Guest guest Posted December 10, 2008 Report Share Posted December 10, 2008 Agreed. We do tend to talk a lot about politics and things, but that is because it is the interest for some of us. If you'd like to talk about living with AS, that would be great. Feel free to ask question or whatever you like. In a message dated 12/10/2008 5:30:55 P.M. Eastern Standard Time, no_reply writes: If you want to start a conversation about AS, be my guest. We can all chat about that.AdministratorMake your life easier with all your friends, email, and favorite sites in one place. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2008 Report Share Posted December 10, 2008 Don't his support for mandatory genetic testing. The line from him and the health care and insurance companies is that it will be to help improve health care services. I don't believe that for an instant. Its just like today when insurance companies ask about your family history and look at your record, then ramp up your premium based on speculation. Most people don't realize that is the case because their employer pays for the insurance. A mandatory test like that would be ground for denial of coverage or being pushed to the back of the line before long. Like says, this is primarily a site about AS, but usually it gets talked about indirectly. You can see it when people talk about their interests and also when others talk about troubles in their lives, with family, etc. Not much directly about AS unless someone asks. In a message dated 12/10/2008 5:38:52 P.M. Eastern Standard Time, no_reply writes: One added note, Obama being in office has direct relevance to autism as he is going to be using your tax dollars (if you live in the US) to pay for research into what causes it and how to cure it knowing full well that we already know what causes autism and that there is no cure. Some of us here are really annoyed with him for that and other reasons. Make your life easier with all your friends, email, and favorite sites in one place. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2008 Report Share Posted December 10, 2008 " I joined this group to talk about being an adult with AS, and trying to learn more from others in my shoes. This group really seems to be more about politics and the news. I really don't think this is the group for me. Thanks for welcoming me in, but I really just don't belong here. " First and foremost, that is why we are here, but you will discover Jaden, that having AS does not make us exempt from being normal people in all other regards. We each have perseverative interests and these tend to be likely topics for discussion when no one else brings up anything. If you want to start a conversation about AS, be my guest. We can all chat about that. Administrator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2008 Report Share Posted December 10, 2008 " I joined this group to talk about being an adult with AS, and trying to learn more from others in my shoes. This group really seems to be more about politics and the news. I really don't think this is the group for me. Thanks for welcoming me in, but I really just don't belong here. " One added note, Obama being in office has direct relevance to autism as he is going to be using your tax dollars (if you live in the US) to pay for research into what causes it and how to cure it knowing full well that we already know what causes autism and that there is no cure. Some of us here are really annoyed with him for that and other reasons. Further, as we sit here and bemoan the fact that we get picked on because we are autistic, or excluded because we are autistic, or are shunned because we are autistic, no one actually seems to want to actually DO anything about changing their predicament. For instance, if everyone who was diagnosed voted against Obama, it would be sending a clear signal that his ignorant policies regarding autism are not wanted. Or if everyone signed the " Autism Speaks Does Not Speak For Me " petition they'd have to change their ways. Or if everyone advocated for themselves, people would have a more positive image about autism. Instead, everyone wants a playground where they can all talk about being picked on and then expect that everyone is going to feel sorry for them and wipe their tears for them and make their lives better. Personally, I am annoyed generally speaking because all I get are complaints from people despite trying to make this forum and the rest of the FAM forums into something that everyone wants. I am sick of advocating for a bunch of couch patatoes who think that the world revolves around them and sho0uld therefore kiss their butts. You cannot please everyone, I guess. Administrator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2008 Report Share Posted December 10, 2008 -- In FAMSecretSociety , VISIGOTH@... wrote: "The line from him and the health care and insurance companies is that it will be to help improve health care services. I don't believe that for an instant. Its just like today when insurance companies ask about your family history and look at your record, then ramp up your premium based on speculation. Most people don't realize that is the case because their employer pays for the insurance." And yet another problem with Obama is that he wants to have a National Healtchare System. If anybody on the autism spectrum has voted for him, then they just voted for denial of corverage for themselves regardless of what the government tells you. 1) In Canada, everyone -autistics and non-autistics alike- supposedly has FREE healthcare but 1 in 5 people cannot find doctors. 