Re: Do I have the symptoms?

[Guest guest]

Myrna,

I know from talking to my doctor people with CMT have weakness on both

sides. Have you had an MRI done?

[Guest guest]

Myrna,

Possibly. But we can't diagnose you here. Your neurologist should do an

EMG/NCV, maybe a skin biopsy, if you haven't had that already, and from

there, perhaps look into the DNA testings from

www.athenadiagnostics.com There are about 21 types of CMT that can be

tested for now through a DNA sample (blood test)

Gretchen

[Guest guest]

Myrna,

I could understand how the high arches are like people with CMT and why your

doctor might suggest it. But, the foot drop and hand problems tend to be in both

sides it seems for most people. The testing is a bit painful but to put your

mind at ease, it might be worth it. My opinion.

Dawn

[Guest guest]

Dawn and others,

To respond to several of your questions. I have had MRI's done,

several looking for MS. I have had several EMG's which do show some

decline each time I have them. It's been two years since I had any

testing except blood work. Never had a biopsy and it's been a year

since I saw the Neurologist at all. I have an appt. with him in a

couple weeks. The pain in my foot has gotten so much worse. I don't

think it's plantar fascilitis because it's different. Thanks for

letting me vent. I know you all can just give advice and tell me

about your journey with CMT and that's exactly what I'm looking for.

Myrna

[Guest guest]

Myrna,

First of all, I'm not a Dr., but I can share my symptoms.

If you are also experiencing warmth and swelling, it could be a Charcot

joint. Hope not, best of luck.

P.