hip pain

[Guest guest]

No, Sue, you shouldn't be worried, but it's something to consider. Not

highly likely, but possible.

I'm assuming you had DCIS. What grade? Did they look at any of the lymph

nodes? You had a lumpectomy with radiation, right?

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

Re: [ ] Hip Pain

, my breast cancer was Stage 0, so I'm not worried about

metastasis. Should I be?

Sue

On Friday, December 30, 2005, at 10:46 AM, wrote:

> Sue, I didn't mean imaging of your breast, rather of the area that's

> painful - the lower spine/pelvis/hip. I'm thinking of the possibility

> of a

> bone metastasis.

[Guest guest]

Yes, , I had DCIS. I don't remember anything about the grade; maybe

they didn't check that. For Stage 0, they didn't think it was necessary

to look at the lymph nodes. I had a lumpectomy followed by 35 radiation

treatments. All in all, I was very lucky that my cancer was caught so

early. I had already had microcalcifications in that breast two years

earlier, but a needle biopsy and analysis found that they were benign.

The second time around, they were cancerous. I am a firm believer in

annual mammograms, because I did not have a lump at all.

Sue

On Saturday, December 31, 2005, at 09:20 AM, wrote:

> No, Sue, you shouldn't be worried, but it's something to consider. Not

> highly likely, but possible.

>

> I'm assuming you had DCIS. What grade? Did they look at any of the

> lymph

> nodes? You had a lumpectomy with radiation, right?

[Guest guest]

Sue,

It's controversial to check the lymph nodes, even the sentinel node, if it's

thought to be DCIS (since, by definition, this is cancer that has not

spread), but, under certain circumstances, some physicians do.

I'm glad they caught your cancer early, too.

I wish the many women I know who have been affected by breast cancer hadn't

been, but it's a relief to know that detection and treatment are much

improved.

The best of health to you in 2006!

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

Re: [ ] Hip Pain

> Yes, , I had DCIS. I don't remember anything about the grade; maybe

> they didn't check that. For Stage 0, they didn't think it was necessary

> to look at the lymph nodes. I had a lumpectomy followed by 35 radiation

> treatments. All in all, I was very lucky that my cancer was caught so

> early. I had already had microcalcifications in that breast two years

> earlier, but a needle biopsy and analysis found that they were benign.

> The second time around, they were cancerous. I am a firm believer in

> annual mammograms, because I did not have a lump at all.

>

> Sue

>

> On Saturday, December 31, 2005, at 09:20 AM, wrote:

>

>> No, Sue, you shouldn't be worried, but it's something to consider. Not

>> highly likely, but possible.

>>

>> I'm assuming you had DCIS. What grade? Did they look at any of the

>> lymph

>> nodes? You had a lumpectomy with radiation, right?

[Guest guest]

Thanks to everyone who wrote in about hip pain. Mine is much better

than it was. So far I have not been able to diagnose what it is, LOL.

I've read lots of articles about hip pain, and mine doesn't seem to fit

anything I've read about yet. I still have full range of motion in my

hip, and movement does not make it hurt. Walking does not seem to be

affected. I have had sciatica before, years ago, and it was very

painful to walk. This pain is a steady throbbing in my left buttock.

Right now it is not very painful, just more or less sore.

The pain flared up around Thanksgiving and again around Christmas. So I

think that standing on my feet cooking holiday dinners may be what

makes it flare up. I'm hoping that it will leave and stay gone. It does

seem that Enbrel helps it, and Tramadol does also.

Wishing for all of you a pain free 2006!

Sue

[Guest guest]

My rheumatologist lead me to believe that both can be RA-related, but

whe you feel it in the outside of your " hips " , it's not the hip joint,

but the trocanter bursar(sp?). I've had both bursars injected, but

unlike my shoulders, where the injections helped a LOT, and almost

immediately, the trocanter bursar injections were very uncomfortable,

didn't have a great effect, and what effect they did have, didn't last

long.

>

> > A couple days ago I was reading about hip problems in relationship

to osteo.

