CAPD

[Guest guest]

I have always assumed Maggie would have major speech delays due to Down

syndrome. This is what the people in the support group tell me. Have

others had different experiences? Like, I have been told that Burke

is a HUGE exception to any rule about language. Now I am really curious....

Carolyn, don't worry too much. Just like what everyone tells me; Emma will

talk when she is ready. I have heard it a million times in regards to all

the developmental milestones. Soon enough Maggie will be walking and I will

forget how I wondered and wondered if she would ever do it. I did it with

sitting up, crawling, etc...

I hope everyone has a wonderful Thanksgiving. I am cooking. Tonight I will

be making pies. I don't feel like making pies. I feel like opening some of

the wine around here and sitting down and not making pies.

capd

Carolyn,

I know you must be terribly worried but I had always heard most kids with

Ds don't really start talking much till they are 4. How is Nicki doing on

talking?? Is she not saying anything at all or just a few words. It sounds

like from what you said she understands what you are saying so if Capd is a

processing disorder, it seems she wouldn't be able to respond. I hope you

get some good news soon. I know you must be scared. Also try and notice if

the other kids are talking for her as in not giving her a reason to talk. I

know that is common with kids and siblings. Keep us informed.

Margaret W/ Greyson and - 3 and Annice 18mos.

[Guest guest]

Thanks guys for your support - I shouldn't get so phased especially when it is a

speech therapist that I don't trust anyway - I think she's dangerous! This

particular therapist is the only one is Auckland with the qualifications to

teach the Johansson method so I'm stuck between a rock and a therapist!

Nicki is talking really well, I think - she now says Hello, How are you! She

attempt the names of most things in a picture book.

Emma is trying desperately to speak but she only says either the end of a word

(oh as in yellow or ee as in teddy) or the beginning of a word (bub bub as in

bubbles). I phoned another private speech therapist who has seen Emma in the

past and she also reassures me that CAPD is not what Emma has! Her last hearing

test was OKish, that was done just after she had larger tubes inserted. Before

that her hearing test was really poor so I marched her upstairs to the ENT

specialist and blasted him for not picking up on the blocked tubes (Emma was in

the very next day to have a clean out and more tubes inserted!) After that she

was telling me to SHHH every time I spoke in my usual loud volume! (No wonder

describes me as loud, I've just realised LOL)! I have no concerns about

her hearing but we'll find out on Tues. I have to stop comparing Emma to other

kids with DS in my speech group....one child is 4 and carries on a conversation

like you would not believe - very depressing and yet she doesn't do a lot of

things that Emma can!

Hope you all had a great thanksgiving and HAPPY BIRTHDAY MOIRA....

THE BIG 04!!! HAVE A GREAT DAY

Carolyn

Exhausted mum of on, , Emma and Nicki

Re: Central Auditory Perception Disorder (CAPD)

Carolyn,

I want you to know you are not alone. was not verbal at the age of 3

1/2 and 4 and 5.... she just started to come around this yr. She is 6!!! My

local support group tells me that most kids with DS come around by the age 8. I

wouldn't worry to much.

When she is playing and you call her in a normal tone voice does she come to

you??? Do you have to scream to get her attention everytime you want her. If not

I would think she will come around. I have been so scared that would

always do sign and NOW she is trying so hard to carry on a conversation. I do

most of the talking but hey at least it is attemp now.

I need to run got to go finish up cooking for Thanksgiving.

Hope I helped some and GOOD Luck with the hearing dr.

6(DS) and Dayton 17months(DS)

[Guest guest]

Gillian,

Forgive me if you already posted this but a good listserv for CAPD is:

CAPD@... (CAPD A discussion of Central Auditory

Processing Disorders.) Dr Jay Lucker runs the list--nationally known CAPD

audiologist.

[Guest guest]

I wonder if my ASD child also has CAPD. When I asked about this, I

was told CAPD could not be reliably diagnosed until much later; about

age 7 and up.

Pam

>

> Has anyone had a child with an asd and another child diagnosed as

> CAPD? Recently, my NT 4 yr old started preschool and the teacher is

> concerned about this particular area. I don't know if anyone has any

> info or advice? Thanks in advance...

