Re: Cladribine Research

[Guest guest]

Hi ,

That's a great question. I didn't see anything in the description about the

study that talked about Cladribine's myelin sheath repair abilities, but if you

are familiar with this, perhaps you can asked the manufacturer this question

directly? These MS medications are extremely expensive. If their " market " for

this medication could more than double in size overnight (since there are more

people with CMT1A than recurring MS), that would seem to be a big motivating

factor for them to consider.

http://www.emdserono.com/content/external/corporatecontacts.html

[Guest guest]

Hi ,

I actually heard the explanation of how Cladribine repairs the myelin sheath

over the radio.

[Guest guest]

Do lymphosytes have anything to do with the demyelinization in CMT?

Elinor

[Guest guest]

:

Two years I told my neurologist I thought CMT would be better classes

with Multiple Sclerosis instead of Muscular Dystrophy. He asked my

why. I said that both are demyelinating diseases -- CMT has

demyelinating peripheral nerves and MS has demyelinating central

nerves. He gave me a weird look and said, " Gee, I never thought of that

before.

Such is the state of American medicine -- treat the symptoms with no

thought of etiology.

Here in Rome(I moved here 2 months ago) doctors work in group of

interlocking specialities. I started with a Physiatrist who is

scheduling me with a neurologist, pulmonologist, and a geneticist --

even at the age of 62 with no children. The the Physiatrist's words, "

We must study. "

That I never heard by an American doctor. The most common expression

they have is, " I don't think that this will be covered by insurance,

but ... "

--Larry