Guest guest Posted January 12, 2001 Report Share Posted January 12, 2001 I too suffer from anxiety, not severe though. I always thought that mine began after our second baby was stillborn (something about being out of control). Maybe the anxiety is from the years of being out of control of my situation - growing up with a BP mom. There could really be some truth in that. Maybe it was just exacerbated when the baby died. Thanks for the thought-provoking question! Good luck to you! anxiety Hello, I'm new to this list. Edith (thank you!) suggested I join after I posted to the Oz list. After a very traumatic christmas with my mother I found a website on BPD and came to the realization that she was BP. Even though we've both been in therapy for years I always thought that she just suffered from depression. Anyway, it's been an amazing last few weeks, reading Stop Walking on Eggshells and finding out that I am not alone. I still have a tremendous amount of guilt about my mother and still feel responsible for her happiness and well-being (growing up she would blame me for her moods and suicide attempts). I am currently seeing a psychiatrist and am suffering from anxiety and depression. At this point, I can not feel any anger towards her - only sadness and guilt. I am wondering if anyone has experienced similar problems and whether they feel their anxiety is related to repressed anger? thank you, H. ~ People joining this list must read the guidelines and agree to them before posting. To get off the list, send a blank message to ModOasis-unsubscribeeGroups. Send questions & concerns to ModOasis-owneronelist. " Stop Waking on Eggshells, " a primer for non-BPs can be ordered via 1-888-35-SHELL (). For the table of contents, see http://www.BPDCentral.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2001 Report Share Posted January 13, 2001 << I'm new to this list. Edith (thank you!) suggested I join after I posted to the Oz list. >> Hi H, welcome to our moderated Oasis in cyberspace. There are almost 50 of us KOs on this list with new ones joining almost daily. We use a lot of abbreviations -- they're listed on the Welcome thingee that was sent to you when you joined. << After a very traumatic christmas with my mother I found a website on BPD and came to the realization that she was BP. >> Holidays can be particularly stressful for BPDs because their routine gets disrupted. BPDs like things to be predictable as it helps them feel that they're in control. << Even though we've both been in therapy for years I always thought that she just suffered from depression. >> Mood disorders, like bipolar, are common amongst BPDs. BPDs typically find therapists that they can manipulate and control. Does your mother seem to be getting better from all that therapy? << Anyway, it's been an amazing last few weeks, reading Stop Walking on Eggshells and finding out that I am not alone. >> Yup, SWOEs a winner and there's lots of us KOs here. You'd think we all had the same nada or that our nadas all attended the same Nada Training School because we KOs have a lot of commonalities. << I still have a tremendous amount of guilt about my mother and still feel responsible for her happiness and well-being (growing up she would blame me for her moods and suicide attempts). >> Yup, that's the FOG (Fear, Obligation, and Guilt) stuff and her defense mechanism called projection. Our nadas controlled us by 'yanking on our chain' using FOG during our whole lifetimes. Actually, that's known as child abuse. << I am currently seeing a psychiatrist and am suffering from anxiety and depression. At this point, I can not feel any anger towards her – only sadness and guilt. >> Hmmm, you might want to change therapists if s/he hasn't mentioned about your nada's BPD to you yet. There's a section in SWOE (page 238) on questions you might ask a therapist when you're choosing one. All therapists are not equal!! You can call three on the phone and talk with them and pick the one you feel the most comfortable with. Or, call three more until you find the right one. << I am wondering if anyone has experienced similar problems and whether they feel their anxiety is related to repressed anger? >> Most KOs who join this list suffer from depression, anxiety, PTSD (Post-Traumatic Stress Disorder), and/or are generally numbed out. The older ModOasans generally have a lot of stress-induced physical illness from repressed emotions -- ie, lupus, fibromyalgia, & etc etc. The depression etc and stress-induced illnesses get better over time the longer one is on these lists. And we have people here like Ilene who's over there on Cloud 9 <wink> and Anon who's planted her neat garden that she may tell you about. <thumbs up> Anyhow, I'm glad you found us. And, like you've already found out, the best way to get answers around here is to ask questions. Hugs & Peace, Edith Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2002 Report Share Posted May 30, 2002 Luckily, my dad hasn't shown signs of depression yet. We think he's in the initial stages of the disease, and he will often exhibit a sense of humor about it. Right now, we want him to hold onto his wallet so he'll feel independent. I feel so sorry for him though, because he wants to bring his credit card on the trip so he can pay for things, but he needs to be reassured every couple of days that it's in his wallet. I can see where holding onto it for him will be a good idea in the future. ED Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2002 Report Share Posted June 8, 2002 In a message dated 5/30/02 5:56:12 PM Central Daylight Time, PhoenixTubs@... writes: > I feel so sorry for him though, because he wants to bring his credit card on > the trip so he can pay for things, but he needs to be reassured every > couple of days that it's in his wallet. I can see where holding onto it > for him will be a good idea in the future. We used to go through something similar, but I now keep the wallet and he is satisfied. He has a few dollars, but nothing that would be a great loss if it was stolen. Given his posture and instability he is a target for unethical folks, so for him not to have his credit, medical and military cards on his person is something of a relief for me. Not that I let him go in harms way . . . but you never know. Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2004 Report Share Posted January 4, 2004 ine, Thanks so much for sharing those website links on morality and tv and the media! Sorry to hear that you've had some anxiety, but it sounds like your affirmations are helping alot. Keep hanging in there, Love, PJ shreiman wrote: Well I have had bad anxiety attacks for 3 weeks. Not sure why but I started writing these affirmations. 