Guest guest Posted March 14, 2008 Report Share Posted March 14, 2008 Hello All, Kim from land, I haven't posted for awhile as my dad was ill and very recently passed away. I am writing to see if there is anyone from land inthe group. I would really like the opportunity to meet someone in the state who also has CMT. I am in the Bel-Air area of land, and am also close to Pennsylvania and Delaware. Please feel free to e-mail me. I waer bilateral afos just below the knee. I am finding more often that my thighs/quads feel very weak and for lack of better terms - " jiggly " my knees also feel as if they almost buckle, is this common for anyone else? TakeCare, Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2008 Report Share Posted March 14, 2008 Kim, So sorry about your Dad; I know what you are going through. I just moved from land; was in Owings Mills for last 45 years! It sounds like we have the same issues. My quads are extremely weak, almost non existent. Still in bilateral AFOs below the knee and am wondering if I should have gotten ones above the knee, but didn't want to overbrace. My knees hyperextend a lot and if I don't do that they will absolutely buckle. Common for those of us whose quads start to atrophy. If it wasn't for the quads, I could deal with the foot drop! Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2008 Report Share Posted March 14, 2008 I know what you mean Kim..would love to have a friend in Minnesota with CMT. I sorry about your dad..lost mine a few years ago and miss him so much. Blessings, Geri Quote Link to comment Share on other sites More sharing options...
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