New Meds

[Guest guest]

Good luck with the MTX, Noreen! I'm glad you're starting with the

injections - less down the toilet, more for you. How much will you be

taking? I'm assuming that you've had a recent chest x-ray and that you

will also be taking folic acid.

I forgot now... How long were you on minocycline? In the final

assessment, do you believe it did anything for you? I was on it for

about 18 months a couple of years ago. I think it helped calm things

down for me. Just wondering.

Seems as if you have a good relationship with your rheumatologist.

That's really nice.

She should give her wand a try on you. That's the least she could do

since you helped her get her lab results routed correctly. I believe in

magic!

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] New meds

> I finally got in to see my rheumy, since I quit the minocycline about

2

> months ago. We agreed I need to go on something else, so I'm starting

on

> methotrexate. I'm going to do the shots, since so many here have

said that

> is easier on your stomach.

> Had blood work today to make sure my liver and lungs are good, and

should

> get my first shot next weee.

> Advantage of working in a clinic, I can get a nurse to give me the

shot

> every week if I don't want to. (Not that it would bother me, I've

drawn

> blood from myself)

> Another advantage, Rheumy has been having trouble getting her lab

results

> sent to the right place, so she asked if I could fix that. I talked

to the

> lab computer person, and it was straightened out. I went to tell her

> before she left for " the main clinic " (she comes up once a month from

> Duluth, which is about 2 hours away.), and said, since I fixed this,

you

> think you can cure me now? She said sure, just let me get my magic

> wand.......

>

> Noreen

[Guest guest]

,

I was on minocycline for about 9 or 10 months. The mental side effects were

worse than anything else. I felt like my head was bubbling inside and I could

not concentrate at all. Not good when you have to deal with people's lab

results. I think, if I had stayed on it, I'd have had to quit my job, it got so

bad.

I'm just glad I figured out it was the minocycline, not me losing my mind. I

was beginning to suspect alzheimers or strokes or something.

I really did not notice any difference with the RA on minocycline. I may not

have been on it long enough to make a difference though. But I think I'd rather

have aching joints, than lose my mind.

Yes, I had a chest xray yesterday, plus baseline liver enzymes and a base line

test for hepatitis, to make sure my liver is clean. She also gave me a Rx for

folic acid. I should start next week, if all my stuff comes back ok.

Noreen

Noreen

[ ] New meds

> I finally got in to see my rheumy, since I quit the minocycline about

2

> months ago. We agreed I need to go on something else, so I'm starting

on

> methotrexate. I'm going to do the shots, since so many here have

said that

> is easier on your stomach.

> Had blood work today to make sure my liver and lungs are good, and

should

> get my first shot next weee.

> Advantage of working in a clinic, I can get a nurse to give me the

shot

> every week if I don't want to. (Not that it would bother me, I've

drawn

> blood from myself)

> Another advantage, Rheumy has been having trouble getting her lab

results

> sent to the right place, so she asked if I could fix that. I talked

to the

> lab computer person, and it was straightened out. I went to tell her

> before she left for " the main clinic " (she comes up once a month from

> Duluth, which is about 2 hours away.), and said, since I fixed this,

you

> think you can cure me now? She said sure, just let me get my magic

> wand.......

>

> Noreen

[Guest guest]

Hi Noreen, I hope the MTX injections help. I took the pills for

awhile, they did seem to help, but my liver enzymes kept going up, so

I had to go off of it. Good luck Tawny

--- In , " Noreen Saukko " <nsaukko@r...>

wrote:

> I finally got in to see my rheumy, since I quit the minocycline

about 2

> months ago. We agreed I need to go on something else, so I'm

starting on

> methotrexate. I'm going to do the shots, since so many here have

said that

> is easier on your stomach.

> Had blood work today to make sure my liver and lungs are good, and

should

> get my first shot next weee.

> Advantage of working in a clinic, I can get a nurse to give me the

shot

> every week if I don't want to. (Not that it would bother me, I've

drawn

> blood from myself)

> Another advantage, Rheumy has been having trouble getting her lab

results

> sent to the right place, so she asked if I could fix that. I

talked to the

> lab computer person, and it was straightened out. I went to tell

her

> before she left for " the main clinic " (she comes up once a month

from

> Duluth, which is about 2 hours away.), and said, since I fixed

this, you

> think you can cure me now? She said sure, just let me get my magic

> wand.......

>

> Noreen

[Guest guest]

I agree, Noreen. I would choose to keep my mind, too. Sorry that the

minocycline didn't help, but I hope the MTX will. I'm glad your

rheumatologist is so good and did all the proper baseline tests.

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

Re: [ ] New meds

> ,

> I was on minocycline for about 9 or 10 months. The mental side

effects were worse than anything else. I felt like my head was bubbling

inside and I could not concentrate at all. Not good when you have to

deal with people's lab results. I think, if I had stayed on it, I'd

have had to quit my job, it got so bad.

> I'm just glad I figured out it was the minocycline, not me losing my

mind. I was beginning to suspect alzheimers or strokes or something.

> I really did not notice any difference with the RA on minocycline. I

may not have been on it long enough to make a difference though. But I

think I'd rather have aching joints, than lose my mind.

>

>

> Yes, I had a chest xray yesterday, plus baseline liver enzymes and a

base line test for hepatitis, to make sure my liver is clean. She also

gave me a Rx for folic acid. I should start next week, if all my stuff

comes back ok.

>

> Noreen

[Guest guest]

Hi Debbie,

hoping that all goes well for you on the new meds, and that things settle down

for you.