30 a day. I am calm, I am safe, I feel peaceful, I am happy, and I am confident. The anxiety is diminishing. Let's pray for the best!!! ine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2004 Report Share Posted January 4, 2004 ine, Thanks so much for sharing those website links on morality and tv and the media! Sorry to hear that you've had some anxiety, but it sounds like your affirmations are helping alot. Keep hanging in there, Love, PJ shreiman wrote: Well I have had bad anxiety attacks for 3 weeks. Not sure why but I started writing these affirmations. 30 a day. I am calm, I am safe, I feel peaceful, I am happy, and I am confident. The anxiety is diminishing. Let's pray for the best!!! ine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2004 Report Share Posted January 4, 2004 ine, Thanks so much for sharing those website links on morality and tv and the media! Sorry to hear that you've had some anxiety, but it sounds like your affirmations are helping alot. Keep hanging in there, Love, PJ shreiman wrote: Well I have had bad anxiety attacks for 3 weeks. Not sure why but I started writing these affirmations. 30 a day. I am calm, I am safe, I feel peaceful, I am happy, and I am confident. The anxiety is diminishing. Let's pray for the best!!! ine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2007 Report Share Posted September 3, 2007 Our DAN! doc recommended Gaba and 5-HTP. He says they work really well together. Pamela " Courage is doing what you're afraid to do. There can be no courage unless you're scared. " Eddie Rickenbacker, top US fighter ace, WWI From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of sonsboyssamj Sent: Monday, September 03, 2007 5:55 PM To: mb12 valtrex Subject: anxiety Still looking for some advice. My son deals with much anxiey.You can always tell when he is feeling anxious. His entire body will tense up and he moves around like a robot.He bends his arms with a locked elbow and clenches his fists. This changes dramatically when he is at home or any place he feels a sense of comfort. I really do not want to put him on an anxiety medication, but he is getting ready to start 5th grade and I worry for him. He takes plenty of mag/zinc and tests note all within normal range. We tried GABA with no success. Any advice would be greatly appreciated Louise Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2007 Report Share Posted September 3, 2007 Louise, Look into Yasko protocol for anxiety.My son takes the organ supps and it helps alot with anxiety.WHen I remove them huge differnece.Anxiety levels rise dramatically.He has ACE deletion according to genetics test.sonsboyssamj wrote: Still looking for some advice. My son deals with much anxiey.You can always tell when he is feeling anxious. His entire body will tense up and he moves around like a robot.He bends his arms with a locked elbow and clenches his fists. This changes dramatically when he is at home or any place he feels a sense of comfort. I really do not want to put him on an anxiety medication, but he is getting ready to start 5th grade and I worry for him. He takes plenty of mag/zinc and tests note all within normal range. We tried GABA with no success. Any advice would be greatly appreciatedLouise "To accomplish great things, we must not only act, wemust dream; not only plan but also believe." Be smarter than spam. See how smart SpamGuard is at giving junk email the boot with the All-new Yahoo! Mail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2007 Report Share Posted September 3, 2007 Hi Thanks, what are organ supps? Louise Louise, Look into Yasko protocol for anxiety.My son takes the organ supps and it helps alot with anxiety.WHen I remove them huge differnece.Anxiety levels rise dramatically.He has ACE deletion according to genetics test. Re: anxiety Louise, Look into Yasko protocol for anxiety.My son takes the organ supps and it helps alot with anxiety.WHen I remove them huge differnece.Anxiety levels rise dramatically.He has ACE deletion according to genetics test. sonsboyssamj wrote: Still looking for some advice. My son deals with much anxiey.You can always tell when he is feeling anxious. His entire body will tense up and he moves around like a robot.He bends his arms with a locked elbow and clenches his fists. This changes dramatically when he is at home or any place he feels a sense of comfort. I really do not want to put him on an anxiety medication, but he is getting ready to start 5th grade and I worry for him. He takes plenty of mag/zinc and tests note all within normal range. We tried GABA with no success. Any advice would be greatly appreciated Louise "To accomplish great things, we must not only act, we must dream; not only plan but also believe." Be smarter than spam. See how smart SpamGuard is at giving junk email the boot with the All-new Yahoo! Mail Email and AIM finally together. You've gotta check out free AOL Mail! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2007 Report Share Posted September 3, 2007 OraLiver OraPancreas OraKidney I will double check the others.There are at least 5 I give for anxiety.HEre is rhe website too for Yasko http://www.ch3nutrigenomics.com/phpBB2/welcome.htmlJSJLPB@... wrote: Hi Thanks, what are organ supps? Louise Louise, Look into Yasko protocol for anxiety.My son takes the organ supps and it helps alot with anxiety.WHen I remove them huge differnece.Anxiety levels rise dramatically.He has ACE deletion according to genetics test. Re: anxiety Louise, Look into Yasko protocol for anxiety.My son takes the organ supps and it helps alot with anxiety.WHen I remove them huge differnece.Anxiety levels rise dramatically.He has ACE deletion according to genetics test.sonsboyssamj wrote: Still looking for some advice. My son deals with much anxiey.You can always tell when he is feeling anxious. His entire body will tense up and he moves around like a robot.He bends his arms with a locked elbow and clenches his fists. This changes dramatically when he is at home or any place he feels a sense of comfort. I really do not want to put him on an anxiety medication, but he is getting ready to start 5th grade and I worry for him. He takes plenty of mag/zinc and tests note all within normal range. We tried GABA with no success. Any advice would be greatly appreciatedLouise "To accomplish great things, we must not only act, wemust dream; not only plan but also believe." Be smarter than spam. See how smart SpamGuard is at giving junk email the boot with the All-new Yahoo! Mail Email and AIM finally together. You've gotta check out free AOL Mail! "To accomplish great things, we must not only act, wemust dream; not only plan but also believe." All new Yahoo! Mail - Get a sneak peak at messages with a handy reading pane. