Restless Leg Syndrome

[Guest guest]

It's interesting that in the US, patients are not routinely tested for

celiac disease. Yet in many other countries everyone is tested because the

disease is so common. Since it's a way for doctors to make money, I'm

surprised the US isn't routinely testing as well.

Kenda

> I was just reading through the latest (Summer 2006) issue of the Weston Price

> Foundations Publication called Wise Traditions, and this particular issue had

> a focus on Grains, Celiac Disease, and Gluten Intolerance. I was astounded to

> read that one of the symptoms of celiac disease, among many, many

> possibilities, is restless legs. We were just talking about this condition

> recently. While I thought it may be related to a mineral deficiency, it may

> be a symptom of this highly misunderdiagnosed condition.

>

> Here is what the article said in small part (page17):

> " This long term autoimmune reaction causes serious damage to the small

> intestine, with common symptoms such as abdominal pain, bloating and diarrhea,

> but signs such as restless legs or anemia might be just as likely. In

> children weight loss and failure to thrive are common markers of the disorder.

> The chronic inflammation destroys healthy villi in the small intestine, which

> are tiny, finger-like outgrowths of the mucosa that vastly increase the

> surface area available for nutrient absorption during digestion. This

> flattening of the villi leads to many malabsorption and vitamin and mineral

> deficiency problems, including severe anemia and osteoporosis, especially

> after the condition has persisted unrecognized for many years. Other

> inflammatory responses such as rashes, rheumatoid arthritis, lupus, and

> chronic fatigue syndrome may develop, along with lymphoma and digestive system

> cancers. Psychiatric symptoms such as severe depression and schizophrenia

> have also been

> linked to the disorder.

> The list of possible symptoms is vast and often confusing, and no two celiac

> sufferers react or recover in the same wa once their condition is recognized.

> In short, a sizeable proportion of our population is gluten intolerant and

> reacts with a wide spectrum of symptoms ranging from no apparent reaction to

> severe life-threatening diseases. "

>

> As most of you know, I just found out that I am gluten intolerant in

> June....over 8 years after explant and my initiation into the world of

> autoimmune illnesses associated with implants. I was diagnosed with

> Hashimoto's 4 years after explant. My point is that you can experience either

> the development of, or the diagnosis of, autoimmune conditions like celiac

> disease long after explant, even though you may begin feeling much better and

> have no overt symptoms. I didn't have anything major going on, but I had

> experienced some small issues after my root canals that made me keep looking

> for answers. It was correspondence with another celiac sufferer that I decided

> to get tested. Then my mom got tested (who has knee replacements...she just

> found out she's positive too.) I think it is prudent to be tested for a

> condition like gluten intolerance if you think you may have any possibility of

> having it...so many people have it and are NOT diagnosed with it. LIke thyroid

> disease, celiac disease is an often misunderstood and overlooked

> condition...and Hashimoto's and celiac disease and/or gluten intolerance seem

> to often go hand in hand.

>

> EnteroLab is one of the most specialized labs for detecting gluten

> intolerance. You can order a home test kit and find out if you have this

> condition yourself. I recommend it if you think you may have some food

> allergies that are undiagnosed.

> http://enterolab.com/

>

> Patty

>

>

> __________________________________________________

>

[Guest guest]

Hi Eveyone! Do any of you have Restless Leg Syndrome? I am trying to learn what

the syptoms are. I don't know whether I have it or not.

Christa

[Guest guest]

Gretchen,

I would log in to but I don't have an id or password. I have tried to get

one but my server will not let me. Thank you for

your response.

Christa

[Guest guest]

Teri,

I don't know how much I have said so some of this is probably a repeat. Hi! My

name is Christa Hartman. I live in ville

PA. I am 27 yrs old. I was diagnosed when I was in second grade. I havea sister

and three nieces. I have had surgeries to correct

it. I have had ankle fusions and tendon transfers.

As a child I was veryclumsy and I still am. I have sprained both ankles. I have

hip displashia. I have bulging discs in my lower back brought on by the way I

walk. I have a little hand weakness. I was diagnosed in second grade. I like to

bowl, read, play on the computer. I am currently working and wear braces. I work

as a cashier at Wal-Mart.

I had my first surgery when I was 13 or 14.

Do you know where the CMT comes from? When I had heard from you before the

thought did cross my mind that you were from PA but I wasn't sure. Sorry to hear

that you also have chronic lyme disease.

Does your son show any signs of having CMT? Who is your dr. for the CMT? Hope to

hear from you soon.

Christy

[Guest guest]

Holli,

Thank you for your response. Tell me about yourself. My name is Christa Hartman.

I live in ville PA. I am 27 yrs old. I

was diagnosed when I was in second grade. I have a sister and three nieces. I

have had surgeries to correct it. I have had ankle

fusions and tendon transfers. As a child I was very clumsy and I still am. I

have sprained both ankles. I have hip displashia. I have

bulging discs in my lower back brought on by the way I walk. Have a little hand

weakness. I was diagnosed in second grade.

I like to bowl, read, play on the computer. I am currently working and wear

braces. I work as a cashier at Wal-Mart. I had my first

surgery when I was 13 or 14. single. My first surgery was an ankle fusion. I

have 3 staples in 1 foot and 2 in the other one. I then

had the tendon transfers. They cut a tendon and drilled a hole in my tibia and

attached it on the other side of my foot. I have

never had any surgery on my hands. Hope to hear from you soon.

Christa

[Guest guest]

Hi Christa,

I'd hate to bore the whole group with any more run-downs

on my particular case. If you peruse the messages, you'll see many

from me. I am a doctor and am acutely aware of the human shortcomings of my

profession as I was only diagnosed this last summer after some diligent research

of my own.

My problems are mostly annoying, have not greatly impacted my way of life. I

love to bowl too, however, the last time I did I dislocated a tendon in my ankle

and had to have surgery and a cast for 2 months! Just making my approach, not

doing anything weird. Seems if I had better feeling in my feet, I'd have known

that something bad was about to happen.

I live in Southern California, a couple of canyons over from the Malibu fire.

That'll put things into perspective!! Thanks for asking.

Holli

[Guest guest]

Christa,

Sorry I didn't get back to you sooner. When I was having bad RLS the

next day I would be very tired, my legs ached & I'd be very moody from

lack of sleep. I was also having the moving sensation during the day but I could

do something to keep my mind occupied. The drs office finally gave me Mirapex

for it & I rarely have any of the RLS symptons now.

Kerry in Wisconsin

[Guest guest]

Kerry,

It is okay that you didn't get back to me. My symptoms are mostly during the

day. Thank you for your response.

Christa

[Guest guest]

Calcium, magnesium and potassium. Helped my RLS years ago even though

I've recently found that these minerals do that.

http://drlwilson.com/Articles/MUSCLE%20CRAMPS.htm

Wanita

>

> Can anyone suggest holistic help for 'Restless Leg Syndrome'? Mine

are driving me to distraction and I would love to get off the drugs

that don't help enough anyway.

>

> - Eli

[Guest guest]

Bone broth helped tremendously with this when I was last pregnant.