Introduction and looking for help

[Guest guest]

,

My name is Peggy. This is my first post to this group.

What type of CMT were you diagnosed with, and what tests did they do to come up

with your diagnosis?

I have peripheral neuropathy that my Dr thinks might be CMT Type 2. What you

describe below sounds so much like my older sister. At one point Drs told her

that she had peripheral neuropathy, but that was not even thought about again

because she developed a cancerous brain tumor and passed on after all the

treatments that she could find.

I'm wondering if she had CMT as well? I don't know of any other family members

that might have had these problems.

Anyway, I can't afford the genetic testing that would confirm whether I have CMT

or not. Just wondering if there is another way to diagnose? I have had the

nerve conduction tests and an EMG. My nerves are conducting fast enough, but he

says the signals are weak. Therefore, if I have CMT, it would be Type 2. He

says my Axons are sick and dying. I have had TERRIBLE foot pain that has taken

literally years to diagnose as neuropathy. Brother... Now I am on Lyrica and

Cymbalta, and I am feeling better. I have a job where I walk on concrete floors

for a good portion of my 10 or 10+ hour work days. Blah... I was dying. I need

to learn how to take care of myself, and I do have a son that seems to have

inherited many of my traits that I worry about. But, at this time, he is 27 and

in great physical condition.

Thank you, and please anyone else chime in if you think you can offer me help.

Peggy