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2007 Report Share Posted September 3, 2007 OraLiver OraPancreas OraKidney I will double check the others.There are at least 5 I give for anxiety.HEre is rhe website too for Yasko http://www.ch3nutrigenomics.com/phpBB2/welcome.htmlJSJLPB@... wrote: Hi Thanks, what are organ supps? Louise Louise, Look into Yasko protocol for anxiety.My son takes the organ supps and it helps alot with anxiety.WHen I remove them huge differnece.Anxiety levels rise dramatically.He has ACE deletion according to genetics test. Re: anxiety Louise, Look into Yasko protocol for anxiety.My son takes the organ supps and it helps alot with anxiety.WHen I remove them huge differnece.Anxiety levels rise dramatically.He has ACE deletion according to genetics test.sonsboyssamj wrote: Still looking for some advice. My son deals with much anxiey.You can always tell when he is feeling anxious. His entire body will tense up and he moves around like a robot.He bends his arms with a locked elbow and clenches his fists. This changes dramatically when he is at home or any place he feels a sense of comfort. I really do not want to put him on an anxiety medication, but he is getting ready to start 5th grade and I worry for him. He takes plenty of mag/zinc and tests note all within normal range. We tried GABA with no success. Any advice would be greatly appreciatedLouise "To accomplish great things, we must not only act, wemust dream; not only plan but also believe." Be smarter than spam. See how smart SpamGuard is at giving junk email the boot with the All-new Yahoo! Mail Email and AIM finally together. You've gotta check out free AOL Mail! "To accomplish great things, we must not only act, wemust dream; not only plan but also believe." Ask a question on any topic and get answers from real people. Go to Yahoo! Answers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2007 Report Share Posted September 3, 2007 OraLiv OraPancreas OraKidney AND OraPlacenta,Adren80JSJLPB@... wrote: Hi Thanks, what are organ supps? Louise Louise, Look into Yasko protocol for anxiety.My son takes the organ supps and it helps alot with anxiety.WHen I remove them huge differnece.Anxiety levels rise dramatically.He has ACE deletion according to genetics test. Re: anxiety Louise, Look into Yasko protocol for anxiety.My son takes the organ supps and it helps alot with anxiety.WHen I remove them huge differnece.Anxiety levels rise dramatically.He has ACE deletion according to genetics test.sonsboyssamj wrote: Still looking for some advice. My son deals with much anxiey.You can always tell when he is feeling anxious. His entire body will tense up and he moves around like a robot.He bends his arms with a locked elbow and clenches his fists. This changes dramatically when he is at home or any place he feels a sense of comfort. I really do not want to put him on an anxiety medication, but he is getting ready to start 5th grade and I worry for him. He takes plenty of mag/zinc and tests note all within normal range. We tried GABA with no success. Any advice would be greatly appreciatedLouise "To accomplish great things, we must not only act, wemust dream; not only plan but also believe." Be smarter than spam. See how smart SpamGuard is at giving junk email the boot with the All-new Yahoo! Mail Email and AIM finally together. You've gotta check out free AOL Mail! "To accomplish great things, we must not only act, wemust dream; not only plan but also believe." Be smarter than spam. See how smart SpamGuard is at giving junk email the boot with the All-new Yahoo! Mail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2007 Report Share Posted September 3, 2007 we also use 5HTP and tyrosine.JSJLPB@... wrote: Hi Thanks, what are organ supps? Louise Louise, Look into Yasko protocol for anxiety.My son takes the organ supps and it helps alot with anxiety.WHen I remove them huge differnece.Anxiety levels rise dramatically.He has ACE deletion according to genetics test. Re: anxiety Louise, Look into Yasko protocol for anxiety.My son takes the organ supps and it helps alot with anxiety.WHen I remove them huge differnece.Anxiety levels rise dramatically.He has ACE deletion according to genetics test.sonsboyssamj wrote: Still looking for some advice. My son deals with much anxiey.You can always tell when he is feeling anxious. His entire body will tense up and he moves around like a robot.He bends his arms with a locked elbow and clenches his fists. This changes dramatically when he is at home or any place he feels a sense of comfort. I really do not want to put him on an anxiety medication, but he is getting ready to start 5th grade and I worry for him. He takes plenty of mag/zinc and tests note all within normal range. We tried GABA with no success. Any advice would be greatly appreciatedLouise "To accomplish great things, we must not only act, wemust dream; not only plan but also believe." Be smarter than spam. See how smart SpamGuard is at giving junk email the boot with the All-new Yahoo! Mail Email and AIM finally together. You've gotta check out free AOL Mail! "To accomplish great things, we must not only act, wemust dream; not only plan but also believe." Be smarter than spam. See how smart SpamGuard is at giving junk email the boot with the All-new Yahoo! Mail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2007 Report Share Posted September 3, 2007 One of the best ways to reduce anxiety is MB12 Nasal Spray. If you are a responder we consistantly see stress levels go WAY down. Rather than start with messing with tryptophan I would work to improve methylation. MB12 can be amazing with anxiety. - Stan > > Still looking for some advice. My son deals with much anxiey.You can > always tell when he is feeling anxious. His entire body will tense up > and he moves around like a robot.He bends his arms with a locked elbow > and clenches his fists. This changes dramatically when he is at home > or any place he feels a sense of comfort. I really do not want to put > him on an anxiety medication, but he is getting ready to start 5th > grade and I worry for him. He takes plenty of mag/zinc and tests note > all within normal range. We tried GABA with no success. > > Any advice would be greatly appreciated > Louise > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2007 Report Share Posted September 3, 2007 Hi Louise from Sue, I found the following wonderful for my anxiety.. as well as focus and depression) 1. MB12 nasal spray..original dose... 1250 mcg plus 300 mcg between 1 squirt to 6 squirts per day. But If I take the juice below... then I don't need much MB12 at all... sometimes just a few squirts per week. 2. 