who welcomed me today....what i meant was the first 2 lists of my med problems were small compared to the last list of my med problems...i was talking about my lumbar spine having to be totally replaced/fixed...im not even sure if they can do anything for me at this point...there is a lot of damage down there.... believe me....i know there are a lot more people out there who have it a lot worse than i do....and i would never try to minimize another persons pain.... mic At 07:57 PM 5/27/99 EDT, you wrote: >From: MadMad4JC@... > >Hi Mic, >You said you had minor compared to some of our problems...I would think yours >is a good match. Hang in there. Nice to meet you. >Mad. > >------------------------------------------------------------------------ >Campaign 2000 is here! >http://www.onelist.com >Discuss your thoughts; get informed at ONElist. See our homepage. >------------------------------------------------------------------------ >Know someone who could profit from our list? Send our direct sign-up URL: http://www.onelist.com/subscribe.cgi/chronic_pain, or write us at: chronic_pain @onelist.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 1999 Report Share Posted May 27, 1999 Mic, Welcome to the list! I am so sorry to hear about your many problems. You must be a special person to have all of that pain and still be as pleasant as you appear to be from your posts! Keep us posted on your situation. We really do want to hear what you need to share. Ray in Virginia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 1999 Report Share Posted May 29, 1999 hI mIC, At 12:59 AM 5/27/99 -0400, you wrote: >i have lots of little (they really arent little but compared to what im >currently going thru...they are) med problems like I have been trying to catch up on our list posts since I needed to just crawl into my cave for most of the past 2 weeks. You certainly have a striking list of medical problems. Some of the rest of us do too (perhaps not as extensive). I think that when patients like us go to a doctor, a significant reason for poor treatment is the many docs are not prepared to address more than one or so problems. They seemingly fail to understand that were complex, multiply severely diagnosed patients, and can have not only a number of severe active problems, but also a number of degenerative conditions. In short, there is a tendency of many docs to view virtually all patients as acute, needing brief treatments. We are chronic, needing long-term treatments and often multiple kinds. It is great that you none-the-less located docs who can treat you. Although your list is complex, virtually everything, or most everything can be treated. I noted in another post of yours that you were asking about replacing part of your spine. I have a wonderful neurosurgeon who would have liked to have done that for me, but it is not yet possible. But they can treat the breakage, damage & degenerative changes piece by piece, and in some cases, many at once. I have serious degeneration & damage all over my spine. My neurosurgeon did a very long operation on my whole lumbar spine called a cauda equina decompression, where about 7-8 inches of spine were actually rebuild, arthritic stuff, damaged discs, etc. where removed, and clear channels were made where nerves exit the spine so they would no longer be compressed. He told me that I could need more similar operations during the course of my life, and he was prepared to do them. The cost of this non-traditional surgery must have been incredible, but it was paid for mostly out of research funds. Also, it was billed out as a basic laminectomy so the hospital could be paid my room charges. There is incredible technology out there. To get the best of it I think you need an orthopedist, neurologist & neurosurgeon who can work together. I worked in rehabilitation most of my life, and interestingly, a plain old local hospital in a rural area was able to do much the same things for a patient of mine once I got the doctors involved, which was not difficult in that situation. I and all of us will be in your corner. Ken Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 1999 Report Share Posted September 21, 1999 Welcome to the group Margaret . This place is like having a Counseler on call 24/7 so i find it helpfull Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2005 Report Share Posted March 12, 2005 Hi Peggy- My mom's family (all from the south) are Sanfords. Welcome to the list. There's great info posted here everyday, so enjoy! Anita Peggy Sanford wrote: > ... I live in Three Forks, Montana.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2005 Report Share Posted March 12, 2005 Hi Peggy- My mom's family (all from the south) are Sanfords. Welcome to the list. There's great info posted here everyday, so enjoy! Anita Peggy Sanford wrote: > ... I live in Three Forks, Montana.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2005 Report Share Posted March 12, 2005 Peggy, where did you get your heifer from? Congratulations!!! K.C. New Member Introduction Good Morning List, I am Peggy and I live in Three Forks, Montana. I have had dairy goats for 26 years, and I am getting my dream of a jersey in May. I am so looking forward to learning from this list about milk and all the benifits, as well as what a cow share is. Peggy Sanford PLEASE BE KIND AND TRIM YOUR POSTS WHEN REPLYING!Visit our Raw Dairy Files for a wealth of information!http://groups.yahoo.com/group/RawDairy/files/Archive search: http://onibasu.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2005 Report Share Posted March 12, 2005 Welcome, Peggy! Wow, 26 years? You are so lucky! Have you been drinking it that long, too? Check our files section for examples of cow share contracts... -Blair > Good Morning List, > I am Peggy and I live in Three Forks, Montana. I have had dairy goats for 26 years, and I am getting my dream of a jersey in May. I am so looking forward to learning from this list about milk and all the benifits, as well as what a cow share is. > Peggy Sanford Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2008 Report Share Posted January 6, 2008 Hello, I joined this group because my husband has just been diagnosed with Hepatitis C. His doctor has referred him to a specialist. I don't know when his appointment is because he won't tell me, and he refuses to let me go with him. He won't let me bring up the subject at all. If I do, he gets furious with me, and says I am causing him stress, and he doesn't need that. I have been reading as much as I can about this, and I know I am going to need personal support so I can help him through this. He won't let me say anything to anyone, so I have to keep it all bottled up inside of me. He's probably had this for sometime now. He is a recovering alcoholic/addict who has been alcohol/drug free for over 20 years. He's also very health conscious, works out regularly, takes vitamins, etc. I am praying that this fact has a positive impact on his treatment. I don't think he's read anything about the treatment, so I don't think he's aware of how intense it will be. I am praying he decides we should tell our families what's going on so they can be supportive also. I just know I love him, and I'll do whatever it takes to help him through this. I don't know how to help him if he