Guest guest Posted September 5, 2007 Report Share Posted September 5, 2007 Paxil, unlike other ssri's, is designed specifically to help with OCD and panic. We've hit upon a wonderful combination for my 13 year old, 100lb son, blending fish oils, vit c, zinc, magesium, mb12 spray, rotating probiotics and rotating antifungals, Paxil (40mg) and as needed for panic (which is less and less as each day passes) he takes Klonopin 0.5mg. Like so many, I avoided the ssri's and anti-anxiety meds because of their stigma. I tried everything I knew to do, so many good suggestions came from reading this forum but in the end, nothing pulled the trigger for him like adding the pharmaceuticals. Adding them started a cascade of healing that is now beyond obvious in my son...who has his life back, consequently, I have mine back too. The analogy about withholding insulin from a diabetic child is completely accurate with regard to pharmaceuticals for any condition when naturals alone aren't doing it. We try to raise our kids to think for themselves and not be pawns to the opinions of peers, yet many parents watch their kids suffer and are engaged in exactly that..altering our behavior to suit what others believe. I wouldn't part with the naturals that we use, they make a huge impact on his quality of life as do the pharmaceuticals. I feel blessed that both are available to us and that I had the sense to rethink my stance and live up to what I'd long been saying " anything to help him get better. " Best wishes to all, Gayle --- Lin S wrote: > Lesa and Eileen, > > My son is 20 years old and weighs 160. He is having > huge ocd and anxiety > issues. He even had a panic attack. He tried 5htp > in the past - but only > 100mg or so a day. I see that is way too low. We > are wondering if we > should go with a higher amount of 5htp - I see Lesa > that your son is up to > 600 mg/day? Is this safe? How many mg/day for 160 > lbs? We are also > considering the pharmaceutical route (We do not like > going pharmaceutical > unless it's the last thing available.] I also know > there are many ssri's > out there. Do you think Paxil is the best for our > kids? What do you > suggest? I am pushing fish and cod liver oil to > him. > > Lin > > _____ > > From: mb12 valtrex > [mailto:mb12 valtrex ] On > Behalf Of ebrischoux > Sent: Wednesday, September 05, 2007 7:15 AM > To: mb12 valtrex > Subject: Re:anxiety > > > > Hi Lesa > > I loved this story too....I used 5HTP just recently > for my son...got > up to 150mg spread thru the day and he did > beautifully on it...did > not decrease the OCD but the anxiety was non > existent....he is also > on antipsychiotics...anyway...I had to stop 5HTP > because we started > seeing a big slide in aggression.. > > So i did some digging and the one antipsychotic he > is on is an > antagonist of serotonin....now the 5HTP is > increasing serotonin...so > I figured one was fighting the other.. > > I am a bit tempted to stop antipsychotic to see if > just 5HTP would > help but I have to say i am more than scared...he is > VERY aggressive > without it... > > Eileen > > > > > > Hi Louise, > > > > > > > > I can relate. Anxiety used to be a huge issue for > my > ASD son, > > now 15. For some weird, strange or unfathomable > reason, I had the > idea in > > my head while he was younger, putting him on > " prescription meds " for > > anything related to anxiety was just verboten! I > don't know why I > thought > > that it might be okay when he got older if he > needed it, but I was > bound and > > determined to go as " naturopathically " as possible > to deal with all > our > > Autism issues. > > > > > > > > Anyway, the year he was 9, his anxiety just rose > and > rose and > > rose and.. You get the idea. We tried everything - > GABA, 5HTP, > Epsom salt > > baths, diets, creams, rubs, shots etc. There was > no relief for my > son. > > > > > > > > Finally, our DAN doc at that time (we've moved > since) > said to > > me, " Listen, when I told you he was Hashimoto's +, > you were okay > with him > > taking Cytomel,; when I told you he was Myelin > Basic Protein > Antibody +, you > > were okay with him getting IVIG; any other thing > I've told you that > your son > > has tested + or shown symptoms of, you've been > okay with the > pharmaceutical > > plan. If I told you he'd tested + for Diabetes and > you tried every > diet > > alteration imaginable to control it and you > couldn't, would you be > as > > adamant about not giving him Insulin as you are > about NOT giving > him some > > kind of SSRI " [selective serotonin reuptake > inhibitors]? > > > > > > > > I just sat there for a few minutes and looked at > him > with mouth > > agape. Why was I so adamant my son would not have > these meds? The > stigma, I > > think. The thought that we'd have a 9 year old on > some kind > of " psych drug " > > just scared the crap out of us. Then I decided I > had to put my > agenda in a > > " griefcase " and put the case outside the door. My > hubby agreed > wasn't fair > > to our son to not try something new that could > possibly help him > because of > > us. > > > > > > > > We started with a small amount of Paxil over the > Christmas break > > ~ if he was going to react badly, we wanted that > to happen at home. > When he > > went back to school, the teachers noticed an > immediate difference, > not only > > in his anxiety level, but also in his ability to > focus and stay on > task. > > That went from being a couple of seconds of > duration to being a > couple of > > minutes of duration. We increased it gradually > over a 2 year period > to 20 > > mg. and he's been on that dose for about 4 years. > > > > > > > > We know there have been news briefs, scares and > concerns about > > Paxil, but we haven't had any problems so far > [touch wood ~ tapping > my > > head]! We did start to notice at the beginning of > this year that > his anxiety > > level seemed to be rising again. He'd had a growth > and weight gain > over > > those years and we thought maybe 20 mg. wasn't > enough for him > anymore. > > Again, we were leery of increasing the dose at > such a young age ~ > 14. When > > we spoke to our new DAN doc about it, she'd > noticed his rise in > anxiety > > too. Rather than just increasing the dose, she did > some lab work > and lo and > > behold, his Seratonin level [which had been > okayish in the past] > was almost > === message truncated === Gayle Owens, LMT Therapeutic Balance Bodywork Associates 547 W. Lamar Parkway ville, TN 37801 www.gotbba.com ________________________________________________________________________________\ ____ Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user panel and lay it on us. http://surveylink.yahoo.com/gmrs/yahoo_panel_invite.asp?a=7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2007 Report Share Posted September 5, 2007 Hi Lin Can you pinpoint a reason for the OCD/Anxiety? My sons psy said the brain changes from 20-25yrs old....that is why this is coming on now...I dont know if I agree with this.... My son doesnt tolerate SSRI's but another doctor we see says that many times he sees that when the viral load is lessened than the people who did not tolerate the SSRI's now do...so I dont know really..we havent gotten that far into his protocol.... My son is 23 and 185lbs....lost 45 lbs last year....Eileen > > > > Hi Louise, > > > > > > > > I can relate. Anxiety used to be a huge issue for my > ASD son, > > now 15. For some weird, strange or unfathomable reason, I had the > idea in > > my head while he was younger, putting him on " prescription meds " for > > anything related to anxiety was just verboten! I don't know why I > thought > > that it might be okay when he got older if he needed it, but I was > bound and > > determined to go as " naturopathically " as possible to deal with all > our > > Autism issues. > > > > > > > > Anyway, the year he was 9, his anxiety just rose and > rose and > > rose and.. You get the idea. We tried everything - GABA, 5HTP, > Epsom salt > > baths, diets, creams, rubs, shots etc. There was no relief for my > son. > > > > > > > > Finally, our DAN doc at that time (we've moved since) > said to > > me, " Listen, when I told you he was Hashimoto's +, you were okay > with him > > taking Cytomel,; when I told you he was Myelin Basic Protein > Antibody +, you > > were okay with him getting IVIG; any other thing I've told you that > your son > > has tested + or shown symptoms of, you've been okay with the > pharmaceutical > > plan. If I told you he'd tested + for Diabetes and you tried every > diet > > alteration imaginable to control it and you couldn't, would you be > as > > adamant about not giving him Insulin as you are about NOT giving > him some > > kind of SSRI " [selective serotonin reuptake inhibitors]? > > > > > > > > I just sat there for a few minutes and looked at him > with mouth > > agape. Why was I so adamant my son would not have these meds? The > stigma, I > > think. The thought that we'd have a 9 year old on some kind > of " psych drug " > > just scared the crap out of us. Then I decided I had to put my > agenda in a > > " griefcase " and put the case outside the door. My hubby agreed > wasn't fair > > to our son to not try something new that could possibly help him > because of > > us. > > > > > > > > We started with a small amount of Paxil over the > Christmas break > > ~ if he was going to react badly, we wanted that to happen at home. > When he > > went back to school, the teachers noticed an immediate difference, > not only > > in