1/3 cup 2-3times per day of Monavie active juice. ( Monavie has all the amino acids in it.. plus 90 % of the nutrients needed to help most spectrum disorders according to my muscle testing.) This summer on vacation I ran out of MonaVie juice and within days I had a panic anxiety attack in the car when I was trying to get gas while using a relatives car that I didn't know well. The baby lock device in the car... was on and I didn't know how to undo it... so I was locked in the car with a terrible rush of Panic..and thought I would suffocate...and die... Thanks goodness a man next to me opened the door from the outside...and told me about the locking device... Then the next day... I had to fly home and those feelings came back when I was packed in the plane like a sardine.. I was so glad to get home and take large amts. of Monavie... Iv'e been better since I continue to take it every day as well as the MB12 nasal spray... per muscle testing. Hope that helps, Sue anxiety Posted by: "sonsboyssamj" JSJLPB@... sonsboyssamj Mon Sep 3, 2007 2:58 pm (PST) Still looking for some advice. My son deals with much anxiey.You can always tell when he is feeling anxious. His entire body will tense up and he moves around like a robot.He bends his arms with a locked elbow and clenches his fists. This changes dramatically when he is at home or any place he feels a sense of comfort. I really do not want to put him on an anxiety medication, but he is getting ready to start 5th grade and I worry for him. He takes plenty of mag/zinc and tests note all within normal range. We tried GABA with no success. Any advice would be greatly appreciatedLouise Back to top Reply to sender | Reply to group | Reply via web post Messages in this topic (3) 11b. Re: anxiety Posted by: "Nikki Barbieri" nikkibarbieri@... nikkibarbieri Mon Sep 3, 2007 3:06 pm (PST) Louise,Look into Yasko protocol for anxiety.My son takes the organ supps and it helps alot with anxiety.WHen I remove them huge differnece.Anxiety levels rise dramatically.He has ACE deletion according to genetics test.sonsboyssamj wrote:Still looking for some advice. My son deals with much anxiey.You can always tell when he is feeling anxious. His entire body will tense up and he moves around like a robot.He bends his arms with a locked elbow and clenches his fists. This changes dramatically when he is at home or any place he feels a sense of comfort. I really do not want to put him on an anxiety medication, but he is getting ready to start 5th grade and I worry for him. He takes plenty of mag/zinc and tests note all within normal range. We tried GABA with no success. Any advice would be greatly appreciatedLouise"To accomplish great things, we must not only act, wemust dream; not only plan but also believe."---------------------------------Be smarter than spam. See how smart SpamGuard is at giving junk email the boot with the All-new Yahoo! Mail Back to top Reply to sender | Reply to group | Reply via web post Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2007 Report Share Posted September 3, 2007 Thank you, we had been doing the injections for about 2 years religiously, and then ordered the spray, however we had not been consistent with daily squirts. I will give it a try this week. Thank you, Louise One of the best ways to reduce anxiety is MB12 Nasal Spray. If you are a responder we consistantly see stress levels go WAY down. Re: anxiety One of the best ways to reduce anxiety is MB12 Nasal Spray. If you are a responder we consistantly see stress levels go WAY down. Rather than start with messing with tryptophan I would work to improve methylation. MB12 can be amazing with anxiety. - Stan > > Still looking for some advice. My son deals with much anxiey.You can > always tell when he is feeling anxious. His entire body will tense up > and he moves around like a robot.He bends his arms with a locked elbow > and clenches his fists. This changes dramatically when he is at home > or any place he feels a sense of comfort. I really do not want to put > him on an anxiety medication, but he is getting ready to start 5th > grade and I worry for him. He takes plenty of mag/zinc and tests note > all within normal range. We tried GABA with no success. > > Any advice would be greatly appreciated > Louise > Email and AIM finally together. You've gotta check out free AOL Mail! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2007 Report Share Posted September 4, 2007 Hi Nikki, Can you tell me which brands of these supplements you use and how much? My son also has the ACE deletion and is on Zoloft but I hate giving it to him! We haven't seen much success yet with the Yasko protocol, but are just beginning the organ support supplements. Now my 9 yo NT daughter (or I always THOUGHT she was NT) is having anxiety about strange things...maps freak her out " because everything is so far away " , and the ceilings of stores are " Too high up''. I'm really worried, now more about her than him! Thank you! Patty > >Reply-To: mb12 valtrex >To: mb12 valtrex >Subject: Re: anxiety >Date: Mon, 3 Sep 2007 19:25:17 -0400 (EDT) > >we also use 5HTP and tyrosine. > >JSJLPB@... wrote: Hi > Thanks, what are organ supps? > > Louise > > Louise, > > Look into Yasko protocol for anxiety.My son takes the organ supps and it >helps alot with anxiety.WHen I remove them huge differnece.Anxiety levels >rise dramatically.He has ACE deletion according to genetics test. > > > > > > > > > Re: anxiety > > Louise, > > Look into Yasko protocol for anxiety.My son takes the organ supps and it >helps alot with anxiety.WHen I remove them huge differnece.Anxiety levels >rise dramatically.He has ACE deletion according to genetics test. > >sonsboyssamj wrote: > Still looking for some advice. My son deals with much anxiey.You can >always tell when he is feeling anxious. His entire body will tense up >and he moves around like a robot.He bends his arms with a locked elbow >and clenches his fists. This changes dramatically when he is at home >or any place he feels a sense of comfort. I really do not want to put >him on an anxiety medication, but he is getting ready to start 5th >grade and I worry for him. He takes plenty of mag/zinc and tests note >all within normal range. We tried GABA with no success. > >Any advice would be greatly appreciated >Louise > > > > > > > > " To accomplish great things, we must not only act, we >must dream; not only plan but also believe. " > > > >--------------------------------- > Be smarter than spam. See how smart SpamGuard is at giving junk email >the boot with the All-new Yahoo! Mail > > > >--------------------------------- > Email and AIM finally together. You've gotta check out free AOL Mail! > > > > > > > > > > > > " To accomplish great things, we must not only act, we >must dream; not only plan but also believe. " > > > > >--------------------------------- >Be smarter than spam. See how smart SpamGuard is at giving junk email the >boot with the All-new Yahoo! Mail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2007 Report Share Posted September 4, 2007 Hi Louise, I can relate. Anxiety used to be a huge issue for my ASD son, now 15. For some weird, strange or unfathomable reason, I had the idea in my head while he was younger, putting him on “prescription meds” for anything related to anxiety was just verboten! I don’t know why I thought that it might be okay when he got older if he needed it, but I was bound and determined to go as “naturopathically” as possible to deal with all our Autism issues. Anyway, the year he was 9, his anxiety just rose and