Hi all

[Guest guest]

Hello C2 sounds like the plaquenil is not workin as best hoped huh.About the

hot-cold thing yeah thats crazy i remember opening and shuttin the car

window on way to ER one night my dad thought i was nuts it was about 30

below at time .The Paris sewers Ewww,did you at least get see leaning

tower too:),take care hope your rhumy can bring those fevers down.

d.Canada

Hi All

>

> Hi everyone

>

> I haven't been around much recently, so thought I'd drop in a quick

> email. I do read all the posts and think of you all often.

>

> I'm still on the plaquenil and still hoping it will have a dramatic

> affect at some point. It's been nearly 5 months now and I do think it's

> helping a bit, as I take fewer Tramadol these days, so that's good.

> Unfortunately it doesn't help with the flu like feelings or the raised

> temp, which jumps over 39.4 on occasion. I spend the whole day putting

> on and taking off layers as I range from hot sweats to cold shivers

> from one minute to the next. The children groan as I insist they wear

> winter coats when I'm cold, or summer t shirts when I'm hot. They say I

> have a climate all of my own.

>

> I've been avoiding seeing the doc while I wait for the Plaquenil to

> kick in, but I will see a rheumatologist in about 2 weeks. Not sure if

> it's worth it, as nothings changed, so she won't have anything new to

> offer. To be honest I rather feel that I have to go it alone for the

> time being, which is OK for much of the time, but a bit isolating when

> I feel dreadful and feel I have no where to turn to for help.

>

> But don't get me wrong. Life's good. My husband and I took our 3

> children to Paris for a few days in the half term and had a wonderful

> time seeing all the sights. We even went down the Paris sewers! And

> yes, it stank, but it makes for some great dinner party stories...

>

> Lynn recommended the book 'Tuesdays With Morrie' recently and having

> read it myself, I do too. It has made me think about what's really

> important and what's not worth the worry.

>

> Anyway, love to all. May you all be having good days.

>

> C 2 (UK)

>

>

>

>

> Visit the Still's Disease Message Board

> http://disc.server.com/Indices/148599.html

>

> The materials and information contained in this message are not intended

> to replace the services of a trained health professional or to be a

> substitute for medical advice of physicians and/or other health care

> professionals. The International Still's Disease Foundation is not engaged

> in rendering medical or professional medical services. You should consult

> your physician on specific medical questions, particularly in matters

> requiring diagnosis or medical attention. The International Still's

> Disease Foundation makes no representations or warranties with respect to

> any treatment, action, application, medication or preparation by any

> person following the information offered or provided within this support

> form.

>

> ion by any person following the information offered or provided within

> this support form.

>

>

>

[Guest guest]

Hi Ginger:

Receiving you loud and clear. Have a happy holiday!

WE WILL WIN

Love Y'all

"NEVER FIGHT FAIR"

Panama City, FL

Please visit the International Stills Disease Foundation Inc. Web Site at

www.stillsdisease.org

There is now a Third Political Party: The "VPA", Veterans Party of America.

Veterans= "Third Class Citizens"

[Guest guest]

Happy Thanksgiving to everyone! Many warm wishes from Hawaii !hope everyone has a pain free day andf enjoy the day!

Much Aloha Dottie

[Guest guest]

Hello Ginger

hugs

Sharon

> This is just a test. I have been writing you all and never seem to get

> any replies. Is my mail coming through?

>  

> Ginger

>

>

> Visit the Still's Disease Message Board

> http://disc.server.com/Indices/148599.html

>

> The materials and information contained in this message are not

> intended to replace the services of a trained health professional or

> to be a substitute for medical advice of physicians and/or other

> health care professionals. The International Still's Disease

> Foundation is not engaged in rendering medical or professional medical

> services. You should consult your physician on specific medical

> questions, particularly in matters requiring diagnosis or medical

> attention. The International Still's Disease Foundation makes no

> representations or warranties with respect to any treatment, action,

> application, medication or preparation by any person following the

> information offered or provided within this support form. 

>

> ion by any person following the information offered or provided

> within this support form. 

>

>

>

>

>

>

>

[Guest guest]

Thank you Bob same to you.Bob Himes wrote:

Hi Ginger:

Receiving you loud and clear. Have a happy holiday!

WE WILL WIN

Love Y'all

"NEVER FIGHT FAIR"

Panama City, FL

Please visit the International Stills Disease Foundation Inc. Web Site at

www.stillsdisease.org

There is now a Third Political Party: The "VPA", Veterans Party of America.

Veterans= "Third Class Citizens"

Visit the Still's Disease Message Boardhttp://disc.server.com/Indices/148599.htmlThe materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease

Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the information offered or provided within this support form. ion by any person following the information offered or provided within this support form.

But God demonstrates His own love toward us,

in that while we were yet sinners, Christ died for us.

..

ette Follow Jesus!

<))><

[Guest guest]

Ginger,

Sorry to hear you are struggling with your breatheing. Is it related to the

Still's or something else. I am a bit behind in my email from the group.

Wonderful to hear you have finally got someone on your side, like that and

was able to get the doctor to listen to you.

Here's to feeling better.

