B-12

[Guest guest]

Anyone tried the sublingual methyl-B12 tablets? I'm wondering if they might be a

good alternative to the injections (ouch!)

JLJukoski@... wrote:My 5 year old has mild PDD, and methyl B-12 injections

have changed his (and

our) life. His test results also showed as deficiency as you mentioned. My

son literally overnight went from being very scary to being a very enjoyable

child. For us, the Feingold Diet was the first huge step toward ending his

difficulties, and now the methyl B-12 injections have been another huge step.

We

still have a little ways to go, but the progress has been wonderful. I would

recommend definitely trying the B-12 (must be methyl), and if your kids have

negative reactions, just stop. If you look at the archives, there is some

fairly recent discussion re. methyl B-12 injections (by Andy). Hope this helps.

Jukoski

In a message dated 4/21/2004 1:01:15 PM Eastern Standard Time,

writes:

> Our 5 year old DS with mild ASD has phenol issues cannot tolerate

> apples, juices and high phenol stuff. He is hyperactive, too

> talkative,echoliac and has social issues. I am planning to add

> Pyridoxine Hydrochloride(b6) and Methylcobalamin to his supplements

> as his RBC(420) andd Blood Fe(33 microgram/dl) levels are low.

>

> Dana mentioned that PST kids may not do well on Vitamin B supplements.

> For this reason I have not tried these till now. Can anyone please

> share their experience with these vitamins, the only reason I want to

> add these are to improve his RBC and blood Fe levels.

>

> Currently he takes Ca, Mg, Zn, Vit C and Vit E supplements. His

> hyperactivity and stims have been very difficult to control, epsom

> salts have helped there and dont want the B vitamins to mess that up.

>

>

>

Jukoski

[Guest guest]

Hi,

I've tried the sublingual B-12 (thorne brand), but my daughter went

really hyper after she took it. I will be trying B-12 shots soon, so i

don't know if it will be any different.

regards,

sanrithu

> The mB-12 injections really seem to be painless. They don't hurt my

five

> year old, and he doesn't even bleed. The needles are very tiny.

Also, many

> parents give the injections at night while the child is sleeping,

and the child

> does not awaken.

>

> Jukoski

>

>

> In a message dated 4/22/2004 12:19:05 AM Eastern Standard Time,

> writes:

>

> > Anyone tried the sublingual methyl-B12 tablets? I'm wondering if

they might

> > be a good alternative to the injections (ouch!)

> >

>

>

> Jukoski

>

>

>

[Guest guest]

Make sure they are Methycobalamin B-12 Shots.

[ ] Re: B-12

Hi,

I've tried the sublingual B-12 (thorne brand), but my daughter went

really hyper after she took it. I will be trying B-12 shots soon, so i

don't know if it will be any different.

regards,

sanrithu

> The mB-12 injections really seem to be painless. They don't hurt my

five

> year old, and he doesn't even bleed. The needles are very tiny.

Also, many

> parents give the injections at night while the child is sleeping,

and the child

> does not awaken.

>

> Jukoski

>

>

> In a message dated 4/22/2004 12:19:05 AM Eastern Standard Time,

> writes:

>

> > Anyone tried the sublingual methyl-B12 tablets? I'm wondering if

they might

> > be a good alternative to the injections (ouch!)

> >

>

>

> Jukoski

>

>

>

[Guest guest]

Is hyperactivity a common side effect? Is it only in the beginning or

does it last throughout the therapy? We started B12 shots on Thur night

and I have already noticed my son happier and with more conversational

spontanteous speech. He did seem a little on the hyper side and went to

bed 2 hours later than normal.

Mom to 2 beautiful blue eyed boys - Noah (4, pdd and verbal apraxia) and

Luke (1, NT and unvaccinated)

[Guest guest]

> Is hyperactivity a common side effect?

Yes. Do you give folic acid or folinic acid? If not, add it and see

if that helps. If so, increase it and see if that helps.

Otherwise, reduce the dose of B12, see if that helps.

Some kids can't handle it at all.

Dana

[Guest guest]

> We want to start on B-12 as well, but are still struggling with his

vitamins. We started him on recommended vitamins from Pfeiffer

Treatment Center but his reactions have been huge. We're backing off

and are going to try one at a time to determine the offending vitamin.

My hunch is that it is the B-6 or zinc.

Very good idea to introduce one at a time.

> We started enzymes months ago with wonderful results. Unfortunately,

we have not been able to use only enzymes, but have still had to

remain GFCF. I have a feeling there are more offending foods that we

are not aware of, as he fluctuates daily in his moods, but am not sure

where to begin.

Keep a food/supplement/bm/behavior journal. You will soon be able to

notice correlations.

>>To my question: Could someone re-explain the no-phenol, what it

helps; and the zyme prime?

