My Son

[Guest guest]

Is it possible that he is depressed? It sure sounds that way. No initiative

to do better, seems like he has just given up, escapes into video games and

reading... WEll, maybe not the escaping into video games and reading part -

that may or may not be a sign of depression, but the rest of it sure sounds

like it. And the being teased certainly doesn't sound like much fun.

How old is your son? My son likes fantasy books, too. He is 15.

Liz

dscheppke wrote:

> I have sent in a couple of messages and they never seem to be posted.

> Am I doing something wrong?

>

> I am feeling so overwhelmed! My son has something called Edline

> through his school and just about every day they send me an e-mail

> that they have a new grade report to check and he is doing so bad in

> school and has absoulutely no initiative to do better. He seems like

> he has just given up. He talks about how the kids are teasing him

> and all he wants to do at home is play video games or read. I know

> it is good that he reads but that even creates a problem trying to

> find more books that he likes to keep him occupied. He is into

> fantasy/adventure type books.

>

> Anybody else out there feeling overwhelmed and alone with this?

[Guest guest]

Yes we all feel that way and sometimes for days. Its an all around learning

experience. As for the teasing the school just did a big promotion to parents

and children concerning bullying. They acknowledge teasing is bullying. After

the talks my daughter (NT) who is teased said the boys are nicer to her. As for

my son (AS,ADD) he is unaware of it.

in NJ

[Guest guest]

I'm very sad to see that your son has been teased about the way he

talks. I would suggest talking to the teacher. I know in our area,

a couple of organizations come out and talk to kids about

disabilities. You might see if there is something in your area and

see if you can schedule someone to come talk to 's class.

You also might want to suggest that the teacher show the movie

Trumpet of the Swan. It's about a little swan that can't talk.

Everyone thinks he's not smart because he can't talk. Then he

learns how to play the trumpet. Anyway, it's a good story about

disabilities.

Good luck with everything!

Suzi

[Guest guest]

Hi Tonya

I've finally got around to reading the posts, i think your post really sums

up how we all feel, or have at some point felt about or children. I think

whatever we do for them it is always a worry that it is not quite enough.

Your little boy sounds such a darling. I do think that children with

dyspraxia find school so much more difficult, not just for the obvious

reasons of speech, but for the fact they just find it so tiring from having

to try so much harder in every aspect of the day.Last Christmas i lost my

voice for 3 days , trying to win a pop quiz until 4 oclock in the morning

on Christmas day night.. And do you know, when my voice returned after 3

days i was absolutely worn out, it was so physically tiring. I'm not saying

ignore the school complaints, but i know my 5 year old daughter sometimes

dose'nt want to go to school because she just tires very easily and she

would rather have a lazy day at home. If the teacher and S.T. say he is

doing well that seems a good indicator. I know i always look into everything

a lot more with my daughter with dyspraxia, than i do with my other 2

children, if they cant do something first time or they are not very good at

a subject, sport or situation my first responce is, " oh well, you can,t be

good at everything " .But i know,i analyse everthing the 5 year old does. [ i

am trying to stop, honest] I was speaking to a n old lady once,she was

about 90 years old and had had 10 children. I asked her how she managed with

so many children and so little help, she said she gave most of her attention

to the child who needed her help the most, whatever the reason, everything

else came second. I think thats what we all do as good parents, its

natural and understandable, but can also be very frustrating and upsetting ,

and if you havent be told what a wonderful mum you seem to be, i'll just

remind you of it now. So keep watching and caring and take care . Jane

[ ] My son

> Hi All -

> I have been a long time reader of all your posts but have never really

> told my story. My son is 5 yrs. in kindergarten. We live in

> Springfield, Ga. has been in speech therapy since he was 2.5. The

> Effingham Co. pre-school intervention would come to his day care for

speech

> therapy. When school began in fall after he turned 3 in July, he went to

> school from 10:30 - 2:30 mon-fri. The school system would come get him

from

> daycare in a bus and bring him back each day. The school system has been

> terrific.

> is a very easy going, fun loving little guy with apraxia. This was

> diagnosed by his speech therapist after I had mentioned that I thought he

> had apraxia. We have taken to a neurologist 2 different times. The

> pediatrician sent us when did not crawl at 10 months. The

neurologist

> said was fine. No test were ran. was a late crawler, didn't

walk

> until he was 17 months, didn't get teeth until after his 1st birthday.