rose and rose and…. You get the idea. We tried everything – GABA, 5HTP, Epsom salt baths, diets, creams, rubs, shots etc. There was no relief for my son. Finally, our DAN doc at that time (we’ve moved since) said to me, “Listen, when I told you he was Hashimoto’s +, you were okay with him taking Cytomel,; when I told you he was Myelin Basic Protein Antibody +, you were okay with him getting IVIG; any other thing I’ve told you that your son has tested + or shown symptoms of, you’ve been okay with the pharmaceutical plan. If I told you he’d tested + for Diabetes and you tried every diet alteration imaginable to control it and you couldn’t, would you be as adamant about not giving him Insulin as you are about NOT giving him some kind of SSRI” [selective serotonin reuptake inhibitors]? I just sat there for a few minutes and looked at him with mouth agape. Why was I so adamant my son would not have these meds? The stigma, I think. The thought that we’d have a 9 year old on some kind of “psych drug” just scared the crap out of us. Then I decided I had to put my agenda in a “griefcase” and put the case outside the door. My hubby agreed wasn’t fair to our son to not try something new that could possibly help him because of us. We started with a small amount of Paxil over the Christmas break ~ if he was going to react badly, we wanted that to happen at home. When he went back to school, the teachers noticed an immediate difference, not only in his anxiety level, but also in his ability to focus and stay on task. That went from being a couple of seconds of duration to being a couple of minutes of duration. We increased it gradually over a 2 year period to 20 mg. and he’s been on that dose for about 4 years. We know there have been news briefs, scares and concerns about Paxil, but we haven’t had any problems so far [touch wood ~ tapping my head]! We did start to notice at the beginning of this year that his anxiety level seemed to be rising again. He’d had a growth and weight gain over those years and we thought maybe 20 mg. wasn’t enough for him anymore. Again, we were leery of increasing the dose at such a young age ~ 14. When we spoke to our new DAN doc about it, she’d noticed his rise in anxiety too. Rather than just increasing the dose, she did some lab work and lo and behold, his Seratonin level [which had been okayish in the past] was almost non-existent. SSRI’s just seem to work better when there is some Seratonin to inhibit its reuptake ~ doncha think?!?!! So, over the last few months we started with 5HTP again in 50 mg increments. Our DAN doc told us she expected him to be a tough nut to crack and he might need a really high dose of 5HTP. We’re at 600 mg per day and, although he’s improved, we’re still not were he needs to be yet. I‘ll share with you a little anecdote from over our weekend. He and his Dad got into a tiff – I don’t know what it was about. My husband was so angry with him, he didn’t talk to our son [1st time ever!]. Our son picked up on that and said, “Dad, are you giving me the silent treatment”? No answer from Dad. “Well, that’s not very mature”! Still no answer from Dad. ‘Oh yeah, well 2 can play at that game ~ let’s see how you like the silent treatment”!! Away he went. My husband and I almost fell down we were laughing so hard once he left the room. Of course, then I nearly beat my hubby with a broom handle for acting so “maturely”!!! About 2 hours later, our son comes in and says to his Dad, “Well have you learned your lesson”? Dad said he did, they talked over why the hubby was so mad at him and there were apologies and hugs all around. Just as our son was leaving the room, he turned and said to his Dad, “Sorry I had to be so hard on you and give you the silent treatment back, but sometimes you have to be a little harsh to teach a Dad a lesson”. We were amazed!! I’m not advocating medications for anyone. This is sharing only what our situation is like. Talk over your all options with your doc! Best wishes with the choices and the plan you make, Lesa. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2007 Report Share Posted September 4, 2007 Anxiety is interesting: mine went away once with motion sickness shiatsu at the point used by the wrist band; at much less cost. I had been making sure of not getting sick while waiting to take off from Heathrow in an approaching winter " Hurricane. " The retreat of anxiety was a side benefit: interesting. It went away more deeply and permanently with chelation by DMSA + selenium and vitamins. If my anxiety came back I'd get to my heavy metal cocktail with all the chelation tricks I know, because multiple pathways seems to work better than one single " Best Chelator; " which is zeeolites, for me, now. I don't give up the old vitamin and mineral routine with garlic, to boost glutathione production, just because of having found a new miracle cure. Another way to deal with anxiety is to change the mind and body chemistry with de Bono's 'Six Thinking Hats' or his CoRT Thinking perspectives. That may only take 20 minutes and can then be followed up with chemistry, Bob McCluskey wrote: > > Hi Nikki, > > Can you tell me which brands of these supplements you use and how > much? My > son also has the ACE deletion and is on Zoloft but I hate giving it to > him! > We haven't seen much success yet with the Yasko protocol, but are just > beginning the organ support supplements. > > Now my 9 yo NT daughter (or I always THOUGHT she was NT) is having > anxiety > about strange things...maps freak her out " because everything is so far > away " , and the ceilings of stores are " Too high up''. I'm really worried, > now more about her than him! > > Thank you! > > Patty > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2007 Report Share Posted September 4, 2007 > > I just sat there for a few minutes and looked at him > with mouth agape. Why was I so adamant my son would not have these > meds? The stigma, I think. The thought that we’d have a 9 year old > on some kind of “psych drug” just scared the crap out of us. Then I > decided I had to put my agenda in a “griefcase” and put the case > outside the door. My hubby agreed wasn’t fair to our son to not > try something new that could possibly help him because of us. I think this is our society. We have a biomedical community that is deeply divided between the use of meds and no meds. There is a stigma attached whether you are an ASD parent or not and then to have this division in our own community makes it even harder to feel guilt free about doing meds. I know when my son started zoloft, I wasn't afraid of the drug (although I was very cautious and watched for reactions) but I was more wracked with guilt that people lay on. I did a little DAN! and it didn't work. I still toss a few DAN! type things every once in a while only to watch them fail but hey, I do consider what works for others and if I think it's worth trying, I do. But that's not