Re: Legs feet discolored when dangling or cold

[Guest guest]

Geri,

Mine sure do! Mostly a purplish. Sometimes redish. Usually goes away when I

" undangle " them. LOL. Have not noticed a color change when they are cold but

I will pay more attention to that and let you know if I notice something.

Teri

[Guest guest]

Geri,

My son's feet do, they turn purplish.

Carmella

[Guest guest]

Hi All,

My son's feet turn purple if they dangle or if he is standing or laying down for

any lenght of time. After many doctor visits it was determined that it is

because the muscles in his legs are not strong enough to push the blood back up

therefore the blood pools in his feet.

They also get really cold.

[Guest guest]

YES; they are a lovely shade of purple!

Jackie

[Guest guest]

Geri,

It sounds like Raynauds Syndrome you are describing. It is a vaso-

constrictive problem that has little or no treatment. The literature

suggests not causing triggers for the symptoms to occur. Keeping warm

helps, because as soon as your body gets cold your vascular system will

keep the blood closer to your vital organs to keep warm. Thus causing

even more vaso-constriction to occur and a more purple color to appear

on your extremities. If your extremities become cold running warm

water over them will help increase the circulation. Be very careful

with children that you don't warm the water too much and cause a burn

and undo pain.

[Guest guest]

YES!! Think it's due to poor circulation. I get purple from my knees down.

Scared the heck out of me years ago until I figured out why.

Barb

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[Guest guest]

,

Was there any recommendations for you son?

Thanks for responding to my email.

Geri

[Guest guest]

Thank you Carmella...I was worried..hard for me to stay warm this winter..

Blessing

Geri

[Guest guest]

Teri,

Mine also are red part of the time but when I'm cold the are purple

half way up to my knees..

Thanks

Geri

[Guest guest]

Jackie,

It's nice to know I'm not the only one....

Thanks

Geri

[Guest guest]

This has happened to me for a long time; even in the summer, if i am standing,

my feet start turning purple, but since i get tan in the summer, it does not

look as bad. I always wear socks and when i worked in an office, i had to wear

leg warmers in the summer with my skirts/shorts! My friends used to get

horrified and yell at me to have a doctor check it out, but i always told them

it is part of the neurological condition and it is not necessarily bad

circuilation. I do not have the same problem with my hands and they do not get

any colder then the rest of my body; i guess because it is so much closer to the

heart.

jackie

Re: Legs feet discolored when dangling or cold

Jackie,

It's nice to know I'm not the only one....

Thanks

Geri

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[Guest guest]

THANK YOU Barb....do you have CMT 2??????

Geri

YES!! Think it's due to poor circulation. I get purple from my knees down.

Scared the heck out of me years ago until I figured out why.

Barb

[Guest guest]

Jackie,

My hands get very cold also....they will turn color but not as bad as my

feet...Leg warmers a God send...I live in Minnesota!! We have had a very cold

winter.We have a old cold farm house and heat with wood to try to save on our

oil..you know the liquid gold!!

Geri

[Guest guest]

My husband was diagnosed with Reynaud's trait long before his late onset CMT.

Once he got the CMT diagnosis, the doctor said the discoloration and pain came

from CMT not Reynaud's.

Elinor

[Guest guest]

Elinor, thanks for this information about Reynaud's. My Dad was Diagnosed with

this prior to his passing on many many year's ago. I have not been able to

trace CMT in my family. My mother was DNA tested and does not have it. My Dad

passed on prior to me being Diagnosed with CMT 1A.

I have 3 siblings from my Dads side and 2 from my my mothers side. No one on my

Dad's side has any symptoms of CMT. I thought for years I was a mutant until

talking to my Neuro, and he stated I would be much worse than I am if I was a

mutation. This bit of information confirms it in my mind that I can trace this

to my Dad's side of the family.

Unfortunatly he imigrated to Canada from England in the 50's and I don't know

any family on his side, other then my siblings.

I have asked my brother form my Dad's side some questions and I believe he has

it. He has orthotics for his feet, and has some balance issues when his eyes

are closed. Extremely mild case, much less then me. But he will not get

tested. He has always shy'd away from knowing what is wrong with him. Scared I

think and I can understand that. I keep telling him knowledge is power. I will

talk to him again after this bit of info and see what he does.

Thanks again,

(Ontario, Canada)

P.S. I can't express in words how Happy I was to see this, and I mean HAPPY!