Re: Dr shopping and CMT and my son's case

[Guest guest]

How I wish I could take back all the time I walked barefoot and didn't know the

damage I was causing my feet. I cringed with every step Danny took.

Does he usually wear shoes?

O

[Guest guest]

Hi Aguilera,

Words can't describe my feelings while reading your post and viewing your son's

video. I was was truly touch by how positive you and the doctors are.

What wonderful, caring Doctors you have and what a perfect answer " I have bad

legs " and I'm so glad he told him that there are doctors and scientists out

there doing so much to try to help him and others with CMT. I think just

knowing that makes a world of difference for those who have it or for those of

us who love someone who does.

Hoping for the best for Danny. Please keep us updated.

Carmella

PS - loved his shorts - gave me quite a chuckle

[Guest guest]

-

Thank you for sharing your video and all the information about

Danny's diagnosis history. Dr. Zuchner sounds wonderful...and the

amount of research you have done is amazing!

[Guest guest]

,

Thank you so much for letting us see . His feet are much different than

mine and mine curve the opposite way and my toes are much smaller. You have a

brave little boy and you also are a good Mom.

Blessings

Geri

[Guest guest]

Hi Geri,

Thank you for your kind words.

Yes, Danny's feet are different than the majority of people with CMT. We

thought he just had flat feet when he started losing his balance.

Have a good rest of the weekend!