>

[Guest guest]

I would say this all depends on who you ask. It's my understanding that there

are two schools of thought on this issue, those who feel that it can be done

before 7-8 years old and those who feel it can't. It's my understanding that an

audiologist wrote a book on this and stated that she has tested some kids who

were very young, some non verbal, and some who were sedated. This would depend

on their equipment as well, I'm guessing. The fact still remains that it depends

on who you find as a provider.

Unfortunately, I have encountered this myself and it's been quite some time, but

have found someone who may be able to test her - finally!!!!

JMO

Karyn

[ ] Re: CAPD

I wonder if my ASD child also has CAPD. When I asked about this, I

was told CAPD could not be reliably diagnosed until much later; about

age 7 and up.

Pam

>

> Has anyone had a child with an asd and another child diagnosed as

> CAPD? Recently, my NT 4 yr old started preschool and the teacher is

> concerned about this particular area. I don't know if anyone has any

> info or advice? Thanks in advance...

>

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[Guest guest]

Have the school district do a pre-k evaluation.

>

> Has anyone had a child with an asd and another child diagnosed as

> CAPD? Recently, my NT 4 yr old started preschool and the teacher is

> concerned about this particular area. I don't know if anyone has any

> info or advice? Thanks in advance...

>

[Guest guest]

Do you have the name of audiologist who wrote the book or know who would

be willing to test a 4 year old? I am convinced that my son has this,

it also runs in my family in slightly milder degrees (myself, my

brothers, my neice, my father - all have varying auditory processing

issues)..Thanks for any recommendations if you have any,

Re: [ ] Re: CAPD

I would say this all depends on who you ask. It's my understanding that

there are two schools of thought on this issue, those who feel that it

can be done before 7-8 years old and those who feel it can't. It's my

understanding that an audiologist wrote a book on this and stated that

she has tested some kids who were very young, some non verbal, and some

who were sedated. This would depend on their equipment as well, I'm

guessing. The fact still remains that it depends on who you find as a

provider.

Unfortunately, I have encountered this myself and it's been quite some

time, but have found someone who may be able to test her - finally!!!!

JMO

Karyn

[ ] Re: CAPD

I wonder if my ASD child also has CAPD. When I asked about this, I

was told CAPD could not be reliably diagnosed until much later; about

age 7 and up.

Pam

>

> Has anyone had a child with an asd and another child diagnosed as

> CAPD? Recently, my NT 4 yr old started preschool and the teacher is

> concerned about this particular area. I don't know if anyone has any

> info or advice? Thanks in advance...

>

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This message was checked by NOD32 antivirus system.

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[Guest guest]

My understanding is that the ABR/BAER test can provide some useful info in this.

S S

<p>I would say this all depends on who you ask. It's my

understanding that there are two schools of thought on this issue, those who

feel that it can be done before 7-8 years old and those who feel it can't. It's

my understanding that an audiologist wrote a book on this and stated that she

has tested some kids who were very young, some non verbal, and some who were

sedated. This would depend on their equipment as well, I'm guessing. The fact

still remains that it depends on who you find as a provider. <br>

Unfortunately, I have encountered this myself and it's been quite some time, but

have found someone who may be able to test her - finally!!!!<br>

<br>

JMO<br>

<br>

Karyn<br>

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[Guest guest]

Our son, age 13, has the CAPD diagnosis. The pediatric team who evaluated him

over a 7 week period were divided on whether or not he was on the spectrum and

opted instead to decline. Our pediatrician, however, writes in notes,

" Aspergers-like " . Our son is like Swiss Cheese in his developmental gaps,

strengths & weaknesses in areas.

Velvet

>

> Is CAPD common with Asperger kids?

>

> We just got back from a hearing test and CAPD eval. Am told my son has very

short term memory issues and she's recommending an FM unit at school as well as

auditory training with a SLP.

>

> Anyone elso going through or been through this recently?

>

> We don't currently have speech therapy at school .. So my son is not too happy

to add more services...

>

>

>

[Guest guest]

tell me about it ... anyway -- does your 13 year get any therapies associated with the CAPD diagnosis? From: tdhssp <johnvel@...> Sent: Tue, January 12, 2010 11:36:50 AMSubject: ( ) Re:

CAPD

Our son, age 13, has the CAPD diagnosis. The pediatric team who evaluated him over a 7 week period were divided on whether or not he was on the spectrum and opted instead to decline. Our pediatrician, however, writes in notes, "Aspergers-like" . Our son is like Swiss Cheese in his developmental gaps, strengths & weaknesses in areas.

