My Introduction

[Guest guest]

Hi my name is . I am 39 yrs old and a mother

of two daughters 8 soon to be 9 and 10 years old. I

was diagnosed with CMT about a month ago through

genetic testing. All though it was a big surprise it

brings many answers to a lot of questions about

physical things I have experienced from childhood.

I worry about my future but I worry more about my girls.

If I had to guess I would say I am 99% sure my

youngest has CMT. She is a toe walker, has been since

she started walking, there have been times she would

fall for no apparent reason, she cannot run very well

and I have had concern with the appearance of her feet

for over a year now.

It seems as though she has bunions forming on the inside of her feet by her big

toes forcing them to slant. My husband does not want

to acknowledge this as a possibility and seems to get

angry when I suggest she might have it. I get mad,

wishing I had been diagnosed earlier in hopes of not

passing it on to my girls. Yes there is guilt.

At this point I have not seen any doctors other than the

doctor who diagnosed me and that was my last visit to

her. I have an appt. to see a doctor in Miami in Dec.

although I'm not quite sure what he is going to do for

me. Currently I have decided to do acupuncture and

take my vitamins. I'm so glad to be a part of this

group. Are there any specialists in FL?