> It said that a hip can cause pains in the groin area.

>

> I get that kind of hip pain, and someone - I think my rh? - told me

that

> it's RA related, that you feel it in the groin, not on the outside of

> the hips...

>

>

>

[Guest guest]

,

I wish I could help. Hip pain has been a constant for me since 1999

while on Enbrel and prednisone. I feel it was the many years of

prednisone that finally made me so limited as I am today with my hips

but I have never been told anything whether it was septic or OA or

anything until the damage was done. The hip pain was why I had so

many appts but the only concern was avascular necrosis and when it

wasn't that I was just usually given a steroid injection and more

oral prednisolone. I am still looking for someone to care for that

part of the RA.

You say you are decreasing the prednisone and prednisone is the only

thing that seemed to help with the pain... so it's a 2-edged sword...

ice packs helped some and arthritis creams helped as well, of course

the whirlpool helps with warming the muscles and loosening the joint

but not always available. Sounds like activity is needed for the hip

most likely swimming and gentle stretches when you wake up, maybe

while in the shower. Iam unable to sit, lie down, or stand for any

prolonged length of time without the hips stiffening, so constantly

moving seems to help. You start to feel like a jack-in-the-box

popping up and down. I also used lidoderm patches for a little

while to the hip joints. I think calling your doctor and being

aggressive about finding relief through him for the hip like you

mentioned is the best thing.

Hope you are better soon.

peace and healing,

Ebony

>

>

> I'm having a pain in my right hip joint for the past couple of

weeks. It's definitely my hip joint, I know where that is located.

The pain is only at night when I am in bed after I have been lying

down for a while, the pain is worst in the morning and goes away as

soon as I walk even a little bit. The pain comes back if I go back

to bed in the morning. It's fairly intense and I have been weaning

myself off of prednisone, from 20 to 12.5 mg., I am still on

Methotrexate of 22.5 mg. weekly. I had surgery for a septic left hip

last May, but that pain was constant when it finally went bad. Now

due the Prednisone decrease and not having any of the biologics since

the end of May, most all my joints are painful all the time. My

right hip joint thought is starting to keep me up at night. I am

planning on making an appointment with my Rheumy for this week,

considering that I had a septic left hip only 5 months ago. Any

thoughts? Similar experiences? Thanks

>

>

>

>

>

>

>

>

>

>

>

>

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>

[Guest guest]

,

Please do go see your rheumatologist ASAP.

What biologic were you on until the end of May?

Did your rheumatologist explain exactly what happened to your left hip? What

organism was it?

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Hip pain

>

> I'm having a pain in my right hip joint for the past couple of weeks.

> It's definitely my hip joint, I know where that is located. The pain is

> only at night when I am in bed after I have been lying down for a while,

> the pain is worst in the morning and goes away as soon as I walk even a

> little bit. The pain comes back if I go back to bed in the morning. It's

> fairly intense and I have been weaning myself off of prednisone, from 20

> to 12.5 mg., I am still on Methotrexate of 22.5 mg. weekly. I had surgery

> for a septic left hip last May, but that pain was constant when it finally

> went bad. Now due the Prednisone decrease and not having any of the

> biologics since the end of May, most all my joints are painful all the

> time. My right hip joint thought is starting to keep me up at night. I

> am planning on making an appointment with my Rheumy for this week,

> considering that I had a septic left hip only 5 months ago. Any thoughts?

> Similar experiences? Thanks

>

>

[Guest guest]

,

I have a appt. on the 28th, and just called the Arthritis Clinic, My

Rheumy is going to be out next week and doesn't have anything

available this week. I'll go to the ER is it gets worse.

I was on a study drug. They still don't know what cause it, except

that it literately blew up my hip joint. At a certain point, my left

hip went from mild pain to excrucating within hours and my SED rate

tripled. They took out over 40 cc'c of fluid from the hip and cultured

the fluid. The cultures didn't grow anything, no bactria or virus, so

we still don't know what caused it. Yes, starting to have the same

symptoms in my right hip does worry me.