the protocol for us. By far, every one of Gryffin's interventions that has worked and given us great results has been a med. Valtrex/Nizoral/zoloft/erythromycin. Going on meds is a difficult choice to make and it's not made any easier with all those that want to " teach " you how awful they are. > > > We know there have been news briefs, scares and > concerns about Paxil, but we haven’t had any problems so far [touch > wood ~ tapping my head]! This drives me crazy. Every time I see someone post about the black box warning on Paxil it makes the hairs on my back stand up. Not because it isn't true, but because it's misused. People want to use that warning to further drive home their own beliefs that meds should be avoided at all costs. Well, the fact is, most doctors Rx Paxil (or any other ssri) at full dose. They don't work their way up to full dose to avoid shocking the system into these horrible side effects. No, it's not for everyone, but to scare people out of their minds to try something that may be highly beneficial astounds me. *All* ssri's have this potential. And they like to site the study showing that kids are the ones that react this way when the truth of the matter is that *anyone*, child or adult, can have this reaction. I know of several people that have been put on an ssri at full dose and had horrible aggression, thoughts, etc. and then restarted and worked their way up to their full dose and it worked out just fine. It's not just the drugs that you need to worry about, it's the doctor prescribing them. Don't get me wrong, I think that it's not an easy choice, there are dangers and you have to take precautions, but I hate that the information is misused and misrepresented. > > I’m not advocating medications for anyone. This is > sharing only what our situation is like. Talk over your all options > with your doc! I'm not advocating meds for everyone, either. I just think that the guilt trips are too easy for people to throw out for making or considering meds. I loved your recap of your son's conversation! Too cute! Cheryl > > > Best wishes with the choices and the plan you make, > > Lesa. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2007 Report Share Posted September 5, 2007 Well said....take it from someone who has been around the block a few times....We had no choice..we would not be here nor my son if we didnt make some hard decisions about medications....We didnt like it but it was necessary...Eileen Be a better Globetrotter. Get better travel answers from someone who knows.Yahoo! Answers - Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2007 Report Share Posted September 5, 2007 Hi Lesa I loved this story too....I used 5HTP just recently for my son...got up to 150mg spread thru the day and he did beautifully on it...did not decrease the OCD but the anxiety was non existent....he is also on antipsychiotics...anyway...I had to stop 5HTP because we started seeing a big slide in aggression.. So i did some digging and the one antipsychotic he is on is an antagonist of serotonin....now the 5HTP is increasing serotonin...so I figured one was fighting the other.. I am a bit tempted to stop antipsychotic to see if just 5HTP would help but I have to say i am more than scared...he is VERY aggressive without it... Eileen > > Hi Louise, > > > > I can relate. Anxiety used to be a huge issue for my ASD son, > now 15. For some weird, strange or unfathomable reason, I had the idea in > my head while he was younger, putting him on " prescription meds " for > anything related to anxiety was just verboten! I don't know why I thought > that it might be okay when he got older if he needed it, but I was bound and > determined to go as " naturopathically " as possible to deal with all our > Autism issues. > > > > Anyway, the year he was 9, his anxiety just rose and rose and > rose and.. You get the idea. We tried everything - GABA, 5HTP, Epsom salt > baths, diets, creams, rubs, shots etc. There was no relief for my son. > > > > Finally, our DAN doc at that time (we've moved since) said to > me, " Listen, when I told you he was Hashimoto's +, you were okay with him > taking Cytomel,; when I told you he was Myelin Basic Protein Antibody +, you > were okay with him getting IVIG; any other thing I've told you that your son > has tested + or shown symptoms of, you've been okay with the pharmaceutical > plan. If I told you he'd tested + for Diabetes and you tried every diet > alteration imaginable to control it and you couldn't, would you be as > adamant about not giving him Insulin as you are about NOT giving him some > kind of SSRI " [selective serotonin reuptake inhibitors]? > > > > I just sat there for a few minutes and looked at him with mouth > agape. Why was I so adamant my son would not have these meds? The stigma, I > think. The thought that we'd have a 9 year old on some kind of " psych drug " > just scared the crap out of us. Then I decided I had to put my agenda in a > " griefcase " and put the case outside the door. My hubby agreed wasn't fair > to our son to not try something new that could possibly help him because of > us. > > > > We started with a small amount of Paxil over the Christmas break > ~ if he was going to react badly, we wanted that to happen at home. When he > went back to school, the teachers noticed an immediate difference, not only > in his anxiety level, but also in his ability to focus and stay on task. > That went from being a couple of seconds of duration to being a couple of > minutes of duration. We increased it gradually over a 2 year period to 20 > mg. and he's been on that dose for about 4 years. > > > > We know there have been news briefs, scares and concerns about > Paxil, but we haven't had any problems so far [touch wood ~ tapping my > head]! We did start to notice at the beginning of this year that his anxiety > level seemed to be rising again. He'd had a growth and weight gain over > those years and we thought maybe 20 mg. wasn't enough for him anymore. > Again, we were leery of increasing the dose at such a young age ~ 14. When > we spoke to our new DAN doc about it, she'd noticed his rise in anxiety > too. Rather than just increasing the dose, she did some lab work and lo and > behold, his Seratonin level [which had been okayish in the past] was almost > non-existent. > > > > SSRI's just seem to work better when there is some Seratonin to > inhibit its reuptake ~ doncha think?!?!! So, over the last few months we > started with 5HTP again in 50 mg increments. Our DAN doc told us she > expected him to be a tough nut to crack and he might need a really high dose > of 5HTP. We're at 600 mg per day and, although he's improved, we're still > not were he needs to be yet. > > > > I'll share with you a little anecdote from over our weekend. He > and his Dad got into a tiff - I don't know what it was about. My husband was > so angry with him, he didn't talk to our son [1st time ever!]