Guest guest Posted March 27, 2008 Report Share Posted March 27, 2008 Amy, hi, I have very little muscle wasting - just a bit over both lower peroneal nerves. But yes, I have CMT, one of the axonal types - some kind of Type 2. This diagnosis is from an orthopedist familiar with CMT, as well as normal EMG/NCV tests showing reinnervation. My neurologist also seems to feel that I *may* have a recessive inheritance pattern. We all have different degrees of CMT, due to our unique genetic codes. Ever since childhood, and that first diagnosis, followed by surgery, I have swam, biked and walked in sand, as my orthopedists over the years have suggested and encouraged. This has helped keep my muscles in shape. I also learned early on not to push myself hard in exercise. That's my experience. Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2008 Report Share Posted March 27, 2008 Hi Amy, I don't know if it has to do with the different types of CMT, age, etc. My son, 19 now, has no visible muscle wasting in his legs. When the neuro did his EMG in Oct 2006 he said that the result would be expected in someone who was 60 and he was really surprised at the amount of strength he had in his lower legs. I don't know if maybe it's due in part to the fact that when he was younger he was very active, played soccer, always playing outside, etc. until his foot got too bad for him to do those things anymore. Also, could be some of his fathers " good " genes that are mixed in. Carmella Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2008 Report Share Posted March 27, 2008 Amy, I do have muscle wasting...calfs and starting on thighs and between thumb and index finger. Jimmy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2008 Report Share Posted March 28, 2008 Amy, I have stork legs and my arms are skinny too..Hate to even talk about my hands..My hands were very pretty. but no longer. I'm also embarrassed the way I look.I used to be pretty what happed to me! I look like my mother's mother. Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2008 Report Share Posted March 28, 2008 Since my diagnosis a couple of years ago, I have lost a lot of muscle in my calves. The bright side, This overweight girl can now zip up all of her boots with ease. (; Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2008 Report Share Posted March 28, 2008 I have muscle wasting also. I have noticed that it has been getting worse over the last several years. I walk miles every day at work and I am still losing muscle mass. My thighs are normal size and my arms are bigger than most. I use to be a weight lifting fanatic, but no matter how much I worked my legs I could not add size to my calf muscles. Most people are not aware that you have to use approximately 4 times your body weight to " breakdown " the calf muscles. A persons leg muscles carry their body weight every step of ever day and are one of the most difficult muscles in the body to tear down. What I mean by tear down...for a muscle to grow and become larger, it has to actually be torn apart and allowed to grow back together (on a very small scale). This is why people who are out to build muscle mass use a lot of weight and few reps while people who are out to tone use low weight and lots of reps. The doctor who did some of my surgeries told me I would never be able to add size to my calfs due to the CMT, but I might be able to slow the progression. I am 49 and I can tell things are getting worse faster than they once were. Stay active, and good luck! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2008 Report Share Posted March 29, 2008 Amy, I don't have as much wasting of the muscles in the calves as the limitations I have in them would suggest. However, some of my other leg muscles are harder to maintain. You would think that it would show in the calves more though. I would rather that than in other parts of my legs. My quads though are always strong and look it. I guess just more work on those other muscles is all we can do. It's not the mms that are dying rather the nerves so keep trying. That's what I do. Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2010 Report Share Posted September 16, 2010 , my mom is experiencing the same in her arms and legs. She says it's from getting older and she won't live much longer, she is 77. , may I ask your age? > > My own experience of muscle effects was extreme pain in my upper arm > muscles on almost any movement; no ability to lift my arms above > shoulder height or any distance back. As you can imagine, this was > pretty disabling. I could not even put on a jacket, as I could not move > my arms back far enough to get into the sleeves. After I discontinued > the Mevacor, the pain disappeared in about two weeks, although it took > a year to be able to touch my hands behind my back. > > > muscle wasting > > > > > > I have observed increased " wobblyness " in my upper arms and legs. > While this is natural with aging, it seems to be increasing faster than > it should. Maybe it is related to muscle wasting. > > Can anyone describe what muscle wasting is? > > Jack in Reston > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2010 Report Share Posted September 16, 2010 I'm sorry, I directed my reply to instead of Jack. Jack, would you mind if I asked your age? (I had my own problem with Zocor. I even got worse after P/T while on Zocor. Bicepital tendonitis from therapy lasted 3 months after P/T was over and started to go away 3 days after gp said I could stop the Zocor. I was told by a rhuematologist that I am getting older, and should expect these types of pains. I was 50 at the time. I can no longer work as I have no college ed, and my jobs in the past were all labor intensive, manual, production type-jobs.) Connie > > My own experience of muscle effects was extreme pain in my upper arm > muscles on almost any movement; no ability to lift my arms above > shoulder height or any distance back. As you can imagine, this was > pretty disabling. I could not even put on a jacket, as I could not move > my arms back far enough to get into the sleeves. After I discontinued > the Mevacor, the pain disappeared in about two weeks, although it took > a year to be able to touch my hands behind my back. > > > muscle wasting > > > > > > I have observed increased " wobblyness " in my upper arms and legs. > While this is natural with aging, it seems to be increasing faster than > it should. Maybe it is related to muscle wasting. > > Can anyone describe what muscle wasting is? > > Jack in Reston > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2010 Report Share Posted September 19, 2010 I forgot to add that my gp, who prescribed the statins because I am a type 2 diabetic, diagnosed me with myositis when I asked about the tendonitis and muscle pain I got from the PT, so according to him I had muscle inflammation. Connie > > > > My own experience of muscle effects was extreme pain in my upper arm > > muscles on almost any movement; no ability to lift my arms above > > shoulder height or any distance back. As you can imagine, this was > > pretty disabling. I could not even put on a jacket, as I could not move > > my arms back far enough to get into the sleeves. After I discontinued > > the Mevacor, the pain disappeared in about two weeks, although it took > > a year to be able to touch my hands behind my back. > > > > > > muscle wasting > > > > > > > > > > > > I have observed increased " wobblyness " in my upper arms and legs. > > While this is natural with aging, it seems to be increasing faster than > > it should. Maybe it is related to muscle wasting. > > > > Can anyone describe what muscle wasting is? > > > > Jack in Reston > > > Quote Link to comment Share on other sites More sharing options...
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