>

> ,

>

> Please do go see your rheumatologist ASAP.

>

> What biologic were you on until the end of May?

>

> Did your rheumatologist explain exactly what happened to your left

hip? What

> organism was it?

>

>

[Guest guest]

Patty,

Because my FMS is secondary and not primary, it is triggered my active PA

and every other darn thing... It should never be dismissed. As a matter of

fact, I was dx'd with FMS prior to the PA dx. Do you have a pain clinic?

The symptoms of FMS can be the same as PA at times...especially the pain,

stiffness, and all out miserable feeling...Oh, the hips and sacral

joints...horrible pain and not always burning...especially when the pain

travels down my legs...It makes me wish I had a heated swimming pool near my

no stairs front door..

It galls me that your symptoms are 'dismissed'...not right, not good medical

practice at all. I feel for you, really I do.

Delane

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[Guest guest]

" I'm reading through previous posts asking for help with pain --

especially pain in the hips, low back, etc. -- particularly untreated

symptoms that lead to erosion, damage, etc. .... When there

is " activity " in the hip ...

*** do you also feel pain in the front of the joint? ***

I've been having more problems lately with pain all around the hips,

including the front - right in the bend.

How do I distinguish whether it's from PA OR fibromyalgia? "

Patty, before I had my hip replacement last June, I had EXCRUCIATING

hip pain, due to 80% bone resorption from the PA. My symptoms initially

started several years prior, with intermittent sharp pains in the front

of the joint....I would be walking, and have to stop due to a feeling

that the hip was actually sliding out of the socket and that it would

snap in half at any minute. At first, after resting, the pain would

ease, and I would resume walking. My internist referred me to an

orthopedic specialist at that point, who informed me that I had

osteoarthritis that nothing could be done for and I should go home,

take some Tylenol, and " work through " the pain. (Osteoarthritis at the

age of 34? I don't think so! If ONLY I had consulted a rheumy

then...but I didn't.) The pain persisted, and started occurring more

and more often and required more and more rest to relieve it. Consulted

the orthopedic specialist again several times and continued to be told

the same thing. By the time I finally consulted a rheumatologist, I was

limping badly and the pain in the front of the hip near the groin was

constant. The rheumatologist diagnosed me with PA due to the hip damage

and spondyloarthritis in the sacroiliac area and started me on

Methotrexate at that point. The Methotrexate did help.....I went from

being able to only hobble with the assistance of two canes, to being

able to limp brief distances unaided and to using a cane for long

distances....but the hip was just too far gone by that point. Kept

getting worse and worse.....pain in the front by the groin, tenderness

from muscle spasms on the outside, and sciatica radiating down that

entire buttock and leg due to the limping throwing more stress on my

back and pinching nerves. I couldn't sleep for longer than an hour or

two at a time, due to the hip pain. I could not raise my leg to put on

my own socks and shoes due to the hip pain. Any sort of internal

rotation or adduction of the hip (turning the foot inwards or moving

the leg inwards towards my body) was EXCRUCIATING. I couldn't even flex

the hip far enough to walk up stairs normally, I had to always step up

with the good leg first followed by the bad leg. The rheumy told me the

Methotrexate should be preventing any further damage and that my

increased pain was NOT due to PA. Started seeing a new rheumy who

diagnosed me with Sjogrens syndrome as well as the PA, started me on

Enbrel, and proceeded to inform me that I really needed a hip

replacement. Went to see a second ortho, who informed me that I was too

young (by this time I was 48) and overweight for a hip replacement and

that I was just going to have to bear the pain. One of the doctors I

work for referred me to her sister-in-law's ortho, who does ceramic

replacements instead of metal, and he said, " Yes, you're overweight,

but you really NEED this hip replacement. " (He did an MRI, NOT a

regular Xray, to see just how bad the damage was. That was when I was

told I had lost 80% of the bone in that hip.) I have to say, the

replacement went well (I was back working full-time 28 days later and

have had no hip problems since) To give you an idea of how bad the pain

was....when I woke up in the Recovery Room after the procedure, the

nurses were offering me pain medicine and I said, " Are you kidding!