2) In Saskatchewan coverage for autistics consists of parents getting better parenting classes, and then the children will be cured of their autism. Everything else is unfunded. 3) Autistics are routinely denied coverage because their healthcare and required services are "too taxing"on the National Heathcare System. 4) And just in case anyone in this forum is not aware of this -and I would not be surprised if the majority were not since no one seems to actually read and post here anymore- MIC did a podcast which we posted in November in which someone from the UK discussed the fact that THEIR NHS is not any good for autistics either. By voting Obama into office, people said that this lack of coverage is what they want for you, Jaden, and every other autistic in the country. And by ignorant people on the spectrum voting for him, they have made life worse for themselves. I harp on Obama because I don't want anyone here making the same mistake twice. While ignorant voters have every right to make their own lives more difficult by voting people into office who will screw them over, I don't see why I should have to suffer with the result of their own ignorance. Perhaps by educating people who find politics boring even though politics affects them directly, we can make true CHANGE. Not the kind Obama drips and drivels, but real change. Maybe the voters are expecting something different when they voted for a National Healthcare System, but the economics tell a different story. Fiscally, it cannot be done. Additionally, autistics are just too damned expensive for the government to take care of and every other country that has an NHS has the statistics to prove it. That is why Raven and I created the MIC project. To advocate for autistics to get what they need to succeed, and also to get autistics off their butts so they could make an effort for themselvgs rather than trying to get everything handed to them on a silver platter. Not too many autistics actually care about this project. They are too busy yuckking and yackking over at Wrongplanet and ever other mindless forum where deep conversation consists of "Like, I twirl my hair. Does that make me, like, autistic?" And here we all sit questioning why it is we are having political discussions even though they bear a direct releance on all of our situations? Maybe autistics really ARE as obtuse as people claim, but one thing is for sure: THIS autistic is NOT. is not either, come to that. Meanwhile there are a lot of autistic people who need to get their heads out of their...little worlds...and see the big picture. Administrator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2008 Report Share Posted December 11, 2008 Greetings: I joined this Society to learn more about Autism and Aspergers, AND also to learn about other people's view points. At first I was surprised by some of the topics, now I find it very liberating that no one is 'shut down' for presenting a topic that is 'off the topic of this forum." Even though I do live in my own introvert world, I realize what goes on in the larger world affects us all. History shows us that while ordinary people went on with their lives and business, forces were coming into being that would grow and engulf them over time. (the rise of Nazism in Germany pre-WWII for example) This Society gives us an opportunity to dialogue with people and consider ideas that might not cross our path in our usual life. At one time I followed Ayn Rand's views of Individualism, since then certain of my values have changed, yet I still believe that each one of us is unique and valuable, each of us has something to contribute to the common good, by our very uniqueness and view point and perspectives. A long time ago, a family member cautioned me that by my living such an introverted lifestyle, I was cutting myself off from people whom I could learn from. This forum gives us the opportunity to dialogue without the stress of 'face time.'renaissanzelady All new Yahoo! Mail - Get a sneak peak at messages with a handy reading pane. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2008 Report Share Posted December 11, 2008 renaissanzelady wrote: " ... <snip> ... This forum gives us the opportunity to dialogue without the stress of 'face time' ... <snip> ... " I agree, renaissanzelady, and your post was very articulate and well presented. Thank you. Raven Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2008 Report Share Posted December 11, 2008 There have been quite a few topics about aspie emotions. The politics has got quite dominant, as it turned out to be something that several folks can sustain long exchanges about. I think it has been a means for the most active voices to keep always having an active topic on the go. The personal stuff has been for supporting with whenever needed. Of course it will help folk's confidence to share the personal stuff and swing the emphasis back to it, if nobody classes it as " whining " ! > This group really seems to be more about > politics and the news. