Re: Congress Near Deal on Genetic Test Bias Bill

[Guest guest]

If this passes, it's great news!  Everyone may already be aware of this, but

just in case, I thought I'd mention that this law won't apply to CMT.

As the article indicated, " GINA does not prohibit discrimination once someone

already has a disease, and some experts said such protection would have to be

the next step. "

Genetic testing for CMT actually proves we have the disease.  It's not a

" marker " indicating we might get it in the future.  Once someone has a disease,

insurance companies can discriminate in many situations, i.e. individual medical

plans, life insurance, disability insurance, long-term care insurance.

The only way to protect an asymptomatic person is to not test.

http://www.nlm.nih.gov/medlineplus/ency/article/002217.htm