Guest guest Posted November 30, 2007 Report Share Posted November 30, 2007 I was told the same thing , the younger you get them in them the better off they are. My daughter was diagnosed with bilateral drop foot in 9/06 she was almost 3, She had to be in casts for 5 wks to stretch her tendons but after that her AFOs have been life savers. We have the occasional pressure spot and fighting about wearing them. She hates socks and sweaty feet but she tolerates them well and knows they make a difference. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2007 Report Share Posted December 1, 2007 Thank you for sharing that with us. I so wish my son had been diagnosed at an early age. Unfortunately, my son wasn't diagnosed until he was 9 and was over 5'6 " tall. His CMT has progressed almost exponentially since then. He did have the heel cord extension surgeries at age 5 and it worked for a little over a year. If anyone had suggested braces would have helped him he would have had them...our docs did not even think to suggest them because they felt that as he grew his body mass would keep the tendons stretched. When his tendons started to tighten up again and the toe-walking returned we found a new neurologist and a new orthopedist and pursued the cause. It took 4 years to convince doctors that something was wrong... AFOs may be prescribed post-surgery - it's too soon to tell since the surgery is not until January. If they are indicated then of course we will have them. Hugs to you and your daughter! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2007 Report Share Posted December 4, 2007 , Don't feel too bad about your choices. I think the braces have drawbacks as well as positives. So, if you had known, there might have been negative consequences from the braces. I did not wear braces on my ankles until 29 y/o I don't wear them now because you can't feel the ground with them under your feet plus they are a visible sign of your disability people can be extremely nasty. So, you did what you could. Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2007 Report Share Posted December 6, 2007 Thanks Dawn. I really think if it was me instead of my son I wouldn't second guess myself all the time. As a parent I guess you just want to go the extra mile to make sure you did the right thing... Quote Link to comment Share on other sites More sharing options...
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