> did not get potty trained until right before he started pre-k. All of a

> sudden, one day, he just started using the bathroom. No wetting the bed

or

> his undies. He just did it. We took back to the neurologist about a

> yr ago. ran around the room we were in while the dr talked to us.

He

> said had a speech problem and that was all. He didn't see any since

> running any test. That was good news. Actually, doesn't have any

> other problems. is in kindergarten this year. He is doing his

speech

> therapy 4x a week in school. I still feel like I'm not doing enough. He

> told me this morning that he didn't want to go to school because he didn't

> have any friends. He said they make fun of him and say he talks funny.

My

> heart was broken. I'm at work and still crying. He has mentioned this a

few

> times, but never seemed to not want to go to school. He is doing fine and

> his teacher tells me he plays fine with other children. When we pick him

up

> from Pryme Tyme in the afternoons he is playing fine with other children.

> Nothing really seems to bother him. But it breaks my heart to know that

> someone may make fun of him and hurt his easy going spirit. He is really

> the sweetest child of my 3. I have tried him on omega's in the past

> (sneaking a capsule in his chocolate milk) he finally caught on and said

> this is nasty chocolate milk. I am getting some more today for him and

me.

> Some how I will get them in him.

> speech therapist called the other day to tell me she really thinks he

> is improving. Sometimes I can tell he is getting then other times I

can't.

> I asked her did children grow out of apraxia. She kinda talked, but never

> answered me. I wonder if she knows.

> I hate to keep going, but no one really understands his father and my pain

> the way I know you guys do.

> What else can I do to help speak clearly?

>

> Thanks for listening -

> Tonya Catterton

>

[Guest guest]

Hi ,

Welcome to the group! It seems like you are on the right path to

me. If you want to post some photos just go to our photos section

and create a folder, then post to let us know and we'll check them

out.

Natasha

Atlanta, GA

> Hi all,

> I am also new to the group. My son is 4 1/2 months old. He

> was born 3 weeks prematurely but is already a whopping 19 lbs, 26

> inches. Yes, a big boy, and I think his size is part of the

reason

> for the flatness of his head. Also, when he was born the OB/GYN

had

> to use a vacuum to deliver and the bump on his head

calcified

> before the swelling went down so we will have both issues to deal

> with.

>

> 's pediatrician just sent the referral to a neurosurgeon in

> Sacramento, CA today. The neuro only reviews cases every Tuesday

so

> I probably won't hear anything 'til mid to late next week. Now

that

> I know has a problem, every moment of waiting is agony.

>

> I just discovered your website a couple of days ago and I am

trying

> to do as much reading as possible re: whether I am following the

> right process. I don't want to get stuck in a black hole waiting

for

> to be treated. If there is another way to kickstart the

> process I want to get on it!

>

> I would like to post some pictures of and if possible, have

the

> group check him out and give your advice on how severe his plagio

> is. I'm still reviewing your website on the best forms of

treatment

> so any recommendations on that would also be appreciated.

>

> Thank you all!

>

> Michele &

[Guest guest]

Hi ,

Welcome to the group! It seems like you are on the right path to

me. If you want to post some photos just go to our photos section

and create a folder, then post to let us know and we'll check them

out.

Natasha

Atlanta, GA

> Hi all,

> I am also new to the group. My son is 4 1/2 months old. He

> was born 3 weeks prematurely but is already a whopping 19 lbs, 26

> inches. Yes, a big boy, and I think his size is part of the

reason

> for the flatness of his head. Also, when he was born the OB/GYN

had

> to use a vacuum to deliver and the bump on his head

calcified

> before the swelling went down so we will have both issues to deal

> with.

>

> 's pediatrician just sent the referral to a neurosurgeon in

> Sacramento, CA today. The neuro only reviews cases every Tuesday

so

> I probably won't hear anything 'til mid to late next week. Now

that

> I know has a problem, every moment of waiting is agony.

>

> I just discovered your website a couple of days ago and I am

trying

> to do as much reading as possible re: whether I am following the

> right process. I don't want to get stuck in a black hole waiting

for

> to be treated. If there is another way to kickstart the

> process I want to get on it!

>

> I would like to post some pictures of and if possible, have

the

> group check him out and give your advice on how severe his plagio

> is. I'm still reviewing your website on the best forms of

treatment

> so any recommendations on that would also be appreciated.

>

> Thank you all!

>

> Michele &

[Guest guest]

Michele, welcome to the group. You have already had some good advice from

Natasha and Christie. You are definitely getting a good early start on

treatment. Please let us know when you hear from the neuro.

