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Re: Our Unique Gifts

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Hi Mike,

I am sorry to hear what Bethany is going through. Tell her we all understand

her. I believe CMT is harder on girls that it is on boys. She is at an age

that wants to feel beautiful and graceful like other girls.

Keep cheering her up. You sound like a great dad!

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Mike,

I have a 28 year old daughter with CMT (as well as myself and my son) and she

had attended many a prom in high school and now does alot of charity work that

includes formal fundraising events. She wears gorgeous long gowns or nice

pants with flat shoes. Tell your daughter the trick is to bring the eyes up to

her face with a nice hair style, pretty makeup and lovely jewelry. Wearing

plain colored pants with a beautiful top will bring the eye up and no one will

notice the shoes. My daughter has hip dysplasia as well and has had 2 hip

surgeries to realine her hip. Everyone's comment is that they had no idea that

she had so many " problems " when they learn about the hip and the CMT because

she draws the attention away form " the problem " . She doesn't dwell on it she

just works around it.

Challenging yourself can almost be fun and game like to make this all work for

us. Even though we can't wear pretty shoes (for a girl this is tough, what I

would give to wear a cute little dress with heels, maybe in my next life!) we

need to cherish the things we can do and do them the best we can. Bethany will

find her passion in life and you can incourage her to go for it!

You sound like a great Dad, Bethany is a lucky girl!

Cyndi

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