his anxiety level, but also in his ability to focus and stay on > task. > > That went from being a couple of seconds of duration to being a > couple of > > minutes of duration. We increased it gradually over a 2 year period > to 20 > > mg. and he's been on that dose for about 4 years. > > > > > > > > We know there have been news briefs, scares and > concerns about > > Paxil, but we haven't had any problems so far [touch wood ~ tapping > my > > head]! We did start to notice at the beginning of this year that > his anxiety > > level seemed to be rising again. He'd had a growth and weight gain > over > > those years and we thought maybe 20 mg. wasn't enough for him > anymore. > > Again, we were leery of increasing the dose at such a young age ~ > 14. When > > we spoke to our new DAN doc about it, she'd noticed his rise in > anxiety > > too. Rather than just increasing the dose, she did some lab work > and lo and > > behold, his Seratonin level [which had been okayish in the past] > was almost > > non-existent. > > > > > > > > SSRI's just seem to work better when there is some > Seratonin to > > inhibit its reuptake ~ doncha think?!?!! So, over the last few > months we > > started with 5HTP again in 50 mg increments. Our DAN doc told us she > > expected him to be a tough nut to crack and he might need a really > high dose > > of 5HTP. We're at 600 mg per day and, although he's improved, we're > still > > not were he needs to be yet. > > > > > > > > I'll share with you a little anecdote from over our > weekend. He > > and his Dad got into a tiff - I don't know what it was about. My > husband was > > so angry with him, he didn't talk to our son [1st time ever!]. Our > son > > picked up on that and said, " Dad, are you giving me the silent > treatment " ? > > No answer from Dad. " Well, that's not very mature " ! Still no answer > from > > Dad. 'Oh yeah, well 2 can play at that game ~ let's see how you > like the > > silent treatment " !! Away he went. My husband and I almost fell down > we were > > laughing so hard once he left the room. Of course, then I nearly > beat my > > hubby with a broom handle for acting so " maturely " !!! About 2 hours > later, > > our son comes in and says to his Dad, " Well have you learned your > lesson " ? > > Dad said he did, they talked over why the hubby was so mad at him > and there > > were apologies and hugs all around. Just as our son was leaving the > room, he > > turned and said to his Dad, " Sorry I had to be so hard on you and > give you > > the silent treatment back, but sometimes you have to be a little > harsh to > > teach a Dad a lesson " . We were amazed!! > > > > > > > > I'm not advocating medications for anyone. This is > sharing only > > what our situation is like. Talk over your all options with your > doc! > > > > > > > > Best wishes with the choices and the plan you make, > > > > Lesa. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2007 Report Share Posted September 5, 2007 Thanks Gayle My son has tried Zoloft, anafranil, luvox for OCD but none of them helped...Paxil was not mentioned....I have a script for lamictal an anticonvulsant which I have not given him because there is a bad side effect to it that could be life threatening.....I have read some on a new alzeimers drug namenda that seems to help OCD people... I am so confused as to what to do at this point....the OCD is killing all of us ...most of all him....Eileen > > > > > > Hi Louise, > > > > > > > > > > > > I can relate. Anxiety used to be a huge issue for > > my > > ASD son, > > > now 15. For some weird, strange or unfathomable > > reason, I had the > > idea in > > > my head while he was younger, putting him on > > " prescription meds " for > > > anything related to anxiety was just verboten! I > > don't know why I > > thought > > > that it might be okay when he got older if he > > needed it, but I was > > bound and > > > determined to go as " naturopathically " as possible > > to deal with all > > our > > > Autism issues. > > > > > > > > > > > > Anyway, the year he was 9, his anxiety just rose > > and > > rose and > > > rose and.. You get the idea. We tried everything - > > GABA, 5HTP, > > Epsom salt > > > baths, diets, creams, rubs, shots etc. There was > > no relief for my > > son. > > > > > > > > > > > > Finally, our DAN doc at that time (we've moved > > since) > > said to > > > me, " Listen, when I told you he was Hashimoto's +, > > you were okay > > with him > > > taking Cytomel,; when I told you he was Myelin > > Basic Protein > > Antibody +, you > > > were okay with him getting IVIG; any other thing > > I've told you that > > your son > > > has tested + or shown symptoms of, you've been > > okay with the > > pharmaceutical > > > plan. If I told you he'd tested + for Diabetes and > > you tried every > > diet > > > alteration imaginable to control it and you > > couldn't, would you be > > as > > > adamant about not giving him Insulin as you are > > about NOT giving > > him some > > > kind of SSRI " [selective serotonin reuptake > > inhibitors]? > > > > > > > > > > > > I just sat there for a few minutes and looked at > > him > > with mouth > > > agape. Why was I so adamant my son would not have > > these meds? The > > stigma, I > > > think. The thought that we'd have a 9 year old on > > some kind > > of " psych drug " > > > just scared the crap out of us. Then I decided I > > had to put my > > agenda in a > > > " griefcase " and put the case outside the door. My > > hubby agreed > > wasn't fair > > > to our son to not try something new that could > > possibly help him > > because of > > > us. > > > > > > > > > > > > We started with a small amount of Paxil over the > > Christmas break > > > ~ if he was going to react badly, we wanted that > > to happen at home. > > When he > > > went back to school, the teachers noticed an > > immediate difference, > > not only > > > in his anxiety level, but also in his ability to > > focus and stay on > > task. > > > That went from being a couple of seconds of > > duration to being a > > couple of > > > minutes of duration. We increased it gradually > > over a 2 year period > > to 20 > > > mg. and he's been on that dose for about 4 years. > > > > > > > > > > > > We know there have been news briefs, scares and > > concerns about > > > Paxil, but we haven't had any problems so far > > [touch wood ~ tapping > > my > > > head]! We did start to notice at the beginning of > > this year that > > his anxiety > > > level seemed to be rising again. He'd had a growth > > and weight gain > > over > > > those years and we thought maybe 20 mg. wasn't > > enough for him > > anymore. > > > Again, we were leery of increasing the dose at > > such a young age ~ > > 14. When > > > we spoke to our new DAN doc about it, she'd > > noticed his rise in > > anxiety > > > too. Rather than just increasing the dose, she did > > some lab work > > and lo and > > > behold, his Seratonin level [which had been > > okayish in the past] > > was almost > > > === message truncated === > > > Gayle Owens, LMT > Therapeutic Balance Bodywork Associates > 547 W. Lamar Parkway > ville, TN 37801 > > www.gotbba.com > > > > > ______________________________________________________________________ ______________ > Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user panel and lay it on us. http://surveylink.yahoo.com/gmrs/yahoo_panel_invite.asp?a=7 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2007 Report Share Posted September 5, 2007 did you ever test him for PANDAS or try an anti-biotic for that to see if it helps his OCD. ?ebrischoux wrote: Thanks GayleMy son has tried Zoloft, anafranil, luvox for OCD but none of them helped...Paxil was not mentioned....I have a script for lamictal an anticonvulsant which I have not given him because there is a bad side effect to it that could be life threatening.....I have read some on a new alzeimers drug namenda that seems to help OCD people...I am so confused as to what to do at this point....the OCD is killing all of us ...most of all him....Eileen> > >> > > Hi Louise,> > > > > > > > > > > > I can relate. Anxiety used to be a huge issue for> > my > > ASD son,> > > now 15. For some weird, strange or unfathomable> > reason, I had the > > idea in> > > my head while he was younger, putting him on> > "prescription meds" for> > > anything related to anxiety was just verboten! I> > don't know why I > > thought> > > that it might be okay when he got older if he> > needed it, but I was > > bound and> > > determined to go as "naturopathically" as possible> > to deal with all > > our> > > Autism issues. > > > > > > > > > > > > Anyway, the year he was 9, his anxiety just rose> > and > > rose and> > > rose and.. You get the idea. We tried everything -> > GABA, 5HTP, > > Epsom salt> > > baths, diets, creams, rubs, shots etc. There was> > no relief for my > > son. > > > > > > > > > > > > Finally, our DAN doc at that time (we've moved> > since) > > said to> > > me, "Listen, when I told you he was Hashimoto's +,> > you were okay > > with him> > > taking Cytomel,; when I told you he was Myelin> > Basic Protein > > Antibody +, you> > > were okay with him getting IVIG; any other thing> > I've told you that > > your son> > > has tested + or shown symptoms of, you've been> > okay with the > > pharmaceutical> > > plan. If I told you he'd tested + for Diabetes and> > you tried every > > diet> > > alteration imaginable to control it and you> > couldn't, would you be > > as> > > adamant about not giving him Insulin as you are> > about NOT giving > > him some> > > kind of SSRI" [selective serotonin reuptake> > inhibitors]? > > > > > > > > > > > > I just sat there for a few minutes and looked at> > him > > with mouth> > > agape. Why was I so adamant my son would not have> > these meds? The > > stigma, I> > > think. The thought that we'd have a 9 year old on> > some kind > > of "psych drug"> > > just scared the crap out of us. Then I decided I> > had to put my > > agenda in a> > > "griefcase" and put the case outside the door. My> > hubby agreed > > wasn't fair> > > to our son to not try something new that could> > possibly help him > > because of> > > us. > > > > > > > > > > > > We started with a small amount of Paxil over the > > Christmas break> > > ~ if he was going to react badly, we wanted that> > to happen at home. > > When he> > > went back to school, the teachers noticed an> > immediate difference, > > not only> > > in his anxiety level, but also in his ability to> > focus and stay on > > task.