Re: Between age 30 and 45

[Guest guest]

Hi Gretchen,

It's not presented in any literature in so many words, but most of the CMT

literature notes that symptoms become more pronounced in the 3rd and 4th decade

of life. In general most people begin a physical decline in their 40's. We just

feel it more. There comes a point where you're not growing anymore, you begin

the rest of your life. It's a different way of looking at life, but to deal with

the silliness that we have to deal with takes a rather obtuse view of life to

keep from going bonkers.

I had to wear these god awful high cut clunky shoes that were sold by the local

Dr Locke's shoe store. I so hated those damn things.

Ed

[Guest guest]

Dear Ed,

The way it was presented to me... we go along fine for a while, perhaps a long

while in our 30's and 40's, and then we step off a ledge. Then we go along for

a while before stepping off another ledge... very discouranging! THe key is to

lengthen the ledges so it is a longer while between steps. The hard part is the

steps seem to be uneven and come at uneven intervals so they take us by

surprise.

Ho Hum.....

Penny

[Guest guest]

You are so right Penny...been having trouble with " things " ...suddenly having

more trouble with my hands and now my voice too..crap!

Geri

[Guest guest]

Hi Penny,

You're right of course, but it is still a series of battles aimed at not losing

ability rather than gaining ability. A good sick or period of stress does a lot

of damage that cannot be fixed. So we eat things we really don't like and

religiously exercise in moderation all aimed at keeping whatever functionalities

we has as long as we can. But yeah eventually a major functionality goes away

and learning to cope with life at that level begins. Meh.

Ed

[Guest guest]

Ed, I know what you mean. At one of the last offices I worked at, someone asked

me why I didn't go out to smoke with everyone else. I told him it's because I

have enough health problems as it is.

The funny thing is that no matter how distressing the problem with our feet,

people seem to think we are fine until we fall on our faces or something. It's a

crazy battle.

I look younger than I am too so when people wonder why I don't react to a 20

year old anymore is because I am 37 and it's going to go nowhere anyway. Did

that about one year ago. He was actually 22, but looked way older, whereas I

look way younger. Anyway, he went back to his younger gf. What a conundrum our

disability is.

Dawn