Tracilyn

_____

From: Ginger Sunshine

Sent: Tuesday, February 01, 2005 3:20 PM

To: stillsdisease

Subject: Hi all

Well, ok someone is finally listening to me. I won't take the time to list

everything but the people who deliver my asthma stuff called me last night

and they are not only sending me a new nebulizer, but they got my

Hemathologist to listen to me when I told him I can't breathe when I walk

just a short distance. He is sending out a nurse to take my blood and check

for my oxegon level. I may get my much needed transfusion sooner.

Maybe then I can feel a little normal well not all the way with the stills

but at least with my blood being so bad.

Hugs; Ginger

[Guest guest]

Hello Beverly......I don't think we have ever met. My name is Carey and I

live in the US, New Jersey. I am 31 years old and was diagnosed with Stills in

March of 2004. I have two children, both boys. is 9 and

is 3.

When was about 5 years old he had gotten sick. Had an awful cough,

that sounded like a seal barking. Was not eating and barely drinking. My

pediatrician brought him into the hospital right away. And diagnosed him with

" the

Croop " . He was in the hospital for about three days. While in he was given

IV fluids for dehydration. And also they actually put a clear plastic tent over

his bed so he could breathe in some kind of mist they pumped in there. He

came home with a nebulizer. And used it for a while after. But, all the docs

at first kept asking me if he had asthma. So I was just thinking that you

situation with your little one sounds familiar. Maybe bring the Croop up to

your

consultant. Just a thought.

And also....I lost my father 4 years ago. He was my everything. I adored

him. I am still grieving over the loss. And I think I always will. If you would

like to talk with me privately. You could email me privately at.....

_mncnotenuftime@..._ (mailto:mncnotenuftime@...)

Take care,

Carey

[Guest guest]

I have no idea Tracilyn, if it's the stills or not. I think so because it has

been in the past. But now they are saying that my blood is so low that they

think it's from that and I may need a transfusion. I will know tomorrow. I

hope!!!

Hugs and thank you I am all for feeling better. Ginger

Tracilyn Brown wrote:

Ginger,

Sorry to hear you are struggling with your breatheing. Is it related to the

Still's or something else. I am a bit behind in my email from the group.

Wonderful to hear you have finally got someone on your side, like that and

was able to get the doctor to listen to you.

Here's to feeling better.

Tracilyn

_____

From: Ginger Sunshine

Sent: Tuesday, February 01, 2005 3:20 PM

To: stillsdisease

Subject: Hi all

Well, ok someone is finally listening to me. I won't take the time to list

everything but the people who deliver my asthma stuff called me last night

and they are not only sending me a new nebulizer, but they got my

Hemathologist to listen to me when I told him I can't breathe when I walk

just a short distance. He is sending out a nurse to take my blood and check

for my oxegon level. I may get my much needed transfusion sooner.

Maybe then I can feel a little normal well not all the way with the stills

but at least with my blood being so bad.

Hugs; Ginger

[Guest guest]

I am located on the East coast of the United States. Hoping your son is

doing better...........Carey

[Guest guest]

I am glad Ginger. I hope you feel better soon.

Well, ok someone is finally listening to me. I won't take the time to list

everything but the people who deliver my asthma stuff called me last night and

they are not only sending me a new nebulizer, but they got my Hemathologist to

listen to me when I told him I can't breathe when I walk just a short distance.

He is sending out a nurse to take my blood and check for my oxegon level. I may

get my much needed transfusion sooner.

Maybe then I can feel a little normal well not all the way with the stills but

at least with my blood being so bad.

Hugs; Ginger

---------------------------------

Post your free ad now! Yahoo! Canada Personals

[Guest guest]

Carey where? Worcester COunty Massachusetts here

> I am located on the East coast of the United States. Hoping your

son is

> doing better...........Carey

>

>

>

[Guest guest]

Thank you .

Hugs; Ginger

Khogyani wrote:

I am glad Ginger. I hope you feel better soon.

Well, ok someone is finally listening to me. I won't take the time to list

everything but the people who deliver my asthma stuff called me last night and

they are not only sending me a new nebulizer, but they got my Hemathologist to

listen to me when I told him I can't breathe when I walk just a short distance.

He is sending out a nurse to take my blood and check for my oxegon level. I may

get my much needed transfusion sooner.

Maybe then I can feel a little normal well not all the way with the stills but

at least with my blood being so bad.