continues to keep me in the dark about everything. Help please.....I just need to be able to talk to someone about all of this. Thanks FEM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2008 Report Share Posted January 6, 2008 Hi FEM I to am a spouse with a hubby that has Hep C and know a little about what your going through. Give your husband a little time, it sounds like he is in denial about the Hep, when my hubby was first diagnosed, he was told it was fatal, and that scared him bad, later learning about it, he learned that there is hope in clearing the virus, which means that he will always have the virus but, there is a chance he can make it go dormant you need to tell your husband that this disease not only affects him it also affects you, and that you both need to work at this together as for now,, forget about telling anybody else,, that may come later with my hubby, he did not want to tell anyone else, he was afraid of the reactions that others would have, that they would reject us which can be the case,, most people don't know enough about Hep C to understand about it, and think that the only people that get Hep C are drug abusers and alcoholics, which is NOT the case my hubby got his from a tatoo. you need to stand your ground on getting him to realize you need to be in this too, that he is causing you stress that in turn causes him more stress. you really need to do this before he gets on treatment, because treatment will make this harder for both you,, I'd say you will have a harder time than him, because you will have to deal with all the erratic behavier that goes with it. my hubby just finished his second time on treatment 3 1/2 months ago and we are waiting to see if he is still clear. The first time around, he responded, but relapsed after he finished treatment my prayers are with you Hello, I joined this group because my husband has just been diagnosed with Hepatitis C. His doctor has referred him to a specialist. I don't know when his appointment is because he won't tell me, and he refuses to let me go with him. He won't let me bring up the subject at all. If I do, he gets furious with me, and says I am causing him stress, and he doesn't need that.I have been reading as much as I can about this, and I know I am going to need personal support so I can help him through this. He won't let me say anything to anyone, so I have to keep it all bottled up inside of me.He's probably had this for sometime now. He is a recovering alcoholic/addict who has been alcohol/drug free for over 20 years. He's also very health conscious, works out regularly, takes vitamins, etc. I am praying that this fact has a positive impact on his treatment. I don't think he's read anything about the treatment, so I don't think he's aware of how intense it will be. I am praying he decides we should tell our families what's going on so they can be supportive also.I just know I love him, and I'll do whatever it takes to help him through this. I don't know how to help him if he continues to keep me in the dark about everything. Help please.....I just need to be able to talk to someone about all of this.ThanksFEM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2008 Report Share Posted January 6, 2008 HI. welcome, u have for sure came to the right place for suport. Iam not sure how he feels but I was very pissed being a good boy for 20yr;s WOW AND now this. at least that's how i felt. my poor husband didn't know from one day to the next how to aproch to me.All i know is learn all u can and we r here for both of you, Trust me he's going to need you. water lots and lots of water.hope to chat with you on chat night.fem41353 wrote: Hello, I joined this group because my husband has just been diagnosed with Hepatitis C. His doctor has referred him to a specialist. I don't know when his appointment is because he won't tell me, and he refuses to let me go with him. He won't let me bring up the subject at all. If I do, he gets furious with me, and says I am causing him stress, and he doesn't need that.I have been reading as much as I can about this, and I know I am going to need personal support so I can help him through this. He won't let me say anything to anyone, so I have to keep it all bottled up inside of me.He's probably had this for sometime now. He is a recovering alcoholic/addict who has been alcohol/drug free for over 20 years. He's also very health conscious, works out regularly, takes vitamins, etc. I am praying that this fact has a positive impact on his treatment. I don't think he's read anything about the treatment, so I don't think he's aware of how intense it will be. I am praying he decides we should tell our families what's going on so they can be supportive also.I just know I love him, and I'll do whatever it takes to help him through this. I don't know how to help him if he continues to keep me in the dark about everything. Help please.....I just need to be able to talk to someone about all of this.ThanksFEMLINDA Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2008 Report Share Posted January 7, 2008 Fem My boyfriend was diagnosed w/ HEPC, so I am a caregiver myself. Jeff is in is 7th week. And let me tell you, this site is wonderful, I'm more of a reader and just occationally reach out for help and when I do, they are all wonderful. I read all the emails everyday and have learned so much. Use them as your support system, it's wonderful. Be very patient w/ ur husband, he will come around, it's hard. If you don't have patience, get it...u'll need it and don't take things personally...Just be strong and vent to the group if you don't have family or friends...I do use the group. My family and friends just don't know what to do. Just learn about it and keep in touch...Knowledge is power...it will help your husband. Somebody suggested talking to the doctor yourself, great idea... I've been in touch w/ the nurses, they are wonderful. Welcome and be strong. Gfem41353 wrote: Hello, I joined this group because my husband has just been diagnosed with Hepatitis C. His doctor has referred him to a specialist. I don't know when his appointment is because he won't tell me, and he refuses to let me go with him. He won't let me bring up the subject at all. If I do, he gets furious with me, and says I am causing him stress, and he doesn't need that.I have been reading as much as I can about this, and I know I am going to need personal support so I can help him through this. He won't let me say anything to anyone, so I have to keep it all bottled up inside of me.He's probably had this for sometime now. He is a recovering alcoholic/addict who has been alcohol/drug free for over 20 years. He's also very health conscious, works out regularly, takes vitamins, etc. I am praying that this fact has a positive impact on his treatment. I don't think he's read anything about the treatment, so I don't think he's aware of how intense it will be. I am praying he decides we should tell our families what's going on so they can be supportive also.I just know I love him, and I'll do whatever it takes to help him through this. I don't know how to help him if he continues to keep me in the dark about everything. Help please.....I just need to be able to talk to someone about all of this.ThanksFEM Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.