This feels SO MUCH BETTER than before surgery! " Postoperatively, the

ortho told me he had never seen such extensive damage from inflammatory

arthritis in the hip of someone who was NOT wheel-chair bound.

Point of the whole long story...yes, pain in the front of your hip IN

THE GROIN AREA, especially if a) it radiates to your knee, is worse

with flexing and raising the leg, c) is worse with turning your foot

inward, d) is worse when you move your whole leg inward, or e) causes

any limping CAN be due to arthritis instead of fibromyalgia.

[Guest guest]

Hi Delane

You wrote: > Because my FMS is secondary and not primary, it is

triggered my active PA

I saw my primary doctor a couple weeks ago to get a new prescription

for the increased pain in my low back and right hip. She said that the

fibro makes one more sensitive to pain in general and that was

probably why I was experiencing more discomfort.

When I see my rheumy next month, I plan to detail the changes to her.

Would it be appropriate to ask for an MRI just to be sure there isn't

more going on than the fibro exaggerating the pain? The last x-rays

were taken in Sept. showing nothing to explain this much pain.

> The symptoms of FMS can be the same as PA at times...

Yup, that's what's happening.

> It galls me that your symptoms are 'dismissed'...not right, not good

medical

> practice at all.

That's the hard part for me as a patient -- knowing what can be

expected from " modern " physicians. In " the old days " , they'd tell us

what needed to be done; now, it seems, they expect us to tell them

what we want or need. !!!

>I feel for you, really I do.

I'm sure do and I truly appreciate that.

Patty in a wet, thunderstormy Pineywoods of East Texas

[Guest guest]

--- " dreimutter1957 " wrote:

> Patty, before I had my hip replacement last June, I had EXCRUCIATING

> hip pain ... My symptoms initially

> started several years prior, with intermittent sharp pains in the front

> of the joint....

I have pain in the front, to the right of the groin area, while

walking, especially after a day of gardening or climbing stairs a lot

the day before -- BUT -- the trouble really sets in when I sit or lie

down. It hurts to lie on the right hip, it hurts to sit on hard

surfaces; it's very tender on the head of the femur, just right of the

spine and the ligaments that connect things together in the front.

There's aching behind my right knee, sometimes pain that goes from the

front bend down to the knee and there are times when the joint feels

" loose. "

> orthopedic specialist ... informed me that I ... should go home,

> take some Tylenol, and " work through " the pain.

Oh, I just LOVE that phrase " work through the pain. " !!! And just

what can one expect to find on the other side? More PAIN!!!

<snip> He did an MRI, NOT a regular Xray ...

So nothing showed on the x-rays?

My situation isn't nearly as bad as yours was but I'd rather prevent

that. Are there other things to do along with anti-inflammatories and

biologics? Currently, I'm taking Mobic, Methotrexate and Enbrel.

Thanks to everyone for all the helpful anecdotes and advice; it means

a lot to me.

Patty in a wet, thunderstormy Pineywoods of East Texas

[Guest guest]

I have been experiencing a lot of hip pain over the past year. It seems

to start in the groin area and radiates down to my knee. I do have a

couple bulging discs in my back but have been told they are not

pinching any nerves. MRI of my hip shows no abnormalities. It used to

just get agitated if I am up all day on my feet, I am very active and

up and down stairs a dozen times a day or more. But anymore it bothers

me from the time I get out of bed. Any ideas?

[Guest guest]

I have a lot of hip pain too. I have a physical therapist who does

adjustments of my hips and pelvis and that helps a lot. There are also several

stretches that I do that help. I think my hip pain is caused by my gait and by

my hips being turned in.

Annie

[Guest guest]

Have you seen an orthopedic to determine where the pain is coming from? I had

the same thing happen to me, it turned out my hip had deteriorated to the point

that I needed a hip replacement.

Celeste