Take care

debbie <hair2cut00@...> wrote:

Thanks to everyone again!!!!!!! Doc put me on new meds today.. she put

me on medrol cause of a past reaction to prednisone yrs ago and im now

on an anti depressant. after a bit on the medrol, if not working im

going right to the methotrex. my jaw has eased up a bit and i refuse to

get the replacement. too many problems with that... too scary for me..

so ill deal with the elbow surgery and the wrist surgery for now, and

just deal with the jaw i guess...has anyone had to deal with the

possibility of jaw replacement ? love ya all.... Debbie

[Guest guest]

Hi Debbie

I have had numerous problems with my jaw but am terrified at the thought of

any surgery. I suffered for over 6 months with constant TMJ pain until I

discovered the UCLA myofacial pain clinic. They finally acknowledged that the

pain

was due to my rheumatoid arthritis and not stress or teeth grinding. I received

a series of cortisone shots mixed with some kind of pain medication directly

in the jaw joint. I know that sounds horrible but they really didn't hurt that

much and the relief was instant. That doctor saved my sanity.

They also taught me what to do at the first signs of a major flare. I

still have pain today but now I know how to deal with it when it flares. I

immediately start taking muscles relaxers and anti-inflamatories. I also start

eating soft foods like burritos, soup, absolutely nothing crunchy or chewy.

It all helps.

Take Care

Babs

[Guest guest]

> Thanks to everyone again!!!!!!! Doc put me on new meds today.. she put

> me on medrol cause of a past reaction to prednisone yrs ago and im now

> on an anti depressant. after a bit on the medrol, if not working im

> going right to the methotrex. my jaw has eased up a bit and i refuse to

> get the replacement. too many problems with that... too scary for me..

> so ill deal with the elbow surgery and the wrist surgery for now, and

> just deal with the jaw i guess...has anyone had to deal with the

> possibility of jaw replacement ? love ya all.... Debbie

>

> HI ITS LYNN-NO I HAVE NEVER HAD A JAW REPLACEMENT --IN ALL MY YEARS AS A

NURSE I NEVER SAW ONE-BUT IF YOU HAVE TO HAVE IT THEY WILL GET YOU THROUGH IT

IN THE HOSPITAL-HOPE YOUR NEW MEDS WORK GOOD FOR YOU

>

>

>

>

>

>

[Guest guest]

hi Babs.. It sounds like you found a good place for treatment. I wish someone

would of helped me out 10 ys ago Yes the pain gets awful. Its like having a

toothache an earache, a migraine and a major sinus infection all in one. my jaw

joint has deteriorated too much for them to do anything now.. im glad you know

what to do when it starts up. please keep it in check.. take care... Debbie

---------------------------------

Photos

Got holiday prints? See all the ways to get quality prints in your hands ASAP.

[Guest guest]

>

> Hi Debbie

>

> I have had numerous problems with my jaw but am terrified at the thought of

> any surgery. I suffered for over 6 months with constant TMJ pain until I

> discovered the UCLA myofacial pain clinic. They finally acknowledged that the

pain

> was due to my rheumatoid arthritis and not stress or teeth grinding. I

received

> a series of cortisone shots mixed with some kind of pain medication directly

> in the jaw joint. I know that sounds horrible but they really didn't hurt that

> much and the relief was instant. That doctor saved my sanity.

> They also taught me what to do at the first signs of a major flare. I

> still have pain today but now I know how to deal with it when it flares. I

> immediately start taking muscles relaxers and anti-inflamatories. I also start

> eating soft foods like burritos, soup, absolutely nothing crunchy or chewy.

> It all helps.

>

> Take Care

> Babs

>

> I ALSO HAVE SEVERE JAW PAIN AND DYSPHAGIA-THEY TELL ME ITS FROM THE SJOGRENS

DISEASE AND THE PAROTID GLANDS BCOMING INFLAMMED IN MY FACE---BEEN

TESTED???....LYNN

>

>

>

[Guest guest]

Jo what did he put you on for the nausea? None of those meds are for nausea!

Debbie A

Have a great day !

-------Original Message-------

Hello all. I am currently taken plaquinell and mxt injections. The

pain is still bad I am taking ibuprofen 800 mg, darvocet as

[Guest guest]

nothing for nausa, just talked about the new meds and the test, just said

eat light food and rest

In a message dated 2/8/2008 12:27:19 A.M. Central Standard Time,

tdash@... writes:

Jo what did he put you on for the nausea? None of those meds are for nausea!

Debbie A

Have a great day !

-------Original Message-------

Hello all. I am currently taken plaquinell and mxt injections. The

pain is still bad I am taking ibuprofen 800 mg, darvocet as

[Non-text portions of this message have been removed]

**************Biggest Grammy Award surprises of all time on AOL Music.

(http://music.aol.com/grammys/pictures/never-won-a-grammy?NCID=aolcmp00300000002\

5

48)

[Guest guest]

Well, looks like my family Dr was not happy with my latest blood work. LDL was

still bad, everything else is normal but not my LDL. I had been on liptor in

the past and was found if caused me more pain then usual. My muscle enzymes

were down as well so I requested to be taken off it. Of course my cholestol got

bad again. This visit my BP was out the roof more then normal so she start me

on a couple of new meds.

1. Ramipril, for BP and to protect my Kidney from Diabeties

2. Ezetrol, for my LDL,

Now I have 2 questions.

1. Any issues with Ramipril, I did not see it on the bad meds list.

2. Ezetrol, I was told by my Dr. that it works different then the other statins

and is in fact not a statin. So I thought it would be OK to try. Now when I

read the info sheet on the drug it still warned about muscle pain, and to report

to Dr. if you get it. This raised my eyebrow a bit as this is the same warning

as the statins.

Any input would be greatly appriciated.

Thanks

(Ontario, Canada)