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Re: Phrenic Nerve Pacing

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Hi Kay,

My doctor hasn't mentioned this option. I wonder if it would that work with

CMT1A. With a demyelinated nerve, the problem isn't the signal, right? The

electrical impulse could be strong, it just can't make it all the way down the

deteriorated nerve, as I understand it. However, perhaps introducing the signal

closer to the diaphragm, so there's less distance to travel, might work. Don't

know. Just wondering. I also wonder if they can test it on the outside of your

body before inserting it, to make sure it helps first. Be interested in

whatever you find out.

My doctor did mention the possibility of " reinnervating " the diaphragm when it

becomes paralyzed. It's something they are doing for people with spinal

injuries. He didn't go into detail, but maybe this is something you might like

to ask your doctors about also?

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