Re: headaches associated with CMT?

[Guest guest]

Can you describe the headache?  Where does it hurt?  What type of pain?  Does he

wake up with it or does it come on later in the day?  Does it go away during the

day?  Is it worse with the seasons?  Is he sensitive to light & noise?

There are many types of headaches and many causes.  One common cause among CMT

patients is C02 retention related to breathing weaknesses.  If he wakes up with

the headache and it's worse in the morning, then eases up during the day, it may

be C02 retention.  In that case, a sleep study would be a good idea.

The headaches could also be related to his back/neck/shoulder issues.

If you'd like to provide more detail, we can share related experiences.

[Guest guest]

Maybe your husband is out of ailment and should see a well known

Chiropractor? I know that has helped me.

Kay~Seaside Oregon

[Guest guest]

I would suggest the same as I work for a chiropractor and he treats a lot of

patients for headaches with much success. There is always the chance that there

is another underlying condition, but it is worth trying.

Teri

[Guest guest]

Well I have CMT and I also had horrible migraines at the worst possible

times (like ten minutes before a job interview!) Once I stopped

drinking coffee and chocolate, the headaches became less and less

frequent, gradually diminishing to zero in the last 8 years. Making

those changes was a good choice for me. Migraines sent me immediately

to bed in a dark room with a cold cloth on my head. If I got up too

soon, I was nauseous.

I had two head injuries in my teens and 20's - it seemed like the

migraines came on after that. One scan of my brain showed enlarged

brain ventricles. The jury was out on whether I was born that way or it

was from the trauma. However, three neurologists concluded these

headaches were not CMT related at all.

Gretchen

Gretchen

[Guest guest]

I have headaches. I think they are caused from looking down at the ground all

the time. I went to the chiropractor for x rays and treatment. After 4 weeks of

seeing him twice a week my head aches are much better. With me my neck, disks

are messed up a bit. They cause the area to swell and that blocks off the

circulation. I loose much needed blood and my spinal fluid has a hard time

getting to my head. All that equals headache. I LOVE my chiropractor. Another

thing that helps is a headache medicine with a neck muscle relaxer.

[Guest guest]

I stay away from all caffeine. I get so sick if I drink it.

[Guest guest]

I'm not sure if migraines are CMT related or not. My experience with migraines

I really believe was from my neck/back being out of alignment/pinched nerves. I

had all the symptoms--sensitive to light/sound, vomiting, severe weakness while

having one. These symptoms could last for hours!! I started having them when I

was around five years old and had them up until I had three of my four children.

When I was little the doctors did brain scans on me because they thought I had a

brain tumor--of course didn't find anything wrong. They couldn't figure

anything out--so my parents started taking me to chiropractors.

I was able to virtually eliminate them with chiropractic help many times within

45 minutes to an hour after an adjustment. I also discovered that certain types

of chocolate, malt mix brought them on. I have also eliminated caffeine. About

six years ago I had neck surgery to rebuild vertebrae in my

neck.... " knock-on-wood " I haven't had a migraine in several years!! Don't give

up--I know of others who have used acupuncture with great results too.

Crock

[Guest guest]

I tend to think that is onto something. I find with my own physical state

and my exercise, if I overdo or focus on one thing I can feel it. I get

headaches when that thing forces me to look differently to a " normal " plane of

vision.

Good luck everyone!

Donna