Re: appreciating my parents advocacy

[Guest guest]

,

Thanks for the encouragement. We are really excited

and impatient for the birth. I hope that we will be

good parents. Right now parenting is all theory because he will be our first.

I think most people do what they think is best for

their kids and I'm glad that my parents were after the

" let the kid tough it out " trend. Eventually because

of illness or old age I think most people shed the

tough it out approach to illness & learn to respect

their bodies and limitations & they probably develop a

higher sensitivity to illness in others.

When I turned 30 my CMT got really bad I was falling

and exhausted, the bottoms of my feet were in intense

pain. I mourned the (temporary) loss of independence

and the sense of control that I had over my body.

I stopped working got leg braces and slowed down -

without any other options. I changed careers and

tried to manage stress better. Six years later I have

removed the leg part of my braces and feel much

healthier than when I was at 30.

My friend Helen is in her mid 90's and attributes her

long life and current good health to the many naps (

whole days to weeks) that she had to take b/c of

migraine and digestive problems.

I am rambling, but I think what I want to say is that

as a mom you can't take away your kids diagnosis, but

as crazy as it sounds CMT might not be the worst

thing. And, he might find his life take some interesting

turns as a result of it. He might be more prepared

for other things.

Take care,

Chris

[Guest guest]

Geri,

Thank you! It is a whole new journey & we are excited. We will probably fall

more as parents that I fell before braces, but I hope that he will feel loved

and will enjoy life.

Well wishes,

Chris