Guest guest Posted April 8, 2005 Report Share Posted April 8, 2005 Lynneeeeeeeeeee I'm so sorry, I knew you had hurt yourself. SORRY I have not written you, you poor dear! Seems like you have issues with falling! Rest up and let it heal! Loving thoughts and prayers being sent up for you friend Lori in Cali Lynn D wrote: Hi all, Just a quick note to say hello and let everyone know I am still here just haven't posted much as I have not been too well. Fell twice last weekend and ended up with a sprained foot and toes and back. That put me in a flare and I am so miserable. Seems much worse after having a few good days. My SS disability check was also supposed to be here a week ago, but, they lost it, and don't seem to be able to rectify the situation very fast. To say I am annoyed would be a huge understatement. Also getting ready to sue Prudential for the long term disability that I paid for and they have refused to give me. Wish me luck, I am retaining one of the best legal firms in Chicago to rip them apart. Hope everyone else is good Lynn Visit the Still's Disease Message Board http://disc.server.com/Indices/148599.html The materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the information offered or provided within this support form. ion by any person following the information offered or provided within this support form. --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2005 Report Share Posted April 8, 2005 Yeah, I have issues, I don't pay attention and I am the klutz from hell!!! LOL Luv ya Lynn -- Re: Hello all Lynneeeeeeeeeee I'm so sorry, I knew you had hurt yourself. SORRY I have not written you, you poor dear! Seems like you have issues with falling! Rest up and let it heal! Loving thoughts and prayers being sent up for you friend Lori in Cali Lynn D wrote: Hi all, Just a quick note to say hello and let everyone know I am still here just haven't posted much as I have not been too well. Fell twice last weekend and ended up with a sprained foot and toes and back. That put me in a flare and I am so miserable. Seems much worse after having a few good days. My SS disability check was also supposed to be here a week ago, but, they lost it, and don't seem to be able to rectify the situation very fast. To say I am annoyed would be a huge understatement. Also getting ready to sue Prudential for the long term disability that I paid for and they have refused to give me. Wish me luck, I am retaining one of the best legal firms in Chicago to rip them apart. Hope everyone else is good Lynn Visit the Still's Disease Message Board http://disc.server.com/Indices/148599.html The materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the information offered or provided within this support form. ion by any person following the information offered or provided within this support form. --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2008 Report Share Posted April 19, 2008 Hello to everybody, I can't begin to imagine how any of you with HCV feels, including my hubby, so I don't know how to respond to many of your posts. I did stop reading for a while because I thought the bad news depressed me. And not having to think about it everyday, it seemed it might just go away. It didn't go away. I realized, not knowing is worse. And I know I'll need your support to help us get through this. Because he's not going to come on here and post. He doesn't want to know any more than what is necessary (that's what he told the dr yesterday), and I, on the other hand, want to learn as much as I can about this disease. I think I'm more worried about the tx and it's sides than my husband is. I know it's not going to be a walk in the park, but maybe NOT KNOWING all the possible sides will make it a little easier for him. All this past week, up until his appointment yesterday, I was feeling really weird and scared; had a couple of panic attacks worrying about everything. When the dr told us stage/grade, I kind of relaxed. I had imagined the worst; but God answered my prayers. I have a positive feeling about the outcome of his tx, I don't think I ever had any negative feelings about that. I'm just rambling right now; I guess I should put the coffee cup down! I just want you all to know, I'm thankful you're here! FEM Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2008 Report Share Posted April 19, 2008 Your husband should know the sides so he won't think he is going crazy when things start happening.Ignorance is not bliss.Knowledge is power and we need to have power over our own bodies and knowledge is what gives us this power.Make sure he is on anti depressants a month before treatment,it will reduce the sides and anxiety of treatment.I buy frozen packages of fruit and put them through the blender adding a little juice,honey and milk.Things like that will go down easier then food when his stomach is upset and tastes quite good.He needs to keep his strength up with good healthy stuff that he can tolerate and these drinks do the trick.He will have to eat 6 saucer size meals a day once treatment starts to kill his appitite.Stock up boost or ensure and make sure it doesn't have iron in it.Ensure used to really settle my stomach during treatment.He needs to know what will help him during treatment to reduce the sides.He has to drink a gallon of water a day,whether it be in the form of juice,or add crystal light to the water to make it taste good.Pick these things up and start him on the liquids now.Liquids wash away the toxins that cause the sever sides from treatment.We want to make treatment as easy as possible for him. I didn't know these things when I did treatment and wish I had. Gail -----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ]On Behalf Of FEMSent: April 19, 2008 2:36 AMTo: HepatitisCSupportGroupForDummies Subject: Re: Hello All Hello to everybody, I can't begin to imagine how any of you with HCV feels, including my hubby, so I don't know how to respond to many of your posts. I did stop reading for a while because I thought the bad news depressed me. And not having to think about it everyday, it seemed it might just go away. It didn't go away. I realized, not knowing is worse. And I know I'll need your support to help us get through this. Because he's not going to come on here and post. He doesn't want to know any more than what is