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In response to Judith's post, I totally agree that is far more

relevant and up to date for me than CMTUK.

I have taken to telling my doctors about it and suggesting they do their

research here (my general doctors that is not my specialists as I am at the

neuromuscular clinic at the UK National Hospital for Neurology and

Neurosurgery).

Thanks Gretchen and the silent moderators for all their work!

Best wishes,

Donna from London

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