No-Fenol -- fruits and other high phenol foods

Zyme Prime -- general digestion, carbs, fats, starches, proteins

Dana

[Guest guest]

Hi Laurie! Great to see you here (wish we had met under different

circumstances, though...)

Just wanted to mention you don't have to have anything in place to

start the B12 injections, and you usually know in a very short time

whether they're going to be helpful, so you can stop if you don't

see results and try again later if you want.

Hope you get some good ideas here.

>

> Hello everyone -- My first time posting, but have been in the

shadows for a while. This group is wonderful and so informed. Tough

for a novice like me. I am reading all of the B-12 stories with

awe. We just returned from an appt. with our neurologist who told

us that NIH is doing a double blind study on B-12 to determine the

benefits. She said the research/results should be out within 6

months.

[Guest guest]

Hi Laurie,

My son was recovered and regressed on his newest batch of pills from

pfeiffer.What adverse reactions did you see in your child?We noticed alot of

violent reactions and rage.This is coming from a kid who never had behavior

problems. R---- Original Message -----

From: " Gregg Cramer " <glcramer@...>

< >

Sent: Monday, December 06, 2004 4:40 PM

Subject: B-12

>

>

> Hello everyone -- My first time posting, but have been in the shadows for

> a while. This group is wonderful and so informed. Tough for a novice like

> me. I am reading all of the B-12 stories with awe. We just returned from

> an appt. with our neurologist who told us that NIH is doing a double blind

> study on B-12 to determine the benefits. She said the research/results

> should be out within 6 months.

>

> We want to start on B-12 as well, but are still struggling with his

> vitamins. We started him on recommended vitamins from Pfeiffer Treatment

> Center but his reactions have been huge. We're backing off and are going

> to try one at a time to determine the offending vitamin. My hunch is that

> it is the B-6 or zinc.

>

> We started enzymes months ago with wonderful results. Unfortunately, we

> have not been able to use only enzymes, but have still had to remain GFCF.

> I have a feeling there are more offending foods that we are not aware of,

> as he fluctuates daily in his moods, but am not sure where to begin. To

> my question: Could someone re-explain the no-phenol, what it helps; and

> the zyme prime? He is only on the Houston Neutrocitacals (spelling) AFP

> Peptide. Would either of these help to counter a possible egg allergy? or

> food allergies (he is also on soy).

>

> Sorry for the length. All thoughts are welcome. Laurie w/ son Philip

> (4-ASD).

>

>

>

>

[Guest guest]

>

> There is supposed to be B-12 in vegetable sources like chlorella and

> spirulina. Is the B-12 in this stuff usable by the body as is the meat

> sources of B-12?

>

,

They are B-12 analogs which attach to the body's B-12 receptors thus

preventing useful B-12 from doing its work.

I'm unsure about the B-12 in nutritional yeast; I asked Tom Cowan and

he didn't know either.

B.

[Guest guest]

-

>There is supposed to be B-12 in vegetable sources like chlorella and

>spirulina. Is the B-12 in this stuff usable by the body as is the meat

>sources of B-12?

No. In fact, the supposed B12 (actually B12 analogs) found in

vegetable sources compete for absorption and receptor binding with real B12.

-

[Guest guest]

If this has already been discussed, please excuse me.

Has anyone here with CMT had B-12 injections, and if so, what was your

experience?

Also, as odd as this sounds, has anyone here with CMT had a B-6 injection, and

if so, what

was your experience?

Just curious.

[Guest guest]

I'm confused. It's my understanding that B^ and CMT don't get along.

[Guest guest]

Thanks, Gretchen.

Your response makes me curious: I thought B6 was contraindicated for CMT. It

seems you had a positive experience with it, correct? Do you mind me asking you

how long you took the B6 & B12 injections?

[Guest guest]

Hi Auggie,

I got the injections about 3-4 X a year for about 4 years. It wasn't a

matter of ME " taking the B's " , but more mandated from my M.D. who kept

running tests on me and barking at me to take better care of myself. If

anything, the injections may have helped sustain energy levels at the time.

Certainly didn't have any ill effects at all.

The B Vitamins are good, just don't go overboard on them and talk with

your doc about your needs. If you are B deficient, the vitamins may

give you a 'lift'.

Here's a couple of links of B information and getting the essential nutrients

from food sources.

http://ods.od.nih.gov/factsheets/vitaminb12.asp

http://www.ods.od.nih.gov/factsheets/vitaminb6.asp

Gretchen

[Guest guest]

Hello!

I started taking B12 (2cc) and B6 (1cc) injections when I was 28. I would take

them when I started bouncing off the walls. A day after the shot my balance

would be back to normal. I now was told at 56, I should be taking 1cc of B12 a

week, and a Thiamine (1cc) injection daily. I also take 1/2 cc of Magnesium

once a week with 1/2 cc of folic acid.

I hope this helps ;-)

Kay