Guest guest Posted April 7, 2008 Report Share Posted April 7, 2008 Thanks Gretchen for your good wishes! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2008 Report Share Posted April 8, 2008 Hi Jill, I remember when told my foot fusion had failed that I found comfort in knowing amputation was always an option, and that folks who had it done wished they'd done it sooner. Best of luck with it and please keep us posted on the recovery process. O Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2008 Report Share Posted April 9, 2008 Thanks O and to all who have replied and wished me all the best. Its reassuring to know that some people out there care, love to all and take care. Jill x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2008 Report Share Posted April 9, 2008 Hello Jill, I am sure you have a lot of supporters out here...all wishing you the best! I know I admire you, and am praying for you! Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2009 Report Share Posted April 21, 2009 I am about to have my 21st surgery. This will be my fourth calcanial osteotomy and fusion. I am not sure how much I can take. I have seriously considered amputation. I have decided that after this surgery that there will be no more on this foot. Amputation will be my next choice. I live near Peoria and would like to keep in touch. THanks, Jen In a message dated 4/21/2009 11:37:31 A.M. Central Daylight Time, slbill@... writes: On Feb. 18 I had my left leg amputated below the knee due to complication of CMT. This was a choice I made when looking at future surgeries and recovery times. Surgery went quickly. It would be more correct to say I had above-the-ankle rather than below-the-knee because I have a relatively long residual stump (9 1/2 " ) Two nights in the hospital. I was overly familiar with crutches, so getting around wasn't much more of a problem. For two weeks I wore a 'Flowtech' brace, which is a splint. It kept me from bending my knee. Much like a cast, I was very glad when it came off. It came off the same day I had the staples out. The Flowtech slips on-and-off for bandage changes, cleaning, and the occasional scratching. A few days after the FLowtech came off, I began working with the prosthetist. I took my first steps on my fake leg on March 31 with crutches bearing most of the weight. Fit checks took another week. I was able to take my leg home April 7, after my first rehab appointment - still using crutches. I work on game days for my local Arena Football team. I interact with officials, cheerleaders and promotions getting them on and off the field on time. On April 10, less than 8 weeks after surgery, I walked onto the field during pre-game, leaving my cane by the doors. I used the cane during the game, but I was able to make a short trip through the end zone without any help. Last week, i gave up the cane entirely. My gait is more " normal " than it has ever been. My blood pressure dropped 80 points after surgery - after which time they attributed my High Blood Pressure to the pain I was in. I walk easier than I have in a long, long time. I am without pain. This was a damn scary thing to do, but, so far, it has had he desired results. SLB Peoria, IL " Don't ask me. I'm stumped. " **************A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100126575x1221621490x1201450102/aol?redir=http:%2\ F%2Fwww.freecreditreport.com%2Fpm%2Fdefault.aspx%3Fsc%3D668072%26 hmpgID%3D62%26bcd%3DAprilfooter421NO62) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2009 Report Share Posted April 21, 2009 Hi Shaun, Your story really touched me and I am so happy that it turned out so well for you. I am sure that your wonderful attitude has a lot to do with your success. I wish you many Blessings in your life! Warmest wishes, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2009 Report Share Posted April 22, 2009 i read this post and must say it took alot of guts to do this, i am considering the same thing, fusion on my ankle only made it worse, i was still working before the surgery now my foot turns so much i have been forced to give up working. the doctor says he can't do much with it now, altho i have been asking about a do over on my ankle, do overs are free! arent they? when i bring up amputation my doc says my foot is still healthy enough he dosent want to do that however the pain somedays is unbearable and now my knee is starting to hurt. i would like to know just how bad your pain was and the deformity to bring you to this decision, how did you talk your doctor into this? and how are you doing today? I read the posts in this network everyday the good and the bad, the info is awesome, my hats off to everybody living with this diseaes, have a good day everbody. Jim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2009 Report Share Posted April 22, 2009 Jim: Have you ever tried using ankle foot ortheses? My feet turn in too and use AFOs to support my ankle and foot. I've been using them for 11 years now....no problems. They are no cure, but puts your foot in the right place so deformity does not occur. Marin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2009 Report Share Posted April 22, 2009 Shaun, I agree and you are very brave too.......My dad had both of hid feet taken off above below the knee and one above the knee he was a brave too. Blessings Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2009 Report Share Posted April 23, 2009 , yes i wear afos on both feet, they help alot, my thoughts are if i do this then maybe i could return to work, i was a auto technician, i loved this job and miss it like crazy, standing for 8 hours in these afos is out of the question, they are not that comfortable plus no one will hire me wearing these, i would like to return to what i know and love, being a stay at home dad isnt bad but i wanna fix cars, seems dumb i know, i am not a sit on my butt and do not much kinda person, i need to be busy, my boys, housework cooking and cleaning help but i need more, i need to be challenged Jim - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2009 Report Share Posted April 23, 2009 Hi all, I took the same course of action after a fusion to the knee made things worse, I had an above knee amp. in July, 08 and have no regrets or pain! Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2009 Report Share Posted April 23, 2009 Jim: I totally understand what you mean about standing in AFOs for long periods of time. If I did that I would have pain going up from my feet. Horrible. Do you have the skills to work at the register or being a secretary/administrative assistant at a car shop? I think your skills as a tech, is very important as a part of these jobs. This is due to you understanding how much work you put into fixing cars. You can help the customers if they have questions. If not interested, you can always start your own business fixing cars. Quote Link to comment Share on other sites More sharing options...
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