> > > That went from being a couple of seconds of> > duration to being a > > couple of> > > minutes of duration. We increased it gradually> > over a 2 year period > > to 20> > > mg. and he's been on that dose for about 4 years. > > > > > > > > > > > > We know there have been news briefs, scares and > > concerns about> > > Paxil, but we haven't had any problems so far> > [touch wood ~ tapping > > my> > > head]! We did start to notice at the beginning of> > this year that > > his anxiety> > > level seemed to be rising again. He'd had a growth> > and weight gain > > over> > > those years and we thought maybe 20 mg. wasn't> > enough for him > > anymore.> > > Again, we were leery of increasing the dose at> > such a young age ~ > > 14. When> > > we spoke to our new DAN doc about it, she'd> > noticed his rise in > > anxiety> > > too. Rather than just increasing the dose, she did> > some lab work > > and lo and> > > behold, his Seratonin level [which had been> > okayish in the past] > > was almost> > > === message truncated ===> > > Gayle Owens, LMT > Therapeutic Balance Bodywork Associates > 547 W. Lamar Parkway > ville, TN 37801 > > www.gotbba.com> > > > > ________________________________________________________________________> Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user panel and lay it on us. http://surveylink.yahoo.com/gmrs/yahoo_panel_invite.asp?a=7> Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user panel and lay it on us. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2007 Report Share Posted September 5, 2007 " The analogy about withholding insulin from a diabetic child is completely accurate... " in many senses: The immediate cure by injecting insulin saves the child's life on the spot; or helps out in digestion, depending on the severity. Some people go into remission of diabetes by attending to their diet. Some of us go into remission of autism by attending to our supplements and diet. Short term, careful, medication leading to long term nutritional plans is a civilised way of looking at it. Gayle Owens wrote: > > Paxil, unlike other ssri's, is designed specifically > to help with OCD and panic. We've hit upon a wonderful > combination for my 13 year old, 100lb son, blending > fish oils, vit c, zinc, magesium, mb12 spray, rotating > probiotics and rotating antifungals, Paxil (40mg) and > as needed for panic (which is less and less as each > day passes) he takes Klonopin 0.5mg. > > Like so many, I avoided the ssri's and anti-anxiety > meds because of their stigma. I tried everything I > knew to do, so many good suggestions came from reading > this forum but in the end, nothing pulled the trigger > for him like adding the pharmaceuticals. Adding them > started a cascade of healing that is now beyond > obvious in my son...who has his life back, > consequently, I have mine back too. > > The analogy about withholding insulin from a diabetic > child is completely accurate with regard to > pharmaceuticals for any condition when naturals alone > aren't doing it. We try to raise our kids to think for > themselves and not be pawns to the opinions of peers, > yet many parents watch their kids suffer and are > engaged in exactly that..altering our behavior to suit > what others believe. > > I wouldn't part with the naturals that we use, they > make a huge impact on his quality of life as do the > pharmaceuticals. I feel blessed that both are > available to us and that I had the sense to rethink my > stance and live up to what I'd long been saying > " anything to help him get better. " > > Best wishes to all, > Gayle > --- Lin S <lasvegasmom@... > <mailto:lasvegasmom%40mindspring.com>> wrote: > > > Lesa and Eileen, > > > > My son is 20 years old and weighs 160. He is having huge ocd and > anxiety issues. He even had a panic attack. He tried 5htp in the past > - but only 100mg or so a day. I see that is way too low. We are > wondering if we should go with a higher amount of 5htp - I see Lesa > that your son is up to 600 mg/day? Is this safe? How many mg/day for > 160 lbs? We are also considering the pharmaceutical route (We do not > like going pharmaceutical unless it's the last thing available.] I > also know there are many ssri's out there. Do you think Paxil is the > best for our kids? What do you suggest? I am pushing fish and cod > liver oil to him. > > > > Lin > > > > _____ > > > > From: mb12 valtrex <mailto:mb12 valtrex%40yahoogroups.com> > > [mailto:mb12 valtrex > <mailto:mb12 valtrex%40yahoogroups.com>] On > > Behalf Of ebrischoux > > Sent: Wednesday, September 05, 2007 7:15 AM > > To: mb12 valtrex <mailto:mb12 valtrex%40yahoogroups.com> > > Subject: Re:anxiety > > > > > > > > Hi Lesa > > > > I loved this story too....I used 5HTP just recently > > for my son.... > > So i did some digging and the one antipsychotic he > > is on is an > > antagonist of serotonin....now the 5HTP is > > increasing serotonin...so > > I figured one was fighting the other.. > > > > I am a bit tempted to stop antipsychotic to see if > > just 5HTP would help but I have to say i am more > > > without it... > > > > Eileen > > > > > > > > > > Hi Louise, > > > > > > I can relate. Anxiety used to be a huge issue for > > my > > ASD son, > > > now 15. For some weird, strange or unfathomable > > reason, I had the > > idea in > > > my head while he was younger, putting him on > > " prescription meds " for > > > anything related to anxiety was just verboten...! > Gayle Owens, LMT > Therapeutic Balance Bodywork Associates > 547 W. Lamar Parkway > ville, TN 37801 > > www.gotbba.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2007 Report Share Posted September 5, 2007 I urge anyone whose child has severe OCD, tics, phobias, sleep problems, and/or obsessions to have a work-up that includes a minimum of : SED rate, c-reactive Protein, antibodies to Ebv, C. pneumonae, C. Difficile, candida, toxoplasmosis strep, HHV6 coxsackie viruses and lyme disease. have a CBC with differential, platelet count and hematocrit done. If ANY of these titres/antibodies are even inching toward the high end of normal, or absent when there should be antibodies, be very suspicious. Any child with a history of regressions or improvement following illnesses or antibiotics needs to be evaluated carefully for subclinical immune weaknesses/ infections auto-immune disease. the treatment for these needn't be invasive or expensive. The methyl B12 is one example of a simple thing that can make a huge difference. Maurine Meleck wrote: did you ever test him for PANDAS or try an anti-biotic for that to see if it helps his OCD. ?ebrischoux <ebrischoux> wrote: Thanks GayleMy son has tried Zoloft, anafranil, luvox for OCD but none of them helped...Paxil was not mentioned....I have a script for lamictal an anticonvulsant which I have not given him because there is a bad side effect to it that could be life threatening.....I have read some on a new alzeimers drug namenda that seems to help OCD people...I am so confused as to what to do at this point....the OCD is killing all of us ...most of all him....Eileen> > >> > > Hi Louise,> > > > > > > > > > > > I can relate. Anxiety used to be a huge issue for> > my > > ASD son,> > > now 15. For some weird, strange or unfathomable> > reason, I had the > > idea in> > > my head while he was younger, putting him on> > "prescription meds" for> > > anything related to anxiety was just verboten! I> > don't know why I > > thought> > > that it might be okay when he got older if he> > needed it, but I was > > bound and> > > determined to go as "naturopathically" as possible> > to deal with all > > our> > > Autism issues. > > > > > > > > > > > > Anyway, the year he was 9, his anxiety just rose> > and > > rose and> > > rose and.. You get the idea. We tried everything -> > GABA, 5HTP, > > Epsom salt> > > baths, diets, creams, rubs, shots etc. There was> > no relief for my > > son. > > > > > > > > > > > > Finally, our DAN doc at that time (we've moved> > since) > > said to> > > me, "Listen, when I told you he was Hashimoto's +,> > you were okay > > with him> > > taking Cytomel,; when I told you he was Myelin> > Basic Protein > > Antibody +, you> > > were okay with him getting IVIG; any other thing> > I've told you that > > your son> > > has tested + or shown symptoms of, you've been> > okay with the > > pharmaceutical> > > plan. If I told you he'd tested + for Diabetes and> > you tried every > > diet> > > alteration imaginable to control it and you> > couldn't, would you be > > as> > > adamant about not giving him Insulin as you are> > about NOT giving > > him some> > > kind of SSRI" [selective serotonin reuptake> > inhibitors]? > > > > > > > > > > > > I just sat there for a few minutes and looked at> > him > > with mouth> > > agape. Why was I so adamant my son would not have> > these meds? The > > stigma, I> > > think. The thought that we'd have a 9 year old on> > some kind > > of "psych drug"> > > just scared the crap out of us. Then I decided I> > had to put my > > agenda in a> > > "griefcase" and put the case outside the door. My> > hubby agreed > > wasn't fair> > > to our son to not try something new that could> > possibly help him > > because of> > > us. > > > > > > > > > > > > We started with a small amount of Paxil over the > > Christmas break> > > ~ if he was going to react badly, we wanted that> > to happen at home. > > When he> > > went back to school, the teachers noticed an> > immediate difference, > > not only> > > in his anxiety level, but also in his ability to> > focus and stay on > > task.