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2008 Report Share Posted December 11, 2008 "The personal stuff has been for supporting with whenever needed. Of course it will help folk's confidence to share the personal stuff and swing the emphasis back to it, if nobody classes it as "whining"!" Point taken, but a lot of the stuff that is talked about here sometimes does come across as whining. People have to push to get what they need, not try once or twice and throw up their hands in frustration. It's the way the world works. Administrator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2008 Report Share Posted December 12, 2008 I've said it before and I'll say it again - I appreciate these forums. I wish I had more chance/time/energy, etc to respond more than I do and I do, do what I can. I cannot promise to be something I am not, but I can promise to try my best. > > " I joined this group to talk about being an adult with AS, and trying > to learn more from others in my shoes. This group really seems to be > more about politics and the news. I really don't think this is the > group for me. Thanks for welcoming me in, but I really just don't > belong here. " > > One added note, Obama being in office has direct relevance to autism > as he is going to be using your tax dollars (if you live in the US) > to pay for research into what causes it and how to cure it knowing > full well that we already know what causes autism and that there is > no cure. Some of us here are really annoyed with him for that and > other reasons. > > Further, as we sit here and bemoan the fact that we get picked on > because we are autistic, or excluded because we are autistic, or are > shunned because we are autistic, no one actually seems to want to > actually DO anything about changing their predicament. For instance, > if everyone who was diagnosed voted against Obama, it would be > sending a clear signal that his ignorant policies regarding autism > are not wanted. > > Or if everyone signed the " Autism Speaks Does Not Speak For Me " > petition they'd have to change their ways. > > Or if everyone advocated for themselves, people would have a more > positive image about autism. > > Instead, everyone wants a playground where they can all talk about > being picked on and then expect that everyone is going to feel sorry > for them and wipe their tears for them and make their lives better. > > Personally, I am annoyed generally speaking because all I get are > complaints from people despite trying to make this forum and the rest > of the FAM forums into something that everyone wants. I am sick of > advocating for a bunch of couch patatoes who think that the world > revolves around them and sho0uld therefore kiss their butts. > > You cannot please everyone, I guess. > > > Administrator > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2008 Report Share Posted December 13, 2008 " 4) And just in case anyone in this forum is not aware of this -and I would not be surprised if the majority were not since no one seems to actually read and post here anymore- MIC did a podcast which we posted in November in which someone from the UK discussed the fact that THEIR NHS is not any good for autistics either. " I was just sat thinking what you have said does not sound disimilar to the UK. Regarding raising awarness and advocacy. I have come to the conclusion most just don't care. I suspect that some want to remain ignorant, as I have come across some that no matter how much info' and facts you provide them with they just either won't or don't get it; they seem stuck in their ignorance and misconceptions. It can be extremely frustrating. > > " The line from him and the health care and insurance companies is that > it will be to help improve health care services. I don't believe that > for an instant. Its just like today when insurance companies ask about > your family history and look at your record, then ramp up your premium > based on speculation. Most people don't realize that is the case because > their employer pays for the insurance. " > > And yet another problem with Obama is that he wants to have a National > Healtchare System. If anybody on the autism spectrum has voted for him, > then they just voted for denial of corverage for themselves regardless > of what the government tells you. > > 1) In Canada, everyone -autistics and non-autistics alike- supposedly > has [:-B] [] FREE [] [)] healthcare but 1 in 5 people cannot > find doctors. > > 2) In Saskatchewan coverage for autistics consists of parents getting > better parenting classes, and then the children will be cured of their > autism. Everything else is unfunded. > > 3) Autistics are routinely denied coverage because their healthcare and > required services are " too taxing " on the National Heathcare System. > > 4) And just in case anyone in this forum is not aware of this -and I > would not be surprised if the majority were not since no one seems to > actually read and post here anymore- MIC did a podcast which we posted > in November in which someone from the UK discussed the fact that THEIR > NHS is not any good for autistics either. > > By voting Obama into office, people said that this lack of coverage is > what they want for you, Jaden, and every other autistic in the country. > And by ignorant people on the spectrum voting for him, they have made > life worse for themselves. I harp on Obama because I don't want anyone > here making the same mistake twice. > > While ignorant voters have every right to make their own lives more > difficult by voting people into office who will screw them over, I don't > see why I should have to suffer with the result of their own ignorance. > > Perhaps by educating people who find politics boring even though > politics affects them directly, we can make true CHANGE. Not the kind > Obama drips and drivels, but real change. > > Maybe the voters are