Nerve Conduction Studies

[Guest guest]

Hi All,

I have a question for you. How common is it to have " no response " on your Nerve

Conduction Studies (NCS)? A couple of years ago, when I was first diagnosed, I

had no response in all of my sensory nerves, but most of my motor nerves had

some response, although the response was very slow. I recently had another NCS

and I'm down to just one motor nerve in one arm that has any response and it was

barely detectible. All other motor & sensory nerves showed no response. The

doctor described this as " severe " and " significantly worse " than two years ago.

It's a little 'unnerving', if you will, to get these results. (bad joke, I

know)

Is this common for everyone? Is there anyone out there who has no responses at

all and if so, what is your physical condition? Are you still able to work? to

walk? what kind of pain level do you have? how long have you had no responses?

did your deterioration progress this fast?

Thank you!

(44 yrs, CMT 1A, disabled 1 year)

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[Guest guest]

Hi ,

I had NCS about 3 years ago when my arms were hurting alot and I was on a

computer all day at work. They said the NCS was inconclusive because they could

not get any response from my nerves. Their suggestion was to try to work only

part time. That was not an option for that particular job. I finally quit that

job and am on my 5th job since. Each job has been more than challenging in one

way or another and the pay has been escallating downward.

There were parts of my new job that I was not able to do but they are willing to

work with me because they said some of my other skills are exceptional and they

are willing to work around my disability. Of course I did not start the job

saying " I have CMT " but it became evident quite fast. Luckily these people are

being really nice about it. Unfortunately I am making less than half of what I

did just 3 years ago. Sigh!

I have problems with my arms hurting if I over use them (It doesnt' take much to

overuse them) and when it gets cold my thumbs become almost non existant and I

can only use my 4 fingers. Hard to accomplish much of anything with just

fingers.

I also have problems with my legs, foot drop and severe imbalance problems. I

have AFOs but find them very clumsy feeling. Walking with a cane seems to help

the most.

I am 52 yrs old and am finding working really tough but I have heard how hard SS

benefits are to get and dread the thought of going through it.

I wish I could make this sound better but it is what it is. Keeping a positive

attitude is something I have always tried to do and pretend that I can take all

this in stride but if someone really wants the truth......this is it.

Cyndi

[Guest guest]

I have a no response on almost everything, yet I still manage to do pretty

much everything I want to (I do for example a half triathlon although I do

not run). What is important is monitoring change and how you feel

correlated to the change. There is no " science " that predicts or sadly that

can help, at this stage.

Good luck,

Donna from London