> > > That went from being a couple of seconds of> > duration to being a > > couple of> > > minutes of duration. We increased it gradually> > over a 2 year period > > to 20> > > mg. and he's been on that dose for about 4 years. > > > > > > > > > > > > We know there have been news briefs, scares and > > concerns about> > > Paxil, but we haven't had any problems so far> > [touch wood ~ tapping > > my> > > head]! We did start to notice at the beginning of> > this year that > > his anxiety> > > level seemed to be rising again. He'd had a growth> > and weight gain > > over> > > those years and we thought maybe 20 mg. wasn't> > enough for him > > anymore.> > > Again, we were leery of increasing the dose at> > such a young age ~ > > 14. When> > > we spoke to our new DAN doc about it, she'd> > noticed his rise in > > anxiety> > > too. Rather than just increasing the dose, she did> > some lab work > > and lo and> > > behold, his Seratonin level [which had been> > okayish in the past] > > was almost> > > === message truncated ===> > > Gayle Owens, LMT > Therapeutic Balance Bodywork Associates > 547 W. Lamar Parkway > ville, TN 37801 > > www.gotbba.com> > > > > ________________________________________________________________________> Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user panel and lay it on us. http://surveylink.yahoo.com/gmrs/yahoo_panel_invite.asp?a=7> Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user panel and lay it on us. Building a website is a piece of cake. Yahoo! Small Business gives you all the tools to get online. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2007 Report Share Posted September 5, 2007 Yes Maurine....several times...but if it doesnt come up then they wont treat with abx's.... I am working on some of those that you have mentioned....Most I have eliminated already and lyme well.....that's another story....the treatment nearly put him in a mental hospital...the others that are positive are being treated... He was even treated with IVIG for what his doctor felt was refractory autoimmune lyme....or something along those terms...No improvement.....so I am going to keep plugging away at these guys to run the other tests and trying to find some relief for him....Eileen > > > > > > > > Hi Louise, > > > > > > > > > > > > > > > > I can relate. Anxiety used to be a huge issue for > > > my > > > ASD son, > > > > now 15. For some weird, strange or unfathomable > > > reason, I had the > > > idea in > > > > my head while he was younger, putting him on > > > " prescription meds " for > > > > anything related to anxiety was just verboten! I > > > don't know why I > > > thought > > > > that it might be okay when he got older if he > > > needed it, but I was > > > bound and > > > > determined to go as " naturopathically " as possible > > > to deal with all > > > our > > > > Autism issues. > > > > > > > > > > > > > > > > Anyway, the year he was 9, his anxiety just rose > > > and > > > rose and > > > > rose and.. You get the idea. We tried everything - > > > GABA, 5HTP, > > > Epsom salt > > > > baths, diets, creams, rubs, shots etc. There was > > > no relief for my > > > son. > > > > > > > > > > > > > > > > Finally, our DAN doc at that time (we've moved > > > since) > > > said to > > > > me, " Listen, when I told you he was Hashimoto's +, > > > you were okay > > > with him > > > > taking Cytomel,; when I told you he was Myelin > > > Basic Protein > > > Antibody +, you > > > > were okay with him getting IVIG; any other thing > > > I've told you that > > > your son > > > > has tested + or shown symptoms of, you've been > > > okay with the > > > pharmaceutical > > > > plan. If I told you he'd tested + for Diabetes and > > > you tried every > > > diet > > > > alteration imaginable to control it and you > > > couldn't, would you be > > > as > > > > adamant about not giving him Insulin as you are > > > about NOT giving > > > him some > > > > kind of SSRI " [selective serotonin reuptake > > > inhibitors]? > > > > > > > > > > > > > > > > I just sat there for a few minutes and looked at > > > him > > > with mouth > > > > agape. Why was I so adamant my son would not have > > > these meds? The > > > stigma, I > > > > think. The thought that we'd have a 9 year old on > > > some kind > > > of " psych drug " > > > > just scared the crap out of us. Then I decided I > > > had to put my > > > agenda in a > > > > " griefcase " and put the case outside the door. My > > > hubby agreed > > > wasn't fair > > > > to our son to not try something new that could > > > possibly help him > > > because of > > > > us. > > > > > > > > > > > > > > > > We started with a small amount of Paxil over the > > > Christmas break > > > > ~ if he was going to react badly, we wanted that > > > to happen at home. > > > When he > > > > went back to school, the teachers noticed an > > > immediate difference, > > > not only > > > > in his anxiety level, but also in his ability to > > > focus and stay on > > > task. > > > > That went from being a couple of seconds of > > > duration to being a > > > couple of > > > > minutes of duration. We increased it gradually > > > over a 2 year period > > > to 20 > > > > mg. and he's been on that dose for about 4 years. > > > > > > > > > > > > > > > > We know there have been news briefs, scares and > > > concerns about > > > > Paxil, but we haven't had any problems so far > > > [touch wood ~ tapping > > > my > > > > head]! We did start to notice at the beginning of > > > this year that > > > his anxiety > > > > level seemed to be rising again. He'd had a growth > > > and weight gain > > > over > > > > those years and we thought maybe 20 mg. wasn't > > > enough for him > > > anymore. > > > > Again, we were leery of increasing the dose at > > > such a young age ~ > > > 14. When > > > > we spoke to our new DAN doc about it, she'd > > > noticed his rise in > > > anxiety > > > > too. Rather than just increasing the dose, she did > > > some lab work > > > and lo and > > > > behold, his Seratonin level [which had been > > > okayish in the past] > > > was almost > > > > > === message truncated === > > > > > > Gayle Owens, LMT > > Therapeutic Balance Bodywork Associates > > 547 W. Lamar Parkway > > ville, TN 37801 > > > > www.gotbba.com > > > > > > > > > > > __________________________________________________________ > ______________ > > Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s > user panel and lay it on us. > http://surveylink.yahoo.com/gmrs/yahoo_panel_invite.asp?a=7 > > > > > > > > --------------------------------- > Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user panel and lay it on us. > > > > > --------------------------------- > Building a website is a piece of cake. > Yahoo! Small Business gives you all the tools to get online. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2007 Report Share Posted September 5, 2007 we have huge OCD problems as you do and have tried so many things. Next we will try minocyclin(sp). doctor is just going to check on proper dosage before starting. Mauirneebrischoux wrote: Yes Maurine....several times...but if it doesnt come up then they wont treat with abx's....I am working on some of those that you have mentioned....Most I have eliminated already and lyme well.....that's another story....the treatment nearly put him in a mental hospital...the others that are positive are being treated...He was even treated with IVIG for what his doctor felt was refractory autoimmune lyme....or something along those terms...No improvement.....so I am going to keep plugging away at these guys to run the other tests and trying to find some relief for him....Eileen> > > >> > > > Hi Louise,> > > > > > > > > > > > > > > > I can relate. Anxiety used to be a huge issue for> > > my > > > ASD son,> > > > now 15. For some weird, strange or unfathomable> > > reason, I had the > > > idea in> > > > my head while he was younger, putting him on> > > "prescription meds" for> > > > anything related to anxiety was just verboten! I> > > don't know why I > > > thought> > > > that it might be okay when he got older if he> > > needed it, but I was > > > bound and> > > > determined to go as "naturopathically" as possible> > > to deal with all > > > our> > > > Autism issues. > > > > > > > > > > > > > > > > Anyway, the year he was 9, his anxiety just rose> > > and > > > rose and> > > > rose and.. You get the idea. We tried everything -> > > GABA, 5HTP, > > > Epsom salt> > > > baths, diets, creams, rubs, shots etc. There was> > > no relief for my > > > son. > > > > > > > > > > > > > > > > Finally, our