Guest guest Posted March 4, 2008 Report Share Posted March 4, 2008 Ed, If the orthopedic surgeon is like the one I used to work with in surgery you should be able to walk out without much of any assistance. They don't generally give people crutches, but with your CMT this may be something you may want to discuss with your surgeon. Also a specific recovery therapy could be useful. The surgery itself is simple, and can be done under a general or local anesthetic along with sedation. This can also be discussed with anesthesia prior to your procedure. They can also tell you if the surgeon puts in a local anesthetic prior to closing the trochar holes, which controls the pain initially and helps with recovery. The trick is to move even though it hurts otherwise you will end up with contractures that will be even more difficult with the CMT. I hope this was helpful. I sometimes ramble. If you have any questions that you want to ask me just email me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2008 Report Share Posted March 4, 2008 Hi Ed, I had surgery on my patella when in my mid-20's and I lost about 50% of my muscle strength in my thigh, compared to the other leg within a short time after the surgery. I did all of the exercises and actually did PT for about a year afterwards, but couldn't get the strength back. The surgery didn't completely relieve my pain, so the muscles didn't contract fully in rehab...at least that's the explanation the doctor provided. They didn't know I had CMT. Ten years later, I was able to regain some of the strength with very precise exercises provided by an excellent physical therapist. Point here is that the downtime is a risk for us. So, 's advice to " move even though it hurts " is really good advice! Move as soon as you are allowed and do all the exercises & stretches they tell you, safely and with the goal of regaining complete function as soon as possible, to minimize any chance of atrophy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2008 Report Share Posted March 5, 2008 , Thank you for the advice. You've helped calm some of my fears. You can never have too much information, especially when it comes to CMT. I'll make sure to stay mobile, no matter how much it hurts. Thanks again, Ed Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2008 Report Share Posted March 5, 2008 Hi , Thanks for sharing your story. I can completely relate to losing strength after surgery. It's exactly why I'm so concerned, even with a simple procedure, but the pain is becoming too much of a hindrance so I'm taking the chance. I have a good physical therapist who knows my history. Hopefully, he'll help me get me back on my feet quickly. I'm really glad to hear you were able to regain some of your strength. Thank you again for your time. Take care, Ed Quote Link to comment Share on other sites More sharing options...
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