. Our son > picked up on that and said, " Dad, are you giving me the silent treatment " ? > No answer from Dad. " Well, that's not very mature " ! Still no answer from > Dad. 'Oh yeah, well 2 can play at that game ~ let's see how you like the > silent treatment " !! Away he went. My husband and I almost fell down we were > laughing so hard once he left the room. Of course, then I nearly beat my > hubby with a broom handle for acting so " maturely " !!! About 2 hours later, > our son comes in and says to his Dad, " Well have you learned your lesson " ? > Dad said he did, they talked over why the hubby was so mad at him and there > were apologies and hugs all around. Just as our son was leaving the room, he > turned and said to his Dad, " Sorry I had to be so hard on you and give you > the silent treatment back, but sometimes you have to be a little harsh to > teach a Dad a lesson " . We were amazed!! > > > > I'm not advocating medications for anyone. This is sharing only > what our situation is like. Talk over your all options with your doc! > > > > Best wishes with the choices and the plan you make, > > Lesa. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2007 Report Share Posted September 5, 2007 Lesa and Eileen, My son is 20 years old and weighs 160. He is having huge ocd and anxiety issues. He even had a panic attack. He tried 5htp in the past - but only 100mg or so a day. I see that is way too low. We are wondering if we should go with a higher amount of 5htp - I see Lesa that your son is up to 600 mg/day? Is this safe? How many mg/day for 160 lbs? We are also considering the pharmaceutical route (We do not like going pharmaceutical unless it's the last thing available.] I also know there are many ssri's out there. Do you think Paxil is the best for our kids? What do you suggest? I am pushing fish and cod liver oil to him. Lin From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of ebrischouxSent: Wednesday, September 05, 2007 7:15 AMTo: mb12 valtrex Subject: Re:anxiety Hi LesaI loved this story too....I used 5HTP just recently for my son...got up to 150mg spread thru the day and he did beautifully on it...did not decrease the OCD but the anxiety was non existent....he is also on antipsychiotics...anyway...I had to stop 5HTP because we started seeing a big slide in aggression..So i did some digging and the one antipsychotic he is on is an antagonist of serotonin....now the 5HTP is increasing serotonin...so I figured one was fighting the other..I am a bit tempted to stop antipsychotic to see if just 5HTP would help but I have to say i am more than scared...he is VERY aggressive without it...Eileen>> Hi Louise,> > > > I can relate. Anxiety used to be a huge issue for my ASD son,> now 15. For some weird, strange or unfathomable reason, I had the idea in> my head while he was younger, putting him on "prescription meds" for> anything related to anxiety was just verboten! I don't know why I thought> that it might be okay when he got older if he needed it, but I was bound and> determined to go as "naturopathically" as possible to deal with all our> Autism issues. > > > > Anyway, the year he was 9, his anxiety just rose and rose and> rose and.. You get the idea. We tried everything - GABA, 5HTP, Epsom salt> baths, diets, creams, rubs, shots etc. There was no relief for my son. > > > > Finally, our DAN doc at that time (we've moved since) said to> me, "Listen, when I told you he was Hashimoto's +, you were okay with him> taking Cytomel,; when I told you he was Myelin Basic Protein Antibody +, you> were okay with him getting IVIG; any other thing I've told you that your son> has tested + or shown symptoms of, you've been okay with the pharmaceutical> plan. If I told you he'd tested + for Diabetes and you tried every diet> alteration imaginable to control it and you couldn't, would you be as> adamant about not giving him Insulin as you are about NOT giving him some> kind of SSRI" [selective serotonin reuptake inhibitors]? > > > > I just sat there for a few minutes and looked at him with mouth> agape. Why was I so adamant my son would not have these meds? The stigma, I> think. The thought that we'd have a 9 year old on some kind of "psych drug"> just scared the crap out of us. Then I decided I had to put my agenda in a> "griefcase" and put the case outside the door. My hubby agreed wasn't fair> to our son to not try something new that could possibly help him because of> us. > > > > We started with a small amount of Paxil over the Christmas break> ~ if he was going to react badly, we wanted that to happen at home. When he> went back to school, the teachers noticed an immediate difference, not only> in his anxiety level, but also in his ability to focus and stay on task.> That went from being a couple of seconds of duration to being a couple of> minutes of duration. We increased it gradually over a 2 year period to 20> mg. and he's been on that dose for about 4 years. > > > > We know there have been news briefs, scares and concerns about> Paxil, but we haven't had any problems so far [touch wood ~ tapping my> head]! We did start to notice at the beginning of this year that his anxiety> level seemed to be rising again. He'd had a growth and weight gain over> those years and we thought maybe 20 mg. wasn't enough for him anymore.> Again, we were leery of increasing the dose at such a young age ~ 14. When> we spoke to our new DAN doc about it, she'd noticed his rise in anxiety> too. Rather than just increasing the dose, she did some lab work and lo and> behold, his Seratonin level [which had been okayish in the past] was almost> non-existent.> > > > SSRI's just seem to work better when there is some Seratonin to> inhibit its reuptake ~ doncha think?!?!! So, over the last few months we> started with 5HTP again in 50 mg increments. Our DAN doc told us she> expected him to be a tough nut to crack and he might need a really high dose> of 5HTP. We're at 600 mg per day and, although he's improved, we're still> not were he needs to be yet. > > > > I'll share with you a little anecdote from over our weekend. He> and his Dad got into a tiff - I don't know what it was about. My husband was> so angry with him, he didn't talk to our son [1st time ever!]. Our son> picked up on that and said, "Dad, are you giving me the silent treatment"?> No answer from Dad. "Well, that's not very mature"! Still no answer from> Dad. 'Oh yeah, well 2 can play at that game ~ let's see how you like the> silent treatment"!! Away he went. My husband and I almost fell down we were> laughing so hard once he left the room. Of course, then I nearly beat my> hubby with a broom handle for acting so "maturely"!!! About 2 hours later,> our son comes in and says to his Dad, "Well have you learned your lesson"?> Dad said he did, they talked over why the hubby was so mad at him and there> were apologies and hugs all around. Just as our son was leaving the room, he> turned and said to his Dad, "Sorry I had to be so hard on you and give you> the silent treatment back, but sometimes you have to be a little harsh to> teach a Dad a lesson". We were amazed!!