Becky

, repo grad

Pittsburgh, PA

My son

Hi all,

I am also new to the group. My son is 4 1/2 months old. He

was born 3 weeks prematurely but is already a whopping 19 lbs, 26

inches. Yes, a big boy, and I think his size is part of the reason

for the flatness of his head. Also, when he was born the OB/GYN had

to use a vacuum to deliver and the bump on his head calcified

before the swelling went down so we will have both issues to deal

with.

's pediatrician just sent the referral to a neurosurgeon in

Sacramento, CA today. The neuro only reviews cases every Tuesday so

I probably won't hear anything 'til mid to late next week. Now that

I know has a problem, every moment of waiting is agony.

I just discovered your website a couple of days ago and I am trying

to do as much reading as possible re: whether I am following the

right process. I don't want to get stuck in a black hole waiting for

to be treated. If there is another way to kickstart the

process I want to get on it!

I would like to post some pictures of and if possible, have the

group check him out and give your advice on how severe his plagio

is. I'm still reviewing your website on the best forms of treatment

so any recommendations on that would also be appreciated.

Thank you all!

Michele &

For more plagio info

[Guest guest]

Is Will able to adapt his play? My 8 year old son's peers tend to

play with his 6 year old brother because my older son wants kids to

play only his way. He has wonderful ideas for play, but because he

can't take script changes the kids get bored quickly and my son gets

frustrated because nobody will play with him. He then gets

revengeful, and he tries to destroy what his younger brother is

doing, which often means at playdates he winds up sitting down in a

timeout.

I would find another kid for your daughter to play with at the same

time you host a playdate for your son. Kids tend to pair up, and

two girls will often exclude others.

>

> I recently went to my son's school to review his IEP. They have

> concerns about his social behavior. They recommended he see his

> pediatrician, which we did and he suspects Aspergers Syndrome (due

to

> the doctor's son being diagnosed). Hunter is going to be seen at

> Children's Hospital later this month. He seems to get worse and

worse

> with being socially inept. I had his friend Will over to our

house to

> play with him, and Will ended up playing with my daughter

Mackenzie

> instead, which really hurt Hunter's feelings. I just wish I knew

what

> to do for him. Any suggestions?

>

[Guest guest]

Thank you for the advice. I will do that.

LJL <laura6307@...> wrote: Is Will able to adapt his play? My 8 year old

son's peers tend to

play with his 6 year old brother because my older son wants kids to

play only his way. He has wonderful ideas for play, but because he

can't take script changes the kids get bored quickly and my son gets

frustrated because nobody will play with him. He then gets

revengeful, and he tries to destroy what his younger brother is

doing, which often means at playdates he winds up sitting down in a

timeout.

I would find another kid for your daughter to play with at the same

time you host a playdate for your son. Kids tend to pair up, and

two girls will often exclude others.

>

> I recently went to my son's school to review his IEP. They have

> concerns about his social behavior. They recommended he see his

> pediatrician, which we did and he suspects Aspergers Syndrome (due

to

> the doctor's son being diagnosed). Hunter is going to be seen at

> Children's Hospital later this month. He seems to get worse and

worse

> with being socially inept. I had his friend Will over to our

house to

> play with him, and Will ended up playing with my daughter

Mackenzie

> instead, which really hurt Hunter's feelings. I just wish I knew

what

> to do for him. Any suggestions?

>

[Guest guest]

Subject: ( ) My son

I recently went to my son's school to review his IEP. They have

concerns about his social behavior. They recommended he see his

pediatrician, which we did and he suspects Aspergers Syndrome (due to

the doctor's son being diagnosed). Hunter is going to be seen at

Children's Hospital later this month. He seems to get worse and worse

with being socially inept. I had his friend Will over to our house to

play with him, and Will ended up playing with my daughter Mackenzie

instead, which really hurt Hunter's feelings. I just wish I knew what

to do for him. Any suggestions?

Have him evaluated and go forward from there. Find social skill classes in

your area - ask at the school to have a group formed to practice social

skills (lots of kids need help!)

Roxanna

[Guest guest]

I took my son back in to the doctor this morning. They have decided

it is not an abscess, it is probably a tumor. So the next thing is

another endoscopy and a biopsy. Cannot get him in until the end of

this month. I don't know why the delays, but it seems to happen all the time.

Lynda

[Guest guest]

Lynda,

I am so sorry to hear about your Son. I will keep him in my prayers....

God Bless

~AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com.

