My introduction

[Guest guest]

Hi,

I am a new member as of today. I'm so glad I found

you, or actually, someone found me and invited me to

your site.

I've known that I have CMT for about 8 years, although

I knew something was wrong well before my diagnosis.

Previously, the docs just called it " Fibromyalgia " .

After getting tested, at the advice of a friend who is

a Doctor of Physical Therapy, I was tested at U of

M in Ann Arbor then later went to the CMT Clinic in

Detroit and learned about CMT and the different types.

I have CMT Type 1-A. This has been hard for me because

I am a church organist and I depend on my hands and

feet. Needless to say, I've had to alter my technique

to be able to continue doing what I love but it is a

tremendous struggle.

I'm so glad to be able to connect with others that

have CMT, both for emotional support as well as

knowledge sharing.