expecting something different when they voted for a > National Healthcare System, but the economics tell a different story. > Fiscally, it cannot be done. Additionally, autistics are just too damned > expensive for the government to take care of and every other country > that has an NHS has the statistics to prove it. > > That is why Raven and I created the MIC project. To advocate for > autistics to get what they need to succeed, and also to get autistics > off their butts so they could make an effort for themselvgs rather than > trying to get everything handed to them on a silver platter. > > Not too many autistics actually care about this project. They are too > busy yuckking and yackking over at Wrongplanet and ever other mindless > forum where deep conversation consists of " Like, I twirl my hair. Does > that make me, like, autistic? " > > And here we all sit questioning why it is we are having political > discussions even though they bear a direct releance on all of our > situations? Maybe autistics really ARE as obtuse as people claim, but > one thing is for sure: THIS autistic is NOT. is not either, come > to that. Meanwhile there are a lot of autistic people who need to get > their heads out of their...little worlds...and see the big picture. > > > > Administrator > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2008 Report Share Posted December 13, 2008 " At one time I followed Ayn Rand's views of Individualism, since then certain of my values have changed, yet I still believe that each one of us is unique and valuable, each of us has something to contribute to the common good, by our very uniqueness and view point and perspectives. A long time ago, a family member cautioned me that by my living such an introverted lifestyle, I was cutting myself off from people whom I could learn from. This forum gives us the opportunity to dialogue without the stress of 'face time.' " I like what you have wrote :-) Also I have had people in my live tell me that I am cutting myself off and isolating myself, but I have come to realise that is just their opinion and I have to think that perhaps compared to the majority it may seem that way, but if I were to interact to the level the majority do I think I would very quickly reach burnout and or have a breakdown. > > Greetings: > >                      I joined this Society to learn more about Autism and Aspergers, AND also to learn about other people's view points. >                     At first I was surprised by some of the topics, now I find it very liberating that no one is 'shut down' for presenting a topic that is 'off the topic of this forum. "  >                    Even though I do live in my own introvert world, I realize what goes on in the larger world affects us all. History shows us that while ordinary people went on with their lives and business, forces were coming into being that would grow and engulf them over time. (the rise of Nazism in Germany pre-WWII for example) >                  This Society gives us an opportunity to dialogue with people and consider ideas that might not cross our path in our usual life. >                  At one time I followed Ayn Rand's views of Individualism, since then certain of my values have changed, yet I still believe that each one of us is unique and valuable, each of us has something to contribute to the common good, by our very uniqueness and view point and perspectives. >                 A long time ago, a family member cautioned me that by my living such an introverted lifestyle, I was cutting myself off from people whom I could learn from. This forum gives us the opportunity to dialogue without the stress of 'face time.' > > renaissanzelady > > > > > > > > > > > > > > > > > > > > > > > > > > __________________________________________________________________ > Instant Messaging, free SMS, sharing photos and more... Try the new Yahoo! Canada Messenger at http://ca.beta.messenger.yahoo.com/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2008 Report Share Posted December 13, 2008 Hi :Yes, I 'hear you.'I had to learn the hard way that too much interaction would lead to my experiencing overload, a meltdown, which was exhausting both for me and those present when I had it. I am still learning to recognize when I am nearing saturation, so I can take a 'time out' and avoid meltdown. One of my current part-time jobs involves a lot of customer contact, both face to face and over the phone. My colleagues are all real extroverts and spend time between customer calls chit-chatting while doing paper work. Fortunately for my sanity, most of them, including my boss, accept that I don't 'chat' much, and allow me to co-exist peacefully. Overall I really enjoy working there, and get along well with most of my colleagues.When a well meaning friend suggests I could find a 'better job' elsewhere, I reply that i feel my work is worthwhile, and it gives me 'space.'renaissanzelady wrote:Also I have had people in my live tell me that I am cutting myself off and isolating myself, but I have come to realise that is just their opinion and I have to think that perhaps compared to the majority it may seem that way, but if I were to interact to the level the majority do I think I would very quickly reach burnout and or have a breakdown. Be smarter than spam. See how smart SpamGuard is at giving junk email the boot with the All-new Yahoo! Mail Quote Link to comment Share on other sites More sharing options...
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