[Guest guest]

Dear Lynda,

What a terrible worry, I hope everything is ok with your son.

Love Sue

[Guest guest]

*Childrens Hospital*

The doctor looked at my son's x-rays and said my son is fine and we could

go home but he was sending the x-rays over to Childrens Hospital for a second

opinion as they are more equipped and hi tech than a regular hospital.

Well I never knew that, guess you learn something new everyday!!

I had just walked in my house and the phone rings here it's

the doctor calling saying Childrens Hospital found something.

In a matter of fact they did not see anything in the x-ray until

his x-rays were sent over to Children Hospital.

Childrens Hospital found to our surprise an old fracture and this mass in his arm.

The team of doctors kept watch for a few months and decided my son needs not to worry.

My son is now lifting weights and doing fine.

Just My Suggestion,

Sandy~

I took my son back in to the doctor this morning. They have decided it is not an abscess, it is probably a tumor. So the next thing is another endoscopy and a biopsy. Cannot get him in until the end of this month. I don't know why the delays, but it seems to happen all the time.Lynda

[Guest guest]

Lynda ~

Many times there are cancellations for one reason or another. I would call them on a dailey basis to check and see if they would move his proceedure to sooner. Blessings ~ DAOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com.

[Guest guest]

Oh Lynda . . a couple more weeks of concern ahead . . . We'll keep praying this will be easily managable . . . But I'm curious . .. wasn't there an infection too? . . . Or did they give him all those antibiotics for nothing? I'm afraid the medical system is getting overburdened just cleaning up their own mistakes! Love, Rogene

[Guest guest]

Rogene,

Yes, infection, swelled his throat completely closed. Still on

antibiotics. This has been a long road, first symptoms were 3 1/2

years ago, and this last year he has been to many doctors. Finally

found something, and still waiting to find out what. Lots of doctors

missed this entirely.

Lynda

At 08:46 AM 3/17/2007, you wrote:

>Oh Lynda . . a couple more weeks of concern ahead . . .

>

>We'll keep praying this will be easily managable . . .

>

>But I'm curious . .. wasn't there an infection too? . . . Or did

>they give him all those antibiotics for nothing?

>

>I'm afraid the medical system is getting overburdened just cleaning

>up their own mistakes!

>

>Love,

>

>Rogene

>

[Guest guest]

Yes, the doctor's office is doing that already.

Thanks,

Lynda

At 09:13 AM 3/17/2007, you wrote:

>Lynda ~

>Many times there are cancellations for one reason or another. I

>would call them on a dailey basis to check and see if they would

>move his proceedure to sooner. Blessings ~ D

>

>

>

>

>----------

>AOL now offers free email to everyone. Find out more about what's

>free from AOL at <http://www.aol.com?ncid=AOLAOF00020000000339>AOL.com.

>

[Guest guest]

Would it be too much to hope that getting this fixed would solve his other problems? Love, Rogene

[Guest guest]

Yeah ! ! That is great. You all are in my thoughts and prayers.

Blessings ~ DAOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com.

[Guest guest]

Rogene,

Yes, too much hope. RSD is progressive, no cure.

Lynda

At 09:22 AM 3/17/2007, you wrote:

>Would it be too much to hope that getting this fixed would solve his

>other problems?

>

>Love,

>

>Rogene

>

>

[Guest guest]

Lynda......RSD/CRPS , this is the site that mailed me alot of info back in 2003. It has alot of interesting info.......God Bless you all ! ! Love DAOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com.

[Guest guest]

The Low Dose Naltrexone Homepage

Here is a site I found while researching..........interesting......AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com.

[Guest guest]

Hello Lynda ~ Boy do I understand that one ! ! I have kids, one 32, and one 25, and they have a mind of their own too. Just like I did.........when I got the implants, not once, or twice, but a third time too............

Blessings ~ DAOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com.

[Guest guest]

Dede,

I have researched this quite a bit, the rest if

up to him. He does not eat right, he smokes, and

he will live his own way, no matter what I say.

I can help him with his current problem, but I am

unable to help him with the RSD.

Lynda

At 02:36 PM 3/17/2007, you wrote:

>Lynda......<http://rsdrx.com/>RSD/CRPS , this is

>the site that mailed me alot of info back in

>2003. It has alot of interesting info.......God Bless you all ! ! Love D

>

>

>

>

>----------

>AOL now offers free email to everyone. Find out

>more about what's free from AOL at

><http://www.aol.com?ncid=AOLAOF00020000000339>AOL.com.

>