Guest guest Posted January 22, 2008 Report Share Posted January 22, 2008 Hi guys! I know that writing this would just bring up something that alot of people didn't think of anyway. But, I wanted to say that I am very thankful for this group and the education that it brought me. Before I had my son my CMT did slow me down but after having surgeries on my feet I could pretty much do what I wanted except run or wear heals. Anyway, on the CMT spectrum, I thought that I had it the worst because my mom had the conduction study and her nerves in her ankles were slow too just not slow enough to cause any real trouble with running and tripping like it caused me. So, when I was told that I only had to worry about a 50% chance of my baby having it. Also, I never belonged to a group like this and never knew anyone else with CMT. So, I told my husband what I thought that there would only be a 50% chance plus an even way lower chance of him (or her) having it as bad as I did. I never knew that it could be worse I was only going on what one dr. had said and I hadn't seen any other doctors regarding the CMT. So, that was the reason I decided to go ahead and you know what? I am lucky because my son shows no signs of CMT and has perfectly formed feet. Well, I thought I should explain my reasoning. I was shocked when I found this site (after my son was born) to find out things like it could affect your breathing, etc. Luckily, it's almost never affecting fuctions that keep you alive. and luckily I didn't pass it down. I am just finding out I am not at the worst end of the spectrum with CMT and am pleased to meet new CMTers now. It seems incredible there are so many online yet you barely would think that walking around outside. I'm also sorry my post has to be so long but wanted to let you guys know. Thanks for listening. Thanks again Gretchen for this site. Dawn Quote Link to comment Share on other sites More sharing options...
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