Easter/Reflection

[Guest guest]

Happy Easter all.

Just want to take this opportunity to say Happy Easter to everyone and to thank

Gretchen again for the hard work you do for this forum and for us.

Now, to all. Without the participation of all the members on this forum we

would not have a place to be happy, to be sad, to inter act with other wonderful

CMT people. I remember when I first joined the forum, I did not introduce

myself and jumped right in with talk regarding Vitamin C. With the help of the

folks on this forum I came to find a correct dose for myself. Throw in some Vit

E for my fasciculation's (sure I am still spelling it wong, LOL)((spell checker

caught it this time, guess I am getting better)). You have helped when I ask

about Diabetes and CMT. Exercise, most recently about the new drugs I am

taking. Last but not least, information regarding Reynaud's.

Here is a special thank you to Elinor. Thank you again for the information on

Reynauds. As I said before I thought I was a mutation for years. I feel like I

am alone in a family of 6 siblings, no one seems to understand what I have and

how it effects me. This information can be a driving force for me to re

discover my CMT with my brother and hopefully he will get tested now. My

wonderful wife(seems to be the only one to understand me, other then you guys)

said to me the night I read the post about Reynaud's, " that is the biggest break

through " since I found out about my CMT. I might seem a little crazy right now

as to why this helps me so much, but it puts closure on where this comes from.

Now I can explain this to my 3 siblings from my Dad's side of the family. They

have always just blown it off since they don't have any symptoms (very

frustrating). They would say, " had Reynaud's not CMT, he had cold white hands,

and I would say like mine. Like I have told them, they might not have severe

symptoms, but find out for their kids. The information needs to be passed down

in their families again, just so they have power. To me knowledge is power and

without the knowledge they can't help themselves or their children.

So, with all that said. Elinor, I extend a BIG THANK YOU. You have forever

changed my life, just like this forum.

God Bless Everyone and Happy Easter.

(Ontario, Canada)

P.S. today as I sit here watching my 3 children, hunt for Easter eggs and play

with their new toys, I can't help but think I am the luckiest man alive. Can't

express in words how happy I am. Thanks again all you all the best group of

people I have never met in person LOL.