Velvet

>

> Is CAPD common with Asperger kids?

>

> We just got back from a hearing test and CAPD eval. Am told my son has very short term memory issues and she's recommending an FM unit at school as well as auditory training with a SLP.

>

> Anyone elso going through or been through this recently?

>

> We don't currently have speech therapy at school .. So my son is not too happy to add more services...

>

>

>

[Guest guest]

My son has a number of other diagnoses (that I refer to ABC's) alongside CAPD,

including ADD, Pragmatic Language Disorder, DCD (Developmental Coordination

Disorder), etc. He qualifies for 1/2 hour of aide time at school per day! What a

joke. While, of course, I will not turn away help in any form, funding for half

an hour, hardly is very productive. Now, if an aide was able to spend the first

5 minutes with my son on each subject to get him started, that would be GREAT;

plus 5 minutes in the morning to get organized, 5 minutes at the close of the

school day to ensure that all his notes are in order and all that is needed to

complete homework is available... Fantastic! However, that is not how it

works... you get 1/2 an hour of assistance wherever the aide can fit you in.

There too is another issue that I struggle with: Personal FM headset... While

my son is diagnosed with CAPD and audiology and pediatrics recommends the item,

there is no funding - either through the Government, nor private insurance

company - for an FM headset. You see, CAPD, although is a hearing problem, is

not a hearing physical hearing impairment; thus, no funding for this hearing

device is available.

As for speech therapy. Here, in Alberta, Canada, pathology services through the

Public School System ends at elementary school. Nothing is available past grade

6. The only alternative for continuation of speech services is private

insurance, which is expensive and beyond most families' ability to finance. : (

> >

> > Is CAPD common with Asperger kids?

> >

> > We just got back from a hearing test and CAPD eval. Am told my son has very

short term memory issues and she's recommending an FM unit at school as well as

auditory training with a SLP.

> >

> > Anyone elso going through or been through this recently?

> >

> > We don't currently have speech therapy at school .. So my son is not too

happy to add more services...

> >

> >

> >

>

[Guest guest]

Im hoping we can get an FM unit with speakers .. that's what the evaluator is putting on our report because my sensory issue kid won't wear headphones in school ... The board of ed - at least in NYC - has FM units available if you can prove you need it -- what I don't know is if they'll be able to get it with the speakers. From: tdhssp <johnvel@...>Subject: ( ) Re: CAPD Date: Wednesday, January 13, 2010, 4:17 PM

My son has a number of other diagnoses (that I refer to ABC's) alongside CAPD, including ADD, Pragmatic Language Disorder, DCD (Developmental Coordination Disorder), etc. He qualifies for 1/2 hour of aide time at school per day! What a joke. While, of course, I will not turn away help in any form, funding for half an hour, hardly is very productive. Now, if an aide was able to spend the first 5 minutes with my son on each subject to get him started, that would be GREAT; plus 5 minutes in the morning to get organized, 5 minutes at the close of the school day to ensure that all his notes are in order and all that is needed to complete homework is available... Fantastic! However, that is not how it works... you get 1/2 an hour of assistance wherever the aide can fit you in.

There too is another issue that I struggle with: Personal FM headset... While my son is diagnosed with CAPD and audiology and pediatrics recommends the item, there is no funding - either through the Government, nor private insurance company - for an FM headset. You see, CAPD, although is a hearing problem, is not a hearing physical hearing impairment; thus, no funding for this hearing device is available.

As for speech therapy. Here, in Alberta, Canada, pathology services through the Public School System ends at elementary school. Nothing is available past grade 6. The only alternative for continuation of speech services is private insurance, which is expensive and beyond most families' ability to finance. : (

> >

> > Is CAPD common with Asperger kids?

> >

> > We just got back from a hearing test and CAPD eval. Am told my son has very short term memory issues and she's recommending an FM unit at school as well as auditory training with a SLP.

> >

> > Anyone elso going through or been through this recently?

> >

> > We don't currently have speech therapy at school .. So my son is not too happy to add more services...

> >

> >

> >

>

[Guest guest]

Anyone have a good source for info about Central Auditory Processing Disorder?

Also, any personal success with certain interventions? Seems to be a lot of

" Snake Oil Salesmen " out there for this. Thanks.