DAN doc at that time (we've moved> > > since) > > > said to> > > > me, "Listen, when I told you he was Hashimoto's +,> > > you were okay > > > with him> > > > taking Cytomel,; when I told you he was Myelin> > > Basic Protein > > > Antibody +, you> > > > were okay with him getting IVIG; any other thing> > > I've told you that > > > your son> > > > has tested + or shown symptoms of, you've been> > > okay with the > > > pharmaceutical> > > > plan. If I told you he'd tested + for Diabetes and> > > you tried every > > > diet> > > > alteration imaginable to control it and you> > > couldn't, would you be > > > as> > > > adamant about not giving him Insulin as you are> > > about NOT giving > > > him some> > > > kind of SSRI" [selective serotonin reuptake> > > inhibitors]? > > > > > > > > > > > > > > > > I just sat there for a few minutes and looked at> > > him > > > with mouth> > > > agape. Why was I so adamant my son would not have> > > these meds? The > > > stigma, I> > > > think. The thought that we'd have a 9 year old on> > > some kind > > > of "psych drug"> > > > just scared the crap out of us. Then I decided I> > > had to put my > > > agenda in a> > > > "griefcase" and put the case outside the door. My> > > hubby agreed > > > wasn't fair> > > > to our son to not try something new that could> > > possibly help him > > > because of> > > > us. > > > > > > > > > > > > > > > > We started with a small amount of Paxil over the > > > Christmas break> > > > ~ if he was going to react badly, we wanted that> > > to happen at home. > > > When he> > > > went back to school, the teachers noticed an> > > immediate difference, > > > not only> > > > in his anxiety level, but also in his ability to> > > focus and stay on > > > task.> > > > That went from being a couple of seconds of> > > duration to being a > > > couple of> > > > minutes of duration. We increased it gradually> > > over a 2 year period > > > to 20> > > > mg. and he's been on that dose for about 4 years. > > > > > > > > > > > > > > > > We know there have been news briefs, scares and > > > concerns about> > > > Paxil, but we haven't had any problems so far> > > [touch wood ~ tapping > > > my> > > > head]! We did start to notice at the beginning of> > > this year that > > > his anxiety> > > > level seemed to be rising again. He'd had a growth> > > and weight gain > > > over> > > > those years and we thought maybe 20 mg. wasn't> > > enough for him > > > anymore.> > > > Again, we were leery of increasing the dose at> > > such a young age ~ > > > 14. When> > > > we spoke to our new DAN doc about it, she'd> > > noticed his rise in > > > anxiety> > > > too. Rather than just increasing the dose, she did> > > some lab work > > > and lo and> > > > behold, his Seratonin level [which had been> > > okayish in the past] > > > was almost> > > > > === message truncated ===> > > > > > Gayle Owens, LMT > > Therapeutic Balance Bodywork Associates > > 547 W. Lamar Parkway > > ville, TN 37801 > > > > www.gotbba.com> > > > > > > > > > > __________________________________________________________> ______________> > Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s > user panel and lay it on us. > http://surveylink.yahoo.com/gmrs/yahoo_panel_invite.asp?a=7> >> > > > > > ---------------------------------> Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user panel and lay it on us. > > > > > ---------------------------------> Building a website is a piece of cake. > Yahoo! Small Business gives you all the tools to get online.> Got a little couch potato? Check out fun summer activities for kids. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2007 Report Share Posted September 5, 2007 No, he's not been tested for PANDAs yet, but that's in the near future. He hasn't taken antibiotics From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of Maurine MeleckSent: Wednesday, September 05, 2007 1:22 PMTo: mb12 valtrex Subject: Re: Re:anxiety did you ever test him for PANDAS or try an anti-biotic for that to see if it helps his OCD. ?ebrischoux <ebrischoux> wrote: Thanks GayleMy son has tried Zoloft, anafranil, luvox for OCD but none of them helped...Paxil was not mentioned....I have a script for lamictal an anticonvulsant which I have not given him because there is a bad side effect to it that could be life threatening.....I have read some on a new alzeimers drug namenda that seems to help OCD people...I am so confused as to what to do at this point....the OCD is killing all of us ...most of all him....Eileen> > >> > > Hi Louise,> > > > > > > > > > > > I can relate. Anxiety used to be a huge issue for> > my > > ASD son,> > > now 15. For some weird, strange or unfathomable> > reason, I had the > > idea in> > > my head while he was younger, putting him on> > "prescription meds" for> > > anything related to anxiety was just verboten! I> > don't know why I > > thought> > > that it might be okay when he got older if he> > needed it, but I was > > bound and> > > determined to go as "naturopathically" as possible> > to deal with all > > our> > > Autism issues. > > > > > > > > > > > > Anyway, the year he was 9, his anxiety just rose> > and > > rose and> > > rose and.. You get the idea. We tried everything -> > GABA, 5HTP, > > Epsom salt> > > baths, diets, creams, rubs, shots etc. There was> > no relief for my > > son. > > > > > > > > > > > > Finally, our DAN doc at that time (we've moved> > since) > > said to> > > me, "Listen, when I told you he was Hashimoto's +,> > you were okay > > with him> > > taking Cytomel,; when I told you he was Myelin> > Basic Protein > > Antibody +, you> > > were okay with him getting IVIG; any other thing> > I've told you that > > your son> > > has tested + or shown symptoms of, you've been> > okay with the > > pharmaceutical> > > plan. If I told you he'd tested + for Diabetes and> > you tried every > > diet> > > alteration imaginable to control it and you> > couldn't, would you be > > as> > > adamant about not giving him Insulin as you are> > about NOT giving > > him some> > > kind of SSRI" [selective serotonin reuptake> > inhibitors]? > > > > > > > > > > > > I just sat there for a few minutes and looked at> > him > > with mouth> > > agape. Why was I so adamant my son would not have> > these meds? The > > stigma, I> > > think. The thought that we'd have a 9 year old on> > some kind > > of "psych drug"> > > just scared the crap out of us. Then I decided I> > had to put my > > agenda in a> > > "griefcase" and put the case outside the door. My> > hubby agreed > > wasn't fair> > > to our son to not try something new that could> > possibly help him > > because of> > > us. > > > > > > > > > > > > We started with a small amount of Paxil over the > > Christmas break> > > ~ if he was going to react badly, we wanted that> > to happen at home. > > When he> > > went back to school, the teachers noticed an> > immediate difference, > > not only> > > in his anxiety level, but also in his ability to> > focus and stay on > > task.> > > That went from being a couple of seconds of> > duration to being a > > couple of> > > minutes of duration. We increased it gradually> > over a 2 year period > > to 20> > > mg. and he's been on that dose for about 4 years. > > > > > > > > > > > > We know there have been news briefs, scares and > > concerns about> > > Paxil, but we haven't had any problems so far> > [touch wood ~ tapping > > my> > > head]! We did start to notice at the beginning of> > this year that > > his anxiety> > > level seemed to be rising again. He'd had a growth> > and weight gain > > over> > > those years and we thought maybe 20 mg. wasn't> > enough for him > > anymore.> > > Again, we were leery of increasing the dose at> > such a young age ~ > > 14. When> > > we spoke to our new DAN doc about it, she'd> > noticed his rise in > > anxiety> > > too. Rather than just increasing the dose, she did> > some lab work > > and lo and> > > behold, his Seratonin level [which had been> > okayish in the past] > > was almost> > > === message truncated ===> > > Gayle Owens, LMT > Therapeutic Balance Bodywork Associates > 547 W. Lamar Parkway > ville, TN 37801 > > www.gotbba.com> > > > > ________________________________________________________________________> Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user panel and lay it on us. http://surveylink.yahoo.com/gmrs/yahoo_panel_invite.asp?a=7> Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user panel and lay it on us. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2007 Report Share Posted September 5, 2007 Thank you - I've printed this and added it to the request page I'm presenting to the doc when we see him. Good Stuff. Thanks to all for your input - this is a wonderful group of caring folks. Lin From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of CurtinSent: Wednesday, September 05, 2007 1:43 PMTo: mb12 valtrex Subject: Re: Re:anxiety I urge anyone whose child has severe OCD, tics, phobias, sleep problems, and/or obsessions to have a work-up that includes a minimum of : SED rate, c-reactive Protein, antibodies to Ebv, C. pneumonae, C. Difficile, candida, toxoplasmosis strep, HHV6 coxsackie viruses and lyme disease. have a CBC with differential, platelet count and hematocrit done. If ANY of these titres/antibodies are even inching toward the high end of normal, or absent when there should be antibodies, be very suspicious. Any child with a history of regressions or improvement following illnesses or antibiotics needs to be evaluated carefully for subclinical immune weaknesses/ infections auto-immune disease. the treatment for these needn't be invasive or expensive. The methyl B12 is one example of a simple thing that can make a huge difference. Maurine Meleck <maurine_meleck> wrote: did you ever test him for PANDAS or try an anti-biotic for that to see if it helps his OCD. ?ebrischoux <ebrischoux> wrote: Thanks GayleMy son has tried Zoloft, anafranil, luvox for OCD but none of them helped...Paxil was not mentioned....I have a script for lamictal an anticonvulsant which I have not given him because there is a bad side effect to it that could be life threatening.....I have read some on a new alzeimers drug namenda that seems to help OCD people...I am so confused as to what to do at this point....the OCD is killing all of us ...most of all him....Eileen> > >> > > Hi Louise,> > > > > > > > > > > > I can relate. Anxiety used to be a huge issue for> > my > > ASD son,> > > now 15. For some weird, strange or unfathomable> > reason, I had the > > idea in> > > my head while he was younger, putting him on> > "prescription meds" for> > > anything related to anxiety was just verboten! I> > don't know why I > > thought> > > that it might be okay when he got older if he> > needed it, but I was > > bound and> > > determined to go as "naturopathically" as possible> > to deal with all > > our> > > Autism issues. > > > > > > > > > > > > Anyway, the year he was 9, his anxiety just rose> > and > > rose and> > > rose and.. You get the idea. We tried everything -> > GABA, 5HTP, > > Epsom salt> > > baths, diets, creams, rubs, shots etc. There was> > no relief for my > > son. > > > > > > > > > > > > Finally, our DAN doc at that time (we've moved> > since) > > said to> > > me, "Listen, when I told you he was Hashimoto's +,> > you were okay > > with him> > > taking Cytomel,; when I told you he was Myelin> > Basic Protein > > Antibody +, you> > > were okay with him getting IVIG; any other thing> > I've told you that > > your son> > > has tested + or shown symptoms of, you've been> > okay with the > > pharmaceutical> > > plan. If I told you he'd tested + for Diabetes and> > you tried every > > diet> > > alteration imaginable to control it and you> > couldn't, would you be > > as> > > adamant about not giving him Insulin as you are> > about NOT giving > > him some> > > kind of SSRI" [selective serotonin reuptake> > inhibitors]? > > > > > > > > > > > > I just sat there for a few minutes and looked at> > him > > with mouth> > > agape. Why was I so adamant my son would not have> > these meds? The > > stigma, I> > > think. The thought that we'd have a 9 year old on> > some kind > > of "psych drug"> > > just scared the crap out of us. Then I decided I> > had to put my > > agenda in a> > > "griefcase" and put the case outside the door. My> > hubby agreed > > wasn't fair> > > to our son to not try something new that could> > possibly help him > > because of> > > us. > > > > > > > > > > > > We started with a small amount of Paxil over the > > Christmas break> > > ~ if he was going to react badly, we wanted that> > to happen at home. > > When he> > > went back to school, the teachers noticed an> > immediate difference, > > not only> > > in his anxiety level, but also in his ability to> > focus and stay on > > task.> > > That went from being a couple of seconds of> > duration to being a > > couple of> > > minutes of duration. We increased it gradually> > over a 2 year period > > to 20> > > mg. and he's been on that dose for about 4 years. > > > > > > > > > > > > We know there have been news briefs, scares and > > concerns about> > > Paxil, but we haven't had any problems so far> > [touch wood ~ tapping > > my> > > head]! We did start to notice at the beginning of> > this year that > > his anxiety> > > level seemed to be rising again. He'd had a growth> > and weight gain > > over> > > those years and we thought maybe 20 mg. wasn't> > enough for him > > anymore.> > > Again, we were leery of increasing the dose at> > such a young age ~ > > 14. When> > > we spoke to our new DAN doc about it, she'd> > noticed his rise in > > anxiety> > > too. Rather than just increasing the dose, she did> > some lab work > > and lo and> > > behold, his Seratonin level [which had been> > okayish in the past] > > was almost> > > === message truncated ===> > > Gayle Owens, LMT > Therapeutic Balance Bodywork Associates > 547 W. Lamar Parkway > ville, TN 37801 > > www.gotbba.com> > > > > ________________________________________________________________________> Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user panel and lay it on us. http://surveylink.yahoo.com/gmrs/yahoo_panel_invite.asp?a=7> Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user panel and lay it on us. Building a website is a piece of cake. Yahoo! Small Business gives you all the tools to get online. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2007 Report Share Posted September 5, 2007 That's interesting Maurine....What is the reasoning for the minocycline? Sorry I am not up on that one.......My son was on it for lyme....but no improvements for him....he was on it for 3 months i believe... It is so hard and so sad and disheartening when you try everything and nothing is helping.....gheeze even the drugs!!!!!!!!!!! I did look up his tests and the only one that was not run was toxoplasmosis...Which i wanted to ask for the last phone consult but forgot....i wont forget this time...LOL....Eileen Shape Yahoo! in your own image. Join our Network Research Panel today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2007 Report Share Posted September 5, 2007 because azithromyacin didn't work for OCD and I have read of some posts where people said that anti-biotic helped their child's OCD.Eileen Brischoux wrote: That's interesting Maurine....What is the reasoning for the minocycline? Sorry I am not up on that one.......My son was on it for lyme....but no improvements for him....he was on it for 3 months i believe... It is so hard and so sad and disheartening when you try everything and nothing is helping.....gheeze even the drugs!!!!!!!!!!! I did look up his tests and the only one that was not run was toxoplasmosis...Which i wanted to ask for the last phone consult but forgot....i wont forget this time...LOL....Eileen Shape Yahoo! in your own image. Join our Network Research Panel today! Ready for the edge of your seat? Check out tonight's top picks on Yahoo! TV. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2007 Report Share Posted September 5, 2007 Eileen, Just wanted to throw this out there regarding a big turning point in my son's ocd and anxiety. Prior to Paxil (which was Rx'd by his DAN!), we tried Zoloft on 2 separate 90 day course occasions (Rx'd by his ped before we had a DAN!) and it didn't dent it. While my son meets all the classic criteria for PANDAS, antibiotics didn't have any effect on lessening symptoms. His ASO and Anti-DNaseB titers were through the roof. Before we could move forward with considering IVIG, we started a short course of Diflucan since he was showing hard signs of yeast. Nothing during the first 7 days but by day 10 there was a considerable lessening of symptoms. In the end he would be on it for 40 days before his DAN! insisted we switch to naturals. There is a DEFINITIVE link between his yeasty gut and his ocd/anxiety. We meet with his DAN! again next week and I will be asking if we can rotate Diflucan in for a week every month alongside his other natural antifungals. My son's gut protocol is every bit as important as the ssri he takes. Organic kefir, reduced dairy & sugar, probiotics, natural antifungals, lots of water, epsom salts baths when things are really bad, at least 9 hrs of sleep per night. These things all set the stage, the Paxil and occasional Klonopin leveled the playing field for him. You can't teach coping mechanisms to someone in panic. Taking the edge off gave him the relief he needed to relax, build and apply the coping mechanisms necessary to reach his full potential. I'm quite certain that the Paxil/Klonopin therapy wouldn't have been so successful had we not cleaned up his gut first and keeping his gut in order has become a matter of discipline and changing some eating habits for the better. If the ocd/anxiety left today and never returned, we'd still be applying a healthy gut way of life. Best wishes to you and your son. GayleMaurine Meleck wrote: we have huge OCD problems as you do and have tried so many things. Next we will try minocyclin(sp). doctor is just going to check on proper dosage before starting. Mauirneebrischoux <ebrischoux> wrote: Yes Maurine....several times...but if it doesnt come up then they wont treat with abx's....I am working on some of those that you have mentioned....Most I have eliminated already and lyme well.....that's another story....the treatment nearly put him in a mental hospital...the others that are positive are being treated...He was even treated with IVIG for what his doctor felt was refractory autoimmune lyme....or something along those terms...No improvement.....so I am going to keep plugging away at these guys to run the other tests and trying to find some relief for him....Eileen> > > >> > > > Hi Louise,> > > > > > > > > > > > > > > > I can relate. Anxiety used to be a huge issue for> > > my > > > ASD son,> > > > now 15. For some weird, strange or unfathomable> > > reason, I had the > > > idea in> > > > my head while he was younger, putting him on> > > "prescription meds" for> > > > anything related to anxiety was just verboten! I> > > don't know why I > > > thought> > > > that it might be okay when he got older if he> > > needed it, but I was > > > bound and> > > > determined to go as "naturopathically" as possible> > > to deal with all > > > our> > > > Autism issues. > > > > > > > > > > > > > > > > Anyway, the year he was 9, his anxiety just rose> > > and > > > rose and> > > > rose and.. You get the idea. We tried everything -> > > GABA, 5HTP, > > > Epsom salt> > > > baths, diets, creams, rubs, shots etc. There was> > > no relief for my > > > son. > > > > > > > > > > > > > > > > Finally, our DAN doc at that time (we've moved> > > since) > > > said to> > > > me, "Listen, when I told you he was Hashimoto's +,> > > you were okay > > > with him> > > > taking Cytomel,; when I told you he was Myelin> > > Basic Protein > > > Antibody +, you> > > > were okay with him getting IVIG; any other thing> > > I've told you that > > > your son> > > > has tested + or shown symptoms of, you've been> > > okay with the > > > pharmaceutical> > > > plan. If I told you he'd tested + for Diabetes and> > > you tried every > > > diet> > > > alteration imaginable to control it and you> > > couldn't, would you be > > > as> > > > adamant about not giving him Insulin as you are> > > about NOT giving > > > him some> > > > kind of SSRI" [selective serotonin reuptake> > > inhibitors]? > > > > > > > > > > > > > > > > I just sat there for a few minutes and looked at> > > him > > > with mouth> > > > agape. Why was I so adamant my son would not have> > > these meds? The > > > stigma, I> > > > think. The thought that we'd have a 9 year old on> > > some kind > > > of "psych drug"> > > > just scared the crap out of us. Then I decided I> > > had to put my > > > agenda in a> > > > "griefcase" and put the case outside the door. My> > > hubby agreed > > > wasn't fair> > > > to our son to not try something new that could> > > possibly help him > > > because of> > > > us. > > > > > > > > > > > > > > > > We started with a small amount of Paxil over the > > > Christmas break> > > > ~ if he was going to react badly, we wanted that> > > to happen at home. > > > When he> > > > went back to school, the teachers noticed an> > > immediate difference, > > > not only> > > > in his anxiety level, but also in his ability to> > > focus and stay on > > > task.> > > > That went from being a couple of seconds of> > > duration to being a > > > couple of> > > > minutes of duration. We increased it gradually> > > over a 2 year period > > > to 20> > > > mg. and he's been on that dose for about 4 years. > > > > > > > > > > > > > > > > We know there have been news briefs, scares and > > > concerns about> > > > Paxil, but we haven't had any problems so far> > > [touch wood ~ tapping > > > my> > > > head]! We did start to notice at the beginning of> > > this year that > > > his anxiety> > > > level seemed to be rising again. He'd had a growth> > > and weight gain > > > over> > > > those years and we thought maybe 20 mg. wasn't> > > enough for him > > > anymore.> > > > Again, we were leery of increasing the dose at> > > such a young age ~ > > > 14. When> > > > we spoke to our new DAN doc about it, she'd> > > noticed his rise in > > > anxiety> > > > too. Rather than just increasing the dose, she did> > > some lab work > > > and lo and> > > > behold, his Seratonin level [which had been> > > okayish in the past] > > > was almost> > > > > === message truncated ===> > > > > > Gayle Owens, LMT > > Therapeutic Balance Bodywork Associates > > 547 W. Lamar Parkway > > ville, TN 37801 > > > > www.gotbba.com> > > > > > > > > > > __________________________________________________________> ______________> > Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s > user panel and lay it on us. > http://surveylink.yahoo.com/gmrs/yahoo_panel_invite.asp?a=7> >> > > > > > ---------------------------------> Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user panel and lay it on us. > > > > > ---------------------------------> Building a website is a piece of cake. > Yahoo! Small Business gives you all the tools to get online.> Got a little couch potato? Check out fun summer activities for kids. Moody friends. Drama queens. Your life? Nope! - their life, your story. Play Sims Stories at Yahoo! Games. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2007 Report Share Posted September 5, 2007 Thank you Gayle... I know I am on the right track...His yeast has definetely lessened...I also have my son on a strict diet...He does not take in any dairy...his own choice and I have just about eliminated sugar but still he gets some..this was a big hurdle...His other foods are very healthy also...actually he is a great eater...doesnt go after sweets most of the time.... I dont have the organic kefir in place....I attempted to make coconut kefir and it looked and smelled so bad I threw it out...LOL...I did purchase cocobiotics....I have to be honest...the days I am more lax on probiotics are the days he seems to be in a better mood too...I only give kyodopholis or acidopholis.... the heavy hitters cause alot of problems for him...very aggitated and aggressive when I use multi strain high dose.... His bowels go thru all kinds of changes....but he moves them three times daily which is also huge for him.... I also was wondering from another post here if antifungals kick up bacterial like antibacterials kick up yeast....could be also what is going on too...I should really get a stool anaylisis done... I so loved your statement that there is no reasoning with someone in a panic...His psychiatrist recently told me that I should do behavior therapy for OCD...well maybe in a younger smaller person it would work...but did he see who he was talking about.....on the days his anxiety/OCD is not so high than yes I can reason with him...but the other days....well anyone suffering from this or along side it knows the end result! I so appreciate your telling me your journey with all this...Thanks Eileen > > > > > > > > > > Hi Louise, > > > > > > > > > > > > > > > > > > > > I can relate. Anxiety used to be a huge issue for > > > > my > > > > ASD son, > > > > > now 15. For some weird, strange or unfathomable > > > > reason, I had the > > > > idea in > > > > > my head while he was younger, putting him on > > > > " prescription meds " for > > > > > anything related to anxiety was just verboten! I > > > > don't know why I > > > > thought > > > > > that it might be okay when he got older if he > > > > needed it, but I was > > > > bound and > > > > > determined to go as " naturopathically " as possible > > > > to deal with all > > > > our > > > > > Autism issues. > > > > > > > > > > > > > > > > > > > > Anyway, the year he was 9, his anxiety just rose > > > > and > > > > rose and > > > > > rose and.. You get the idea. We tried everything - > > > > GABA, 5HTP, > > > > Epsom salt > > > > > baths, diets, creams, rubs, shots etc. There was > > > > no relief for my > > > > son. > > > > > > > > > > > > > > > > > > > > Finally, our DAN doc at that time (we've moved > > > > since) > > > > said to > > > > > me, " Listen, when I told you he was Hashimoto's +, > > > > you were okay > > > > with him > > > > > taking Cytomel,; when I told you he was Myelin > > > > Basic Protein > > > > Antibody +, you > > > > > were okay with him getting IVIG; any other thing > > > > I've told you that > > > > your son > > > > > has tested + or shown symptoms of, you've been > > > > okay with the > > > > pharmaceutical > > > > > plan. If I told you he'd tested + for Diabetes and > > > > you tried every > > > > diet > > > > > alteration imaginable to control it and you > > > > couldn't, would you be > > > > as > > > > > adamant about not giving him Insulin as you are > > > > about NOT giving > > > > him some > > > > > kind of SSRI " [selective serotonin reuptake > > > > inhibitors]? > > > > > > > > > > > > > > > > > > > > I just sat there for a few minutes and looked at > > > > him > > > > with mouth > > > > > agape. Why was I so adamant my son would not have > > > > these meds? The > > > > stigma, I > > > > > think. The thought that we'd have a 9 year old on > > > > some kind > > > > of " psych drug " > > > > > just scared the crap out of us. Then I decided I > > > > had to put my > > > > agenda in a > > > > > " griefcase " and put the case outside the door. My > > > > hubby agreed > > > > wasn't fair > > > > > to our son to not try something new that could > > > > possibly help him > > > > because of > > > > > us. > > > > > > > > > > > > > > > > > > > > We started with a small amount of Paxil over the > > > > Christmas break > > > > > ~ if he was going to react badly, we wanted that > > > > to happen at home. > > > > When he > > > > > went back to school, the teachers noticed an > > > > immediate difference, > > > > not only > > > > > in his anxiety level, but also in his ability to > > > > focus and stay on > > > > task. > > > > > That went from being a couple of seconds of > > > > duration to being a > > > > couple of > > > > > minutes of duration. We increased it gradually > > > > over a 2 year period > > > > to 20 > > > > > mg. and he's been on that dose for about 4 years. > > > > > > > > > > > > > > > > > > > > We know there have been news briefs, scares and > > > > concerns about > > > > > Paxil, but we haven't had any problems so far > > > > [touch wood ~ tapping > > > > my > > > > > head]! We did start to notice at the beginning of > > > > this year that > > > > his anxiety > > > > > level seemed to be rising again. He'd had a growth > > > > and weight gain > > > > over > > > > > those years and we thought maybe 20 mg. wasn't > > > > enough for him > > > > anymore. > > > > > Again, we were leery of increasing the dose at > > > > such a young age ~ > > > > 14. When > > > > > we spoke to our new DAN doc about it, she'd > > > > noticed his rise in > > > > anxiety > > > > > too. Rather than just increasing the dose, she did > > > > some lab work > > > > and lo and > > > > > behold, his Seratonin level [which had been > > > > okayish in the past] > > > > was almost > > > > > > > === message truncated === > > > > > > > > > Gayle Owens, LMT > > > Therapeutic Balance Bodywork Associates > > > 547 W. Lamar Parkway > > > ville, TN 37801 > > > > > > www.gotbba.com > > > > > > > > > > > > > > > > > __________________________________________________________ > > ______________ > > > Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s > > user panel and lay it on us. > > http://surveylink.yahoo.com/gmrs/yahoo_panel_invite.asp?a=7 > > > > > > > > > > > > > > > --------------------------------- > > Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s > user panel and lay it on us. > > > > > > > > > > --------------------------------- > > Building a website is a piece of cake. > > Yahoo! Small Business gives you all the tools to get online. > > > > > > > > --------------------------------- > Got a little couch potato? > Check out fun summer activities for kids. > > > > > --------------------------------- > Moody friends. Drama queens. Your life? Nope! - their life, your story. > Play Sims Stories at Yahoo! Games. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2007 Report Share Posted September 5, 2007 Hi from Sue, I just wanted to chime in with the many anxiety posts today that We, too have experienced life saving benefits with meds.. as well as naturals...Different strokes for different folks. My oldest..26 yrs... most challenged.with Bipolar, Static hydrocephalus, mild tics, mild CP..severe LD's, ( a past PDD Rx).. and ADHD. is living on his own with supported living with ALTA and is doing very well on Abilify, Cymbalta, and Trazodone... Today is the first time he agreed to even a vitamin! My younger son and I who USED to take Prozac and Ritalin for about 10 years successfully for our Anxiety, Depression and ADD.. Then switched to naturals Gradually starting in 2000.. We used the DIET CURE and THE MOOD CURE books by Ross to withdraw successfully adding the ALL amino acids..5HTP, Tryptophan., Tyrosine, L- Phenylalanine, DPLA, GABA, D Phenylalanine, and sometimes taurine, and glycine which are all listed on a WONDERFUL chart on pages...120-121 pg. in the Diet Cure book. That was successful but very cumbersome... along with many other supplements like EFA's, and all the other 10 ones we know are good in this group... Now.. we simplified it successfully to 1.MB12 nasal spray...( eliminated nearly all aminos) 2. MonaVie juice (eliminates 90% other supplements) 2. LW patches (helps/ chelates, builds immunity, focus, calmness/anxiety ,homeostasis,digestion etc.) & ... Just a few other supplements. My husband .. is the mixed one... He needs 75% naturals.. and 20% meds.. for his IBS and Anxiety, Depression and ADD... and peripheral neuropathy. I hope no one feels bad for using meds... Even though my son & I found success with naturals.. Meds have been a Godsend to our family.... For transitioning meds and aminos... Rosses 2 books are very beneficial. Hope that helps, PS.... Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2007 Report Share Posted September 6, 2007 Hi Eileen and Lin, Eileen, I wouldn’t stop anything without consulting with your MD first ~ no matter how curious you are to see if there’s a positive affect with some other supplement or med. The initiating and discontinuing of meds and supplements is a really serious business. Lin, I can only talk about my son and his situation. I think the information and anecdotes shared on this group are so useful, amazing, insightful and inspiring, but I would use this only as a springboard to initiate dialog with your MD. My son is 15; weighs 166 lbs; 5”4”. The dosage for the 5HTP is being monitored by his DAN doc. We’ve seen improvement over the past few months. We’ve increased his dosage every 2 weeks by 50 mg. increments. There’s still some “chatting to himself” and pacing a bit, but he’s gotten through the 1st 3 weeks of high school [started 9th grade] with barely a ripple on the radar screen. He gets home from school and pulls out his homework and starts it on his own! This is a new experience for us ~ homework used to be a bigger “trigger” for his anxiety. We’re really pleased with his progress. Sorry I didn’t get the chance to answer sooner ~ I was actually off my computer for a day! Lesa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2007 Report Share Posted September 6, 2007 Hi Lesa: Yup I agree...I am very brave on paper..LOL...not so when push comes to shove.....Eileen > > Hi Eileen and Lin, > > > > Eileen, I wouldn't stop anything without consulting with your MD > first ~ no matter how curious you are to see if there's a positive affect > with some other supplement or med. The initiating and discontinuing of meds > and supplements is a really serious business. > > > > Lin, I can only talk about my son and his situation. I think the > information and anecdotes shared on this group are so useful, amazing, > insightful and inspiring, but I would use this only as a springboard to > initiate dialog with your MD. My son is 15; weighs 166 lbs; 5 " 4 " . The dosage > for the 5HTP is being monitored by his DAN doc. We've seen improvement over > the past few months. We've increased his dosage every 2 weeks by 50 mg. > increments. There's still some " chatting to himself " and pacing a bit, but > he's gotten through the 1st 3 weeks of high school [started 9th grade] with > barely a ripple on the radar screen. He gets home from school and pulls out > his homework and starts it on his own! This is a new experience for us ~ > homework used to be a bigger " trigger " for his anxiety. We're really pleased > with his progress. > > > > Sorry I didn't get the chance to answer sooner ~ I was actually > off my computer for a day! > > Lesa > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2007 Report Share Posted September 6, 2007 Hi Stan- My son had the MB12 shots (per Dr. Neubrander) for about 5 months and we saw improvements in socialization and interest and play, but not necessarily anxiety--which is a big issue for my son. Do you see better results with the spray for anxiety, do you think? Thanks- > > > > Still looking for some advice. My son deals with much anxiey.You can > > always tell when he is feeling anxious. His entire body will tense up > > and he moves around like a robot.He bends his arms with a locked elbow > > and clenches his fists. This changes dramatically when he is at home > > or any place he feels a sense of comfort. I really do not want to put > > him on an anxiety medication, but he is getting ready to start 5th > > grade and I worry for him. He takes plenty of mag/zinc and tests note > > all within normal range. We tried GABA with no success. > > > > Any advice would be greatly appreciated > > Louise > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2007 Report Share Posted September 6, 2007 Lesa, Thanks so much for all of your input. Actually we believe it was an inhaler that caused the anxiety attack. Lin From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of Lesa and WalshSent: Thursday, September 06, 2007 8:48 AMTo: mb12 valtrex Subject: Re: anxiety Hi Eileen and Lin, Eileen, I wouldn’t stop anything without consulting with your MD first ~ no matter how curious you are to see if there’s a positive affect with some other supplement or med. The initiating and discontinuing of meds and supplements is a really serious business. Lin, I can only talk about my son and his situation. I think the information and anecdotes shared on this group are so useful, amazing, insightful and inspiring, but I would use this only as a springboard to initiate dialog with your MD. My son is 15; weighs 166 lbs; 5”4”. The dosage for the 5HTP is being monitored by his DAN doc. We’ve seen improvement over the past few months. We’ve increased his dosage every 2 weeks by 50 mg. increments. There’s still some “chatting to himself” and pacing a bit, but he’s gotten through the 1st 3 weeks of high school [started 9th grade] with barely a ripple on the radar screen. He gets home from school and pulls out his homework and starts it on his own! This is a new experience for us ~ homework used to be a bigger “trigger” for his anxiety. We’re really pleased with his progress. Sorry I didn’t get the chance to answer sooner ~ I was actually off my computer for a day! Lesa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2008 Report Share Posted February 4, 2008 Ok--now I feel stupid! I called the doctor friday because I was having shortness of breath..we did a blood test --everything was ok. She said that with my current weight that she wanted to drop my Riba to 400 mg 2 times a day..from 600/400..maybe I'm just having anxiety and need to call my psch doc for something for ANXIETY!! I don't want anything for anxiety! I just had nausea women! I was tired, I was out of breath, and I'm trying to work a full time job! for sakes! Oh well--anyone else feel the same?? Thanks for any input... Dorsey Quote Link to comment Share on other sites More sharing options...
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