necessary (that's what he told the dr yesterday), and I, on the other hand, want to learn as much as I can about this disease. I think I'm more worried about the tx and it's sides than my husband is. I know it's not going to be a walk in the park, but maybe NOT KNOWING all the possible sides will make it a little easier for him. All this past week, up until his appointment yesterday, I was feeling really weird and scared; had a couple of panic attacks worrying about everything. When the dr told us stage/grade, I kind of relaxed. I had imagined the worst; but God answered my prayers. I have a positive feeling about the outcome of his tx, I don't think I ever had any negative feelings about that. I'm just rambling right now; I guess I should put the coffee cup down! I just want you all to know, I'm thankful you're here! FEM Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2008 Report Share Posted April 20, 2008 I think if it gets really bad, he'll admit it. Thanks, D FEM Re: [HepatitisCSupportG roupForDummies] Hello All Hello to everybody, I can't begin to imagine how any of you with HCV feels, including my hubby, so I don't know how to respond to many of your posts. I did stop reading for a while because I thought the bad news depressed me. And not having to think about it everyday, it seemed it might just go away. It didn't go away. I realized, not knowing is worse. And I know I'll need your support to help us get through this. Because he's not going to come on here and post. He doesn't want to know any more than what is necessary (that's what he told the dr yesterday), and I, on the other hand, want to learn as much as I can about this disease. I think I'm more worried about the tx and it's sides than my husband is. I know it's not going to be a walk in the park, but maybe NOT KNOWING all the possible sides will make it a little easier for him. All this past week, up until his appointment yesterday, I was feeling really weird and scared; had a couple of panic attacks worrying about everything. When the dr told us stage/grade, I kind of relaxed. I had imagined the worst; but God answered my prayers. I have a positive feeling about the outcome of his tx, I don't think I ever had any negative feelings about that. I'm just rambling right now; I guess I should put the coffee cup down! I just want you all to know, I'm thankful you're here! FEM Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2008 Report Share Posted April 20, 2008 I went into tx thinking that absolutely nothing was going to change for me except that I would be taking a shot once a week and pills daily. And, this was after hearing all the stories of side effects, etc, etc, etc. What a surprise. It didn't take long for me to change my attitude. Of course, we are who we are and all of us are different. I consider my sides mild as compared to most of those I've heard about in group. He will come around. I think that the best thing you can do is not to pressure him. As pressuring me causes me to be more hard headed and resistant to advise. My husband has been the best caregiver for me. He does not try to pressure me into getting up and doing things or resting if he sees me up and doing too much. He leaves that up to me to decide. sometimes I overdo and have to pay for it for a week or two, but I have learned my limits and now stick to them. I have to add, he's always been there to pick me up off the floor when I pass out or take me out to eat, when I feel like I can handle the outside world. I'm blessed and so is your husband. Try to be patient. Continue to learn as much as you can so that you will know the signs of what is an ememgency and when to be concerned and how to answer his questions, should he ask and he will. Try to get away from your husband now and then as you may not realize it, but you are under stress yourself. Getting away for even a short time will refresh you and help you to be patient and deal with your husband's tx. A short walk in the sunshine outside, go to the park and read, buying groceries, etc, etc, etc, Just find a way to make time for self. You will need it as you are no good to him if you make yourself sick worrying. One thing you might consider is that eventually he will not remember if he took his pills or not. You may have to silently keep up with that for him and let him know, if he asks. And, he will. God speed. Hugs, VickieG Re: [HepatitisCSupportG roupForDummies] Hello All Hello to everybody, I can't begin to imagine how any of you with HCV feels, including my hubby, so I don't know how to respond to many of your posts. I did stop reading for a while because I thought the bad news depressed me. And not having to think about it everyday, it seemed it might just go away. It didn't go away. I realized, not knowing is worse. And I know I'll need your support to help us get through this. Because he's not going to come on here and post. He doesn't want to know any more than what is necessary (that's what he told the dr yesterday), and I, on the other hand, want to learn as much as I can about this disease. I think I'm more worried about the tx and it's sides than my husband is. I know it's not going to be a walk in the park, but maybe NOT KNOWING all the possible sides will make it a little easier for him. All this past week, up until his appointment yesterday, I was feeling really weird and scared; had a couple of panic attacks worrying about everything. When the dr told us stage/grade, I kind of relaxed. I had imagined the worst; but God answered my prayers. I have a positive feeling about the outcome of his tx, I don't think I ever had any negative feelings about that. I'm just rambling right now; I guess I should put the coffee cup down! I just want you all to know, I'm thankful you're here! FEM Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2008 Report Share Posted May 15, 2008 Hey guys: in NYC here. Tomorrow is my first appointment with the specialist. Wish me luck! He's probably going to tell my I have to get a liver biopsy. The thought of that gives me a case of the willies. so badly. I'm sure you've all been through it before, any messages that it is not bad would be greatly appreciated. Hope is everyone is well. T Quote Link to comment Share on other sites More sharing options...
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