> > > > I'm not advocating medications for anyone. This is sharing only> what our situation is like. Talk over your all options with your doc!> > > > Best wishes with the choices and the plan you make,> > Lesa.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2007 Report Share Posted September 5, 2007 you can go much higher than that on 5HTP, but you need a doctor to monitor it and amount. Generally you increase the amount gradually. We are going to go past 300 mg a day for the first time--my grandson only weights 59 pounds. we incrrease it by 50 mg a week. maurineLin S wrote: Lesa and Eileen, My son is 20 years old and weighs 160. He is having huge ocd and anxiety issues. He even had a panic attack. He tried 5htp in the past - but only 100mg or so a day. I see that is way too low. We are wondering if we should go with a higher amount of 5htp - I see Lesa that your son is up to 600 mg/day? Is this safe? How many mg/day for 160 lbs? We are also considering the pharmaceutical route (We do not like going pharmaceutical unless it's the last thing available.] I also know there are many ssri's out there. Do you think Paxil is the best for our kids? What do you suggest? I am pushing fish and cod liver oil to him. Lin From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of ebrischouxSent: Wednesday, September 05, 2007 7:15 AMTo: mb12 valtrex Subject: Re:anxiety Hi LesaI loved this story too....I used 5HTP just recently for my son...got up to 150mg spread thru the day and he did beautifully on it...did not decrease the OCD but the anxiety was non existent....he is also on antipsychiotics...anyway...I had to stop 5HTP because we started seeing a big slide in aggression..So i did some digging and the one antipsychotic he is on is an antagonist of serotonin....now the 5HTP is increasing serotonin...so I figured one was fighting the other..I am a bit tempted to stop antipsychotic to see if just 5HTP would help but I have to say i am more than scared...he is VERY aggressive without it...Eileen>> Hi Louise,> > > > I can relate. Anxiety used to be a huge issue for my ASD son,> now 15. For some weird, strange or unfathomable reason, I had the idea in> my head while he was younger, putting him on "prescription meds" for> anything related to anxiety was just verboten! I don't know why I thought> that it might be okay when he got older if he needed it, but I was bound and> determined to go as "naturopathically" as possible to deal with all our> Autism issues. > > > > Anyway, the year he was 9, his anxiety just rose and rose and> rose and.. You get the idea. We tried everything - GABA, 5HTP, Epsom salt> baths, diets, creams, rubs, shots etc. There was no relief for my son. > > > > Finally, our DAN doc at that time (we've moved since) said to> me, "Listen, when I told you he was Hashimoto's +, you were okay with him> taking Cytomel,; when I told you he was Myelin Basic Protein Antibody +, you> were okay with him getting IVIG; any other thing I've told you that your son> has tested + or shown symptoms of, you've been okay with the pharmaceutical> plan. If I told you he'd tested + for Diabetes and you tried every diet> alteration imaginable to control it and you couldn't, would you be as> adamant about not giving him Insulin as you are about NOT giving him some> kind of SSRI" [selective serotonin reuptake inhibitors]? > > > > I just sat there for a few minutes and looked at him with mouth> agape. Why was I so adamant my son would not have these meds? The stigma, I> think. The thought that we'd have a 9 year old on some kind of "psych drug"> just scared the crap out of us. Then I decided I had to put my agenda in a> "griefcase" and put the case outside the door. My hubby agreed wasn't fair> to our son to not try something new that could possibly help him because of> us. > > > > We started with a small amount of Paxil over the Christmas break> ~ if he was going to react badly, we wanted that to happen at home. When he> went back to school, the teachers noticed an immediate difference, not only> in his anxiety level, but also in his ability to focus and stay on task.> That went from being a couple of seconds of duration to being a couple of> minutes of duration. We increased it gradually over a 2 year period to 20> mg. and he's been on that dose for about 4 years. > > > > We know there have been news briefs, scares and concerns about> Paxil, but we haven't had any problems so far [touch wood ~ tapping my> head]! We did start to notice at the beginning of this year that his anxiety> level seemed to be rising again. He'd had a growth and weight gain over> those years and we thought maybe 20 mg. wasn't enough for him anymore.> Again, we were leery of increasing the dose at such a young age ~ 14. When> we spoke to our new DAN doc about it, she'd noticed his rise in anxiety> too. Rather than just increasing the dose, she did some lab work and lo and> behold, his Seratonin level [which had been okayish in the past] was almost> non-existent.> > > > SSRI's just seem to work better when there is some Seratonin to> inhibit its reuptake ~ doncha think?!?!! So, over the last few months we> started with 5HTP again in 50 mg increments. Our DAN doc told us she> expected him to be a tough nut to crack and he might need a really high dose> of 5HTP. We're at 600 mg per day and, although he's improved, we're still> not were he needs to be yet. > > > > I'll share with you a little anecdote from over our weekend. He> and his Dad got into a tiff - I don't know what it was about. My husband was> so angry with him, he didn't talk to our son [1st time ever!]. Our son> picked up on that and said, "Dad, are you giving me the silent treatment"?> No answer from Dad. "Well, that's not very mature"! Still no answer from> Dad. 'Oh yeah, well 2 can play at that game ~ let's see how you like the> silent treatment"!! Away he went. My husband and I almost fell down we were> laughing so hard once he left the room. Of course, then I nearly beat my> hubby with a broom handle for acting so "maturely"!!! About 2 hours later,> our son comes in and says to his Dad, "Well have you learned your lesson"?> Dad said he did, they talked over why the hubby was so mad at him and there> were apologies and hugs all around. Just as our son was leaving the room, he> turned and said to his Dad, "Sorry I had to be so hard on you and give you> the silent treatment back, but sometimes you have to be a little harsh to> teach a Dad a lesson". We were amazed!!> > > > I'm not advocating medications for anyone. This is sharing only> what our situation is like. Talk over your all options with your doc!> > > > Best wishes with the choices and the plan you make,> > Lesa.> Boardwalk for $500? In 2007? Ha! 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