Hugs; Ginger

---------------------------------

Post your free ad now! Yahoo! Canada Personals

[Guest guest]

I like it though,

B wrote:

bonnie-just a suggestion for next time, you may want to put OT with this e-mail. :)shellyp.s. i don't want people biting you in the butt for this.--- Bonnie wrote:> THIS IS SO FUNNY !!!> > > > > 7 reasons not to mess with a child> > > > >> > > > > A little girl was talking to her teacher about> > whales. The teacher said> > >it> > > > > was physically impossible for a whale to> > swallow a human because even> > > > > though it was a very large mammal its throat> > was very small.> > > > >> > > > > The little girl stated that Jonah was> > swallowed by a whale. Irritated,> > >the> > > >

> teacher reiterated that a whale could not> > swallow a human; it was> > > > > physically impossible. The little girl said,> > "When I get to heaven I> > >will> > > > > ask Jonah." The teacher asked, "What if Jonah> > went to hell?" The little> > > > > girl replied, "Then you ask him."> > > > > >>=========================> > > > > A Kindergarten teacher was observing her> > classroom of children while> > >they> > > > > were drawing. She would occasionally walk> > around to see each child's> > >work.> > > > > As she got to one little girl who was working> > diligently, she asked what> > > > > the drawing was. The girl replied, "I'm> > drawing God."The teacher paused> > > > > and said, "But no one

knows what God looks> > like." Without missing a> > >beat,> > > > > or looking up from her drawing, the girl> > replied, "They will in a> > >minute."> > > > > ===========================> > > > > A Sunday school teacher was discussing the Ten> > Commandments with her> > >five> > > > > and six year olds. After explaining the> > commandment to "honor" thy> > >Father> > > > > and thy Mother, she asked, "Is there a> > commandment that teaches us how> > >to> > > > > treat our brothers and sisters?" Without> > missing a beat one little boy> > > > > (the oldest of a family) answered, "Thou shall> > not kill."> > > > > ===========================> > > > > One day a little girl was sitting

and watching> > her mother do the dishes> > >at> > > > > the kitchen sink. She suddenly noticed that> > her mother had several> > >strands> > > > > of white hair sticking out in contrast on her> > brunette head. She looked> > >at> > > > > her mother and inquisitively asked, "Why are> > some of your hairs white,> > > > > Mom?" Her mother replied, "Well, every time> > that you do something wrong> > > > > and make me cry or unhappy, one of my hairs> > turns white." The little> > >girl> > > > > thought about this revelation for a while and> > then said, "Momma, how> > >come> > > > > ALL of grandma's hairs are white?"> > > > > ===============================> > > > > The children had all

been photographed, and> > the teacher was trying to> > > > > persuade them each to buy a copy of the group> > picture. "Just think how> > > > > nice it will be to look at it when you are all> > grown up and say,> > >'There's> > > > > , she's a lawyer,' or 'That's ,> > he's a doctor.'" A small> > > > > voice at the back of the room rang out, "And> > there's the teacher, she's> > > > > dead."> > > > > ============================> > > > > A teacher was giving a lesson on the> > circulation of the blood. Trying to> > > > > make the matter clearer, she said, "Now,> > class, if I stood on my head,> > >the> > > > > blood, as you know, would run into it, and I> > would turn red in the> >

>face.."> > > > > "Yes," the class said. "Then why is it that> > while I am standing upright> > >in> > > > > the ordinary position the blood doesn't run> > into my feet?" A little> > >fellow> > > > > shouted, "Cause your feet ain't empty."> > > > > ==================================> > > > > The children were lined up in the cafeteria of> > a Catholic elementary> > > > > school for lunch. At the head of the table was> > a large pile of apples.> > >The> > > > > nun made a note, and posted on the apple tray:> > "Take only ONE. God is> > > > > watching."Moving further along the lunch line,> > at the other end of the> > > > > table was a large pile of chocolate chip> > cookies. A child had written a>

> > > > note, "Take all you want. God is watching the> > apples.> > > > > Bonnie Streets> > > > ---------------------------------------Quality questions create a quality life. Successful people ask better questions, and as a result, they get better answers.Tony RobbinsGod Bless America!--------------------------------------- __________________________________ Do you Yahoo!? Read only the mail you want - Yahoo! Mail SpamGuard. http://promotions.yahoo.com/new_mail God bless you!__________________________________________________

[Guest guest]

Hi all,

Sorry to be absent, I've gone back to work and am being kept pretty busy. Shopped 3 hours with a client one day and then went for meds the next morning for another and then shopping the whole afternoon again for yet another client. I am shopped out, for sure. I am trying to keep my hours at around 20 a week, I'm a old lady and don't want to work very hard. THe extra money is nice tho and I don't have so much time on my hands this way.

Good luck to those in treatment and a special prayer goes out to Rick and . Hope things work out for them. They've had a battle.

Thanks also for the kind greetings for a wayward poster. lol

Sharon in NW Washington

Knitting is...time and love made tangible. Alison Hyde

[Guest guest]

Missed you muchly sweety.

Love

Janet

ps love you

"There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go"

Frederick Faber

Subject: Hi allTo: "Hepatitis_C_Central" <Hepatitis_C_Central >Date: Saturday, October 18, 2008, 4:52 PM

Hi all,

Sorry to be absent, I've gone back to work and am being kept pretty busy. Shopped 3 hours with a client one day and then went for meds the next morning for another and then shopping the whole afternoon again for yet another client. I am shopped out, for sure. I am trying to keep my hours at around 20 a week, I'm a old lady and don't want to work very hard. THe extra money is nice tho and I don't have so much time on my hands this way.

Good luck to those in treatment and a special prayer goes out to Rick and . Hope things work out for them. They've had a battle.

Thanks also for the kind greetings for a wayward poster. lol

Sharon in NW Washington

Knitting is...time and love made tangible. Alison Hyde